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Asking for best guess info
As I've written, my husband stopped all treatment this past July after Lupron/Xtandi were causing worsening SEs while PSA was doubling/tripling from undetectable. He's now receiving palliative care and just had his first comprehensive bloodwork since the MO's on June 30. At that time his PSA registered
As I've written, my husband stopped all treatment this past July after Lupron/Xtandi were causing worsening SEs while PSA was doubling/tripling from undetectable. He's now receiving palliative care and just had his first comprehensive bloodwork since the MO's on June 30. At that time his PSA registered
Shamrock46
in
Advanced Prostate Cancer
8 months ago
Brother's numbers since ADT plus Orchiectomey since diagnosed in February
Hi folks. I've been reading daily posts here since February when my brother was diagnosed with metastatic PC in February after a reading of 367.8 PSA. Thanks for all the good information! Cancer is in his skull, ribs, lymth nodes, and spine. He had one ADT injection right away and opted for an Orchiectomey
Hi folks. I've been reading daily posts here since February when my brother was diagnosed with metastatic PC in February after a reading of 367.8 PSA. Thanks for all the good information! Cancer is in his skull, ribs, lymth nodes, and spine. He had one ADT injection right away and opted for an Orchiectomey
Sparlingo
in
Advanced Prostate Cancer
8 months ago
ipp and salvage radiation
Rp on july of 22 for gleason 3+4 with psa of 16. PT3b, pN1 with negative margins and 2 of 11 lymph nodes involved. I took a nomogram online and came out 75% likely for recurrence. My first psa post op was .02, then .03, .04, .04, .05 in late august- so I've crossed line #1. Which is a bummer but not
Rp on july of 22 for gleason 3+4 with psa of 16. PT3b, pN1 with negative margins and 2 of 11 lymph nodes involved. I took a nomogram online and came out 75% likely for recurrence. My first psa post op was .02, then .03, .04, .04, .05 in late august- so I've crossed line #1. Which is a bummer but not
Katamiran
in
Prostate Cancer Network
8 months ago
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Oestradial HRT & the thyroid, Lenzetto blood tests
I just wondered if low oestradial affects the thyroid? I have been on HRT since March and my level is still only 197 pmol/L. I use 3 sprays of Lenzetto. I wondered if it could be affecting my thyroid function? I don’t have menopause symptoms, I had bottom of range testosterone, but this is now in range
I just wondered if low oestradial affects the thyroid? I have been on HRT since March and my level is still only 197 pmol/L. I use 3 sprays of Lenzetto. I wondered if it could be affecting my thyroid function? I don’t have menopause symptoms, I had bottom of range testosterone, but this is now in range
CornishChick
in
Thyroid UK
8 months ago
confused about supplements and certain foods
greetings I’m trying to get some clarity on what I can eat and take as supplements. My PSA is currently undetectable but clearly with ADT I’m trying to build or keep as much muscle as possible. I take creatine would like to add bcaa/lucene and glutamine. Any issues here? Also I tend to consume a
greetings I’m trying to get some clarity on what I can eat and take as supplements. My PSA is currently undetectable but clearly with ADT I’m trying to build or keep as much muscle as possible. I take creatine would like to add bcaa/lucene and glutamine. Any issues here? Also I tend to consume a
SierraSix
in
Advanced Prostate Cancer
8 months ago
help - very bad rectocele 4.8 cm
hi please I have a very bad rectocele 4.8cm and excessive perennial descent I was told by surgeon not to operate as won’t be successful 47 - and I have bad constipation amd issues with thyroid But everyday is a nightmare Getting to a point I don’t want to eat as then I need to poop down to 47
hi please I have a very bad rectocele 4.8cm and excessive perennial descent I was told by surgeon not to operate as won’t be successful 47 - and I have bad constipation amd issues with thyroid But everyday is a nightmare Getting to a point I don’t want to eat as then I need to poop down to 47
Chouchou1234
in
Pelvic Pain Support Network
8 months ago
AF - massage no go for me.
I looked at a number of massage techniques before deciding on "Bowen
Therapy
," which is a comprehensive,
light
-touch approach to muscular manipulation. I was dubious at first, but after the treatment, I felt very relaxed and chilled.
I looked at a number of massage techniques before deciding on "Bowen
Therapy
," which is a comprehensive,
light
-touch approach to muscular manipulation. I was dubious at first, but after the treatment, I felt very relaxed and chilled.
