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Can’t sleep
I have been dealing with RLS for 15 years and have been taking Ropinirole. I had to increase the dose because it wasn’t working. I saw my doctor and he recommended taking extended release. I haven’t slept more than 2 hours a night for over a week. I’m so exhausted and depressed. I’ve even tried medical
I have been dealing with RLS for 15 years and have been taking Ropinirole. I had to increase the dose because it wasn’t working. I saw my doctor and he recommended taking extended release. I haven’t slept more than 2 hours a night for over a week. I’m so exhausted and depressed. I’ve even tried medical
Mommalicious
in
Restless Legs Syndrome
5 years ago
First post
I will be looking into
medical
cannabis
. Need to get the sinemet dosage down which causes the dyskinesia in the first place,,,this is a nightmare and I'm only 3 years in at 56 years old.. God speed to all of you....
I will be looking into
medical
cannabis
. Need to get the sinemet dosage down which causes the dyskinesia in the first place,,,this is a nightmare and I'm only 3 years in at 56 years old.. God speed to all of you....
TheLordsWeapon
in
Cure Parkinson's
5 years ago
Has anyone tried medical marijuana?
If so have you found it helpful? Which symptoms has it helped? Has it replaced any of your medications? What CBD/THC mix do you use? I'm curious because it seems to have less side-effects than some medication.
If so have you found it helpful? Which symptoms has it helped? Has it replaced any of your medications? What CBD/THC mix do you use? I'm curious because it seems to have less side-effects than some medication.
Hidden
in
Ataxia UK
5 years ago
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CLL and Medical Marijuana
Has anyone found Medical marijuana CBD/THC tincture to be helpful with sleep and anxiety due to watch and wait stage? Injesting anything foreign is a concern with a compromised immune system but the same can be said for Chemo. ?
Has anyone found Medical marijuana CBD/THC tincture to be helpful with sleep and anxiety due to watch and wait stage? Injesting anything foreign is a concern with a compromised immune system but the same can be said for Chemo. ?
Madprofessor22
in
CLL Support
5 years ago
Update: AR-V7 & peeing problems
A couple of months ago my husband tested positive for AR-V7, today's result came back 'no detection found'...we're excited about that news! I had posted earlier about the peeing problems, not feeling like he could empty and not being able to go at all for a day or so just a couple of weeks ago. When
A couple of months ago my husband tested positive for AR-V7, today's result came back 'no detection found'...we're excited about that news! I had posted earlier about the peeing problems, not feeling like he could empty and not being able to go at all for a day or so just a couple of weeks ago. When
Advo__cate
in
Advanced Prostate Cancer
5 years ago
Sural Nerve Graft post RP to fix Erectile Dysfunction
Hi guys, I’ve been researching nerve grafting for Erectile dysfunction post radical prostatectomy. I just miss the good old days of spontaneity and the Tri-mix injections are...well...just not spontaneous. Do any of you have experience with this procedure? Have any of you overcome ED after several
Hi guys, I’ve been researching nerve grafting for Erectile dysfunction post radical prostatectomy. I just miss the good old days of spontaneity and the Tri-mix injections are...well...just not spontaneous. Do any of you have experience with this procedure? Have any of you overcome ED after several
Hidden
in
Advanced Prostate Cancer
5 years ago
ADT used to stop producing H-Testoterone (ng/dL)?
Stage 4, 6 Mets. to the bone. July , 2013 positive biopsy Gleason score 8. Radical prostatectomy August 2013, IMRT (43) March 2014, start ADT eligard July 2014 to November 2016, since December 2016 I’m in Eligard with Zytiga and prednisone 5mg. Quality of life, so far good. But I worry that the PSA is
Stage 4, 6 Mets. to the bone. July , 2013 positive biopsy Gleason score 8. Radical prostatectomy August 2013, IMRT (43) March 2014, start ADT eligard July 2014 to November 2016, since December 2016 I’m in Eligard with Zytiga and prednisone 5mg. Quality of life, so far good. But I worry that the PSA is
kikepana
in
Advanced Prostate Cancer
5 years ago
Marijuana!!
The law changed allowing doctors to prescribe
medical
cannabis
, however not one single person has received an NHS prescription since the law change! I travelled to Holland to buy the oils for Murray myself. I had to break the law. I am glad I did as he is a million times better.
