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To do KT or not?
To those of you that has had a kidney transplant, do you think it is worth to do it, given all the possible complications and the high risk of developing cancer by taking immunosuppressants ? I am contemplating on undergoing pre- emptive KT but with of these possibilities , I am so nervous. Thanks
To those of you that has had a kidney transplant, do you think it is worth to do it, given all the possible complications and the high risk of developing cancer by taking immunosuppressants ? I am contemplating on undergoing pre- emptive KT but with of these possibilities , I am so nervous. Thanks
Dina0210
in
Kidney Disease
2 years ago
Decompensated cirrhosis help for a drinker who can’t/won’t stop.
Hi A family member has decompensated cirrhosis, he is jaundice and has swelling of the legs. He can’t sleep at night constant wake ups saying he needs to go for a pee but nothing there, he walks so slowly and is getting bad leg cramps. He drinks 3-5 pints of lager a day - more at weekend. Socially he
Hi A family member has decompensated cirrhosis, he is jaundice and has swelling of the legs. He can’t sleep at night constant wake ups saying he needs to go for a pee but nothing there, he walks so slowly and is getting bad leg cramps. He drinks 3-5 pints of lager a day - more at weekend. Socially he
Pink1day
in
British Liver Trust
2 years ago
Use of Hep C infected Organs
Hiya partner nrly on transplant list last call on Monday from consultant for consent. Co- ordinators have asked him to read up about receiving a liver with hep C/B has any members got advice or had transplant with this? Thanks
Hiya partner nrly on transplant list last call on Monday from consultant for consent. Co- ordinators have asked him to read up about receiving a liver with hep C/B has any members got advice or had transplant with this? Thanks
Arms-1
in
British Liver Trust
2 years ago
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World Blood Cancer Day May 28th
Please help promote knowledge about Blood Cancers and Stem Cell Transplant Matching. Help support the become a donor campaigns! Global event! Please see link for more information They have various downloads that can be used on social media like Facebook https://www.worldbloodcancerday.org/en/media
Please help promote knowledge about Blood Cancers and Stem Cell Transplant Matching. Help support the become a donor campaigns! Global event! Please see link for more information They have various downloads that can be used on social media like Facebook https://www.worldbloodcancerday.org/en/media
Dovme
in
MPN Voice
2 years ago
Severe, 45-minute long leg cramps
When I'm falling asleep, I get terrible leg cramps where both the extending and the contracting leg muscles freeze for about 45 min. until my muscles "remember" where they belong. And then and only then I can put my foot on the floor. I'm scheduled for a kidney transplant and hoping that the cramps will
When I'm falling asleep, I get terrible leg cramps where both the extending and the contracting leg muscles freeze for about 45 min. until my muscles "remember" where they belong. And then and only then I can put my foot on the floor. I'm scheduled for a kidney transplant and hoping that the cramps will
PurpleKatisha
in
Kidney Disease
2 years ago
DNA mutations impacting liver disease patients identified by Wellcome Sanger Institute and Cancer Research UK Cambridge Institute
way the hepatocytes in the
liver
process sugars.
way the hepatocytes in the
liver
process sugars.
Richard-Allen
in
British Liver Trust
3 years ago
The latest on my partner and a thanks for all the support on here!!
After his Ultra Sound scan on Friday the results came in they have confirmed that all his organs are in tip top condition apart from the Liver of course. However they have confirmed that there is no Cirrhosis and that it is in fact Fibrosis which he has been told that if he carries on with the hard work
After his Ultra Sound scan on Friday the results came in they have confirmed that all his organs are in tip top condition apart from the Liver of course. However they have confirmed that there is no Cirrhosis and that it is in fact Fibrosis which he has been told that if he carries on with the hard work
Bibbs
in
British Liver Trust
2 years ago
Covid safety rules to stop !
Had enough now ! feel like myself as RA Imunecompromised and my husband severe Immunecompromised Kidney transplant will never get our life back or be safe ! Boris knows there are still vulnerable and exstremely vulnerable people they are a disgrace and act as if everyone is ok !!!
Had enough now ! feel like myself as RA Imunecompromised and my husband severe Immunecompromised Kidney transplant will never get our life back or be safe ! Boris knows there are still vulnerable and exstremely vulnerable people they are a disgrace and act as if everyone is ok !!!
trace58
in
NRAS
2 years ago
To continue or not....that is the question
I started treatment in July 2021 after 18 months on W&W. Initially I was treated with Obinutuzumab but I had a severe reaction to the first 20mg and ended up in the A&E resuscitation ward. I was then swopped to Rituximab and Venetoclax, which was explained as normally being a second line treatment which
I started treatment in July 2021 after 18 months on W&W. Initially I was treated with Obinutuzumab but I had a severe reaction to the first 20mg and ended up in the A&E resuscitation ward. I was then swopped to Rituximab and Venetoclax, which was explained as normally being a second line treatment which
Dawson21
in
CLL Support
2 years ago
Losing weight while on steroids
Hi all , I had a lung transplant 5 years ago and have been on dual anti rejection meds of prednisolone and cyclosporin. I'm on 8mg of steroids daily I also have gastropharesis. I have put 3 stone on in 3 years and my consultant has told me I am to lose weight as its putting pressure on my only one
Hi all , I had a lung transplant 5 years ago and have been on dual anti rejection meds of prednisolone and cyclosporin. I'm on 8mg of steroids daily I also have gastropharesis. I have put 3 stone on in 3 years and my consultant has told me I am to lose weight as its putting pressure on my only one
Hidden
in
Lung Conditions Community Forum
2 years ago
Help for my sister
My sister is on the transplant list in Birmingham, AL but every live donor who has came forward has been rejected and she hasn't received one call from the Transplant Center for a deceased donor. My 3 brothers and I all have received deceased donor kidney transplants but live in KY. My sister will
My sister is on the transplant list in Birmingham, AL but every live donor who has came forward has been rejected and she hasn't received one call from the Transplant Center for a deceased donor. My 3 brothers and I all have received deceased donor kidney transplants but live in KY. My sister will
bowlingpkd
in
Kidney Transplant
2 years ago
Hyperparathyroidism diagnosis plz help!
