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CLL and sugar
I have had CLL ten years. After eating more food with sugar than usual during holidays, night sweats were horrible. After completely cutting refined sugar from my diet, the sweats have stopped completely.
I have had CLL ten years. After eating more food with sugar than usual during holidays, night sweats were horrible. After completely cutting refined sugar from my diet, the sweats have stopped completely.
Lthgj
in
CLL Support
5 years ago
CLL Remission
I have been in remission for just over 5 years since finishing treatment in 2014 of FCR. Lately my lymphocytes and WBC are going up double in about 2-3 months so my Hemotologist had me do blood work for possible relapse . So now I wonder what the results will show . These test like molecular take long
I have been in remission for just over 5 years since finishing treatment in 2014 of FCR. Lately my lymphocytes and WBC are going up double in about 2-3 months so my Hemotologist had me do blood work for possible relapse . So now I wonder what the results will show . These test like molecular take long
Kmegood
in
CLL Support
5 years ago
Are you 11qATM CLL too ? what treatment works best? Please reply ASAP
My wife who loves me put me on this site to get details from others suffering from CLL. One week diagnosed i have an 11qATM deletion heterozygote and a absolute monoclonal lymoh count of 12,000. My reds and platelets good . No splenomegaly but nodes “waxing and waning” all over. Plus a rash to pollen
My wife who loves me put me on this site to get details from others suffering from CLL. One week diagnosed i have an 11qATM deletion heterozygote and a absolute monoclonal lymoh count of 12,000. My reds and platelets good . No splenomegaly but nodes “waxing and waning” all over. Plus a rash to pollen
LovecuresCLL
in
CLL Support
5 years ago
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New test for mutations to calculate the profession of MF
Hi good folks, Hope you all are going OK. Last time I was speaking to my Hemo he told me that a test will be available in about 12 months that will identify all a MF patients mutations and will assist in predicting the progression of the illness. He said it should allow for him to predict how the illness
Hi good folks, Hope you all are going OK. Last time I was speaking to my Hemo he told me that a test will be available in about 12 months that will identify all a MF patients mutations and will assist in predicting the progression of the illness. He said it should allow for him to predict how the illness
Hidden
in
MPN Voice
5 years ago
Ideas for supporting dad in his last days
Hi, I wish this were a more positive first post and I hope everyone else reading this who has or is involved with a blood cancer has a much more positive outcome but... My dad only has a few weeks, at best to live. He had myeloifibrosis (sorry if spelt wrong). It's transformed in the past couple of weeks
Hi, I wish this were a more positive first post and I hope everyone else reading this who has or is involved with a blood cancer has a much more positive outcome but... My dad only has a few weeks, at best to live. He had myeloifibrosis (sorry if spelt wrong). It's transformed in the past couple of weeks
Sebnose
in
Leukaemia CARE
5 years ago
IGVH Hypermutation test.
I went to a CLL specialist and they did IGVH testing. An email informed that I had a new test before the doctor actually called me. I think it is saying that I am not hyper mutated. It reads like this: "IGVH analysis by sequencing demonstrates a clonal but functionally unproductive rearrangement.
I went to a CLL specialist and they did IGVH testing. An email informed that I had a new test before the doctor actually called me. I think it is saying that I am not hyper mutated. It reads like this: "IGVH analysis by sequencing demonstrates a clonal but functionally unproductive rearrangement.
Camaroman
in
CLL Support
5 years ago
Nplate clots
Jazzbo77 I was wondering how many Itp suffers took Nplate but developed blood clots at 55-75k platelets? I did in Oct-Dec 2014 and the more shots I took the more the clots spread until my Dr stopped the Nplate. I found 4 others that had the same thing on Nplate and one on promacta. The Drs stopped each
Jazzbo77 I was wondering how many Itp suffers took Nplate but developed blood clots at 55-75k platelets? I did in Oct-Dec 2014 and the more shots I took the more the clots spread until my Dr stopped the Nplate. I found 4 others that had the same thing on Nplate and one on promacta. The Drs stopped each
Jazzbo77
in
ITP Support Association
5 years ago
Just diagnosed with Essential Thrombocythemia
Hi everyone, I'm new here. I cannot tell you how happy I am that I found this site and how much reading all of your responses to others have helped me to remain calm. I was told today that I am being referred to a hematologist and that I have Essential Thrombocythemia. I'm so anxious and afraid of
Hi everyone, I'm new here. I cannot tell you how happy I am that I found this site and how much reading all of your responses to others have helped me to remain calm. I was told today that I am being referred to a hematologist and that I have Essential Thrombocythemia. I'm so anxious and afraid of
Beachchik
in
MPN Voice
5 years ago
Granddaughter diagnosed with acute lymphoblastic leukaemia
My 4 year old granddaughter was diagnosed with acute lymphoblastic leukaemia about 5 weeks ago. She has been in hospital on and off for about 4 weeks. She keeps getting infections and viruses and has had gruelling chemotherapy. She has a 5 year old brother and a 7 month old sister so life is fraught
My 4 year old granddaughter was diagnosed with acute lymphoblastic leukaemia about 5 weeks ago. She has been in hospital on and off for about 4 weeks. She keeps getting infections and viruses and has had gruelling chemotherapy. She has a 5 year old brother and a 7 month old sister so life is fraught
Nanny1952
in
Leukaemia CARE
5 years ago
Community Guidelines
Welcome to the CLL America Support Community for support of Chronic
leukemia
(CLL)! We’re very glad you have chosen to be a part of our community. The CLL America Support community - offered by HealthUnlocked (HU) - supports individuals affected by CLL.
