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NKF launches educational video series for lupus, lupus nephritis
Series is made up of four short videos in English and Spanish Andrea Lobo, PhD The National Kidney Foundation (NFK) has launched a patient-friendly video series to help patients better understand the association between lupus and lupus nephritis. Marked by kidney inflammation and damage, lupus
Series is made up of four short videos in English and Spanish Andrea Lobo, PhD The National Kidney Foundation (NFK) has launched a patient-friendly video series to help patients better understand the association between lupus and lupus nephritis. Marked by kidney inflammation and damage, lupus
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
6 months ago
Magnesium, how much and tablet/spray
My RLS has become significantly worse over the last 6 months and I am reluctant just yet to take regular medication for the condition before trying other avenues. I have eliminated caffeine and alcohol and have regular exercise but it doesn't seem to help. I recently tried the Therapulse but at times
My RLS has become significantly worse over the last 6 months and I am reluctant just yet to take regular medication for the condition before trying other avenues. I have eliminated caffeine and alcohol and have regular exercise but it doesn't seem to help. I recently tried the Therapulse but at times
ChilliChocolateLover
in
Restless Legs Syndrome
28 days ago
RLS Requip (the devil med) and then Gabapentin(my savior)
I was on Requip for years always inching up in the dose as I went. It really didn’t stop the pain or movements. Then I had a blast of some kind of mental dysfunction and I began to gamble. I gambled away $200,000.00 of my retirement money. I also acted different. More than one person told me that. I
I was on Requip for years always inching up in the dose as I went. It really didn’t stop the pain or movements. Then I had a blast of some kind of mental dysfunction and I began to gamble. I gambled away $200,000.00 of my retirement money. I also acted different. More than one person told me that. I
Maystamper1
in
Restless Legs Syndrome
29 days ago
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methadone or buprenorphine
After augmentation and the horrors of withdrawal, I started on methadone in Feb this year and have titrated slowly up to 7.5 mg . I am now sleeping around 5-7 hours per night but very broken sleep with breakthrough RLS during the night. I think I may still be feeling some effects of augmentation. On
After augmentation and the horrors of withdrawal, I started on methadone in Feb this year and have titrated slowly up to 7.5 mg . I am now sleeping around 5-7 hours per night but very broken sleep with breakthrough RLS during the night. I think I may still be feeling some effects of augmentation. On
Mongolia2020
in
Restless Legs Syndrome
30 days ago
Mildly Burning After Withdrawing From Neupro
Hi All, As I have posted before, recently I withdrew from Neupro with the help of Buprenorphine. It has been 6 weeks now without any dopamine agonist and my experience has been overwhelmingly positive. Unfortunately, issues have come up recently that I thought someone might be able shine some light
Hi All, As I have posted before, recently I withdrew from Neupro with the help of Buprenorphine. It has been 6 weeks now without any dopamine agonist and my experience has been overwhelmingly positive. Unfortunately, issues have come up recently that I thought someone might be able shine some light
RiversW
in
Restless Legs Syndrome
1 month ago
Atrial Trigeminy, PVCs and everything imbetween
I am now actually quite scared as for the past 24 hours I am showing I am having runs of Atrial Trigmeminy, not all the time I don't know if the anxiety is making it worse. I feel like light headed with worry but I don't know if it is the metoprolol as I upped the dose yesterday, but for the past 4
I am now actually quite scared as for the past 24 hours I am showing I am having runs of Atrial Trigmeminy, not all the time I don't know if the anxiety is making it worse. I feel like light headed with worry but I don't know if it is the metoprolol as I upped the dose yesterday, but for the past 4
Iamfuzzyduck
in
AF Association
5 months ago
Bariatric surgery, what do you think?