The law changed allowing doctors to prescribe
medical
cannabis
, however not one single person has received an NHS prescription since the law change! I travelled to Holland to buy the oils for Murray myself. I had to break the law. I am glad I did as he is a million times better.
monkeybus
in
AMN EASIER
5 years ago
Obesity at diagnosis and prostate cancer prognosis and recurrence risk following primary treatment by radical prostatectomy
https://cebp.aacrjournals.org/content/early/2019/08/28/1055-9965.EPI-19-0488?rss=1 Background: The association of obesity at diagnosis with prostate cancer progression is uncertain. This study aimed to examine the relationship between body mass index (BMI; 18.5-<25, 25-<30, 30-<35, ≥35kg/m2) and prognostic
https://cebp.aacrjournals.org/content/early/2019/08/28/1055-9965.EPI-19-0488?rss=1 Background: The association of obesity at diagnosis with prostate cancer progression is uncertain. This study aimed to examine the relationship between body mass index (BMI; 18.5-<25, 25-<30, 30-<35, ≥35kg/m2) and prognostic
GranPaSmurf
in
Advanced Prostate Cancer
5 years ago
AMS 800 Urinary Sphincter
My radical prostatectomy was in March 2017; in August 2018 I had an AMS 800 urinary sphincter implanted. When I recovered from the implantation I was left with a tiny sore spot on the surface of my scrotum. All three of my urologists are mystified, since the sore spot isn't where the work was done. Has
My radical prostatectomy was in March 2017; in August 2018 I had an AMS 800 urinary sphincter implanted. When I recovered from the implantation I was left with a tiny sore spot on the surface of my scrotum. All three of my urologists are mystified, since the sore spot isn't where the work was done. Has
Hidden
in
Prostate Cancer And Gay Men
5 years ago
Endometriosis diagnosed 30 years ago and have had nothing done since then where do I go for help support and advice.
I was diagnosed over 30 years ago with endometriosis and have had problems with polyps, fibroids and cysts with painful periods since being a teenager at 15!but am now 2 years into the menopause at 53 and still having problems. how do I get a private hysterectomy done as I am still in agony. What do
I was diagnosed over 30 years ago with endometriosis and have had problems with polyps, fibroids and cysts with painful periods since being a teenager at 15!but am now 2 years into the menopause at 53 and still having problems. how do I get a private hysterectomy done as I am still in agony. What do
Elena1234
in
Endometriosis UK
5 years ago
Doctors not prescribing medicinal cannabis due to lack of clinical trials
Doctors not prescribing medicinal cannabis due to lack of clinical trials https://www.theguardian.com/society/2019/jul/03/doctors-not-prescribing-medicinal-cannabis-due-to-lack-of-clinical-trials? Britain still way behind when it comes to the old medical Marijuana.
Doctors not prescribing medicinal cannabis due to lack of clinical trials https://www.theguardian.com/society/2019/jul/03/doctors-not-prescribing-medicinal-cannabis-due-to-lack-of-clinical-trials? Britain still way behind when it comes to the old medical Marijuana.
monkeybus
in
AMN EASIER
5 years ago
Stem cell treatment for incontinence?
Has anyone had any experience with this treatment following radical prostatectomy and radiation? There are seemingly legitimate clinics claiming that injecting stem cells into a damaged sphincter can help to rejuvenate it and improve the degree of (or achieve) continence, but the few papers I've found
Has anyone had any experience with this treatment following radical prostatectomy and radiation? There are seemingly legitimate clinics claiming that injecting stem cells into a damaged sphincter can help to rejuvenate it and improve the degree of (or achieve) continence, but the few papers I've found
Istomin
in
Advanced Prostate Cancer
5 years ago
Psa 0.4 ?
Hey there, My dad has had a much needed 5 week holiday in the sun post diagnosis and treatment. We’ve all had a break from this crappy disease consuming us daily. Now it’s back to reality though. Dads first psa reading post radiation for a bone met and two months on Zoladex was 0.4 (down from 1.4).
Hey there, My dad has had a much needed 5 week holiday in the sun post diagnosis and treatment. We’ve all had a break from this crappy disease consuming us daily. Now it’s back to reality though. Dads first psa reading post radiation for a bone met and two months on Zoladex was 0.4 (down from 1.4).
