Search
Search
About
Log in
Join
Experiences with
Leukaemia
Posts
Communities
3,268 public posts
Filter results
Does Hydroxycarbamide make it take longer for you to recover from an infection?
Hi everyone! I'm new on this site and I'm interested in learning about the experiences of people with Essential Thrombocythaemia (ET). I was diagnosed with Janus Kinase 2 (JaK2)-positive ET about a year ago but only started on oral chemotherapy with Hydroxycarbamide (Hydroxyurea) a few weeks ago, as
Hi everyone! I'm new on this site and I'm interested in learning about the experiences of people with Essential Thrombocythaemia (ET). I was diagnosed with Janus Kinase 2 (JaK2)-positive ET about a year ago but only started on oral chemotherapy with Hydroxycarbamide (Hydroxyurea) a few weeks ago, as
JaK2ET
in
MPN Voice
4 years ago
CLL, leg pains, high colesterol, sweats, exercise isn’t helping anymore 😢
Specialist said it’s a very slow moving strand of
leukaemia
and I may not even have to have treatment for another 20-30 years. Thing is I’m 37, last few months I’ve been getting really bad leg pains. It’s like a throbbing dense pain and only goes away with anti inflammatorys.
Specialist said it’s a very slow moving strand of
leukaemia
and I may not even have to have treatment for another 20-30 years. Thing is I’m 37, last few months I’ve been getting really bad leg pains. It’s like a throbbing dense pain and only goes away with anti inflammatorys.
Hidden
in
CLL Support
4 years ago
Bloodwork on imbruvica
Hi all!! Just got my bloodwork back My WBC WAS 230,000 On imbruvica for three months My WBC IS 21,000 Lymphocytes were 51,000 now 20,000 in one month... Beside the side affects imbruvica is truly a miracle pill!! I am so happy 😀 Thanks for taking the time out reading this great news!! 🧡💪🏻 kicking
Hi all!! Just got my bloodwork back My WBC WAS 230,000 On imbruvica for three months My WBC IS 21,000 Lymphocytes were 51,000 now 20,000 in one month... Beside the side affects imbruvica is truly a miracle pill!! I am so happy 😀 Thanks for taking the time out reading this great news!! 🧡💪🏻 kicking
littledab
in
CLL Support
4 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Questions about Richter Syndrome
Hi. I would like to ask you some important questions. 1-Before being diagnosed with chronic lymphocytic leukemia, did you constantly have herpes? 2- Have you received treatment for chronic lymphocytic leukemia with chemotherapy? 3- When he was diagnosed with Ricther transformation, had he been previously
Hi. I would like to ask you some important questions. 1-Before being diagnosed with chronic lymphocytic leukemia, did you constantly have herpes? 2- Have you received treatment for chronic lymphocytic leukemia with chemotherapy? 3- When he was diagnosed with Ricther transformation, had he been previously
Priss69
in
CLL Support
4 years ago
AML video update of advances in AML treatment by Dr Manos Nikolousis
In this video, he describes how, thanks to increasing use of genetic and molecular information, newer non-chemotherapy medicines are changing the treatment of acute myeloid
leukaemia
(AML). https://youtu.be/dEQyvbOqISE
In this video, he describes how, thanks to increasing use of genetic and molecular information, newer non-chemotherapy medicines are changing the treatment of acute myeloid
leukaemia
(AML). https://youtu.be/dEQyvbOqISE
HAIRBEAR_UK
Administrator
in
Leukaemia CARE
4 years ago
Richter Transformation Survival in CLL Appears Better Among Treatment-Naive
A new nationwide study showed that the 5-year cumulative incidence of Richter transformation (RT) among patients with chronic lymphocytic leukemia (CLL) was 2.8%. Of those patients whose disease transformed, about half (49%) were treatment-naive prior to transformation. The researchers identified 3
A new nationwide study showed that the 5-year cumulative incidence of Richter transformation (RT) among patients with chronic lymphocytic leukemia (CLL) was 2.8%. Of those patients whose disease transformed, about half (49%) were treatment-naive prior to transformation. The researchers identified 3
Jm954
Administrator
in
CLL Support
4 years ago
CLL Treatment Advice/Recommendations/Etc For Newbie
After monitoring for 1 year, my doc has recommended that I participate in Trial #EA9161, a 19-month program using ibrutinib, obinutuzumab, & venetoclax. I am a 52-yr-old male with no experience in this arena and am seeking all the advice/info I can get (especially first-hand, or very close to it).