I've been thinking about doing a stomach reduction surgery (gastric sleeve) because I can't lose weight. Since I have problems with my thyroid (RAI ablation in 2012) I gained 25 kg(90 kg in the past and now I've 115/1,87 cm)), I have tried all the treatments(ndt, synthetic) that have not yielded results
I've been thinking about doing a stomach reduction surgery (gastric sleeve) because I can't lose weight. Since I have problems with my thyroid (RAI ablation in 2012) I gained 25 kg(90 kg in the past and now I've 115/1,87 cm)), I have tried all the treatments(ndt, synthetic) that have not yielded results
adin
in
Thyroid UK
8 months ago
Red-Light Therapy - To Wait, or Not to Wait?
That is the question. I've spent several mornings researching RLT and while I've found a few small clinical trials and descriptions of various kinds of light therapy (see https://www.apdaparkinson.org/article/light-therapy-for-parkinsons-disease/), as well as self-promoting ads by device producers
That is the question. I've spent several mornings researching RLT and while I've found a few small clinical trials and descriptions of various kinds of light therapy (see https://www.apdaparkinson.org/article/light-therapy-for-parkinsons-disease/), as well as self-promoting ads by device producers
Alock2020
in
Cure Parkinson's
9 months ago
Triggers
If I do everything right--which I don't know exactly what that is--I will have a great sleep with my current pregabalin/morphine routine. BUT, not for not trying, I can't figure out my triggers well enough, or, I guess, it could be that I just don't have PLMs every night (although I did before I got
If I do everything right--which I don't know exactly what that is--I will have a great sleep with my current pregabalin/morphine routine. BUT, not for not trying, I can't figure out my triggers well enough, or, I guess, it could be that I just don't have PLMs every night (although I did before I got
wantokporo
in
Restless Legs Syndrome
1 month ago
Ascites Long Term
Hello All, I've had Ascites now for eighteen months. At first I confused the symptoms with a hernia that I had which has since been repaired. After a visit to my GP, he told me I had IBS and gave me some pills to alleviate that. Two weeks later I was back at the GP's. This time he examined me and said
Hello All, I've had Ascites now for eighteen months. At first I confused the symptoms with a hernia that I had which has since been repaired. After a visit to my GP, he told me I had IBS and gave me some pills to alleviate that. Two weeks later I was back at the GP's. This time he examined me and said
redlion1954
in
British Liver Trust
8 months ago
Hope for the future
New research into autoimmune liver condition suggests unique cell movements may be driving disease A Birmingham study reveals a novel cellular phenomenon could be responsible for the onset of primary biliary cholangitis (PBC). Research suggests that a recent understanding of cell movements may
New research into autoimmune liver condition suggests unique cell movements may be driving disease A Birmingham study reveals a novel cellular phenomenon could be responsible for the onset of primary biliary cholangitis (PBC). Research suggests that a recent understanding of cell movements may
DonnaBoll
Administrator
in
PBC Foundation
3 months ago
cirrhosis and rheumatoid arthritis
My partner originally decompensated now compensated has suffered from bad aches and pains since diagnosis with ALD - always told it was a side effect of cirrhosis but as he started to become decompensated they started to entertain the idea it might be something else. Cut to almost 2 years later and
My partner originally decompensated now compensated has suffered from bad aches and pains since diagnosis with ALD - always told it was a side effect of cirrhosis but as he started to become decompensated they started to entertain the idea it might be something else. Cut to almost 2 years later and
Rshc
in
British Liver Trust
7 months ago
Bisoprolol again!
following my last post I have now stopped Bisoprolol. I have noticed my heart rate increase from around 67 to 74 (normal range). what I am noticing is that I get palpitations but my heart rate is within the normal range - does anyone have experience of this? It isn’t overly fast but just pounding
following my last post I have now stopped Bisoprolol. I have noticed my heart rate increase from around 67 to 74 (normal range). what I am noticing is that I get palpitations but my heart rate is within the normal range - does anyone have experience of this? It isn’t overly fast but just pounding
Be-still-my-heart
in
AF Association
5 months ago
Best UK substitue for US Synthroid
Hi, I lived in the US for over 20 years and was prescribed Synthroid for underactive Thyroid. I found that the generic levothyroxine brand was not effective. I have moved back to the UK and would like to find a brand that is as close to Synthroid as possible. Would appreciate any recomendations.
