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Gleason Score - Upgrades & Downgrades.
Two new studies below. We are all beyond biopsies for initial diagnosis, but this subject drives me crazy. We all know that PSA has poor specificity for PCa. Over the past 13 years, I have read countless papers showing that a panel of tests (the panels invariably include PSA) do much better. It is clear
Two new studies below. We are all beyond biopsies for initial diagnosis, but this subject drives me crazy. We all know that PSA has poor specificity for PCa. Over the past 13 years, I have read countless papers showing that a panel of tests (the panels invariably include PSA) do much better. It is clear
pjoshea13
in
Advanced Prostate Cancer
7 years ago
I am new here
Hi there. I have been following the posts on here since I was diagnosed last September with OC. I had stage 1c1 clear cell, I had the radical hysterectomy, and lymph nodes removed etc. Due to my cycst rupturing during surgery last August I was then started last September on chemo due to the cancer being
Hi there. I have been following the posts on here since I was diagnosed last September with OC. I had stage 1c1 clear cell, I had the radical hysterectomy, and lymph nodes removed etc. Due to my cycst rupturing during surgery last August I was then started last September on chemo due to the cancer being
Janetmargaret
in
My Ovacome
7 years ago
Spasms
Just wanted to pass on this news...my husband was getting severe spasms all night long in his legs. We have medical marijuana cards but found out it's $500 an ounce. I decided have him try cbd oil/hemp oil in capsules. For those that don't know its cannabinol/hemp with no thc to make you high. He
Just wanted to pass on this news...my husband was getting severe spasms all night long in his legs. We have medical marijuana cards but found out it's $500 an ounce. I decided have him try cbd oil/hemp oil in capsules. For those that don't know its cannabinol/hemp with no thc to make you high. He
mcheri
in
My MSAA Community
7 years ago
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prostate cancer patient, just received my first post RP ultra sensitive PSA reading above testing threshold, looking for advice and support
Hello, many thanks in advance. Looking for others that are in my situation or have been in my situation in the past. Ideally would like to find those that have had a non zero low measurable PSA indefinitely for years that have avoided BCR (biochemical recurrence). I have two friends that have been in
Hello, many thanks in advance. Looking for others that are in my situation or have been in my situation in the past. Ideally would like to find those that have had a non zero low measurable PSA indefinitely for years that have avoided BCR (biochemical recurrence). I have two friends that have been in
jronne
in
Advanced Prostate Cancer
7 years ago
Recently joined
I was recently diagnosed with advanced prostate cancer. 62 years old and otherwise in very good shape. I had a radical prostatectomy back in 2014 (Gleason score 8). Everything fine since then and PSA under control (about 0.875). I developed lower back pains in about April and initially sought remedy
I was recently diagnosed with advanced prostate cancer. 62 years old and otherwise in very good shape. I had a radical prostatectomy back in 2014 (Gleason score 8). Everything fine since then and PSA under control (about 0.875). I developed lower back pains in about April and initially sought remedy
Ian2017
in
Advanced Prostate Cancer
7 years ago
does anyone use medical marijuana (cannabis) for dyskinesias and distonia?
hi, has anyone found the use of medical marijuana helpful for dyskinesias or distonia? i dont have tremors, but i have severe end-of-dose dyskinesias and early morning distonia of feet and toes. also, is it a long process to get it? i am in ny state. thanks in advance!
hi, has anyone found the use of medical marijuana helpful for dyskinesias or distonia? i dont have tremors, but i have severe end-of-dose dyskinesias and early morning distonia of feet and toes. also, is it a long process to get it? i am in ny state. thanks in advance!
jujulini
in
Cure Parkinson's
7 years ago
Checkpoint inhibitor therapy.
