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My decision on Radiotherapy -v- Prostatectomy
I hope this story might be useful to others. I'm based in the UK and had a PSA of 12.7 from a test in June 2023. That led to an MRI in August with a PI-RADS of 5 with irregularity on the front of the prostate. I eventually had a biopsy at the end of September after 3 cancellations (this was through the
I hope this story might be useful to others. I'm based in the UK and had a PSA of 12.7 from a test in June 2023. That led to an MRI in August with a PI-RADS of 5 with irregularity on the front of the prostate. I eventually had a biopsy at the end of September after 3 cancellations (this was through the
MarkS
in
Prostate Cancer Network
5 months ago
FDA approves niraparib and abiraterone acetate plus prednisone for BRCA-mutated metastatic castration-resistant prostate cancer - 08/11/2023
On August 11, 2023, the Food and Drug Administration approved the fixed dose combination of niraparib and abiraterone acetate (Akeega, Janssen Biotech, Inc.), with prednisone, for adult patients with deleterious or suspected deleterious BRCA-mutated castration-resistant prostate cancer (mCRPC), as determined
On August 11, 2023, the Food and Drug Administration approved the fixed dose combination of niraparib and abiraterone acetate (Akeega, Janssen Biotech, Inc.), with prednisone, for adult patients with deleterious or suspected deleterious BRCA-mutated castration-resistant prostate cancer (mCRPC), as determined
cujoe
in
Fight Prostate Cancer
10 months ago
The devil's dilemma
Between a rock and a hard place I am not sure if this topic has been discussed here before but it’s extremely frustrating to me since I don’t understand which way to go Very very interesting video. In a nut shell, the video discussion is about the introduction of NEPC and progression from HS to
Between a rock and a hard place I am not sure if this topic has been discussed here before but it’s extremely frustrating to me since I don’t understand which way to go Very very interesting video. In a nut shell, the video discussion is about the introduction of NEPC and progression from HS to
Ahk1
in
Advanced Prostate Cancer
5 months ago
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PSA Risen in Last 6 months
Have been on here a week ago, explaining that my husband (who was diagnosed 10years ago) has now been diagnosed with Gastroporesis, so not eating much due to constant nausea and vomiting. We are due to see his Urologist in 2 weeks time, so had the dreaded PSA blood test. It had been almost undetectable
Have been on here a week ago, explaining that my husband (who was diagnosed 10years ago) has now been diagnosed with Gastroporesis, so not eating much due to constant nausea and vomiting. We are due to see his Urologist in 2 weeks time, so had the dreaded PSA blood test. It had been almost undetectable
Hidden
in
Advanced Prostate Cancer
5 months ago
Newly diagnosed researching lifestyle changes
Hi there, Had a overall physical of everything which included PSA which was 6 in 2016 and didn't put any attention to it and ignored it, nobody I spoke with who saw the report said to do anything. No family history of prostate cancer that I know of. Now 7 years later age 64, PSA 18, Free PSA 11%
Hi there, Had a overall physical of everything which included PSA which was 6 in 2016 and didn't put any attention to it and ignored it, nobody I spoke with who saw the report said to do anything. No family history of prostate cancer that I know of. Now 7 years later age 64, PSA 18, Free PSA 11%
Nwdx
in
Advanced Prostate Cancer
3 months ago
After bicalutimide and a high testosterone level is pre treatment T just guess work?
