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polyomavirus infection treatments
Hi everyone, My father received kidney transplant last year and 5 months ago he was diagnosed with polyomavirus and his doctor didn't manage to help it so far. if you have experience with this virus andnyou received treatment for it can you please share its name and your experiences? Would be very
Hi everyone, My father received kidney transplant last year and 5 months ago he was diagnosed with polyomavirus and his doctor didn't manage to help it so far. if you have experience with this virus andnyou received treatment for it can you please share its name and your experiences? Would be very
Pjennifer
in
Kidney Transplant
2 years ago
SPIRONOLACTONE . WHEN CAN I STOP TAKING IT?
I'm eager to know others experience and advice about Spironolactone. I was prescribed it 2 years ago when I had Ascites. I have never had a repeat of Ascites since that time, have undergone surgery successfully unrelated to liver issues and had no problems post General Anaesthetic. In short I have been
I'm eager to know others experience and advice about Spironolactone. I was prescribed it 2 years ago when I had Ascites. I have never had a repeat of Ascites since that time, have undergone surgery successfully unrelated to liver issues and had no problems post General Anaesthetic. In short I have been
bcsurfer
in
British Liver Trust
1 year ago
Confusing fibroscan result
Hello all, just a quick update on my partner following his visit to the hepatologist for a check-up 7 months after his last visit. Back in February he had a fibroscan that gave him a score of 16kPa, which was F3 severe fibrosis. At the time he saw a different consultant, who put his original decompensated
Hello all, just a quick update on my partner following his visit to the hepatologist for a check-up 7 months after his last visit. Back in February he had a fibroscan that gave him a score of 16kPa, which was F3 severe fibrosis. At the time he saw a different consultant, who put his original decompensated
Bibbybob
in
British Liver Trust
2 years ago
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falling off the wagon
I have been diagnosed with cirrhosis and have been off alcohol since diagnosed 2 moths ago I was never a heavy drinker but did have a few bottles of beer the other day feeling bad about this now as have been told never to drink again have I just signed my death sentence ?
I have been diagnosed with cirrhosis and have been off alcohol since diagnosed 2 moths ago I was never a heavy drinker but did have a few bottles of beer the other day feeling bad about this now as have been told never to drink again have I just signed my death sentence ?
Tim12
in
British Liver Trust
1 year ago
elevated liver tests but no diagnosis since 2004!!
hi everyone, Im 38 years old now and i have been having elevated liver enzymes since 2004 (22 years old). I have almost had all necessary tests done (biopsy twice, tons of blood tests for all sort of liver related diseases etc…) but nobady could name a proper diagnosis so far. Im recently on Ursoactive
hi everyone, Im 38 years old now and i have been having elevated liver enzymes since 2004 (22 years old). I have almost had all necessary tests done (biopsy twice, tons of blood tests for all sort of liver related diseases etc…) but nobady could name a proper diagnosis so far. Im recently on Ursoactive
Drummer1984
in
British Liver Trust
2 years ago
Liver cancer stage 4
Hello, I am hoping for some advice and support. My poor father was diagnosed with liver cancer in May. It is stage 4 and spread to both lungs a couple of months ago. I am hoping for some advice from people who may have, sadly, gone through this. He is extremely tired, with a very low appetite and
Hello, I am hoping for some advice and support. My poor father was diagnosed with liver cancer in May. It is stage 4 and spread to both lungs a couple of months ago. I am hoping for some advice from people who may have, sadly, gone through this. He is extremely tired, with a very low appetite and
Chadwickthecat
in
British Liver Trust
2 years ago
COVID: Staying Safe As The Virus Evolves - LLS Podcast / CLL Society’s COVID-19 Update December 5th, 2022 / Dec 15 2022 end Antibody Study
The Bloodline with LLS has a new episode!
https://thebloodline.org/TBL/132e134/?c_src=email&c_src2=sfmc&utm_source=sfmc&utm_medium=email&utm_campaign=Podcast+Episode+Announcement+-+COVID+-+December2022&utm_term COVID: Staying Safe As The Virus Evolves Join us as we speak to Dr. Lee Greenberger
The Bloodline with LLS has a new episode!