Hi Everyone, I had my kidney transplant 8months ago after being on dialysis for almost 6years. My dr. Just told me I have a severe hyperparathyroidism and that’s mainly because I was on dialysis for so long. He prescribed Cinacalcet to be taking once a day. My question is did anyone of you experienced
Hi Everyone, I had my kidney transplant 8months ago after being on dialysis for almost 6years. My dr. Just told me I have a severe hyperparathyroidism and that’s mainly because I was on dialysis for so long. He prescribed Cinacalcet to be taking once a day. My question is did anyone of you experienced
Tuna14
in
Kidney Transplant
2 years ago
Where are all the husbands talking about their wives and partners alcohol-related liver disease?
Her
liver
transplant
was due to PBC (Primary biliary cholangitis).
Her
liver
transplant
was due to PBC (Primary biliary cholangitis).
Richard-Allen
in
British Liver Trust
3 years ago
Medication
Hi is carvedilol safe to take if you have liver disease portal hypertension Thanks for any information
Hi is carvedilol safe to take if you have liver disease portal hypertension Thanks for any information
Lippy42
in
British Liver Trust
2 years ago
Enlarged liver
Hi I have been told I have a mildly enlarged liver and fatty liver. The ultrasound was private and wasn't the best at relaying information. I knew I had a fatty liver but the enlarged bit has got me really worried. I don't know what it means. I've googled it but had to stop because it was taking me down
Hi I have been told I have a mildly enlarged liver and fatty liver. The ultrasound was private and wasn't the best at relaying information. I knew I had a fatty liver but the enlarged bit has got me really worried. I don't know what it means. I've googled it but had to stop because it was taking me down
Rawdy
in
British Liver Trust
2 years ago
Is this Terry's Nails? Am i Suffering from any of the Liver Diseases?
I am 23 right now, and have had this color of pale nails since birth. I have never ever thought about it earlier thinking that it's normal and since I am non-alcoholic I had a misconception that only drinkers get liver diseases... But today i came accross Terry's nails in internet and felt that the pictures
I am 23 right now, and have had this color of pale nails since birth. I have never ever thought about it earlier thinking that it's normal and since I am non-alcoholic I had a misconception that only drinkers get liver diseases... But today i came accross Terry's nails in internet and felt that the pictures
Soorajv
in
British Liver Trust
2 years ago
A Good Day
Saw my new consultant today & my new liver nurse & they were both fantastic. He explained everything clearly to me. He is trying me on Budesonide 9mg a day which is a corticosteroid & stays in the liver longer than pred. I didnt fancy using 6MP after the nightmare I had with Azathioprine. There was
Saw my new consultant today & my new liver nurse & they were both fantastic. He explained everything clearly to me. He is trying me on Budesonide 9mg a day which is a corticosteroid & stays in the liver longer than pred. I didnt fancy using 6MP after the nightmare I had with Azathioprine. There was
Bigbluemonkey
in
British Liver Trust
2 years ago
Feeding tube leak? Is this common?
We were informed on Monday, that dad's feeding tube was leaking in his lungs, he has now developed infection, pneumonia, fever, ventilation back to 100%, peep 10, heart rate 140... this is after they told us he's clear from covid-19 pounds and the virus all together. Anyone experienced this? Trying
We were informed on Monday, that dad's feeding tube was leaking in his lungs, he has now developed infection, pneumonia, fever, ventilation back to 100%, peep 10, heart rate 140... this is after they told us he's clear from covid-19 pounds and the virus all together. Anyone experienced this? Trying
mimo18
in
ICUsteps
2 years ago
Dad Airlifted back to Mayo Clinic W/ Covid Complications, After Kidney Transplant And Mother is in a downward spiral, "Self Medicating"
Sorry guy's I really need to vent. I live in different states from my dad and family and can't see him right now because of the restrictions. Today My dad got Airlifted to Arizona for covid related complications. A little over a Month ago things were totally different after him being on dialysis for
Sorry guy's I really need to vent. I live in different states from my dad and family and can't see him right now because of the restrictions. Today My dad got Airlifted to Arizona for covid related complications. A little over a Month ago things were totally different after him being on dialysis for
Luna_Love143
in
Anxiety and Depression Support
2 years ago
Delusions/Hallucinarions
I became very sick 5 years ago with all the symptoms of PA but was undiagnosed. I got to the point where I started having delusions of parasitosis and hallucinations. Has anyone else experienced delusions or halluconations? I'm afraid my brain may have been permanently damaged?
I became very sick 5 years ago with all the symptoms of PA but was undiagnosed. I got to the point where I started having delusions of parasitosis and hallucinations. Has anyone else experienced delusions or halluconations? I'm afraid my brain may have been permanently damaged?
sunshinebee
in
Pernicious Anaemia Society
2 years ago
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