Just turning to fellow travellers on our various journeys for some input/advice/ thoughts as I make a decision on how far to push to the SOC for my high risk G9, given my oncologist is saying 15 months adjuvant (I am nervous of anything less than 18 months) is enough given my co morbidities, age at 73
Just turning to fellow travellers on our various journeys for some input/advice/ thoughts as I make a decision on how far to push to the SOC for my high risk G9, given my oncologist is saying 15 months adjuvant (I am nervous of anything less than 18 months) is enough given my co morbidities, age at 73
SimMartin
in
Prostate Cancer Network
5 months ago
Divergent second opinion
My husband was recently diagnosed with PCa with 6-7 mets to the bones as seen on the PSMA Pet scan (see profile for details), The first MO we met at an NCCN center recommended triplet therapy. He has started Firmagon + Darulotomide with Docetaxel planned in the coming weeks. We also got a second opinion
My husband was recently diagnosed with PCa with 6-7 mets to the bones as seen on the PSMA Pet scan (see profile for details), The first MO we met at an NCCN center recommended triplet therapy. He has started Firmagon + Darulotomide with Docetaxel planned in the coming weeks. We also got a second opinion
Cali3
in
Advanced Prostate Cancer
5 months ago
Staring at my unopened bottle of Orgovyx
Well, D-day (or maybe O-day) has arrived (thank you FED-X). I'm about to do a swan dive into my battle against my PCa. After a week of searching for this stuff, my clinic found it in Louisville Kentucky at a pharmacy called Onco360. Not exactly a neighborhood corner market with me living on an island
Well, D-day (or maybe O-day) has arrived (thank you FED-X). I'm about to do a swan dive into my battle against my PCa. After a week of searching for this stuff, my clinic found it in Louisville Kentucky at a pharmacy called Onco360. Not exactly a neighborhood corner market with me living on an island
mababa
in
Advanced Prostate Cancer
3 months ago
New possible treatment being researched
Just read an interesting article about some research at Trent University that says there's hope for a new PCa treatment. It's a naturally occurring molecule called carnosine and seems to indicate much fewer side effects. As I've written before, I think ADT is too harsh and takes away too much, so I
Just read an interesting article about some research at Trent University that says there's hope for a new PCa treatment. It's a naturally occurring molecule called carnosine and seems to indicate much fewer side effects. As I've written before, I think ADT is too harsh and takes away too much, so I
Shamrock46
in
Advanced Prostate Cancer
5 months ago
Update on Head/neck pressure post from a few days ago
I have a previous post discussing this but as a quick recap - for some reason, after about 2.5 years of being on a steady dose, I suddenly felt unwell and v overmedicated on holiday about 8 weeks ago. I dropped my dose by 5, then another 5mcg and felt fine about from about two weeks afterwards until
I have a previous post discussing this but as a quick recap - for some reason, after about 2.5 years of being on a steady dose, I suddenly felt unwell and v overmedicated on holiday about 8 weeks ago. I dropped my dose by 5, then another 5mcg and felt fine about from about two weeks afterwards until
Murphysmum
in
Thyroid UK
5 months ago
Foot Cramps
Can anyone suggest anything I can take for foot cramps. I am currently taking 600mg pregablin, ramipril, hrt, zapain and naproxen aswell as iron, calcium and magnesium. The cramps are becoming more and more frequent and my Gp said to eat bananas and rub magnesium into my feet. Last night was unbearable
Can anyone suggest anything I can take for foot cramps. I am currently taking 600mg pregablin, ramipril, hrt, zapain and naproxen aswell as iron, calcium and magnesium. The cramps are becoming more and more frequent and my Gp said to eat bananas and rub magnesium into my feet. Last night was unbearable
UpsideDownInsideOut
in
Restless Legs Syndrome
5 months ago
How My Phobia of the Dark Helped Me Treat My OCD
I used to be afraid to leave the comfort of my bed nighttime for a fear of being attacked by supernatural beings. This was ridiculous. I prided myself in having a scientific mind. How could I be afraid of ghosts nighttime when I walked out of my comfort zone? I was pretty sure that ghosts didn’t exist
I used to be afraid to leave the comfort of my bed nighttime for a fear of being attacked by supernatural beings. This was ridiculous. I prided myself in having a scientific mind. How could I be afraid of ghosts nighttime when I walked out of my comfort zone? I was pretty sure that ghosts didn’t exist
deValentin
in
My OCD Community
5 months ago
Zoladex experience
Hey there 👋 I'm just wondering if anyone has had a negative experience with zoladex? I am due to have my 4th injection next week, was supposed to be yesterday but appointment got cancelled. I'm also on Estradot patches and utrogestan tablets. I've never felt so shit in all my life and the only thing
Hey there 👋 I'm just wondering if anyone has had a negative experience with zoladex? I am due to have my 4th injection next week, was supposed to be yesterday but appointment got cancelled. I'm also on Estradot patches and utrogestan tablets. I've never felt so shit in all my life and the only thing
x_b_x
in
Endometriosis UK
5 months ago
New Developments in My Husband's PCA Journey
Hello, I wanted to provide an update on my husband's progression and, hopefully, some of you may have some knowledge to share or have a similar profile. His psa has risen from <0.04 since RP for Stage 3b to 0.06 in 9/23. A recheck a week later showed a rise to 0.1. This was followed by a drop to <.04
Hello, I wanted to provide an update on my husband's progression and, hopefully, some of you may have some knowledge to share or have a similar profile. His psa has risen from <0.04 since RP for Stage 3b to 0.06 in 9/23. A recheck a week later showed a rise to 0.1. This was followed by a drop to <.04
103532
in
Advanced Prostate Cancer
5 months ago
PSA rise soon after surgery!