https://thebloodline.org/TBL/132e134/?c_src=email&c_src2=sfmc&utm_source=sfmc&utm_medium=email&utm_campaign=Podcast+Episode+Announcement+-+COVID+-+December2022&utm_term COVID: Staying Safe As The Virus Evolves Join us as we speak to Dr. Lee Greenberger
lankisterguy
Volunteer
in
CLL Support
1 year ago
Silychristin, a Flavonolignan Derived From the Milk Thistle, Is a Potent Inhibitor of the Thyroid Hormone Transporter MCT8
We have seen many claims for Milk Thistle over the years. Often suggested for people with liver-related issues. But the only person I know who tried it felt unwell from taking it. So I have long been cautious. This paper identifies a potentially significant issue with a constituent of Milk Thistle
We have seen many claims for Milk Thistle over the years. Often suggested for people with liver-related issues. But the only person I know who tried it felt unwell from taking it. So I have long been cautious. This paper identifies a potentially significant issue with a constituent of Milk Thistle
helvella
Thyroid UK
in
Thyroid UK
2 years ago
I don't know what to do :(
I was diagnosed with an underactive thyroid back in 2018. I assume it's autoimmune related as my anti body score was 410.8 but it's never been stated as such. My mum also has an underactive thyroid which I think is the main reason they started me on levothyroxin in the first place; 2 years before in
I was diagnosed with an underactive thyroid back in 2018. I assume it's autoimmune related as my anti body score was 410.8 but it's never been stated as such. My mum also has an underactive thyroid which I think is the main reason they started me on levothyroxin in the first place; 2 years before in
BluePumpkin
in
Thyroid UK
2 years ago
Fibroscan referrals
My wife and I took advantage of a Fibroscan Roadshow this week. Mine was normal but wife has reading of 12.2 kPa and an 1QR 47. The clinician who took my wife’s reading had a great deal of difficulty in getting the right position to get a reading from her liver. It took over 10 minutes! The results
My wife and I took advantage of a Fibroscan Roadshow this week. Mine was normal but wife has reading of 12.2 kPa and an 1QR 47. The clinician who took my wife’s reading had a great deal of difficulty in getting the right position to get a reading from her liver. It took over 10 minutes! The results
Curtis60
in
British Liver Trust
2 years ago
Fibroscan vs CT scan for cirrhosis diagnostics
I will ask this question to my consultant but since I won't see him in the next 2 months, I'll go ahead and ask here in case anyone knows. As I understand, Fibroscan can correctly show the fibrosis reading of, let's say 6.5 kPa, but CT scan can still detect liver nodularity and scarring which corresponds
I will ask this question to my consultant but since I won't see him in the next 2 months, I'll go ahead and ask here in case anyone knows. As I understand, Fibroscan can correctly show the fibrosis reading of, let's say 6.5 kPa, but CT scan can still detect liver nodularity and scarring which corresponds
Margolia
in
British Liver Trust
2 years ago
Hi, this is a post for all.
My son had a sucessfull heart transplant in March 2022, he's 48 and doing very well. Do you know anyone who has had a heart transplant and how they're getting on? 💖
My son had a sucessfull heart transplant in March 2022, he's 48 and doing very well. Do you know anyone who has had a heart transplant and how they're getting on? 💖
icd22
in
Women's Health
2 years ago
Experimental treatment for PD
Does anyone know anything about the clinical trials going on in the UK with Ambroxol as a treatment for PD (a repurposed cough medicine)? The preliminary results look good, but I can't find anything after 2021.
Does anyone know anything about the clinical trials going on in the UK with Ambroxol as a treatment for PD (a repurposed cough medicine)? The preliminary results look good, but I can't find anything after 2021.
