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How to become an advocate for kidney health
NKF advocates have won a number of policy campaigns both in Congress and state capitals across the country - but we're not done yet. We discussed some recent wins and upcoming challenges for the kidney advocate community with Jeff Currey, a Connecticut State Representative and kidney transplant recipient
NKF advocates have won a number of policy campaigns both in Congress and state capitals across the country - but we're not done yet. We discussed some recent wins and upcoming challenges for the kidney advocate community with Jeff Currey, a Connecticut State Representative and kidney transplant recipient
JackieJ_NKF
Partner
in
Kidney Donation
2 years ago
Possible brain lymphoma
Hi, my husband is waiting for a biopsy to check a lesion in his brain. His neurosurgeon told us it seems like lymphoma from MRI scan image, which is common among people on immunosuppressant after organ transplant. I have been feeling completely broken since he had emergency MRI two weeks ago. Our
Hi, my husband is waiting for a biopsy to check a lesion in his brain. His neurosurgeon told us it seems like lymphoma from MRI scan image, which is common among people on immunosuppressant after organ transplant. I have been feeling completely broken since he had emergency MRI two weeks ago. Our
Springbunny
in
British Liver Trust
2 years ago
interpreting results
Hi, hope you are all coping OK. I just have a little query. I was diagnosed during covid lockdown and it was a complete shock. Fatty liver had only ever been mentioned as an aside when looking for other things. My latest letter from my consultant says "compensated Nash cirrhosis,
Hi, hope you are all coping OK. I just have a little query. I was diagnosed during covid lockdown and it was a complete shock. Fatty liver had only ever been mentioned as an aside when looking for other things. My latest letter from my consultant says "compensated Nash cirrhosis,
sheperd86
in
British Liver Trust
2 years ago
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"Very abnormal LFT" + urgent fast track ultra-sound referral?
Morning all, I was wondering if anyone could offer some insight (or reassurance!) into some recent results I've had. My LFT were flagged as high back in June, Dr thought it could be due to really low vitamin D levels but after a 12 week high dose course of that (which is now fine) my liver function
Morning all, I was wondering if anyone could offer some insight (or reassurance!) into some recent results I've had. My LFT were flagged as high back in June, Dr thought it could be due to really low vitamin D levels but after a 12 week high dose course of that (which is now fine) my liver function
Stephskie2005
in
British Liver Trust
2 years ago
double lungs transplant
I was diagnosed with pulmonary sarcoidosis in 2020. My condition has worsened over the years to were I now have to been on oxygen all the time m ..I've recently been put on the list for a double lungs transplant after undergoing different test at Birmingham queens hospital .. After reading there
I was diagnosed with pulmonary sarcoidosis in 2020. My condition has worsened over the years to were I now have to been on oxygen all the time m ..I've recently been put on the list for a double lungs transplant after undergoing different test at Birmingham queens hospital .. After reading there
Purpal
in
Lung Conditions Community Forum
2 years ago
4 years post transplant and now a fibro scan of happy liver
Received a
Liver
Transplant
12/2017. 4 years later ... Life has been good. However, today I go to my Hepatologist for a Fibro scan of my Happy Liver. Checking for Fiberosous. Fibro scan is similar to Ultra Scan but it is supposed to give better image. Saying a prayer all good.
Received a
Liver
Transplant
12/2017. 4 years later ... Life has been good. However, today I go to my Hepatologist for a Fibro scan of my Happy Liver. Checking for Fiberosous. Fibro scan is similar to Ultra Scan but it is supposed to give better image. Saying a prayer all good.
