Search
Search
About
Log in
Join
Experiences with
Leukaemia
Posts
Communities
3,262 public posts
Filter results
Richter's in Remission - 11 months post transplant
I've been away from HealthUnlocked for some time following my allogenic bone marrow transplant for Richter's Transformation 11 months ago at MDA Houston. I'm happy to report my transplant has been a success and I'm in complete remission from Richter's and I'm feeling great. I tolerated the transplant
I've been away from HealthUnlocked for some time following my allogenic bone marrow transplant for Richter's Transformation 11 months ago at MDA Houston. I'm happy to report my transplant has been a success and I'm in complete remission from Richter's and I'm feeling great. I tolerated the transplant
SarasotaPaul
in
CLL Support
3 years ago
Webinar - 3.30pm 4th Feb - COVID-19 ‘shielding’ update, coping and support.
This webinar will explore the effect of shielding long term and managing the impact on blood cancer patients. The webinar seeks to provide coping strategies to support patients and their loved ones to manage the emotional and psychological burden you may be experiencing.
We will be joined by:[/b
This webinar will explore the effect of shielding long term and managing the impact on blood cancer patients. The webinar seeks to provide coping strategies to support patients and their loved ones to manage the emotional and psychological burden you may be experiencing.
We will be joined by:[/b
HAIRBEAR_UK
Administrator
in
Leukaemia CARE
3 years ago
Winter edition of 'Leukaemia Matters' our free news magazine is now available to download
Catch up on the latest news from
Leukaemia
care community here: https://media.leukaemiacare.org.uk/wp-content/uploads/
Leukaemia
-Matters-Winter-2020-Web-Version-2.pdf
Catch up on the latest news from
Leukaemia
care community here: https://media.leukaemiacare.org.uk/wp-content/uploads/
Leukaemia
-Matters-Winter-2020-Web-Version-2.pdf
HAIRBEAR_UK
Administrator
in
Leukaemia CARE
3 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
NEW trial now opened by Birmingham University CLL specialists in UK to measure your response as CLL patients following vaccination
Covid-19 vaccine study for patients with Chronic Lymphocytic
(CLL) •This is a new study looking at the immune response to COVID19 vaccination amongst patients with CLL. •There are now several COVID-19 vaccines available in the UK.
Covid-19 vaccine study for patients with Chronic Lymphocytic
(CLL) •This is a new study looking at the immune response to COVID19 vaccination amongst patients with CLL. •There are now several COVID-19 vaccines available in the UK.
HAIRBEAR_UK
Administrator
in
Leukaemia CARE
3 years ago
Reminder 3.30pm Monday WEBINAR - Immunisations and living with the challenges of a compromised immune system – “top tips for staying safe”
at
Leukaemia
Care To join via Zoom, all you need to do is register your attendance before the webinar starts.
at
Leukaemia
Care To join via Zoom, all you need to do is register your attendance before the webinar starts.
HAIRBEAR_UK
Administrator
in
Leukaemia CARE
3 years ago
LLS information booklets
The
Leukaemia
and Lymphoma Society have just published updates to their range of information booklets. They are geared around the USA healthcare systems and if you're in the USA you can order them or anyone can, anywhere can download them. The information on various topics is true for everywhere.
The
Leukaemia
and Lymphoma Society have just published updates to their range of information booklets. They are geared around the USA healthcare systems and if you're in the USA you can order them or anyone can, anywhere can download them. The information on various topics is true for everywhere.
Jm954
Administrator
in
CLL Support
3 years ago
Is Polymyalgia Linked to Leukaemia
The number of lymphocytes gradually increased in bone marrow and peripheral blood until, almost 5 years after PMR had been diagnosed, a typical picture of chronic lymphatic
leukaemia
(CLL) was observable. The significance of the reported combination is discussed.