This post is prompted by a presentation at the American Society for Radiation Oncology (ASTRO) meeting yesterday. "To better define the immune landscape of localized prostate cancer, researchers examined 9,393 tumor samples from men who underwent a radical prostatectomy ..." [1] I'll focus on PD-L1 &
This post is prompted by a presentation at the American Society for Radiation Oncology (ASTRO) meeting yesterday. "To better define the immune landscape of localized prostate cancer, researchers examined 9,393 tumor samples from men who underwent a radical prostatectomy ..." [1] I'll focus on PD-L1 &
pjoshea13
in
Advanced Prostate Cancer
7 years ago
Marinol and other cannabinoids
But also realize there's a reason why they aren't pushing Marinol for other conditions that
medical
cannabis
has really become notable for... the other cannabinoids absent in Marinol make a difference, too. A profound one. My best,
But also realize there's a reason why they aren't pushing Marinol for other conditions that
medical
cannabis
has really become notable for... the other cannabinoids absent in Marinol make a difference, too. A profound one. My best,
ItsChris
in
My MSAA Community
7 years ago
MEDICAL MARIJUANA
I have two sample requests for CBD I need one more. Suggestions please. I read somewhere from the husband of a Parkinson's sufferer who was absolutely singing the praise for medical marijuana but unfortunately I cannot find that particular post to pay more attention. He said that since his wife had
I have two sample requests for CBD I need one more. Suggestions please. I read somewhere from the husband of a Parkinson's sufferer who was absolutely singing the praise for medical marijuana but unfortunately I cannot find that particular post to pay more attention. He said that since his wife had
Hidden
in
Restless Legs Syndrome
7 years ago
Restless leg relief?
From time to time at bedtime I develop a hollow, twitching feeling in my legs that makes it impossible to sleep or get comfortable. To stop it, I've been taking 200 mg of Gabapentin and that seems to work but I don't want to keep taking it on a daily basis as it causes fatigue and numbness. Also, please
From time to time at bedtime I develop a hollow, twitching feeling in my legs that makes it impossible to sleep or get comfortable. To stop it, I've been taking 200 mg of Gabapentin and that seems to work but I don't want to keep taking it on a daily basis as it causes fatigue and numbness. Also, please
jenniferdunstan
in
Cure Parkinson's
7 years ago
MEDICAL MARIJUANA UPDATE
Hi again everyone. CBD Brothers have requested I email them with my selection for three cannabis oil samples. As I have not had any experience with this type medication before, I would truly appreciate some advice on what I should try. As everyone on this site can testify, we have all suffered severely
Hi again everyone. CBD Brothers have requested I email them with my selection for three cannabis oil samples. As I have not had any experience with this type medication before, I would truly appreciate some advice on what I should try. As everyone on this site can testify, we have all suffered severely
Hidden
in
Restless Legs Syndrome
7 years ago
MEDICAL MARIJUANA
Hi everyone just want to bring you up to date with what's happening with me. I have finally heard back from CBD BROTHERS and they're sending me some samples, I will keep you posted on how they work. .
Hi everyone just want to bring you up to date with what's happening with me. I have finally heard back from CBD BROTHERS and they're sending me some samples, I will keep you posted on how they work. .
Hidden
in
Restless Legs Syndrome
7 years ago
Radical Prostatectomy [RP] versus Radiotherapy.
New study below. (Somewhat off-topic, but newly-diagnosed men sometimes seek advice from old-timers.) I find it interesting that the subject has not yet been laid to rest, but there are vocal oncologists who deny that RP gives better survival results. "We analyzed 268,378 men with intermediate-risk
New study below. (Somewhat off-topic, but newly-diagnosed men sometimes seek advice from old-timers.) I find it interesting that the subject has not yet been laid to rest, but there are vocal oncologists who deny that RP gives better survival results. "We analyzed 268,378 men with intermediate-risk
pjoshea13
in
Advanced Prostate Cancer
7 years ago
Low testosterone & high-risk prostate cancer
New study below. "... mean free (6.2 vs. 5.2 ng/dL ...) and bioavailable (151 vs. 125 ng/dL ...) testosterone levels were found to be significantly different in men with low-intermediate and high-risk prostate cancer." "Moreover, a significant correlation was found between free, and bioavailable testosterone
New study below. "... mean free (6.2 vs. 5.2 ng/dL ...) and bioavailable (151 vs. 125 ng/dL ...) testosterone levels were found to be significantly different in men with low-intermediate and high-risk prostate cancer." "Moreover, a significant correlation was found between free, and bioavailable testosterone
pjoshea13
in
Advanced Prostate Cancer
7 years ago
Phytanic Acid
Sisira brought the subject up, in the context of red meat. He quotes Dr. Myers" "He says in more than 100 papers in scientific literature that he has read, phytanic acid present in these foods can promote the growth and spread of prostate cancer." & "Dr. Patrick Walsh in his book "Guide to Surviving
Sisira brought the subject up, in the context of red meat. He quotes Dr. Myers" "He says in more than 100 papers in scientific literature that he has read, phytanic acid present in these foods can promote the growth and spread of prostate cancer." & "Dr. Patrick Walsh in his book "Guide to Surviving
pjoshea13
in
Advanced Prostate Cancer
7 years ago
Radical prostatectomy & bone oligometastases?