Hi, I lived in the US for over 20 years and was prescribed Synthroid for underactive Thyroid. I found that the generic levothyroxine brand was not effective. I have moved back to the UK and would like to find a brand that is as close to Synthroid as possible. Would appreciate any recomendations.
SeedSensation
in
Thyroid UK
6 months ago
sublingual B12
if there is ever a problem getting my injectable B12 I was told sublingual B 12might be answer for me with my pernicious anemia. Anyone have any experience with using it as a backup
if there is ever a problem getting my injectable B12 I was told sublingual B 12might be answer for me with my pernicious anemia. Anyone have any experience with using it as a backup
CH52
in
Pernicious Anaemia Society
6 months ago
Insomnia
I experienced intense insomnia on Ropinirole. I actually did not sleep at all when I took this medicine and also experienced headaches and confusion. It was definitely not for me. I would much rather suffer from Restless Leg Syndrome than deal with the side effects of Ropinirole.
I experienced intense insomnia on Ropinirole. I actually did not sleep at all when I took this medicine and also experienced headaches and confusion. It was definitely not for me. I would much rather suffer from Restless Leg Syndrome than deal with the side effects of Ropinirole.
Rejectamenta
in
Restless Legs Syndrome
1 month ago
Dipyridamole didn't work for me
I was hoping to be able to come off buprenorphine so that my digestive system could return to normal, and was excited to learn about dipyridamole on this site. Several studies show that it is effective for RLS. I started with 75mg night one, then 150, and 225mg on night 3. I removed my buprenorphine
I was hoping to be able to come off buprenorphine so that my digestive system could return to normal, and was excited to learn about dipyridamole on this site. Several studies show that it is effective for RLS. I started with 75mg night one, then 150, and 225mg on night 3. I removed my buprenorphine
707twitcher
in
Restless Legs Syndrome
1 month ago
Constipation
Hi helpful community. I am on 40 mg or prednisone for CGA, tapering down to 35 in 2 days for 2 weeks. I am suffering from constipation. Is it due to the prednisone or the Calcium supplements (600 mg x 2 per day)? I take Miralax (Restorolax) every couple of days. then I take mineral oil for couple
Hi helpful community. I am on 40 mg or prednisone for CGA, tapering down to 35 in 2 days for 2 weeks. I am suffering from constipation. Is it due to the prednisone or the Calcium supplements (600 mg x 2 per day)? I take Miralax (Restorolax) every couple of days. then I take mineral oil for couple
Groda
in
PMRGCAuk
8 months ago
Blue Badge
Hoping this might help others I have recently being diagnosed AIH F2 I have days lacking energy and struggle walking etc a friend suggested I apply for a blue badge for parking didn’t think I could however I found the process very quick and simple I had to have assessment as not in receipt of anything
Hoping this might help others I have recently being diagnosed AIH F2 I have days lacking energy and struggle walking etc a friend suggested I apply for a blue badge for parking didn’t think I could however I found the process very quick and simple I had to have assessment as not in receipt of anything
DebbyJ1
in
British Liver Trust
8 months ago
Cold weather flare ups
Good morning, Does anyone have any tips or tricks, I've been on my medication since April (methotrexate and hydroxychloroquine) I have rheumatoid and lupus overlap. I'm having a flare up and think it's weather related but I cant seem to find a happy medium. When my hands are warm my joints are less
Good morning, Does anyone have any tips or tricks, I've been on my medication since April (methotrexate and hydroxychloroquine) I have rheumatoid and lupus overlap. I'm having a flare up and think it's weather related but I cant seem to find a happy medium. When my hands are warm my joints are less
Sunshine634
in
LUPUS UK
6 months ago
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