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Xarasho
I am Suffering from severe RLS and I’ve tried everything from vitamins to CBT OIL, 5 HTP Hydroxytry.. , nothing works, the only thing helps is the agnostic dopamine drugs which is for Parkinson disease, it has really bad side effects , please someone help me and be. genuine!!!
I am Suffering from severe RLS and I’ve tried everything from vitamins to CBT OIL, 5 HTP Hydroxytry.. , nothing works, the only thing helps is the agnostic dopamine drugs which is for Parkinson disease, it has really bad side effects , please someone help me and be. genuine!!!
Xarasho
in
Restless Legs Syndrome
4 years ago
Meningitis Now is still here to support you during this time
Hello Everyone, Hope you are keeping safe in these strange times. Although we are working with a reduce team at the moment, we are still here to support and provide information to anyone living in the UK who has been impacted by meningitis. Our nurse-led helpline is open from 9am until 4pm, Monday
Hello Everyone, Hope you are keeping safe in these strange times. Although we are working with a reduce team at the moment, we are still here to support and provide information to anyone living in the UK who has been impacted by meningitis. Our nurse-led helpline is open from 9am until 4pm, Monday
MNClaireD
Meningitis Now
in
Meningitis Now
4 years ago
Determined to walk Darcy this morning
3 weeks now I have walked Darcy 2 miles every morning. Woke this morning stiff and sore had to take codeine, Etoricoxib and paracetamol but determined to walk. 1/2 a mile less but it took an extra 45 minutes. Hate when this disease beats me I’m a bad looser. Thanks for listening to my grump. I’m off
3 weeks now I have walked Darcy 2 miles every morning. Woke this morning stiff and sore had to take codeine, Etoricoxib and paracetamol but determined to walk. 1/2 a mile less but it took an extra 45 minutes. Hate when this disease beats me I’m a bad looser. Thanks for listening to my grump. I’m off
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NRAS
4 years ago
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Does anyone else have Hot Feet with RLS?
Hi Everyone, It's so interesting to read everyone's experiences with RLS. I have had RLS since I was about 15 (I am 50 now). I used to call it "Hot Feet Syndrome" because I had never heard of RLS, and it is only my feet that are affected. My feet get super hot most nights, I have to sleep with them
Hi Everyone, It's so interesting to read everyone's experiences with RLS. I have had RLS since I was about 15 (I am 50 now). I used to call it "Hot Feet Syndrome" because I had never heard of RLS, and it is only my feet that are affected. My feet get super hot most nights, I have to sleep with them
TwitchyFeet50
in
Restless Legs Syndrome
4 years ago
Just when your getting somewhere
It started raining yesterday evening and as the night wore on I got stiffer and my balance was a bit dodgy. Restless night burning feet and ankles ligaments stiff and sore. Was also very hot. Paracetamol and Etoricoxib before I could get out of bed. I have had a really good run after a med tweak . Had
It started raining yesterday evening and as the night wore on I got stiffer and my balance was a bit dodgy. Restless night burning feet and ankles ligaments stiff and sore. Was also very hot. Paracetamol and Etoricoxib before I could get out of bed. I have had a really good run after a med tweak . Had
Hidden
in
NRAS
4 years ago
Restless Legs in Pregnancy
Hi everyone, I am not even sure why I am writing this message - partly because I want to vent; partly because I would like some advice. I have had about 2-3 episodes of mild and short lasting (3ish days) of restless legs outside of pregnancy. I remember the restless legs to be quite bad in my first pregnancy
Hi everyone, I am not even sure why I am writing this message - partly because I want to vent; partly because I would like some advice. I have had about 2-3 episodes of mild and short lasting (3ish days) of restless legs outside of pregnancy. I remember the restless legs to be quite bad in my first pregnancy
TanjaRLS
in
Restless Legs Syndrome
4 years ago
Lyme disease test
Hi. I noticed after getting M.R.I scan in lower spine. With symptoms of lower back pain. Fatigue. Pain in back of both legs below the knee. Headaches. The neaurologist wrote that he would appreciate it if my g.p arranged a lyme disease test for me. I asked the hospital for the report as my g.p has a
Hi. I noticed after getting M.R.I scan in lower spine. With symptoms of lower back pain. Fatigue. Pain in back of both legs below the knee. Headaches. The neaurologist wrote that he would appreciate it if my g.p arranged a lyme disease test for me. I asked the hospital for the report as my g.p has a
Jonn9
in
Pain Concern
4 years ago
FeSo4 and Mg and Requip
My boyfriend was suffering with RLS for a while and about a week ago, he had little to no sleep for 3 days. I researched online, and reach to this forum. I was scared of Requip possible side effect and alot of posting about people want to/did come off of it. I was hesitant to recommend him to try, but
My boyfriend was suffering with RLS for a while and about a week ago, he had little to no sleep for 3 days. I researched online, and reach to this forum. I was scared of Requip possible side effect and alot of posting about people want to/did come off of it. I was hesitant to recommend him to try, but
Yamama
in
Restless Legs Syndrome
4 years ago
Anomaly
Hi guys, After being in mild augmentation and having been on Requip (0.25mg) for just over a month, I started getting symptoms early morning, every afternoon and atleast 3 breakthroughs at night. This is when I also took tramadol 20mg, Pregab 150mg. With such discomfort, I decided to try a drug holiday
Hi guys, After being in mild augmentation and having been on Requip (0.25mg) for just over a month, I started getting symptoms early morning, every afternoon and atleast 3 breakthroughs at night. This is when I also took tramadol 20mg, Pregab 150mg. With such discomfort, I decided to try a drug holiday
