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11.30 today join the Welsh experts to discuss shielding in Wales
Good Morning all š“ Today we are hosting a Wales
leukaemia
patients' shielding update and Q&A at 11:30am. Welsh patients and experts will discuss shielding in Wales.
Good Morning all š“ Today we are hosting a Wales
leukaemia
patients' shielding update and Q&A at 11:30am. Welsh patients and experts will discuss shielding in Wales.
HAIRBEAR_UK
Administrator
in
CLL Support
4 years ago
SLL/CLL Numbers
Thanks for all of you with your previous replies. As you know I have been diagnosed last month with SLL/CLL and now I have all my test results. I hope you can share your experience with similar results to mine and dice me with what to expect: 1) CBC all numbers are within the normal range 2) Flow
Thanks for all of you with your previous replies. As you know I have been diagnosed last month with SLL/CLL and now I have all my test results. I hope you can share your experience with similar results to mine and dice me with what to expect: 1) CBC all numbers are within the normal range 2) Flow
Egypt58
in
CLL Support
4 years ago
Clemastine (Tavegyl), an over-the-counter drug, found to be effective at inducing LMP and cell death
For what it may be worth, thougbt some of you might like to see this: "Lysosomes in chronic lymphocytic leukemia (CLL) cells have previously been identified as a promising target for therapeutic intervention in combination with targeted therapies. Recent studies have shown that antihistamines can induce
For what it may be worth, thougbt some of you might like to see this: "Lysosomes in chronic lymphocytic leukemia (CLL) cells have previously been identified as a promising target for therapeutic intervention in combination with targeted therapies. Recent studies have shown that antihistamines can induce
Pogee
in
CLL Support
4 years ago
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T cell leukemia
Just diagnosed with T cell leukemia, I do not have a subtype yet. Any other T cell types out there?
Just diagnosed with T cell leukemia, I do not have a subtype yet. Any other T cell types out there?
Mom-mom-e
in
CLL Support
4 years ago
Small Things, Big Difference
(CLL) community Developed in collaboration with Blood Cancer UK,
Leukaemia
Care, Lymphoma Action, CLL Support and AbbVie, Small Things, Big Difference covers topics including self-empowerment when dealing with the unknown, coping with emotions, and practical tips from those who have reflected on their
(CLL) community Developed in collaboration with Blood Cancer UK,
Leukaemia
Care, Lymphoma Action, CLL Support and AbbVie, Small Things, Big Difference covers topics including self-empowerment when dealing with the unknown, coping with emotions, and practical tips from those who have reflected on their
HAIRBEAR_UK
Administrator
in
Leukaemia CARE
4 years ago
Imbruvica-related issues: Qs + comments
The following are questions and comments I'll be asking my oncologist when I see him tomorrow. I believe at least some of them might be relevant to what some among us are experiencing and research some of us are engaging in. Clearly, none of the comments here are meant to be authoritative nor intended
The following are questions and comments I'll be asking my oncologist when I see him tomorrow. I believe at least some of them might be relevant to what some among us are experiencing and research some of us are engaging in. Clearly, none of the comments here are meant to be authoritative nor intended
Pogee
in
CLL Support
4 years ago
Why, with Chronic Lymphocytic Leukaemia, CLL, White Cell percentages can be dangerously misleading. You may not be neutropenic!
Frightened by falling neutrophils? Worried about being at a greater risk of infection? This is a common and often totally unnecessary fear, simply because standard blood count reports give more emphasis to presenting the
percentages*
of the different white blood cell types than the absolute
Frightened by falling neutrophils? Worried about being at a greater risk of infection? This is a common and often totally unnecessary fear, simply because standard blood count reports give more emphasis to presenting the
percentages*
of the different white blood cell types than the absolute
AussieNeil
Administrator
in
CLL Support
4 years ago
FCR
Iāll avoid FCR at all. Dangerous and tricky. Increase the probability of AL occurrence as well as second neoplasm and Richter transformation in the long run. You have to be "fit patientā to receive FCR, IGHV mutated and without tp53 mutation or 17p deletion. Find a responsible doctor with a robust experience
Iāll avoid FCR at all. Dangerous and tricky. Increase the probability of AL occurrence as well as second neoplasm and Richter transformation in the long run. You have to be "fit patientā to receive FCR, IGHV mutated and without tp53 mutation or 17p deletion. Find a responsible doctor with a robust experience
Rccfrc00
in
CLL Support
4 years ago
flair ..fcr
hi all i have had cll from 2012 i have been on w&w my question is i have signed up for the flair trail Manchester Christie i got phone call this week saying i was randomized for FCR my age is 57yrs i have no tp53 or any other abnormal readings and i dont know what my mutations are etc mutated or unmutated
hi all i have had cll from 2012 i have been on w&w my question is i have signed up for the flair trail Manchester Christie i got phone call this week saying i was randomized for FCR my age is 57yrs i have no tp53 or any other abnormal readings and i dont know what my mutations are etc mutated or unmutated
kel555
in
CLL Support
4 years ago
Documented remission without drugs
I've just come across an article on a remarkable, well-documented, case of a younger man with CLL who, over time, achieved complete remission without drugs. Here's the link: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4739749/ * I hasten to add that this is but a single case, and I'm not recommending
I've just come across an article on a remarkable, well-documented, case of a younger man with CLL who, over time, achieved complete remission without drugs. Here's the link: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4739749/ * I hasten to add that this is but a single case, and I'm not recommending
Pogee
in
CLL Support
4 years ago
Can Venetoclax/Obinituzimab reduce the risk of additional somatic mutations? - Not necessarily. The BTK inhibitors are excellent at....
