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Can anyone help please?
Hi everyone. I am 9 years undiagnosed š my Rheumatologist thought I was a possible for Lupus but wasn't prepared to diagnose me there and then, this was 2015. I had had a positive Cryoglobulinemia blood test which was negative for Hep C, he said this was an indication of Lupus? Has anyone else got
Hi everyone. I am 9 years undiagnosed š my Rheumatologist thought I was a possible for Lupus but wasn't prepared to diagnose me there and then, this was 2015. I had had a positive Cryoglobulinemia blood test which was negative for Hep C, he said this was an indication of Lupus? Has anyone else got
Jodelights
in
LUPUS UK
2 months ago
Sufficient Investigation?
My brother is a bit of an ostrich, over his prostate problems. He ignored his poor urinary flow for years, and despite my repeated advice which he ignored, he subsequently had to be admitted to the emergency department due to significant obstruction. His GFR had fallen dangerously to 10. He was in
My brother is a bit of an ostrich, over his prostate problems. He ignored his poor urinary flow for years, and despite my repeated advice which he ignored, he subsequently had to be admitted to the emergency department due to significant obstruction. His GFR had fallen dangerously to 10. He was in
Nordman
in
Advanced Prostate Cancer
6 months ago
night cramps
Hi everyone, Iām new on this forum. I was diagnosed with Rheumatoid Arthritis 3 years ago, in the family genes!, Iām currently on Methotrexate (25mg). Seem to be ok until about 2 weeks ago when I started to experience severe night cramps in my legs and feet. My consultant tells me it wasnāt a symptom
Hi everyone, Iām new on this forum. I was diagnosed with Rheumatoid Arthritis 3 years ago, in the family genes!, Iām currently on Methotrexate (25mg). Seem to be ok until about 2 weeks ago when I started to experience severe night cramps in my legs and feet. My consultant tells me it wasnāt a symptom
sussiewong22
in
NRAS
2 months ago
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Mirena coil
My mirena coil came out anyone else this happened to? It only lasted two days and I had it under general anaesthesia. I'm annoyed now š¤ I didn't see it come out. I have endometrium hyperplasia anyone else with this?
My mirena coil came out anyone else this happened to? It only lasted two days and I had it under general anaesthesia. I'm annoyed now š¤ I didn't see it come out. I have endometrium hyperplasia anyone else with this?
Hidden
in
Endometriosis UK
6 months ago
Adenomyosis, Endometriosis and Autoimmune diseases
Hi ladies, this question is just out of curiosity because I see several posts about a lot of us having a combination of Endometriosis/ Adenomyosis and autoimmune disease. Following all my symptoms (that got even worse since I have no therapy but only medication to ease the pain) now I got a possible
Hi ladies, this question is just out of curiosity because I see several posts about a lot of us having a combination of Endometriosis/ Adenomyosis and autoimmune disease. Following all my symptoms (that got even worse since I have no therapy but only medication to ease the pain) now I got a possible
Taikaei
in
Endometriosis UK
2 months ago
Now what? Second go-around of docetaxel not responding.
I am 65 years old and was Diagnosed 8 years ago with stage 4 PC. Metastasis to hips, pelvis, ribs and many lymph nodes. Took 6 rounds of docetaxel followed by ongoing Lupron injections and then 3 years of Zytiga. PSA was driven down to 2.0 from 76 with 1st 6 rounds of docetaxel. Zytiga drove PSA down
I am 65 years old and was Diagnosed 8 years ago with stage 4 PC. Metastasis to hips, pelvis, ribs and many lymph nodes. Took 6 rounds of docetaxel followed by ongoing Lupron injections and then 3 years of Zytiga. PSA was driven down to 2.0 from 76 with 1st 6 rounds of docetaxel. Zytiga drove PSA down
westjl2
in
Advanced Prostate Cancer
6 months ago
Ramadan Autoimmune Health Survey (including vasculitis)
https://www.vasculitis.org.uk/news/ramadan-autoimmune-health-survey Please follow the above link for more details š
https://www.vasculitis.org.uk/news/ramadan-autoimmune-health-survey Please follow the above link for more details š
Suzi70
Administrator
in
Vasculitis UK
2 months ago
Lupus centre of excellence
Morning all, can anyone advise if they have been referred to a Lupus centre of excellence outside their area? If so was the referral done by GP?Many thanks
Morning all, can anyone advise if they have been referred to a Lupus centre of excellence outside their area? If so was the referral done by GP?Many thanks
Jenfy34
in
LUPUS UK
2 months ago
Lupron injection not working
Started one injection a month for lupron, October 2023. First psa test came back 26 in November, November got 2nd lupron injection, The second psa was 22 on December 11, 2023, Just got the third injection today, December 11, 2023. Lupron not reducing psa like the doc thought it would. doc said
Started one injection a month for lupron, October 2023. First psa test came back 26 in November, November got 2nd lupron injection, The second psa was 22 on December 11, 2023, Just got the third injection today, December 11, 2023. Lupron not reducing psa like the doc thought it would. doc said
woppaginny
in
Advanced Prostate Cancer
6 months ago
polycystic liver disease
I wanted to find out if anyone else had experienced severe Polycystic Liver Disease. I had resection 12 years ago which was successful but my cysts have grown back more aggressively. I have been advised by specialist that they cannot de-roof as would space simply be filled by other cysts, resection
I wanted to find out if anyone else had experienced severe Polycystic Liver Disease. I had resection 12 years ago which was successful but my cysts have grown back more aggressively. I have been advised by specialist that they cannot de-roof as would space simply be filled by other cysts, resection
Sing2011
in
British Liver Trust
6 months ago
Hello everyone, question about gluten and globus (feeling of lump in throat) ?