The number of lymphocytes gradually increased in bone marrow and peripheral blood until, almost 5 years after PMR had been diagnosed, a typical picture of chronic lymphatic
leukaemia
(CLL) was observable. The significance of the reported combination is discussed.
Estellemac
in
PMRGCAuk
3 years ago
Webinar for patients - HCL treatment and care in a changing landscape - 3.30pm GMT Monday 1st December
Once logged in head to
Leukaemia
Care’s Facebook page at 3:30pm on 1st December and find the live video (it will be at the top of our feed).
Once logged in head to
Leukaemia
Care’s Facebook page at 3:30pm on 1st December and find the live video (it will be at the top of our feed).
HAIRBEAR_UK
Administrator
in
Leukaemia CARE
3 years ago
COVID-19 is NOT a live vaccine.
https://www.leukaemiacare.org.uk/support-and-information/latest-from-
leukaemia
-care/blog/covid-vaccine-faqs/
https://www.leukaemiacare.org.uk/support-and-information/latest-from-
leukaemia
-care/blog/covid-vaccine-faqs/
Shell567
Sweet's Syndrome UK
in
Sweet's Syndrome UK
3 years ago
Update on my ABCDE minus L diet for fighting CLL
Four months ago, I posted that I was embarking on, what I called the "ABCDE minus L diet" for fighting CLL. See: https://healthunlocked.com/cllsupport/posts/144613625/the-abcde-minus-l-diet-for-fighting-cll Briefly. I am at the "watch and worry" stage with my CLL. I am eating and drinking the following
Four months ago, I posted that I was embarking on, what I called the "ABCDE minus L diet" for fighting CLL. See: https://healthunlocked.com/cllsupport/posts/144613625/the-abcde-minus-l-diet-for-fighting-cll Briefly. I am at the "watch and worry" stage with my CLL. I am eating and drinking the following
HowardR
in
CLL Support
3 years ago
Shingles and essential thrombocythemia
Has anyone experienced shingles while on Pegasys interferon for essential thrombocythemia ? X
Has anyone experienced shingles while on Pegasys interferon for essential thrombocythemia ? X
BeckyG88
in
MPN Voice
3 years ago
Germline genetic factors influence the outcome of interferon-α therapy in polycythemia vera
« Interferon-α (IFN-α)–based therapies can induce sustained hematologic responses (HRs) and durable molecular responses (MRs) in polycythemia vera (PV) and other myeloproliferative neoplasms (MPNs). During treatment of PV, an HR reflects normalization of blood values, whereas a MR marks a substantial
« Interferon-α (IFN-α)–based therapies can induce sustained hematologic responses (HRs) and durable molecular responses (MRs) in polycythemia vera (PV) and other myeloproliferative neoplasms (MPNs). During treatment of PV, an HR reflects normalization of blood values, whereas a MR marks a substantial
Manouche
in
MPN Voice
3 years ago
WEBINAR - Immunisations and living with the challenges of a compromised immune system – “top tips for staying safe”
at
Leukaemia
Care To join via Zoom, all you need to do is register your attendance before the webinar starts.
at
Leukaemia
Care To join via Zoom, all you need to do is register your attendance before the webinar starts.
HAIRBEAR_UK
Administrator
in
Leukaemia CARE
4 years ago
Has anyone had more than one FISH test?
I’ve been on IB for two years and 17p deleted and was wondering if the genetic mutations could change? I asked my oncologist and he said if I did the stem cell transplant he would request it but have any of you had a second test?