Below is a repost from CLLSLL@groups.io ( permission granted by Dr. Furman) - I believe this hypothesis may be tested in a proposed clinical trial Dr. Furman has mentioned in the past- Len - Can Venetoclax/Obinituzimab reduce the risk of additional somatic mutations? From: ------ Date: Thu, 23 Jul
Below is a repost from CLLSLL@groups.io ( permission granted by Dr. Furman) - I believe this hypothesis may be tested in a proposed clinical trial Dr. Furman has mentioned in the past- Len - Can Venetoclax/Obinituzimab reduce the risk of additional somatic mutations? From: ------ Date: Thu, 23 Jul
lankisterguy
Volunteer
in
CLL Support
4 years ago
Resistance-Associated Mutations in CLL Patients Treated With Novel Agents
This is slightly complex but good overview of the acquired resistance mechanisms to novel agents. In 80% of patients with ibrutinib failure, acquired mutations in BTK and PLCG2 genes were detected. No common resistance-associated mutations or deregulated signaling pathways have been reported in idelalisib
This is slightly complex but good overview of the acquired resistance mechanisms to novel agents. In 80% of patients with ibrutinib failure, acquired mutations in BTK and PLCG2 genes were detected. No common resistance-associated mutations or deregulated signaling pathways have been reported in idelalisib
Jm954
Administrator
in
CLL Support
4 years ago
Tension head & ear problems
I have chronic
leukaemia
which was diagnosed last year and is being treated with medication. However, worry about my illness, the pandemic and then having to shield led to a mini breakdown 2 months ago - thatās when anti depressants were prescribed.
I have chronic
leukaemia
which was diagnosed last year and is being treated with medication. However, worry about my illness, the pandemic and then having to shield led to a mini breakdown 2 months ago - thatās when anti depressants were prescribed.
Jooby59
in
Anxiety and Depression Support
4 years ago
Sweet's syndrome during induction chemotherapy for acute myeloid leukemia ā case report and mini review.
In 15-20% of cases, Sweet's syndrome (SS) develops secondary to cancer, the blood cancer, acute myeloid
leukaemia
(AML), being the commonest. Out of the total number of malignancy-associated cases, 85% have blood cancer.
In 15-20% of cases, Sweet's syndrome (SS) develops secondary to cancer, the blood cancer, acute myeloid
leukaemia
(AML), being the commonest. Out of the total number of malignancy-associated cases, 85% have blood cancer.
Shell567
Sweet's Syndrome UK
in
Sweet's Syndrome UK
4 years ago
Report from CLL Webinar: Prof Hillmen, 10th June 2020
I attended a webinar hosted by the CLL Support Association and
Leukaemia
Care. Thanks to everyone responsible for organising the event, I found it most informative. The guest keynote speaker was Prof.
I attended a webinar hosted by the CLL Support Association and
Leukaemia
Care. Thanks to everyone responsible for organising the event, I found it most informative. The guest keynote speaker was Prof.
Davdow
in
CLL Support
4 years ago
New crowd-funding project: Keep your distance face masks
Leukaemia
Care are proposing to create these washable face masks with a clear message on the front.
Leukaemia
Care are proposing to create these washable face masks with a clear message on the front.
NicoleLeukaemiaCare
Administrator
in
Leukaemia CARE
4 years ago
Richter transformation after quitting ibrutinib: a diagnostic error
Hi all. The topic of the connection between Ibrutinib and the Richter transformation is getting very interesting. In the group that I have on Facebook every day people are entering that once Ibrutinib left a few days for an operation or biopsy for another movement, Richter was diagnosed. Then the Pet
Hi all. The topic of the connection between Ibrutinib and the Richter transformation is getting very interesting. In the group that I have on Facebook every day people are entering that once Ibrutinib left a few days for an operation or biopsy for another movement, Richter was diagnosed. Then the Pet
Priss69
in
CLL Support
4 years ago
CSIRO uses lab-grown ālungsā to fight respiratory viruses
Researchers at Australia's national science agency, CSIRO, found that lab-grown cells from the upper layer of the airway to the lungs ā the human bronchial epithelium ā reliably mimic a live person's airway's response to viruses. CSIRO Research Scientist Dr Elizabeth Pharo is the lead author on the findings
Researchers at Australia's national science agency, CSIRO, found that lab-grown cells from the upper layer of the airway to the lungs ā the human bronchial epithelium ā reliably mimic a live person's airway's response to viruses. CSIRO Research Scientist Dr Elizabeth Pharo is the lead author on the findings
2greys
in
Lung Conditions Community Forum
4 years ago
Illuminating novel biological aspects and potential new therapeutic approaches for chronic myeloproliferative malignancies
Abstract This review reflects the presentations and discussion at the 14th postāASH International Workshop on Chronic Myeloproliferative Malignancies, which took place on the 10thā11th December 2019, immediately after the 61st American Society of Hematology (ASH) Annual Meeting in Orlando, Florida. Rather
Abstract This review reflects the presentations and discussion at the 14th postāASH International Workshop on Chronic Myeloproliferative Malignancies, which took place on the 10thā11th December 2019, immediately after the 61st American Society of Hematology (ASH) Annual Meeting in Orlando, Florida. Rather
Manouche
in
MPN Voice
4 years ago
New to site
Hi my story starts 2 yrs ago when I was diagnosed with an aggressive
leukaemia
for which I needed a stem cell transplant to survive,a year after transplant it was found that my thyroid had stopped working due to effects of chemotherapy,not sure if damage is permanent but the last year has been nearly
Hi my story starts 2 yrs ago when I was diagnosed with an aggressive
leukaemia
for which I needed a stem cell transplant to survive,a year after transplant it was found that my thyroid had stopped working due to effects of chemotherapy,not sure if damage is permanent but the last year has been nearly
Bate
in
Thyroid UK
4 years ago
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