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Newby here seeking advice please.
Just been delisted for lung transplant (IPF) by the Harefield as my heart maybe too weak to withstand operation. Looking through medical notes i have, for the first time seen a radiologist report stating “volume mediastinal lymph nodes measuring 10mm short axis in the subcarinal location”. This was in
Just been delisted for lung transplant (IPF) by the Harefield as my heart maybe too weak to withstand operation. Looking through medical notes i have, for the first time seen a radiologist report stating “volume mediastinal lymph nodes measuring 10mm short axis in the subcarinal location”. This was in
Mrbojangles
in
Lung Cancer Support
2 years ago
So so confused.
Ok met with Doc. She agreed the /triamterene Could have caused a false reading. My blood pressure has been 135/77 sometimes 144/78 I am not taking anything and keeping a long. So I have no diuretic but my ankles are really swelled this afternoon. Did I eat salt this afternoon , probably. I’m trying
Ok met with Doc. She agreed the /triamterene Could have caused a false reading. My blood pressure has been 135/77 sometimes 144/78 I am not taking anything and keeping a long. So I have no diuretic but my ankles are really swelled this afternoon. Did I eat salt this afternoon , probably. I’m trying
Butchga62
in
Early CKD Support
2 years ago
Liver transplant
Hi , I am waiting for a liver transplant, was wondering if there is anyone on here who has had one
Hi , I am waiting for a liver transplant, was wondering if there is anyone on here who has had one
Swansliver
in
British Liver Trust
2 years ago
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ALBUMIN and EDEMA and COMPRESSION SOCKS - oh my!
partner diagnosed decompensated cirrhosis 22.12.21 - stopped drinking the same day. Albumin 18 at diagnosis, 24 at best since now dipped again to 22. How long did people's albumin take to recover - is it normally so slow to improve - in contrast bilirubin gone from 256 to 58 since Dec. He is having
partner diagnosed decompensated cirrhosis 22.12.21 - stopped drinking the same day. Albumin 18 at diagnosis, 24 at best since now dipped again to 22. How long did people's albumin take to recover - is it normally so slow to improve - in contrast bilirubin gone from 256 to 58 since Dec. He is having
Rshc
in
British Liver Trust
2 years ago
Insomnia induced by opiods
I have been struggling forever with insomnia caused by taking opiods for RLS. Like many of you here it's worth it because the relief from RLS is so wonderful. I recently added Olanzapine 5mg at night for sleep. I know it's on the naughty list as it tends to increase RLS symptoms. I decided to go ahead
I have been struggling forever with insomnia caused by taking opiods for RLS. Like many of you here it's worth it because the relief from RLS is so wonderful. I recently added Olanzapine 5mg at night for sleep. I know it's on the naughty list as it tends to increase RLS symptoms. I decided to go ahead
ziggypiggy
in
Restless Legs Syndrome
2 years ago
New member.
Hi, new member here. I had surgery on my liver last year, de-roofed a large cyst of which I have many! Polycystic kidney disease on kidneys and liver. (Cheers mum!). Blood test results all going the wrong way now, but not getting much info back from doctors or hospital. Gamma gt? Up from 200 in September
Hi, new member here. I had surgery on my liver last year, de-roofed a large cyst of which I have many! Polycystic kidney disease on kidneys and liver. (Cheers mum!). Blood test results all going the wrong way now, but not getting much info back from doctors or hospital. Gamma gt? Up from 200 in September
troutman15
in
British Liver Trust
2 years ago
Living kidney transplant education
On Thursday December 9th those who need a
kidney
transplant
, recipients, donors and organizations are posting on the
Kidney
Transplant
Thursdays Facebook Page. To learn more, go to: http://www.kidneytransplantthursdays.org
On Thursday December 9th those who need a
kidney
transplant
, recipients, donors and organizations are posting on the
Kidney
Transplant
Thursdays Facebook Page. To learn more, go to: http://www.kidneytransplantthursdays.org
hmysel
in
Kidney Transplant Patient Support
2 years ago
Questions and fear and pain
Lower back pain, one sided, is it kidney trouble? Undiagnosed and this is new symptom along with swollen ankle. Rheumy ordered ct scan for wednesday this week. Thanks in advance you lovely people you! :)
Lower back pain, one sided, is it kidney trouble? Undiagnosed and this is new symptom along with swollen ankle. Rheumy ordered ct scan for wednesday this week. Thanks in advance you lovely people you! :)
Binty1
in
PMRGCAuk
2 years ago
Ascetes after transplant
Hi everyone. Has anyone had ascetes 4 years after a liver transplant?
Hi everyone. Has anyone had ascetes 4 years after a liver transplant?
Hidden
in
British Liver Trust
2 years ago
MIN-102 update: summer 2022
Hi everyone, I am persisting with the min-102 trial and yesterday had my 10th visit. Nothing particularly different about the visit: the usual 6 minute walking and balance trials, the annual MRI scan and echocardiogram and the questionnaires and meeting with a specialist. What I did learn is that Minoryx
Hi everyone, I am persisting with the min-102 trial and yesterday had my 10th visit. Nothing particularly different about the visit: the usual 6 minute walking and balance trials, the annual MRI scan and echocardiogram and the questionnaires and meeting with a specialist. What I did learn is that Minoryx
wilburlois15
in
AMN EASIER
2 years ago
Can I come to UK for transplant?