Badmouth
in
Cure Parkinson's
2 years ago
First Fibroscan
Hi guys,so I just had a face to face with my consultant(which I asked for),for a general catch up. He’s really pleased with everything,and at the end I said will I be having a Fibroscan at some point, with that he stood up and whipped out this big laptop,had me lay on the bed and he did it there and
Hi guys,so I just had a face to face with my consultant(which I asked for),for a general catch up. He’s really pleased with everything,and at the end I said will I be having a Fibroscan at some point, with that he stood up and whipped out this big laptop,had me lay on the bed and he did it there and
deanw41
in
British Liver Trust
2 years ago
End of Life Memories
Thinking back to a year ago I was busy trying to turn an unused room filled with a lifetime of boxes into a habitable, useable bedroom for the arrival of a hospital bed before the hospital would allow mum to come home.
Thinking back to a year ago I was busy trying to turn an unused room filled with a lifetime of boxes into a habitable, useable bedroom for the arrival of a hospital bed before the hospital would allow mum to come home.
2022minks
in
British Liver Trust
2 years ago
BLOODS & SCAN UPDATE
Just had my bloods results UKELD score 60 now was 69 a month ago still slightly yellow still, my spleen has shrunk 1.2cm to 18.6cm the right-hand lobe of my liver is normal in size now, slowly improving got appointment at QE hospital 13 dec for first transplant assessment still but hopefully all the
Just had my bloods results UKELD score 60 now was 69 a month ago still slightly yellow still, my spleen has shrunk 1.2cm to 18.6cm the right-hand lobe of my liver is normal in size now, slowly improving got appointment at QE hospital 13 dec for first transplant assessment still but hopefully all the
lonmallin50
in
British Liver Trust
2 years ago
COVID update: Who remains at higher risk? by LLS.org
COVID update: Who remains at higher risk? https://www.lls.org/covid-19-resources Almost exactly three years ago on December 12, 2019, we received the first reports of a cluster of patients in China with symptoms of what turned out to be COVID-19. Vaccines and COVID-19 treatments have dramatically
COVID update: Who remains at higher risk? https://www.lls.org/covid-19-resources Almost exactly three years ago on December 12, 2019, we received the first reports of a cluster of patients in China with symptoms of what turned out to be COVID-19. Vaccines and COVID-19 treatments have dramatically
lankisterguy
Volunteer
in
CLL Support
1 year ago
Cirrhosis!
silly question but I was wondering if anyone ever was told that they have cirrhosis and one day it all got cleared? Is it possible for the liver to heal once it has cirrhosis and if anyone has the experience of this then please share the treatment or life style changes you may have adopted. Many thanks
silly question but I was wondering if anyone ever was told that they have cirrhosis and one day it all got cleared? Is it possible for the liver to heal once it has cirrhosis and if anyone has the experience of this then please share the treatment or life style changes you may have adopted. Many thanks
Hope1011
in
British Liver Trust
2 years ago
Post Transplant Issues
I had a kidney transplant on 2/11/21 and at the same time I was diagnosed with Parkinsons. Is there anyone out there who is on both anti-rejection drugs and carbidopa/levodopa. I have been struggling to feel better for 17+ months. I get so agitated and my quality of life just isn’t there.
I had a kidney transplant on 2/11/21 and at the same time I was diagnosed with Parkinsons. Is there anyone out there who is on both anti-rejection drugs and carbidopa/levodopa. I have been struggling to feel better for 17+ months. I get so agitated and my quality of life just isn’t there.
Mesabi
in
Kidney Transplant
2 years ago
de compensated
i Had been diagnosed with liver cirrhosis in jan 2021 it was de compensated been off the drink now for 7 months now oedema gone he gone just got a slight tinge of yellow some days on and off still on lactulose and water tablets my bilirubin level is still quite high does all this mean my liver is now
i Had been diagnosed with liver cirrhosis in jan 2021 it was de compensated been off the drink now for 7 months now oedema gone he gone just got a slight tinge of yellow some days on and off still on lactulose and water tablets my bilirubin level is still quite high does all this mean my liver is now
lonmallin50
in
British Liver Trust
2 years ago
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