Mish80
in
Advanced Prostate Cancer
5 years ago
Patient-reported outcomes after open RP, laparoscopic RP & permanent prostate brachytherapy.
New study from Japan [1]. "Urinary function and bother were worst after laparoscopic radical prostatectomy, especially in the early postoperative phase, whereas urinary obstructive/irritative symptom, bowel function and bother were worse after permanent prostate brachytherapy." -Patrick [1] https://
New study from Japan [1]. "Urinary function and bother were worst after laparoscopic radical prostatectomy, especially in the early postoperative phase, whereas urinary obstructive/irritative symptom, bowel function and bother were worse after permanent prostate brachytherapy." -Patrick [1] https://
pjoshea13
in
Advanced Prostate Cancer
5 years ago
PET-CT With 18F-Fluciclovine and 68Ga-PSMA-11 in Patients With Early Biochemical Recurrence After Prostatectomy
TAKE-HOME MESSAGE •This prospective, single-center trial evaluated 18F-fluciclovine PET/CT and 68Ga-PSMA-11 PET/CT for patients with early biochemical recurrence after prostatectomy. Detection rates were higher with PSMA PET/CT (56% vs 26%). •The study authors concluded that, based on higher
TAKE-HOME MESSAGE •This prospective, single-center trial evaluated 18F-fluciclovine PET/CT and 68Ga-PSMA-11 PET/CT for patients with early biochemical recurrence after prostatectomy. Detection rates were higher with PSMA PET/CT (56% vs 26%). •The study authors concluded that, based on higher
Balsam01
in
Advanced Prostate Cancer
5 years ago
Early Dutasteride Monotherapy in Patients With Elevated PSA Following Robot-Assisted Radical Prostatectomy
Interesting new study (off-topic for most of us) [1]. "We retrospectively analyzed RARP patients whose pathological stage is T2a to T3b without lymph node or distant metastasis from 2007 to 2017. All patients received a daily dose of 0.5 mg of dutasteride {Avodart} when post-RARP {Robot-Assisted Radical
Interesting new study (off-topic for most of us) [1]. "We retrospectively analyzed RARP patients whose pathological stage is T2a to T3b without lymph node or distant metastasis from 2007 to 2017. All patients received a daily dose of 0.5 mg of dutasteride {Avodart} when post-RARP {Robot-Assisted Radical
pjoshea13
in
Advanced Prostate Cancer
5 years ago
Medical cannabis, safe, effective for elderly
https://www.medscape.com/viewarticle/912624?src=WNL_infoc_190523_MSCPEDIT_AGS&uac=97343EZ&impID=1971977&faf=1 Interesting read, particularly reduction of opioids. Might give reassurance for some to try? (Might not help PMR directly, but a good night’s sleep will help, plus any additional aches and pains
https://www.medscape.com/viewarticle/912624?src=WNL_infoc_190523_MSCPEDIT_AGS&uac=97343EZ&impID=1971977&faf=1 Interesting read, particularly reduction of opioids. Might give reassurance for some to try? (Might not help PMR directly, but a good night’s sleep will help, plus any additional aches and pains
Soraya_PMR
in
PMRGCAuk
5 years ago
Alternative Therapies
I'm new here. My radical prostatectomy took place in March 2017; in August 2018 I had an artificial urinary sphincter implanted to help with incontinence issues. Are there alternative treatments like acupuncture or CBD ointments that could help (1) overactive bladder; or (2) diminished libido? Could
I'm new here. My radical prostatectomy took place in March 2017; in August 2018 I had an artificial urinary sphincter implanted to help with incontinence issues. Are there alternative treatments like acupuncture or CBD ointments that could help (1) overactive bladder; or (2) diminished libido? Could
Hidden
in
Prostate Cancer And Gay Men
5 years ago
PSA up again after 30 days
Husbands second PSA in 30 days went up again but not by much but went up. July he went from undetectable to 0.15 they MSK asked him to repeat in 30 days results now 0.18 still under 1. The ADT has been out of his system since July and his Testerone came back from 39 to 250. Same month as the PSA test
Husbands second PSA in 30 days went up again but not by much but went up. July he went from undetectable to 0.15 they MSK asked him to repeat in 30 days results now 0.18 still under 1. The ADT has been out of his system since July and his Testerone came back from 39 to 250. Same month as the PSA test
Armywifedublin
in
Advanced Prostate Cancer
5 years ago
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