Experiences with

Lung transplant

A bit of background - In October 2021 I had a rapid and florid relapse following the end of my Ibrutinib treatment in FLAIR so I was started on Acalabrutinib with no effect and also had investigations for Richter's. Tests showed that I was resistant to the currently available BTKi's (two synergistic

My husband was diagnosed with liver disease approx 4 years ago and was placed on the liver transplant waiting list. He had since been very stable and continued to work if somewhat more tired than he used to be. Over Christmas this year he caught a virus / infection which has resulted in him now being

Is been at least 4 months post liver transplant. I would like to know from patients with experience how long it'll take for me to stop getting tired easily and still shaky sometimes? I also have on and off severe headaches and my appetite is the worse.....

Hello , an update on my father’s immunotherapy for lung cancer. Would really appreciate any thoughts , insight or experiences. Especially, but no only, those which can give my father some further hope. My father was disagnosed with Stage 4 lung cancer around 10 months ago. He started on chemo but

I wrote the following to my MP on 22nd November last David , we have corresponded about this many times, and I know you are sympathetic to the problem. Things are getting worse, not better, and despite covid numbers falling, many of us are having to become more and more cautious in our already restricted

After an incidental find of a 19mm lung nodule and a clear PET scan in late October my respiratory consultant was sure it was a slow growing cancer caught early and recommended, which was agreed by me, that rather than a biopsy I go straight to surgery for a lung wedge resection to remove the nodule

Hello, An update, my son has been put forward for an assessment for a liver transplant. There may be light at the end of the tunnel and we know there is still a long way to go, it gives us hope.I was wondering if anyone has any tips on any relief for very swollen feet due to oedema.. My son is having

Tapering while new issues arvine profile image arvine• 8 hours ago•1 Reply well I have told my story pretty well all along, including some family serious illnesses . In previous comments, I have mentioned my son, who has fought a battle actually since June 2017, beingdiagnosed with multiple myeloma

well I have told my story pretty well all along, including some family serious illnesses . In previous comments, I have mentioned my son, who has fought a battle actually since June 2017, beingdiagnosed with multiple myeloma, having stem cell transplant in Jan 2018, as a mom, this was very hard to see

This is Mgus57 I did another blood test at Mayo Clinic. This journey to be put on the kidney transplant,list has been emotional one. The feedback I received from the team, at Mayo has positive. They tell me I should be a candidate for a transplant. I hope I receive a kidney soon. I want to wish

I have a third kidney transplant and a ureteral stricture. We have tried everything to fix the stricture but nothing has worked. So my transplant team decided that surgery was the option ,surgical retransplantation of the ureter using a piece of my small intestines where the stricture was ,in its place

Hello all, On 16th February we will be starting an eight week programme of hour long on line support sessions for people with genetic mutation driven lung cancer. The sessions will be run by our facilitator and share coping ideas, practical tips and experience of treatment. If you would like to participate

Hi, so I was diagnosed just before Christmas (Is cancer the Christmas Grinch? 🤔 It was in my case....) Anyway, having been diagnosed with NSCL cancer I've now been put on a treatment plan, and start on Monday next week. Has anyone got any top tips for getting through the next few months? It all sounds

My dear friend and colleague was diagnosed with stage 4 lung cancer in December. She has had a biopsy and been told there is no treatment available for her. She is just being given pain relief. She did not want to know how long she might have left. She sleeps most of the day and can't walk from the

For all the yang in the world, we need the softer yin to balance. To harmonise. To experience viscerally, our inner equipose. A sojourn to an old converted olive farm in Andalucia in 2012, was my first entry point into a formal yoga teacher training (YTT). As a woman then in my 30s, a healthy functioning

Hi I am 200 plus days post stem cell transplant. Since then I get flushed very easily. I have suffered with this in the past and still have it now but maybe worse I take a few medications still which may or may not help and wondered on any good way of controlling it my consultant has recommended me

Do you live in or near West Devon and would you be happy to share your story with local press? TheTavistock Times would like to speak to someone living with non alcohol related liver disease, alcohol related liver disease or viral hepatitis who has received a liver transplant. If you're able to help

Anyone been going on holiday not sure about insurance answered as best I can but varices question stuck o now no acites swelling gone down one report from 2021 decsaid grade one varices but none now never had tied or tipped or whatever goes with varices no bleeding n no liver transplant mentioned not

I progressed from ET to Myelofibrosis a couple of years ago. I had an enlarged spleen and ruxolitinib lowered the platelets too much so I was switched to fedratinib. Depending on what predictive tool was used, I had a median predicted life span of between 2 and 14 years - not terribly helpful! I was

My ex husband is in need of a kidney. He has been evaluated at 2 separate centers but they refuse to list him unless he gets the COVID vaccine. This seems an unreasonable requirement since the long term effects of the vaccine are unknown in kidney transplant patients. He will be looking into other