meme7
in
British Liver Trust
2 years ago
Update on hubby Nov 2022
Hubby saw Hepatology Registrar yesterday. We have some great news to share. Hubbys liver is no longer Decompensated, it is now compensated 🎉 so he has gone from stage 4 ARLD to stage 3 ARLD 🎉. The hepatic encephalopathy systems have gone, so he is no longer on that medication. The Ascites & Odeoma
Hubby saw Hepatology Registrar yesterday. We have some great news to share. Hubbys liver is no longer Decompensated, it is now compensated 🎉 so he has gone from stage 4 ARLD to stage 3 ARLD 🎉. The hepatic encephalopathy systems have gone, so he is no longer on that medication. The Ascites & Odeoma
mumof3girls
in
British Liver Trust
2 years ago
Regression of Varices
Hi all, Following up on my mom's condition, she was diagnosed with PBC resulting in Cirrhosis two years ago. She was diagnosed quite late when there was already synthetic dysfunction and peripheral edema. Before treatment started she underwent endoscopy which revealed stage 1 esophageal varices. She
Hi all, Following up on my mom's condition, she was diagnosed with PBC resulting in Cirrhosis two years ago. She was diagnosed quite late when there was already synthetic dysfunction and peripheral edema. Before treatment started she underwent endoscopy which revealed stage 1 esophageal varices. She
Shon1234
in
PBC Foundation
2 years ago
after kidney transplants
I am 8 months post on 8/14 it has been almost too easy and I am so thankful but my numbers have always been low for a living donor. My doctors tell me everybody is different and no to get caught up in my numbers. I feel great so I suppose if my team is not concerned I should not be either. They have
I am 8 months post on 8/14 it has been almost too easy and I am so thankful but my numbers have always been low for a living donor. My doctors tell me everybody is different and no to get caught up in my numbers. I feel great so I suppose if my team is not concerned I should not be either. They have
Porter20
in
Kidney Transplant
2 years ago
UNOS Regions
I'm considering being referred to another hospital for a preemptive transplant but both are in the same USOS Region. They are different states, one in KS and the other in MO. The one in KS is closest but the one in MO says they have a shorter wait time AND the website has all sorts of information on
I'm considering being referred to another hospital for a preemptive transplant but both are in the same USOS Region. They are different states, one in KS and the other in MO. The one in KS is closest but the one in MO says they have a shorter wait time AND the website has all sorts of information on
horsie63
in
Kidney Transplant
2 years ago
Seeking one volunteer to work conference booth in November
Blue Faery is seeking a volunteer to work our conference booth at the annual AASLD Liver Meeting in Washington DC from Friday, November 4 to Monday, November 7. Learn more about the meeting here: https://www.aasld.org/the-liver-meeting
You must be outgoing, energetic, and willing to speak to anyone
Blue Faery is seeking a volunteer to work our conference booth at the annual AASLD Liver Meeting in Washington DC from Friday, November 4 to Monday, November 7. Learn more about the meeting here: https://www.aasld.org/the-liver-meeting
You must be outgoing, energetic, and willing to speak to anyone
AndreaWilson_Founder
Caregiver
in
Blue Faery Liver Cancer
2 years ago
34yr old mum in need of support with liver cirrhosis...
Hi I'm new to this group. I'm desperate for support as am scared... not for myself but my 2 kids. I'm 34yrs old-diagnosed at 18 with diabetes,under- active thyroid, NASH,retinopathy and neurological issues. I coped and brought my kids up. In 2019 I lost 5 stone within a year. My liver healed and LFT
Hi I'm new to this group. I'm desperate for support as am scared... not for myself but my 2 kids. I'm 34yrs old-diagnosed at 18 with diabetes,under- active thyroid, NASH,retinopathy and neurological issues. I coped and brought my kids up. In 2019 I lost 5 stone within a year. My liver healed and LFT
Hidden
in
British Liver Trust
2 years ago
Hi everyone one, my ALT and AST are both 100
I’m scared seeing my best friend passed in my Arms in 2019 because of chronic hepatitis which later became liver cancer, and I’m today diagnosed with the same condition chronic liver disease with both ALT and AST at 100 it’s very unfortunate for such a young man like me who had never drinks in my whole
I’m scared seeing my best friend passed in my Arms in 2019 because of chronic hepatitis which later became liver cancer, and I’m today diagnosed with the same condition chronic liver disease with both ALT and AST at 100 it’s very unfortunate for such a young man like me who had never drinks in my whole
Ishmailsannoh
in
British Liver Trust
2 years ago
