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Mantle cell lymphoma (MCL)
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He’s home! Hurrah!
After 7 weeks in hospital my husband is home. Initially they were treating him for an infection and no antibiotics were touching it. It was only when they got the bone marrow culture showing Hodgkins transformation that he turned a corner. The ABVD chemo was a game changer. He had two chemos in hospital
After 7 weeks in hospital my husband is home. Initially they were treating him for an infection and no antibiotics were touching it. It was only when they got the bone marrow culture showing Hodgkins transformation that he turned a corner. The ABVD chemo was a game changer. He had two chemos in hospital
Fowey2009
in
CLL Support
2 years ago
‘World's 1st' fetal brain stem cell transplant effective in Parkinson's disease: study
CHA University Bundang Medical Center (CBMC) said on Monday that its researchers proved the safety and effectiveness of dopamine neural precursor cells derived from fetal mesenchymal stem cells transplanted into patients with Parkinson's disease "for the first time in the world." Cell replacement therapy
CHA University Bundang Medical Center (CBMC) said on Monday that its researchers proved the safety and effectiveness of dopamine neural precursor cells derived from fetal mesenchymal stem cells transplanted into patients with Parkinson's disease "for the first time in the world." Cell replacement therapy
Baron1
in
Cure Parkinson's
1 year ago
Allopurinol with V &O treatment for CLL
Has ànyone taken Allopurinol to prevent tumor lysis with Gazyva and Venclexta treatment? How long did you take it and has anyone had an allergic reaction to it?
Has ànyone taken Allopurinol to prevent tumor lysis with Gazyva and Venclexta treatment? How long did you take it and has anyone had an allergic reaction to it?
Gradyboy
in
CLL Support
2 years ago
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Treat-to-target recommendations in giant cell arteritis and polymyalgia rheumatica - a very useful reference to show your doctor
https://ard.bmj.com/content/early/2023/02/23/ard-2022-223429 This is Open Access so everyone can read it. It is something I think we should all have a read of, some will be beyond most of us and some is just plain boring but there are points in it everyone will understand and can bring to the notice
https://ard.bmj.com/content/early/2023/02/23/ard-2022-223429 This is Open Access so everyone can read it. It is something I think we should all have a read of, some will be beyond most of us and some is just plain boring but there are points in it everyone will understand and can bring to the notice
PMRpro
Ambassador
in
PMRGCAuk
1 year ago
My MD Anderson doctor is leaving
I received a letter on Saturday that my oncologist at MD Anderson, Dr. Philip Thompson, is leaving effective January 3, 2023. Nooooooooo! Dr. Thompson is originally from Australia and has made the decision to return to Melbourne and join the Low-Grade Lymphoma and CLL group at the Peter MacCallum Cancer
I received a letter on Saturday that my oncologist at MD Anderson, Dr. Philip Thompson, is leaving effective January 3, 2023. Nooooooooo! Dr. Thompson is originally from Australia and has made the decision to return to Melbourne and join the Low-Grade Lymphoma and CLL group at the Peter MacCallum Cancer
Lisa-1959
in
CLL Support
2 years ago
Starting treatment
Hello everyone, I've been on W&W Since Jan 2020. Two weeks ago at my consultation my consultant said its time for treatment, that week I had a CT scan, blood tests and an echo heart test. My next step I assumed would be a meeting regarding my treatment, however she called today to say I need a pet
Hello everyone, I've been on W&W Since Jan 2020. Two weeks ago at my consultation my consultant said its time for treatment, that week I had a CT scan, blood tests and an echo heart test. My next step I assumed would be a meeting regarding my treatment, however she called today to say I need a pet
mfc86
in
CLL Support
2 years ago
parietal cell antibody lab results
I’m having trouble interpreting my lab results. My Parietal Cell Antibody IgG value is 33.2 units and it said the standard range is 0.0-24.9 units. So it’s above the standard range but not by much. Apparently above 25 units is positive so that means I’m positive? I just want to confirm.
I’m having trouble interpreting my lab results. My Parietal Cell Antibody IgG value is 33.2 units and it said the standard range is 0.0-24.9 units. So it’s above the standard range but not by much. Apparently above 25 units is positive so that means I’m positive? I just want to confirm.
