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Levodopa / Carbidopa / Entacapone
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Amantadine questions
I'm on
carbidopa
/
levodopa
,
entacapone
and amantadine (100 mg 3x/day). Do you find it causes swelling in the feet, lower legs and hands? If you came off the drug, what was the upside and the downside? How did you come off of it? I understand that you can't quit it abruptly. Thanks for reponses
I'm on
carbidopa
/
levodopa
,
entacapone
and amantadine (100 mg 3x/day). Do you find it causes swelling in the feet, lower legs and hands? If you came off the drug, what was the upside and the downside? How did you come off of it? I understand that you can't quit it abruptly. Thanks for reponses
Zardoz
in
Cure Parkinson's
5 months ago
HDT- B1 overdose and worsening of symtoms
Hello all, after start 50mg B1 sublingual on April 10th 3 times a week i experimented a worsening of symtoms on April 24th. I stop B1 that day. Today, 9 days after, it still does not seems that worsening regresses. I still have more tremor, could not sleep, and Levodopa/carbidopa does not seem to have
Hello all, after start 50mg B1 sublingual on April 10th 3 times a week i experimented a worsening of symtoms on April 24th. I stop B1 that day. Today, 9 days after, it still does not seems that worsening regresses. I still have more tremor, could not sleep, and Levodopa/carbidopa does not seem to have
carlosgarcia2048
in
Cure Parkinson's
19 days ago
How long off mirapex before moving on?
A friend with infrequent rls says carbidopa levodopa works almost instantly when symtoms began. Because I mays go several days without rls, I would rather have a med that I can take as needed rather than taking a med daily when most days I don't need it. Is this too good to be true? I'm up to one mg
A friend with infrequent rls says carbidopa levodopa works almost instantly when symtoms began. Because I mays go several days without rls, I would rather have a med that I can take as needed rather than taking a med daily when most days I don't need it. Is this too good to be true? I'm up to one mg
bluechipx
in
Restless Legs Syndrome
22 days ago
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Repost with more info: peripheral neuropathy
Thanks to Marion and Esperanto for helping me to provide more information. All questions answered here... (Original post question: my Movement Disorders Specialist (MDS) says foot numbness is not Pripheral Neuropathy, but rather a non motor symptom of Parkinson's??? ) I'm in my 10th year with PD symptoms
Thanks to Marion and Esperanto for helping me to provide more information. All questions answered here... (Original post question: my Movement Disorders Specialist (MDS) says foot numbness is not Pripheral Neuropathy, but rather a non motor symptom of Parkinson's??? ) I'm in my 10th year with PD symptoms
rebtar
in
Cure Parkinson's
27 days ago
Timing of co-careldopa
I've written to US NLM regarding the difference of advice given when taken the co-careldopa pill, as follows....Thank you for contacting the U.S. National Library of Medicine (NLM). The details of your message are listed below. You can expect to hear from us within 2 to 5 business days. For additional
I've written to US NLM regarding the difference of advice given when taken the co-careldopa pill, as follows....Thank you for contacting the U.S. National Library of Medicine (NLM). The details of your message are listed below. You can expect to hear from us within 2 to 5 business days. For additional
Allypally49
in
Cure Parkinson's
2 months ago
Drooping in left side of face
Hello. My mom was diagnosed with CBD last year after many visits to different neurologists and having taken many MRIs, C/T, x-ray and blood work of her brain, neck, left shoulder and back. Her symptom started 5 years ago in 2019 when she was 73yrs old, but none of the neurologists could figure out what
Hello. My mom was diagnosed with CBD last year after many visits to different neurologists and having taken many MRIs, C/T, x-ray and blood work of her brain, neck, left shoulder and back. Her symptom started 5 years ago in 2019 when she was 73yrs old, but none of the neurologists could figure out what
Blueberry637
in
PSP Association
2 months ago
Nicotine Patch helps immensely.