I’ve been on IB for two years and 17p deleted and was wondering if the genetic mutations could change? I asked my oncologist and he said if I did the stem cell transplant he would request it but have any of you had a second test?
steve_canada
in
CLL Support
3 years ago
Ropeginterferon alfa-2b versus phlebotomy in low-risk patients with polycythaemia vera (Low-PV study)
There is no evidence that phlebotomy alone is sufficient to steadily maintain haematocrit on target level in low-risk patients with polycythaemia vera. This study aimed to compare the efficacy and safety of ropeginterferon alfa-2b on top of the standard phlebotomy regimen with phlebotomy alone. https
There is no evidence that phlebotomy alone is sufficient to steadily maintain haematocrit on target level in low-risk patients with polycythaemia vera. This study aimed to compare the efficacy and safety of ropeginterferon alfa-2b on top of the standard phlebotomy regimen with phlebotomy alone. https
Manouche
in
MPN Voice
3 years ago
Covid trial in UK examines mixing different vaccines
A UK trial has been launched to see if giving people different Covid vaccines for their first and second doses works as well as the current approach of using the same type of vaccine twice. The idea is to provide more flexibility with vaccine rollout and help deal with any potential disruption to supplies
A UK trial has been launched to see if giving people different Covid vaccines for their first and second doses works as well as the current approach of using the same type of vaccine twice. The idea is to provide more flexibility with vaccine rollout and help deal with any potential disruption to supplies
Jm954
Administrator
in
CLL Support
3 years ago
Acalabrutinib exhibits comparable efficacy, superior safety to ibrutinib for CLL (finally!)
[i]Positive high-level results from the ELEVATE-RR Phase III trial showed AstraZeneca’s Calquence (acalabrutinib) met the primary endpoint demonstrating non-inferior progression-free survival (PFS) for adults with previously treated, high-risk chronic lymphocytic
leukaemia
(CLL) compared to ibrutinib
[i]Positive high-level results from the ELEVATE-RR Phase III trial showed AstraZeneca’s Calquence (acalabrutinib) met the primary endpoint demonstrating non-inferior progression-free survival (PFS) for adults with previously treated, high-risk chronic lymphocytic
leukaemia
(CLL) compared to ibrutinib
avzuclav
in
CLL Support
3 years ago
NICE approves venetoclax with obinutuzumab for patients with untreated CLL
You can read the full article and supportive information here: https://www.leukaemiacare.org.uk/support-and-information/latest-from-
leukaemia
-care/news/nice-approves-venetoclax-with-obinutuzumab-for-patients-with-untreated-chronic-lymphocytic-
leukaemia
-cll/ A good day for CLL Onwards and upwards
You can read the full article and supportive information here: https://www.leukaemiacare.org.uk/support-and-information/latest-from-
leukaemia
-care/news/nice-approves-venetoclax-with-obinutuzumab-for-patients-with-untreated-chronic-lymphocytic-
leukaemia
-cll/ A good day for CLL Onwards and upwards
HAIRBEAR_UK
Administrator
in
Leukaemia CARE
3 years ago
Fertility and essential thrombocythemia
Hey I’m 32 year of age Iv currently have essential thrombocythemia , diagnosed over 10 years ago with blood readings of 1,800 Currently takin Pegasy Been trying to conceive for over a year now , suffered for years with bad periods heavy and very very painful . Just wondering if having this condition
Hey I’m 32 year of age Iv currently have essential thrombocythemia , diagnosed over 10 years ago with blood readings of 1,800 Currently takin Pegasy Been trying to conceive for over a year now , suffered for years with bad periods heavy and very very painful . Just wondering if having this condition
BeckyG88
in
MPN Voice
3 years ago
New mutation
Morning all I haven’t posted for a while as have been struggling along nicely on peg ...... My platelets have remained steady although my HCT has been creeping up. My specialist arranged a red cell mass scan and my red volume is normal so he is not too concerned about HCT being raised. The letter from
Morning all I haven’t posted for a while as have been struggling along nicely on peg ...... My platelets have remained steady although my HCT has been creeping up. My specialist arranged a red cell mass scan and my red volume is normal so he is not too concerned about HCT being raised. The letter from
Graham7694
in
MPN Voice
3 years ago
1
...
49
50
51
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
CLL Support
1798 results
MPN Voice
825 results
Leukaemia CARE
268 results
View top 10 communities
Sort by
Most Relevant
Newest