Hello everyone, question about gluten and globus (feeling of lump in throat) I also have painful tongue, chronic constipation, bouts of diarrhoea, I've had rashes that look like little spots/patches over the years, burning mouth, tongue, oesophagus, sore stomach, and tingling/vibrating in stomach and
Hello everyone, question about gluten and globus (feeling of lump in throat) I also have painful tongue, chronic constipation, bouts of diarrhoea, I've had rashes that look like little spots/patches over the years, burning mouth, tongue, oesophagus, sore stomach, and tingling/vibrating in stomach and
Suffering_sunny
in
Gluten Free Guerrillas
2 months ago
Olaparib for Metastatic Castration-Resistant Prostate Cancer With BRCA1 and/or BRCA2 Alterations
I know these results have been known for a while but me being germline and somatic BRCA 2, I thought it would be important to post this for those warriors with this condition. TAKE-HOME MESSAGE The phase III PROfound trial showed that patients with metastatic castration-resistant prostate cancer
I know these results have been known for a while but me being germline and somatic BRCA 2, I thought it would be important to post this for those warriors with this condition. TAKE-HOME MESSAGE The phase III PROfound trial showed that patients with metastatic castration-resistant prostate cancer
Balsam01
in
Advanced Prostate Cancer
6 months ago
Dizziness
sorry not been on for a while , moved house then had another scare with my cancer in remission. Itās 2 years since my ruptured brain aneurysm, spoke to rehab consultant ( different one ) at last he listened about my dizziness and falls he has now referred me to a ENT consultant to see if he can help
sorry not been on for a while , moved house then had another scare with my cancer in remission. Itās 2 years since my ruptured brain aneurysm, spoke to rehab consultant ( different one ) at last he listened about my dizziness and falls he has now referred me to a ENT consultant to see if he can help
Blu37
in
Brain Aneurysm Support
6 months ago
lupus rash?
does this look like a lupus rash? I have a lot of symptoms of lupus
does this look like a lupus rash? I have a lot of symptoms of lupus
Ell4132
in
LUPUS UK
2 months ago
Saliva cortisol test: should I talk to GP?
These are the results of my recent online purchased cortisol tests. The midday one was actually just above zero, the evening just below 1 (I think). I took the morning one at 6am, as I wake up stupid early all the time, and im wondering if it was too early. I have hashimotos, and take 150 levo per day
These are the results of my recent online purchased cortisol tests. The midday one was actually just above zero, the evening just below 1 (I think). I took the morning one at 6am, as I wake up stupid early all the time, and im wondering if it was too early. I have hashimotos, and take 150 levo per day
Where_am_I
in
Thyroid UK
6 months ago
Recent blood test results
Hi everyone I am new to the forum and would like your advice on recent blood test results please. My story of under active thyroid and now diagnosed with Gravesā disease. 2010 I was told I had an under active thyroid and was started on levothyroxine 50mcg, I was on levothyroxine in varying amounts
Hi everyone I am new to the forum and would like your advice on recent blood test results please. My story of under active thyroid and now diagnosed with Gravesā disease. 2010 I was told I had an under active thyroid and was started on levothyroxine 50mcg, I was on levothyroxine in varying amounts
Senior1449
in
Thyroid UK
6 months ago
autoimmune and Hashimotos
I feel like I am on a one woman crusade in Scotland to get Hashimotos recognised for what it is an autoimmune disease, I now have four autoimmune diseases Hashimotos, Pernicious Anaemia, Coeliac disease, Hyperparathyroidism, and am being referred for testing for rheumatoid arthritis. I get treatment
I feel like I am on a one woman crusade in Scotland to get Hashimotos recognised for what it is an autoimmune disease, I now have four autoimmune diseases Hashimotos, Pernicious Anaemia, Coeliac disease, Hyperparathyroidism, and am being referred for testing for rheumatoid arthritis. I get treatment
Filicatlasy
in
Thyroid UK
2 months ago
biopsy report, still waiting to see consultant.
hi all, had an email with the below conclusion of my biopsy, I have a very minuscule left lobe which they want to biopsy but were unable to due to the size. So the right lobe was biopsied. Until I see the consultant I donāt really understand the results, I know none of you are specialist or doctors
hi all, had an email with the below conclusion of my biopsy, I have a very minuscule left lobe which they want to biopsy but were unable to due to the size. So the right lobe was biopsied. Until I see the consultant I donāt really understand the results, I know none of you are specialist or doctors
Goneinsixtyseconds
in
British Liver Trust
6 months ago
Not PCa but related. Imuno therapies keeps getting better.
On April 4, 2024, Candel Therapeutics, Inc. (the āCompanyā) issued a press release announcing positive interim data from its randomized phase 2 clinical trial of CAN-2409 in non-metastatic pancreatic cancer. A copy of the full press release is attached as Exhibit 99.1 to this Current Report on Form
On April 4, 2024, Candel Therapeutics, Inc. (the āCompanyā) issued a press release announcing positive interim data from its randomized phase 2 clinical trial of CAN-2409 in non-metastatic pancreatic cancer. A copy of the full press release is attached as Exhibit 99.1 to this Current Report on Form
Scout4answers
in
Advanced Prostate Cancer
2 months ago
Do the NHS test for active b12 aswell a total b12?
I wonder because my sister was diagnosed with pernicious anemia years ago but now they say her b12 levels are really high normal.
I wonder because my sister was diagnosed with pernicious anemia years ago but now they say her b12 levels are really high normal.
Cesca-K
in
Pernicious Anaemia Society
2 months ago
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