Purplegirl2
in
Pernicious Anaemia Society
1 year ago
Travel insurance within the UK.
I'm travelling from Essex to Belfast next month and am looking for travel insurance. With belfast being in the UK I wonder if I actually need cover anyway. I am over 200 days post stem cell transplant and it will be my first time travelling abroad as such since the start of covid in 2020. I am considering
I'm travelling from Essex to Belfast next month and am looking for travel insurance. With belfast being in the UK I wonder if I actually need cover anyway. I am over 200 days post stem cell transplant and it will be my first time travelling abroad as such since the start of covid in 2020. I am considering
Kraskie1915
in
CLL Support
1 year ago
Iron test results - advice please
CRP HS X 6.45 mg/L (Range: 0 - 5) - I believe this was high because of infection, as I went down with a temperature the following day. Iron 10.0 umol/L (Range: 5.8 - 34.5) - down from 18.4 six months ago TIBC 43.2 umol/L (Range: 45 - 81) - down from 46.3 six months ago UIBC 33.2 umol/L (Range: 24.2
CRP HS X 6.45 mg/L (Range: 0 - 5) - I believe this was high because of infection, as I went down with a temperature the following day. Iron 10.0 umol/L (Range: 5.8 - 34.5) - down from 18.4 six months ago TIBC 43.2 umol/L (Range: 45 - 81) - down from 46.3 six months ago UIBC 33.2 umol/L (Range: 24.2
Molly161018
in
Thyroid UK
1 year ago
Advice on test results please
Hello there I would be glad if some advice on my latest test results please: CRP HS X 6.23 mg/L (0 - 5) - this is high, but I came down with a temperature and sore throat the following day, so I'm guessing it's probably due to fighting illness rather than autoimmunity. Ferritin 94.9 ug/L (13 - 150)
Hello there I would be glad if some advice on my latest test results please: CRP HS X 6.23 mg/L (0 - 5) - this is high, but I came down with a temperature and sore throat the following day, so I'm guessing it's probably due to fighting illness rather than autoimmunity. Ferritin 94.9 ug/L (13 - 150)
Molly161018
in
Thyroid UK
1 year ago
Internet censorship?
Internet censorship of medical information? As I mentioned before, I had anaphylactic shock during first infusion with obinutuzumab, which does not appear to be uncommon. There was a man across from me in my last infusion group who had same reaction. Quick witted infusion nurse jabbed me with EpiPen
Internet censorship of medical information? As I mentioned before, I had anaphylactic shock during first infusion with obinutuzumab, which does not appear to be uncommon. There was a man across from me in my last infusion group who had same reaction. Quick witted infusion nurse jabbed me with EpiPen
Big_Dee
in
CLL Support
2 years ago
You are what you breath - but what you breath varies...
[i]MY reason for writing this is one or two people liked my answers about the strange world of breathing. I am not a clinician, nor a scientist so beware taking me literally. However some things are self-evident dear Watson. [/i] We breath in a mixture of oxygen (20%) , nitrogen (79%) and a tiny amount
[i]MY reason for writing this is one or two people liked my answers about the strange world of breathing. I am not a clinician, nor a scientist so beware taking me literally. However some things are self-evident dear Watson. [/i] We breath in a mixture of oxygen (20%) , nitrogen (79%) and a tiny amount
Timberman
in
Lung Conditions Community Forum
1 year ago
Miraculous Story of a person who underwent stem cell transplant in 1999
I have taken this portion of the the report from the article elaborating the results of double blind trial in 1999. "Patient 133 (video segments 17–19) developed parkinsonism at age 42 in 1986. His major problems were wearing-off episodes as well as levodopa-induced dyskinesias, particularly of the
I have taken this portion of the the report from the article elaborating the results of double blind trial in 1999. "Patient 133 (video segments 17–19) developed parkinsonism at age 42 in 1986. His major problems were wearing-off episodes as well as levodopa-induced dyskinesias, particularly of the
Farooqji
in
Cure Parkinson's
1 year ago
test interpretation
I have a rather long summary page from my flow cytrometry test and I understand none of it. Can someone here please help? translate to common language I can understand? I apologize if this is not the right thing to post. I had to push to get the test done as within this past year my lymphocytes and white
I have a rather long summary page from my flow cytrometry test and I understand none of it. Can someone here please help? translate to common language I can understand? I apologize if this is not the right thing to post. I had to push to get the test done as within this past year my lymphocytes and white
DianeSH
in
CLL Support
2 years ago
Do natural supplements work to reduce high cholesterol?