Heatherlss
in
Restless Legs Syndrome
4 years ago
Any ideas of changing patterns of RLS symptoms
Hi there. Can anyone help. When trying to figure out coping with RLS and trying to eliminate what I believe may be potential triggers the pattern of symptoms changes. Recently found starts evening in legs. When this finally settles in small hours of the morning the sensation of crawling elevated
Hi there. Can anyone help. When trying to figure out coping with RLS and trying to eliminate what I believe may be potential triggers the pattern of symptoms changes. Recently found starts evening in legs. When this finally settles in small hours of the morning the sensation of crawling elevated
Debsamuels
in
Restless Legs Syndrome
4 years ago
YouTube video at drug / pain clinic
So I have this amazing drug that works buprenorphine however I have had a hard time accessing it in Australia also the pharmacies have refused to fill my prescriptions even after they speak to the doctor or doctors I should say. Lucky for me I brought back a years worth knowing I would need time to fight
So I have this amazing drug that works buprenorphine however I have had a hard time accessing it in Australia also the pharmacies have refused to fill my prescriptions even after they speak to the doctor or doctors I should say. Lucky for me I brought back a years worth knowing I would need time to fight
Shumbah
in
Restless Legs Syndrome
4 years ago
COVID-19 and Meningitis
Hello Everyone, We appreciate that this is a very worrying time for everyone. Many of you naturally have concerns and questions around COVID-19 and the impact this may have if you have suffered from meningitis. We now have a FAQ page around meningitis and COVID-19 on our website, which will be updated
Hello Everyone, We appreciate that this is a very worrying time for everyone. Many of you naturally have concerns and questions around COVID-19 and the impact this may have if you have suffered from meningitis. We now have a FAQ page around meningitis and COVID-19 on our website, which will be updated
MNClaireD
Meningitis Now
in
Meningitis Now
4 years ago
Try Caffeine for RLS
I've had RLS since I was young. Of course I never knew what it was, or if it even had a name until I was in my 30s. I am now 56. I have used mirapex and lyrica with success, but they made me gain weight. About 12 years ago, by accident, I found that CAFFEINE was the answer. Yes, believe it or not, caffeine
I've had RLS since I was young. Of course I never knew what it was, or if it even had a name until I was in my 30s. I am now 56. I have used mirapex and lyrica with success, but they made me gain weight. About 12 years ago, by accident, I found that CAFFEINE was the answer. Yes, believe it or not, caffeine
Bftalbert
in
Restless Legs Syndrome
4 years ago
A little Health Thought If you going to shop and have coins to spend Boil them first
They really appreciate it Peace and Good Health to all MaxV4 XXX
They really appreciate it Peace and Good Health to all MaxV4 XXX
Hidden
in
Fibromyalgia Action UK
4 years ago
Fungal nail treated with Terbinafine
What is the most popular treatment for fungal nail and how long can it take to cure?
What is the most popular treatment for fungal nail and how long can it take to cure?
TimTooYoung
in
PMRGCAuk
4 years ago
Dianne shares her Lyme Disease and LDNOn the LDN Radio Show 18th Mach 2020
YouTube: https://youtu.be/cV-poFBJYaI
YouTube: https://youtu.be/cV-poFBJYaI
liveurlife
Volunteer
in
LDN Research Trust
4 years ago
EMAIL from Professor Richard P Allen John Hopkins
Dear Mrs Howard I was sad hearing about your travails getting treatment for RLS. Yes buprenorphine is one of the opioids used for refractory RLS with reasonably good results. It tends to get used after methadone is tried, but it is very effective in many patients. We have long term experience
Dear Mrs Howard I was sad hearing about your travails getting treatment for RLS. Yes buprenorphine is one of the opioids used for refractory RLS with reasonably good results. It tends to get used after methadone is tried, but it is very effective in many patients. We have long term experience
Shumbah
in
Restless Legs Syndrome
4 years ago
Post Encephalitis advice please
Was diagnosed treated and discharged from hospital with Hsv-1 Encephalitis 4 years ago knowing little of the illness, since then i have been trying to get back to a "normal" life but find its always one step forward two steps back and my gp keeps diagnosing me with depression/stress. Recently i lost
Was diagnosed treated and discharged from hospital with Hsv-1 Encephalitis 4 years ago knowing little of the illness, since then i have been trying to get back to a "normal" life but find its always one step forward two steps back and my gp keeps diagnosing me with depression/stress. Recently i lost
Mgray13
in
Headway
4 years ago
Food allergies
Due to having IBS and food allergies I can’t eat onion in any form, Mayo , olive oil. Most of recipes use onion any idea what alternative ingredient I can use.
Due to having IBS and food allergies I can’t eat onion in any form, Mayo , olive oil. Most of recipes use onion any idea what alternative ingredient I can use.
Patchwork1943
2020 February
in
Weight Loss Support
4 years ago
l-Lysine
I have been diagnosed with shingles and recommended to take L-Lysine 500 mgs on an empty stomach. Will I still have to leave it an hour after I take my Levothyroxine before I take the L-Lysine? It was ask recommend to me to during apple cider vinegar on an empty stomach so I thought I’d take the L-Lysine
I have been diagnosed with shingles and recommended to take L-Lysine 500 mgs on an empty stomach. Will I still have to leave it an hour after I take my Levothyroxine before I take the L-Lysine? It was ask recommend to me to during apple cider vinegar on an empty stomach so I thought I’d take the L-Lysine
Citta
in
Thyroid UK
4 years ago
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