The Constitution of Medical Knowledge (Part 2 of 3)
[u]
Loss of Respect for Expertise
[/u] How do we know what is true? None of us has the time or the inclination to test everything for ourselves. We rely on trusted experts to tell us. Few doubt that the heart pumps blood to our lungs and other tissues, although few have seen our hearts do that
[u]
Loss of Respect for Expertise
[/u] How do we know what is true? None of us has the time or the inclination to test everything for ourselves. We rely on trusted experts to tell us. Few doubt that the heart pumps blood to our lungs and other tissues, although few have seen our hearts do that
Tall_Allen
in
Advanced Prostate Cancer
2 years ago
The Constitution of Medical Knowledge (Part 2 of 3)
[u]
Loss of Respect for Expertise
[/u] How do we know what is true? None of us has the time or the inclination to test everything for ourselves. We rely on trusted experts to tell us. Few doubt that the heart pumps blood to our lungs and other tissues, although few have seen our hearts do that
[u]
Loss of Respect for Expertise
[/u] How do we know what is true? None of us has the time or the inclination to test everything for ourselves. We rely on trusted experts to tell us. Few doubt that the heart pumps blood to our lungs and other tissues, although few have seen our hearts do that
Tall_Allen
in
Prostate Cancer Network
2 years ago
The Constitution of Medical Knowledge (Part 2 of 3)
[u]
Loss of Respect for Expertise
[/u] How do we know what is true? None of us has the time or the inclination to test everything for ourselves. We rely on trusted experts to tell us. Few doubt that the heart pumps blood to our lungs and other tissues, although few have seen our hearts do that
[u]
Loss of Respect for Expertise
[/u] How do we know what is true? None of us has the time or the inclination to test everything for ourselves. We rely on trusted experts to tell us. Few doubt that the heart pumps blood to our lungs and other tissues, although few have seen our hearts do that
Tall_Allen
in
Advanced Prostate Cancer
2 years ago
Anyone else have double nephrectomy w Kidney transplant?
I am right at 3 months and still not completely recovered. I had double nephrectomy one day and transplant the next. anyone else have this? It has been a very hard recovery. Every week seems to bring a new problem. I began feeling emotionally drained last week. Struggles there now. My dr. rapidly decreased
I am right at 3 months and still not completely recovered. I had double nephrectomy one day and transplant the next. anyone else have this? It has been a very hard recovery. Every week seems to bring a new problem. I began feeling emotionally drained last week. Struggles there now. My dr. rapidly decreased
Rocknlily
in
Kidney Transplant
2 years ago
blood test results
Hi, I’m hoping someone can give some reassurance. receptionist from gp surgery called today with repeat blood test results to say my GGT levels were high and to avoid alcohol. I’ve booked a telephone consultation with a gp Monday to discuss these results. I had bloods done in august which they said my
Hi, I’m hoping someone can give some reassurance. receptionist from gp surgery called today with repeat blood test results to say my GGT levels were high and to avoid alcohol. I’ve booked a telephone consultation with a gp Monday to discuss these results. I had bloods done in august which they said my
Calll
in
British Liver Trust
2 years ago
concerned about stomach and diarrhoea
I have cirrhosis of liver not through alcohol, and now secondary bone cancer. Haven’t had to use lactulose because of getting diarrhoea. So.ndering whether it’s the food I eat? The blander the better I feel, or is my liver getting worse. So fed up with it all. And haven’t even started the cancer treatment
I have cirrhosis of liver not through alcohol, and now secondary bone cancer. Haven’t had to use lactulose because of getting diarrhoea. So.ndering whether it’s the food I eat? The blander the better I feel, or is my liver getting worse. So fed up with it all. And haven’t even started the cancer treatment
Muriel16
in
British Liver Trust
2 years ago
Joining the Group
Hi, Folks. I am joining as a newly diagnosed SLL patient, currently under treatment with BTKi and Gazyva. So far, I have read through many posts and have been comforted by your experiences and ways of coping with our ongoing immunity issues. I honestly feel very confident that these new treatments
Hi, Folks. I am joining as a newly diagnosed SLL patient, currently under treatment with BTKi and Gazyva. So far, I have read through many posts and have been comforted by your experiences and ways of coping with our ongoing immunity issues. I honestly feel very confident that these new treatments
tleachhsv
in
CLL America Support
2 years ago
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