Experiences with

Lung transplant

Hello! For those of you who know me and to those of you I may not have spoken with or met yet, I am Michele Zeh, Manager of the Lung Cancer Living Room Series and I am excited to invite you to our monthly Gathering HOPE Social hosted on our ZOOM link. This Tuesday, September 12th, at 5pm PT/8pm ET.

Hi everyone just wanted to share this video about a possible breaththrough about an 8 year old girl. Who after a kidney transplant doesn't have to take an immunosuppressant drugs after reviewing a special type of kidney. https://youtu.be/OWbdArmDJOI?si=tD0l1yNFz20kav3I 🌹

Inspired bya post on another site I’d like to ask if anyone has high risk mutations and has NOT had a stem cell transplant and has NOT progressed to leukaemia? On the other site there were a few who had had MF for quite few years but with treatment were doing ok, and weren’t having transplants, for

Hi, I received a liver transplant back in December 2022 and recovery was well for the first four months however around end of April I started suffering with pruritus amongst other symptoms i.e. acid reflux, fatigue etc. and following x rays and scans, the Consultants advised it was due to strictures

I have told I can't have a Liver transplant.My Liver has gone to decompensated with portal hypertension. Does anybody know what stage I am and what will happen

I have recently been accepted on the lung transplant list (November). I would value any advise/experience on the subject. I apparently have a very good blood group thus estimated waiting 50% 6 months, 80% 12 months. Thank you in advance Paul.

Hi, I had a liver transplant back in March 2022. I had a condition called ‘PSC’ since my op my recovery was and is a slow one involving a few complications, but the one I’m struggling with at the minute is a sort of heat rash all over my body - hot itchy and very uncomfortable. Tonight it seems to

I am 2 years post kidney transplant due to PKD. I went to a routine eye exam yesterday and after a retinal scan was told I need to have cataract surgery, sooner rather than later, as this type of cataract progresses quickly. Anyone have this issue? Any pre/post eye surgery precautions related to

Since having a kidney transplant I am bothered with UTI's which quickly clears up after taking antibiotics. I also have a PAF episode more or less within a day or two of this. Has anyone else noticed having AF when also having an infection? My potassium and magnesium levels are lower than normal when

Hi all I am 6.5 years post single lung transplant and recently found out I am 7 weeks pregnant . I'm super shocked as I was told I would never have another child ( I also have a 13 year old daughter) And im super worried about how my body is going to cope with this pregnancy.

***HELP NEEDED DESPERATELY*** My precious daughter was unfortunately diagnosed with Multiple Hepatic Adenomas in November 2021. She has currently got 12 of these tumours in her liver. In January 2022 she had a liver resection, as the largest tumour was hemorrhaging at the time. The right half of her

[u][i]THE NEW GENETIC MUTATION GROUP STARTS THIS EVENING![/i][/u] If you have a genetically mutated lung cancer and wish to take part in a group that is aimed specifically at your diagnosis and meet others in a similar situation then this group could be of great benefit. The group is hosted

My Dad is 96 and has had progressive lung disease for many years. He's a non-smoker and I always wondered about the cause. On 16 October this year he was referred to a respiratory consultant for the first time. She took a detailed work history (again, the first one to do so) and we realised just how

[i]NEW ONLINE SUPPORT GROUP STARTING UP!![/i] This new support group is aimed at those in active treatment whatever that may be, surgery, chemo, immunotherapy, radiotherapy, targeted therapy. A space to chat about your experiences, find out how others managed, emotional & practical support

Hello, I had a liver transplant 3 years ago and take tacrolimus, mycophenolate and prednisone for anti rejection. I have recently had a very itchy localised rash on my neck which I have been treating with hydrocortisone cream. This is having no effect. I was wondering if it could be a reaction to any

Hello community members, Roy Castle Lung Cancer Foundation often get asked for input to advisory groups, surveys and information on how diagnosis and treatment has impacted on peoples' lives. If you would like to become more involved or find out more about different ways of sharing your experiences

https://www.theatlantic.com/health/archive/2024/04/bone-marrow-transplant-mismatched-donor/678100/

This is the week that a new round of our groups kick starts. If you are thinking of joining please reach out, the groups have benefitted people massively and could really give valuable help during a difficult time. Immunotherapy & Treatment - Tuesday evening 5th September 7-8pm - fortnightly

My kidney transplant was almost 2 years ago. All is doing well. I have loved my home sauna in the past and would love to resume using it this fall/winter. My transplant doctor suggests that would NOT be a good idea - not because of hydration issues, which could be managed but because the heat of the

I haven’t posted for a while as things have gotten very complicated for me recently my partner was diagnosed with stomach cancer and around the same time I ran out of options and stem is my last shot I have held off as long as I can so my partner could have surgery and get back on his feet but my dates