For the last week, I’ve been wearing a 7mg nicotine patch with amazing results. Almost every night since I’ve slept through the night. My symptoms have improved, I have a much better sense of wellbeing. Nicotine has been known for years for its medicinal properties. Eggplant has the second most nicotine
For the last week, I’ve been wearing a 7mg nicotine patch with amazing results. Almost every night since I’ve slept through the night. My symptoms have improved, I have a much better sense of wellbeing. Nicotine has been known for years for its medicinal properties. Eggplant has the second most nicotine
38yroldmale
in
Cure Parkinson's
2 months ago
Symptoms of Carbidopa levodopa overdose?
What are the symptoms of c/l overdose? I may have accidentally taken my morning dose twice!
What are the symptoms of c/l overdose? I may have accidentally taken my morning dose twice!
Gallowglass
in
Cure Parkinson's
4 months ago
Carbidopa/Levodopa??
I have always taken Carbidopa/Levodopa for my RLS. I have always been told it is usually given to Parkinson’s patients but I don’t have Parkinson’s. Anyone else take it?
I have always taken Carbidopa/Levodopa for my RLS. I have always been told it is usually given to Parkinson’s patients but I don’t have Parkinson’s. Anyone else take it?
Duke1318
in
Restless Legs Syndrome
4 months ago
brand name
Hi Have you noticed any difference between brand and generic type of Carbidopa / Levodopa in regard to effectiveness or side effects. Appreciate your help
Hi Have you noticed any difference between brand and generic type of Carbidopa / Levodopa in regard to effectiveness or side effects. Appreciate your help
Rupa88
in
Cure Parkinson's
4 months ago
Swapping Rasagiline for Safinamide - Hobson’s Choice or out of the frying pan and into the fire?
I have been on Rasagiline from the start. 8 years as my staple bedrock of my cocktail of PD drugs principally Ropinirole, Amantadine and of course Co-Careldopa. I have a pacemaker and take Atorvastatin and Ramipril for heart issues. Now the pharmacy says Rasagiline is in short supply in the UK and likely
I have been on Rasagiline from the start. 8 years as my staple bedrock of my cocktail of PD drugs principally Ropinirole, Amantadine and of course Co-Careldopa. I have a pacemaker and take Atorvastatin and Ramipril for heart issues. Now the pharmacy says Rasagiline is in short supply in the UK and likely
Lyricist
in
Cure Parkinson's
4 months ago
Rasagiline?
I had an appointment with a neurologist who wants me to continue taking Carbidopa-levodopa, but also take Rasagiline. The side effects and food interactions list seem onerous and dangerous to me. And, it is rather expensive. I canceled the prescription until I understand this drug better. Any thoughts
I had an appointment with a neurologist who wants me to continue taking Carbidopa-levodopa, but also take Rasagiline. The side effects and food interactions list seem onerous and dangerous to me. And, it is rather expensive. I canceled the prescription until I understand this drug better. Any thoughts
mk2002wi
in
Cure Parkinson's
6 months ago
B6 - advice
I’m confused about B6. is the advice with Co-Careldopa not to take, at all. Or to take after Co-Careldopa has been absorbed. my recent blood tests showed me deficient in B6. thanks
I’m confused about B6. is the advice with Co-Careldopa not to take, at all. Or to take after Co-Careldopa has been absorbed. my recent blood tests showed me deficient in B6. thanks
Nb11
in
Cure Parkinson's
6 months ago
Parkinson's Drugs Summary
Found this lecture helpful to know what my options are after the neurologist chose for me. Currently on madopar with entacapone newly added. Feel a little better. Time will tell. https://youtu.be/LJVcrvrFYJs?si=Km9qcU_fC71QRSbz
Found this lecture helpful to know what my options are after the neurologist chose for me. Currently on madopar with entacapone newly added. Feel a little better. Time will tell. https://youtu.be/LJVcrvrFYJs?si=Km9qcU_fC71QRSbz
Thal
in
Cure Parkinson's
25 days ago
END GAME We may be alone
My case is probably the same as many but as always there will be many experiencing a different situation . I write in hopes that I may help others others know what is ahead or maybe get a reply that will further that knowledge for me. Recap: I am a 77 year old male, diagnosed with PD in 2002, 22
My case is probably the same as many but as always there will be many experiencing a different situation . I write in hopes that I may help others others know what is ahead or maybe get a reply that will further that knowledge for me. Recap: I am a 77 year old male, diagnosed with PD in 2002, 22
Gymsack
in
Cure Parkinson's
1 month ago
Anyone experience a wearing off cough/shortness of breath?