After monitoring for 1 year, my doc has recommended that I participate in Trial #EA9161, a 19-month program using ibrutinib, obinutuzumab, & venetoclax. I am a 52-yr-old male with no experience in this arena and am seeking all the advice/info I can get (especially first-hand, or very close to it).
username-the-dude
in
CLL Support
4 years ago
Mutated and unmutated cll for dummies
When told I had chronic lymphocytic leukemia (cll) four years ago, all I heard was "leukemia". Google soon became my best friend and worst enemy. I just wanted to find out how long I had to live. My travels on the learning curve of cll were slow with many wrong turns. I figured out chronic leukemia
When told I had chronic lymphocytic leukemia (cll) four years ago, all I heard was "leukemia". Google soon became my best friend and worst enemy. I just wanted to find out how long I had to live. My travels on the learning curve of cll were slow with many wrong turns. I figured out chronic leukemia
cajunjeff
in
CLL Support
4 years ago
Sarcomatoid SCCs and ruxolitinib BMB
Hi As I posted here, I had a BMB a couple of weeks ago. Unfortunately the first part of the sample that was analysed had been badly taken and couldn’t be fully analysed. What a bummer. So I’ll have to wait for the trephine ( bony core) part of the biopsy to be analysed. I’m still hoping that I can
Hi As I posted here, I had a BMB a couple of weeks ago. Unfortunately the first part of the sample that was analysed had been badly taken and couldn’t be fully analysed. What a bummer. So I’ll have to wait for the trephine ( bony core) part of the biopsy to be analysed. I’m still hoping that I can
Rachelthepotter
in
MPN Voice
4 years ago
Comparative analysis of targeted novel therapies (ibrutinib vs. venetoclax) in relapsed, refractory CLL (Feb 2020)
"To date, no prospective trials have directly compared ibrutinib with venetoclax as NA1 in R/R CLL. It remains a key unanswered question as to which of these two NAs optimises the balance of safety and efficacy when utilized as the NA1 in R/R CLL. To address this, we report a large, international study
"To date, no prospective trials have directly compared ibrutinib with venetoclax as NA1 in R/R CLL. It remains a key unanswered question as to which of these two NAs optimises the balance of safety and efficacy when utilized as the NA1 in R/R CLL. To address this, we report a large, international study
avzuclav
in
CLL Support
4 years ago
Here are 6 cancer articles from the European Molecular Biology Laboratory.
Rather than clutter the forum I have lumped them altogether within the same post, as they are all from the same source
.
------------------------------------------------------------------------------
[u]Finding genetic cancer risks.[/u]
EMBL scientists describe how our genetic background
Rather than clutter the forum I have lumped them altogether within the same post, as they are all from the same source
.
------------------------------------------------------------------------------
[u]Finding genetic cancer risks.[/u]
EMBL scientists describe how our genetic background
2greys
in
Lung Conditions Community Forum
4 years ago
Life with cll. Another new concern.
Hi everyone, My last post was three weeks ago just after I had my tonsillectomy. And unfortunately today I got the results. It turns out my abnormal tonsils were full of cll cells. Or as my surgeon said loaded with cancer cells. Has anyone else here had the same experience or results? He recommended
Hi everyone, My last post was three weeks ago just after I had my tonsillectomy. And unfortunately today I got the results. It turns out my abnormal tonsils were full of cll cells. Or as my surgeon said loaded with cancer cells. Has anyone else here had the same experience or results? He recommended
Suzuki1000
in
CLL Support
4 years ago
March 7 2020 CLL PATIENT AND CAREGIVER EDUCATIONAL FORUM Saturday 8:00am - 12:30pm Rockefeller Auditorium 430 East 67th St Manhattan
To register: https://newyork2020.questionpro.com CLL Society Inc. • P. O. Box 1390 • Claremont CA 91711 • https://cllsociety.org 2019-2020 CLL PATIENT AND CAREGIVER EDUCATIONAL FORUM In partnership with Memorial Sloan Kettering Cancer Center, the CLL Society invites you to attend our informational CLL
To register: https://newyork2020.questionpro.com CLL Society Inc. • P. O. Box 1390 • Claremont CA 91711 • https://cllsociety.org 2019-2020 CLL PATIENT AND CAREGIVER EDUCATIONAL FORUM In partnership with Memorial Sloan Kettering Cancer Center, the CLL Society invites you to attend our informational CLL
lankisterguy
Volunteer
in
CLL Support
4 years ago
SCIENCE WORKING TO PREVENT AML TRANSITION THROUGH BLOCKING GENE TALK
Potentially, it has discovered that two High Risk (HR) genes that already were bad enough on their own create a partnership of sorts that Might lead to transitional changes towards becoming Acute Myeloid
Leukaemia
(AML), and what's really exciting, is that they may have found a way to prevent that gene
Potentially, it has discovered that two High Risk (HR) genes that already were bad enough on their own create a partnership of sorts that Might lead to transitional changes towards becoming Acute Myeloid
Leukaemia
(AML), and what's really exciting, is that they may have found a way to prevent that gene
socrates_8
in
MPN Voice
4 years ago
Essential thrombocytosis leg pain
I think I may have asked before i cant even remember. I have been having leg cramps/ pain around knee joints not severe my haematologist said it could be et related not sure? Should I push it with my gp. Does anyone else with et get this.