I have been recommended
kidney
& liver
transplant
. Unfortunately from where i am doctors are not doing the transplant from out family donor. My younger has the same gene mutation so he is rejected for donating but my friends want to donate.
I have been recommended
kidney
& liver
transplant
. Unfortunately from where i am doctors are not doing the transplant from out family donor. My younger has the same gene mutation so he is rejected for donating but my friends want to donate.
Devumair
in
Dialysis Support
2 years ago
Thank you!
Wow. Thanks to all of you for saying g’day. PPFE is idiopathic pleuro parenchymal fibroelastosis. Rare. Diagnosed by lung biopsy. I am not suitable for lung transplants. I will contact you all. 😊
Wow. Thanks to all of you for saying g’day. PPFE is idiopathic pleuro parenchymal fibroelastosis. Rare. Diagnosed by lung biopsy. I am not suitable for lung transplants. I will contact you all. 😊
Hidden
in
Lung Conditions Community Forum
2 years ago
Blood pressure meds
I was previously put on triamterene with a diuretic when I started having kidney Grf issues. So I asked my doctor to put me on Lisinopril. It seems to protect the kidneys. My blood pressure this morning was 141/80. It has been fluctuating from 134/70 etc. while I am afraid to switch I wonder if this
I was previously put on triamterene with a diuretic when I started having kidney Grf issues. So I asked my doctor to put me on Lisinopril. It seems to protect the kidneys. My blood pressure this morning was 141/80. It has been fluctuating from 134/70 etc. while I am afraid to switch I wonder if this
Butchga62
in
Early CKD Support
2 years ago
New, targeted therapy inhibits specific immune cells associated with lupus nephritis
Several medications currently available can effectively treat lupus nephritis, but in patients who don't respond well to these treatments, the disease can progress to such an extent that the only way to keep them alive is through dialysis or a
kidney
transplant
.
Several medications currently available can effectively treat lupus nephritis, but in patients who don't respond well to these treatments, the disease can progress to such an extent that the only way to keep them alive is through dialysis or a
kidney
transplant
.
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
2 years ago
Ca125
My ca125 has risen quite a bit in the last two months. Went from 21 to 42 and now it is at 58 the last check. Getting ct scan Monday. Last one in January was clear. Dr said he relies more on the scan cause the ca125 can fluctuate for different reasons, such as an infection. My scan was clear, but showed
My ca125 has risen quite a bit in the last two months. Went from 21 to 42 and now it is at 58 the last check. Getting ct scan Monday. Last one in January was clear. Dr said he relies more on the scan cause the ca125 can fluctuate for different reasons, such as an infection. My scan was clear, but showed
Newquilter66
in
My Ovacome
2 years ago
We love pig. U.S. surgeons successfully test pig kidney transplant in human patient.
https://www.reuters.com/business/healthcare-pharmaceuticals/us-surgeons-successfully-test-pig-
kidney
-
transplant
-human-patient-2021-10-19/
https://www.reuters.com/business/healthcare-pharmaceuticals/us-surgeons-successfully-test-pig-
kidney
-
transplant
-human-patient-2021-10-19/
Jumbo1
in
Kidney Disease
3 years ago
Mom with 11 yr old son that had Kidney Transplant at 18 months old.
Hello, I’m new to this community so grateful to have found this. Wish it was around 10 yrs ago when we were dealing with my sons transplant… Just looking for parents with children that may have gone through a transplant. My son is 11 now and just going through a huge change physically, emotionally,
Hello, I’m new to this community so grateful to have found this. Wish it was around 10 yrs ago when we were dealing with my sons transplant… Just looking for parents with children that may have gone through a transplant. My son is 11 now and just going through a huge change physically, emotionally,
Tulip00
in
Parents of Children with Kidney Disease
2 years ago
Bladder Mass
Hey everyone- this is my first post to this site. After some brief hematuria, a bladder mass was discovered by cystoscope inside the bladder, not the bladder neck. Already been thru bladder neck BCR. I have a Turbt scheduled later this month for biopsy and possible removal. My last psa was .01
Hey everyone- this is my first post to this site. After some brief hematuria, a bladder mass was discovered by cystoscope inside the bladder, not the bladder neck. Already been thru bladder neck BCR. I have a Turbt scheduled later this month for biopsy and possible removal. My last psa was .01
SimplyT
in
Advanced Prostate Cancer
2 years ago
Low kidney function
Hi my husbands kidneys are at 18% and the dr has told him he needs a urgent scan, and that he have to look at his options be it transplant or dialysis, I'm worried about it all , he gets so tired he's 71 this year Any advice please
Hi my husbands kidneys are at 18% and the dr has told him he needs a urgent scan, and that he have to look at his options be it transplant or dialysis, I'm worried about it all , he gets so tired he's 71 this year Any advice please
joannieandmike
in
Kidney Dialysis
2 years ago
Transplants and Covid
How many with kidney transplants have had Covid?
How many with kidney transplants have had Covid?
OakGrove
in
Kidney Transplant
2 years ago
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