Welcome to the CLL America Support Community for support of Chronic
leukemia
(CLL)! We’re very glad you have chosen to be a part of our community. The CLL America Support community - offered by HealthUnlocked (HU) - supports individuals affected by CLL.
MaddieHU
HealthUnlocked
in
CLL America Support
5 years ago
Hairy Cell Leukaemia
Hi. I was diagnosed with hairy cell leukaemia in may 2018. I was treated with cladribine. I gained partial remission in December 2018. After a bone marrow biopsy in March 2019 my leukaemia is growing again and I need further treatment. I’m would like to talk to anyone who is having a similar journey
Hi. I was diagnosed with hairy cell leukaemia in may 2018. I was treated with cladribine. I gained partial remission in December 2018. After a bone marrow biopsy in March 2019 my leukaemia is growing again and I need further treatment. I’m would like to talk to anyone who is having a similar journey
Sajsingers
in
Leukaemia CARE
5 years ago
Question about PMF
Hi there. I want to know that can someone with a blood picture like that of polycythemia vera have Primary Myelofibrosis. I know that PV may transform into Myelofibrosis over a long period but can it be PMF with high rbc count and hemoglobin initially. My Jak2 V16f is negative with normal EPO.
Hi there. I want to know that can someone with a blood picture like that of polycythemia vera have Primary Myelofibrosis. I know that PV may transform into Myelofibrosis over a long period but can it be PMF with high rbc count and hemoglobin initially. My Jak2 V16f is negative with normal EPO.
avdheshmzn
in
MPN Voice
5 years ago
Expert Access Program at the CLL Society
The CLL Society is expanding our Expert Access program in 2019. Inclusion criteria are simple: a USA address, a diagnosis of CLL, and you are not currently seeing a top CLL doctor. That's it. It provides a free consult with a true CLL expert after getting and reviewing medical records from your local
The CLL Society is expanding our Expert Access program in 2019. Inclusion criteria are simple: a USA address, a diagnosis of CLL, and you are not currently seeing a top CLL doctor. That's it. It provides a free consult with a true CLL expert after getting and reviewing medical records from your local
bkoffman
CLL CURE Hero
in
CLL Support
5 years ago
CAR T versus Stem Cell transplant for Richter's
Has anyone used CAR T or stem cell transplant for advanced CLL or Richter's?
Has anyone used CAR T or stem cell transplant for advanced CLL or Richter's?
profrich
in
CLL Support
5 years ago
remembering Chris Dwyer
Many in our community including myself owe much to Chris Dwyer. His death came not so much as a shock to me but a sadness in losing such a fellow warrior who had been through so much while giving so much. He had been long-suffering with so many assaults from various treatments and crippling infections
Many in our community including myself owe much to Chris Dwyer. His death came not so much as a shock to me but a sadness in losing such a fellow warrior who had been through so much while giving so much. He had been long-suffering with so many assaults from various treatments and crippling infections
ThreeWs
in
CLL Support
5 years ago
I am new here was diagnosed yesterday with Polycythaemia vera KAK2 positive I am still in shock.
Would like to hear from others with my condition.
Would like to hear from others with my condition.
Chez1947
in
MPN Voice
5 years ago
Upcoming Educational Forums and Kipps on ROR1
I invite you to attend our free CLL Society Patient and Caregiver Educational Forums. Featured speakers will present the very latest advances in CLL research, clinical trials, treatment options including CAR-T, patient perspectives, and tips to become an effective self-advocate. I will be at all 4 of
I invite you to attend our free CLL Society Patient and Caregiver Educational Forums. Featured speakers will present the very latest advances in CLL research, clinical trials, treatment options including CAR-T, patient perspectives, and tips to become an effective self-advocate. I will be at all 4 of
bkoffman
CLL CURE Hero
in
CLL Support
5 years ago
Essential Thrombocythaemia
I am new here so hello. I have had essential Thrombocythaemia since 2000 I am 56 years old. I work in a school and over the years have reduced my days from 5 to 3 then 2. My dose of Hydroxycarbamide has been increased since Christmas, I have always had fatigue but since dosage increase the symptoms of
I am new here so hello. I have had essential Thrombocythaemia since 2000 I am 56 years old. I work in a school and over the years have reduced my days from 5 to 3 then 2. My dose of Hydroxycarbamide has been increased since Christmas, I have always had fatigue but since dosage increase the symptoms of
Bobthecob
in
MPN Voice
5 years ago
Introducing myself
Hi everyone, I've been sitting on the sidelines here for a few months and I thought I should introduce myself. I am a 57 year old male from Australia and have had MBL for a number of years. My MBL has been monitored annually and was fairly stable, but in the last few years it started to creep up. My
Hi everyone, I've been sitting on the sidelines here for a few months and I thought I should introduce myself. I am a 57 year old male from Australia and have had MBL for a number of years. My MBL has been monitored annually and was fairly stable, but in the last few years it started to creep up. My
Skyfli
in
CLL Support
5 years ago
Seeking phycological support? How to access Leukaemia Care's Ann Ashley counselling fund
In todays difficult time there are ways to help cope with the additional psychological challenges you may be experiencing when living with a leukaemia diagnosis during Covid times. We’re providing access to private counselling services through the provision of grants, so that leukaemia patients and
In todays difficult time there are ways to help cope with the additional psychological challenges you may be experiencing when living with a leukaemia diagnosis during Covid times. We’re providing access to private counselling services through the provision of grants, so that leukaemia patients and
NicoleLeukaemiaCare
Administrator
in
Leukaemia CARE
5 years ago
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