New study below. My RP surgeon told me that his second patient, with lesser cancer than me, was stapled back up after the pathologist found cancer in one of the lymph nodes. I wonder how that man felt when he learned that he still had a prostate. I can't believe leaving it in had a neutral effect on
New study below. My RP surgeon told me that his second patient, with lesser cancer than me, was stapled back up after the pathologist found cancer in one of the lymph nodes. I wonder how that man felt when he learned that he still had a prostate. I can't believe leaving it in had a neutral effect on
pjoshea13
in
Advanced Prostate Cancer
7 years ago
Marijuana Gummies versus Tincture drops
So experimenting with medical marijuana, gummies have bad after taste took 1/2 one didn't work took another 1/2 worked great pain from 8 to 4, slept 4 hours. Tried drops last night, bad after taste worked great pain 8 to 1, slept 5 hours. So nice to get some good sleep!
So experimenting with medical marijuana, gummies have bad after taste took 1/2 one didn't work took another 1/2 worked great pain from 8 to 4, slept 4 hours. Tried drops last night, bad after taste worked great pain 8 to 1, slept 5 hours. So nice to get some good sleep!
cnichols
in
My MSAA Community
7 years ago
2nd half of Ocrevus done
Completed 2nd half, feel great. After infusion went to the dispensary to get some CBD oil and green apple flavored gummies. Hoping it works for pain and to be able to sleep. Keep laughing because I have only taken 2 puffs of marijuana in my life and now I have a medical marijuana card.
Completed 2nd half, feel great. After infusion went to the dispensary to get some CBD oil and green apple flavored gummies. Hoping it works for pain and to be able to sleep. Keep laughing because I have only taken 2 puffs of marijuana in my life and now I have a medical marijuana card.
cnichols
in
My MSAA Community
7 years ago
"Is choline-based PET imaging still relevant ..."
New paper [2] & editorial [1] below. -Patrick [1] http://onlinelibrary.wiley.com/doi/10.1111/bju.13813/full "The search for the ideal imaging method to detect small metastatic deposits has largely remained elusive in the field of prostate cancer. However, functional positron emission tomography (PET
New paper [2] & editorial [1] below. -Patrick [1] http://onlinelibrary.wiley.com/doi/10.1111/bju.13813/full "The search for the ideal imaging method to detect small metastatic deposits has largely remained elusive in the field of prostate cancer. However, functional positron emission tomography (PET
pjoshea13
in
Advanced Prostate Cancer
7 years ago
Diagnosis + 18 years; update since Xofigo
I finished Xofigo last October. My experience with it was good. Minimal side effects, no complications. Pain relief from multiple bone mets started after about 6 weeks on Xofigo. PSA was .66 on completion of Xofigo treatments. Unfortunately in January I fractured my T7 & T8 vertebrae in a fall. Fortunately
I finished Xofigo last October. My experience with it was good. Minimal side effects, no complications. Pain relief from multiple bone mets started after about 6 weeks on Xofigo. PSA was .66 on completion of Xofigo treatments. Unfortunately in January I fractured my T7 & T8 vertebrae in a fall. Fortunately
chascri
in
Advanced Prostate Cancer
7 years ago
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