While strictly not a PMR issue I know there are a few whose cholesterol has risen markedly since being diagnosed. I am one of them. I have always had high-ish cholesterol but my last fasting blood test showed everything else perfectly normal but my cholesterol was up. I haven't seen the results
While strictly not a PMR issue I know there are a few whose cholesterol has risen markedly since being diagnosed. I am one of them. I have always had high-ish cholesterol but my last fasting blood test showed everything else perfectly normal but my cholesterol was up. I haven't seen the results
Pr0jection
in
PMRGCAuk
1 year ago
All good things must come to an end
I just had my 3 month checkup and it looks like my Ibrutinib is starting to stop keeping my counts in check. They have not gone crazy but have been slowing rising this past year and actually doubled over a 6 month period. My Doctor thinks it's probably good to look at another treatment while I am still
I just had my 3 month checkup and it looks like my Ibrutinib is starting to stop keeping my counts in check. They have not gone crazy but have been slowing rising this past year and actually doubled over a 6 month period. My Doctor thinks it's probably good to look at another treatment while I am still
rcusher
in
CLL Support
2 years ago
A giant cell arteritis suffer
A giant cell arteritis suffer on methotrexate and prednisolone. Has anyone been on this combination as well? How long did it take you to get off the steroids as i'm still on 4mg as struggling to get off them as symptoms keep returning once I reduce down any further.
A giant cell arteritis suffer on methotrexate and prednisolone. Has anyone been on this combination as well? How long did it take you to get off the steroids as i'm still on 4mg as struggling to get off them as symptoms keep returning once I reduce down any further.
BM16
in
PMRGCAuk
1 year ago
Another 6 month checkup done
Hi all. I just thought I would share my good news. After the last 6 months of having a tooth removal, a root canal, 7 crowns and a bridge all under a general anesthetic and finally getting to go on our postponed dive holiday to South East Sulawesi Indonesia from 2020, it was more good vibes with all
Hi all. I just thought I would share my good news. After the last 6 months of having a tooth removal, a root canal, 7 crowns and a bridge all under a general anesthetic and finally getting to go on our postponed dive holiday to South East Sulawesi Indonesia from 2020, it was more good vibes with all
Dragonspen
in
CLL Support
2 years ago
Has Anyone Tried Hyperbaric Oxygen Therapy (HBOT) - for expedited healing from radiation induced bone fractures & unhealing wounds?
I understand that Hyperbaric Oxygen Therapy (HBOT) helps tremendously with jaw bone death caused by Xgeva type drugs & radiation induced bone problems. It is FDA approved therapy for radiation induced injuries. There are no contraindications for people with active cancer. I’m considering HBOT (defined
I understand that Hyperbaric Oxygen Therapy (HBOT) helps tremendously with jaw bone death caused by Xgeva type drugs & radiation induced bone problems. It is FDA approved therapy for radiation induced injuries. There are no contraindications for people with active cancer. I’m considering HBOT (defined
hopenowandtomorrow
in
SHARE Metastatic Breast Cancer
2 years ago
Levo doses and side effects
Hi everyone, I've had hypothyroidism (Hashimotos) for several years now and never felt 'well' that whole time, but at times have been able to cope and others (like now) absolutely can't. It seems to be constant and I wanted some advice/thoughts from what seems to be a very knowledgeable group who can
Hi everyone, I've had hypothyroidism (Hashimotos) for several years now and never felt 'well' that whole time, but at times have been able to cope and others (like now) absolutely can't. It seems to be constant and I wanted some advice/thoughts from what seems to be a very knowledgeable group who can
Stevensnj87
in
Thyroid UK
1 year ago
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