Fight-the-good-fight
in
Atrial Fibrillation Support
3 months ago
wondering if traction for back is advised while on ADT
my nutty question, I have a back stretcher and it will pull vertebrae apart. U can do same by lying flat on a table gradually pulling yourself forward till abdomen and chest are perpendicular to floor and arms touching. Try at your own risk. I am not a doctor just an orthopedic nightmare with hundreds
my nutty question, I have a back stretcher and it will pull vertebrae apart. U can do same by lying flat on a table gradually pulling yourself forward till abdomen and chest are perpendicular to floor and arms touching. Try at your own risk. I am not a doctor just an orthopedic nightmare with hundreds
TuffNuttoCrack
in
Advanced Prostate Cancer
8 months ago
Recent GP visit - Thoughts please!
Hi. I'm 60. Last week I just couldn't function, at my whit's end - again. Did another e-consult. Typed out all my history, including being diagnosed with CFS in 2011 and struggling since then with the list of symptoms. Also included my Medichecks thyroid panel results, which have been ignored by the
Hi. I'm 60. Last week I just couldn't function, at my whit's end - again. Did another e-consult. Typed out all my history, including being diagnosed with CFS in 2011 and struggling since then with the list of symptoms. Also included my Medichecks thyroid panel results, which have been ignored by the
Sleepysparrow
in
Thyroid UK
8 months ago
Castration resistant in just a year? Normal or not? Provenge in my future.
I'm already "mildly symptomatic castration resistant." PSA tripled in the last 30 days (but still extremely low), after doubling in the prior 3 months. I was diagnosed with stage 4b (mets in multiple bones and nodes) ductal and started ADT 13 months ago. Nubeqa and Docetaxel (Triplet therapy) started
I'm already "mildly symptomatic castration resistant." PSA tripled in the last 30 days (but still extremely low), after doubling in the prior 3 months. I was diagnosed with stage 4b (mets in multiple bones and nodes) ductal and started ADT 13 months ago. Nubeqa and Docetaxel (Triplet therapy) started
Gl448
in
Advanced Prostate Cancer
8 months ago
Testosterone and SHBG puzzle ...
Hello all, I am on HRT including testosterone replacement: what do you think of these results? High SHBG, high testosterone but sub-optimal Free Androgen Index, I was told by a menopause doctor that the index should be around 2.5 to be optimal and that is the most important indicator. I was put on a
Hello all, I am on HRT including testosterone replacement: what do you think of these results? High SHBG, high testosterone but sub-optimal Free Androgen Index, I was told by a menopause doctor that the index should be around 2.5 to be optimal and that is the most important indicator. I was put on a
Clara62
in
Menopause and Perimenopause Support
8 months ago
Prostap longer than 6 months?
Hi there. I’m currently on Prostap with Tibilone to manage my stage 4 Endo with adenomyosis, fibroids and an endometrioma. I’m 49 soon so prob perimenopausal. I’ve had a long history of open surgeries, laparatomy etc. so no stranger to surgery. My symptoms are currently very manageable although my
Hi there. I’m currently on Prostap with Tibilone to manage my stage 4 Endo with adenomyosis, fibroids and an endometrioma. I’m 49 soon so prob perimenopausal. I’ve had a long history of open surgeries, laparatomy etc. so no stranger to surgery. My symptoms are currently very manageable although my
Honeybeehappy
in
Endometriosis UK
8 months ago
Support stockings
Anyone else finding these things so difficult to put on? With breathing problems, tennis elbow and oxygen therapy.....add to that living alone..
Anyone else finding these things so difficult to put on? With breathing problems, tennis elbow and oxygen therapy.....add to that living alone..