I think I may have asked before i cant even remember. I have been having leg cramps/ pain around knee joints not severe my haematologist said it could be et related not sure? Should I push it with my gp. Does anyone else with et get this.
Irishgal12
in
MPN Voice
4 years ago
Mutation's role in blood cancers revealed by ideal team-up
Post by MPN-MATE Admin » Sat Feb 01, 2020 4:35 am Hey everyone... :D Just thought that I would share this one with all of you... When we are diagnosed, our prognosis usually depends upon which MPN condition, (which are believed to be caused by our 'DRIVER' mutations), however what other more adverse
Post by MPN-MATE Admin » Sat Feb 01, 2020 4:35 am Hey everyone... :D Just thought that I would share this one with all of you... When we are diagnosed, our prognosis usually depends upon which MPN condition, (which are believed to be caused by our 'DRIVER' mutations), however what other more adverse
socrates_8
in
MPN Voice
4 years ago
The Winter issue of Leukaemia Matters will soon be landing at your door or in your inbox!
[/i] http://bit.ly/LeukaemiaMattersWinter2019 [i]It’s been another busy year for
Leukaemia
Care as we celebrated our [/i][i]50th anniversary.
[/i] http://bit.ly/LeukaemiaMattersWinter2019 [i]It’s been another busy year for
Leukaemia
Care as we celebrated our [/i][i]50th anniversary.
HAIRBEAR_UK
Administrator
in
Leukaemia CARE
4 years ago
What causes these horrific night sweats and does everyone get them ?
Hi All, 3 years on W&W and finally my time has arrived for treatment within the next 5 to 6 weeks. Chemo. Not really shocked just a bit numb really as just got used to the W&W scenario if you ever can. Positive about my treatment anxious about how it will feel. However I’ll be glad to get on with it
Hi All, 3 years on W&W and finally my time has arrived for treatment within the next 5 to 6 weeks. Chemo. Not really shocked just a bit numb really as just got used to the W&W scenario if you ever can. Positive about my treatment anxious about how it will feel. However I’ll be glad to get on with it
Roseneath69
in
CLL Support
4 years ago
Help please !
Hi all , I really believe that I have fibromyalgia, How did you get your doctors to confirm this, I feel like I’m a hypochondriac every time I go to the docs , Most the symptoms I have are identical to fibromyalgia,I have been tested for
leukaemia
and lupus but my g p never mentions fibromyalgia I’ve
Hi all , I really believe that I have fibromyalgia, How did you get your doctors to confirm this, I feel like I’m a hypochondriac every time I go to the docs , Most the symptoms I have are identical to fibromyalgia,I have been tested for
leukaemia
and lupus but my g p never mentions fibromyalgia I’ve
JMJ42
in
Fibromyalgia Action UK
4 years ago
Diagnosed essential thrombocytosis new
Hi guys so today I just got new am jak2 positive I am devastated crying o dont know what to think What does jak2 positive mean. An worrying about life expectancy and progression what life can I expect? Am 32
Hi guys so today I just got new am jak2 positive I am devastated crying o dont know what to think What does jak2 positive mean. An worrying about life expectancy and progression what life can I expect? Am 32
Irishgal12
in
MPN Voice
4 years ago
1
...
68
69
70
...
100
Next page
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
CLL Support
1802 results
MPN Voice
826 results
Leukaemia CARE
268 results
View top 10 communities
Sort by
Most Relevant
Newest