Hi everyone, does anyone experience a ‘wearing off’ cough or shortness of breath? Not much info out there other than it is not determined if it is the meds, PD, or wearing off. Hubby is experiencing this the last few weeks and it seems to happen during wearing off, it’s an awful cough and tight chest
Hi everyone, does anyone experience a ‘wearing off’ cough or shortness of breath? Not much info out there other than it is not determined if it is the meds, PD, or wearing off. Hubby is experiencing this the last few weeks and it seems to happen during wearing off, it’s an awful cough and tight chest
PEB69
in
Cure Parkinson's
2 months ago
Vitamin B6 in B Complexes
Seeking advice on Vitamin B6 in B Complexes. Background: Diagnosed hypothyroid since the late 1990's; switched to T3 liothyronine only since about 2014 because levothyroxine didn't help me . Diagnosed with Parkinson's (finally!) in early 2023. Currently under the care of a movement disorders specialist
Seeking advice on Vitamin B6 in B Complexes. Background: Diagnosed hypothyroid since the late 1990's; switched to T3 liothyronine only since about 2014 because levothyroxine didn't help me . Diagnosed with Parkinson's (finally!) in early 2023. Currently under the care of a movement disorders specialist
chrysalis56
in
Thyroid UK
1 day ago
How Much Carbidopa Levodopa After 5-10 Years? Any other meds?
I am about to "celebrate" the six year anniversary of my Parkinson's disease diagnosis. I currently take five 25/100 Carbidopa Levodopa tablets per day, usually around 9:00 a.m., noon, 3:00 p.m., 6:00 p.m., and 9:00 p.m. although timing varies slightly from day to day. Lately, I have noticed that I
I am about to "celebrate" the six year anniversary of my Parkinson's disease diagnosis. I currently take five 25/100 Carbidopa Levodopa tablets per day, usually around 9:00 a.m., noon, 3:00 p.m., 6:00 p.m., and 9:00 p.m. although timing varies slightly from day to day. Lately, I have noticed that I
jimcaster
in
Cure Parkinson's
2 months ago
Interesting(and extremely painful)side effect from Parkinson's to be aware of.
I am 68 year old male who was diagnosed with Parkinson's 8 years ago. Recently I sustained an injury to my lower back/hip area that was diagnosed as a strained QL muscle. My PT told me to slow down with my workouts and physical activities so I did but I continued to have extremely painful and debilitating
I am 68 year old male who was diagnosed with Parkinson's 8 years ago. Recently I sustained an injury to my lower back/hip area that was diagnosed as a strained QL muscle. My PT told me to slow down with my workouts and physical activities so I did but I continued to have extremely painful and debilitating
brauncs
in
Cure Parkinson's
7 months ago
Variation in dose: doctor to doctor
We often hear the following said to help explain the difference in drug regimen between one PD patient and another: "all patients are different". At its simplest in a regimen formed entirely of carbidopa/levodopa we see daily doses of between 50 and 2000mg, perhaps more. While it's likely that the
We often hear the following said to help explain the difference in drug regimen between one PD patient and another: "all patients are different". At its simplest in a regimen formed entirely of carbidopa/levodopa we see daily doses of between 50 and 2000mg, perhaps more. While it's likely that the
johntPM
in
Cure Parkinson's
7 months ago
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