Writing regarding my dad. Worried and dont get any answers / just wait and see approach from medical team :( Dad 63 years old now, was diagnosed with prostate cancer october 2022. 2 small tumors 5x3 mm was shown on MR, no spread shown there. Biopsy showed gleason 3+4 ( 4 was 50%) Ralp surgery robotic
Writing regarding my dad. Worried and dont get any answers / just wait and see approach from medical team :( Dad 63 years old now, was diagnosed with prostate cancer october 2022. 2 small tumors 5x3 mm was shown on MR, no spread shown there. Biopsy showed gleason 3+4 ( 4 was 50%) Ralp surgery robotic
Daddysgirl83
in
Advanced Prostate Cancer
10 months ago
Psa rise soon after surgery, help!
Writing regarding my dad. Worried and dont get any answers / just wait and see approach from medical team :( Dad 63 years old now, was diagnosed with prostate cancer october 2022. 2 small tumors 5x3 mm was shown on MR, no spread shown there. Biopsy showed gleason 3+4 ( 4 was 40%). Ralp surgery robotic
Writing regarding my dad. Worried and dont get any answers / just wait and see approach from medical team :( Dad 63 years old now, was diagnosed with prostate cancer october 2022. 2 small tumors 5x3 mm was shown on MR, no spread shown there. Biopsy showed gleason 3+4 ( 4 was 40%). Ralp surgery robotic
Daddysgirl83
in
Fight Prostate Cancer
10 months ago
RP & T3B
Those who had RP and T3b with no ADT/SRT yet, how are you doing and when was your RP?
Those who had RP and T3b with no ADT/SRT yet, how are you doing and when was your RP?
tn12
in
Advanced Prostate Cancer
5 months ago
Blood test time - still no better
Hello I'm posting again to get views on my latest blood tests, although I think it's probably same as last time. I just don't get anywhere with my doctor. Last time some of you were saying that I possibly had poor conversion and I think my results this time are showing similar sort of numbers. My doctor
Hello I'm posting again to get views on my latest blood tests, although I think it's probably same as last time. I just don't get anywhere with my doctor. Last time some of you were saying that I possibly had poor conversion and I think my results this time are showing similar sort of numbers. My doctor
Loopnova
in
Thyroid UK
5 months ago
Controversial query re causality of PLMD
Most of you are RLS sufferers, but my question is more about PLMD, which is treated with similar medications in Western medicine protocols but is not the same condition (Eastern medicines treats them differently). Anyway, to the degree anyone knows, it is obvious that PLMD can cause depression and anxiety
Most of you are RLS sufferers, but my question is more about PLMD, which is treated with similar medications in Western medicine protocols but is not the same condition (Eastern medicines treats them differently). Anyway, to the degree anyone knows, it is obvious that PLMD can cause depression and anxiety
wantokporo
in
Restless Legs Syndrome
5 months ago
PSA suppression
My PSA lows tend to be around 3.3, and it occurs to me that some might think it odd that I don't drive it lower. I think it is very common for men on ADT to draw too much comfort from a significant PSA reduction, if not a near-zero PSA. I have witnessed men misinterpret a dramatic drop in PSA as
My PSA lows tend to be around 3.3, and it occurs to me that some might think it odd that I don't drive it lower. I think it is very common for men on ADT to draw too much comfort from a significant PSA reduction, if not a near-zero PSA. I have witnessed men misinterpret a dramatic drop in PSA as
pca2004
in
Fight Prostate Cancer
5 months ago
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