Annieosb
in
Lung Conditions Community Forum
11 months ago
cost of Forteo, Tymlos, Evenity, Prolia in USA
after being on HRT for a year my numbers have worsened and I now have osteoporosis in spine and both hips in the -3 range. In addition I need a biopsy for breast lump. Ugh. So I’m faced with choosing a new osteoporosis drug. Besides the side effects they all seem to have, I’m considering the cost as
after being on HRT for a year my numbers have worsened and I now have osteoporosis in spine and both hips in the -3 range. In addition I need a biopsy for breast lump. Ugh. So I’m faced with choosing a new osteoporosis drug. Besides the side effects they all seem to have, I’m considering the cost as
Kimada
in
Osteoporosis Support
8 months ago
3rd time hair loss in 2 years
Hi all, I'm coming up on my 2 year anniversary of BC diagnosis. Just over 1 years since I was diagnosed stage 4. This last week I started a new chemo for targeted therapy. This is my 3rd med switch in a year due to progression. I knew it was possible that I could lose my hair again. (1st time with
Hi all, I'm coming up on my 2 year anniversary of BC diagnosis. Just over 1 years since I was diagnosed stage 4. This last week I started a new chemo for targeted therapy. This is my 3rd med switch in a year due to progression. I knew it was possible that I could lose my hair again. (1st time with
Warrio
in
SHARE Breast Cancer Support
11 months ago
Asking for advice
Since I first diagnosed with PC (T3bNx, GS 3+4)last February, 2023, I’ve been through RP, ADT and IMRT continuously. I had Firmagon shot twice before RP and switched ADT to Eligard. Then I started 25 sessions of IMRT. All the treatments was done within 3 and half months. Now I am exhausted. I am
Since I first diagnosed with PC (T3bNx, GS 3+4)last February, 2023, I’ve been through RP, ADT and IMRT continuously. I had Firmagon shot twice before RP and switched ADT to Eligard. Then I started 25 sessions of IMRT. All the treatments was done within 3 and half months. Now I am exhausted. I am
ventusbella
in
Advanced Prostate Cancer
7 months ago
Ugg, can we talk erections
So, even with Cialis I am having issues getting erect and certainly having an orgasm. Some questions for the group: 1. How much of this is the hormone therapy? Meaning, likely by now (more than 2mths on ADT) my testo has dropped very very far right? 2. Why doesnt Cialis help? 3. What is my outcome
So, even with Cialis I am having issues getting erect and certainly having an orgasm. Some questions for the group: 1. How much of this is the hormone therapy? Meaning, likely by now (more than 2mths on ADT) my testo has dropped very very far right? 2. Why doesnt Cialis help? 3. What is my outcome
Yzinger
in
Advanced Prostate Cancer
8 months ago
Does anyone know of a connection between undermedication and histamine intolerance, or if there are histamines in Armour thyroid?
My histamine intolerance symptoms have gone crazy of late, to the extent I've had to significantly change my diet. Histamine intolerance is something I have suffered with on and off for years, but nothing like it is now. I have 2 theories, namely one I am undermedicated or two Armour may be behind
My histamine intolerance symptoms have gone crazy of late, to the extent I've had to significantly change my diet. Histamine intolerance is something I have suffered with on and off for years, but nothing like it is now. I have 2 theories, namely one I am undermedicated or two Armour may be behind
Reefseeker
in
Thyroid UK
11 months ago
IVF medication following BFP for those with POF?
Hi everyone Hoping to find a consensus re: dates of stopping hormone treatment for those with premature ovarian failure going through IVF. Recently thrilled to get a BFP following D5 DE FET (still early days, only 4.5 weeks along). My clinic seem to adopt a 'one-size fits all' approach and stops progesterone
Hi everyone Hoping to find a consensus re: dates of stopping hormone treatment for those with premature ovarian failure going through IVF. Recently thrilled to get a BFP following D5 DE FET (still early days, only 4.5 weeks along). My clinic seem to adopt a 'one-size fits all' approach and stops progesterone
Buzzler
in
Fertility Network UK
8 months ago
Some recent info on PSMA PET from "Urology Times"
Greetings FPC folk, I thought I would put out some recent info from "Urology Times" relating to PSMA scans : https://www.urologytimes.com/view/overview-of-available-clinical-guidelines-on-psma-pet-imaging-in-prostate-cancer?utm_source=sfmc&utm_medium=email&utm_campaign=09282023_UT_LAN-23-URV0147_
Greetings FPC folk, I thought I would put out some recent info from "Urology Times" relating to PSMA scans : https://www.urologytimes.com/view/overview-of-available-clinical-guidelines-on-psma-pet-imaging-in-prostate-cancer?utm_source=sfmc&utm_medium=email&utm_campaign=09282023_UT_LAN-23-URV0147_
NPfisherman
in
Fight Prostate Cancer
8 months ago
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