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Yikes- it’s like waiting for an unexplored bomb to go off!
I’ve got colonoscopy procedure tomorrow- to say I’m anxious is an understatement- I’ve taken the two senna tablets this morning at 8.30 but so about 40 mins ago - so far.... nothing! I’m dreading the onset of the diarrhoea... helllllp!
I’ve got colonoscopy procedure tomorrow- to say I’m anxious is an understatement- I’ve taken the two senna tablets this morning at 8.30 but so about 40 mins ago - so far.... nothing! I’m dreading the onset of the diarrhoea... helllllp!
Inksplat
in
IBS Network
4 years ago
Refused a kidney transplant
Hi Everyone, it’s been quite while since I have posted anything, but what I just went through tonight still has me wondering if I made the right decision. I was working tonight, when I received a phone call from my transplant center. I was offered a kidney, and I refused it. I just had a doctors appointment
Hi Everyone, it’s been quite while since I have posted anything, but what I just went through tonight still has me wondering if I made the right decision. I was working tonight, when I received a phone call from my transplant center. I was offered a kidney, and I refused it. I just had a doctors appointment
Socky
in
Kidney Transplant
4 years ago
Coronavirus- self isolation, do I remove my child from school?
What do I do...I'm immune supressed and coronavirus has been confirmed in my town. (Currently one case, probs more tho) I'm a single mum with a 4 year old. Do I self isolate and pull her our of school and her usual activities at the weekends or do I continue to let her go to school and simply self isolate
What do I do...I'm immune supressed and coronavirus has been confirmed in my town. (Currently one case, probs more tho) I'm a single mum with a 4 year old. Do I self isolate and pull her our of school and her usual activities at the weekends or do I continue to let her go to school and simply self isolate
jolittle93
in
Vasculitis UK
4 years ago
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Is there anyone from India. I want to know that is there any forum which can help me to find job after kidney transplant. i am from Gujarat India .MBA+engineer
Is there anyone from India. I want to know that is there any forum which can help me to find job after kidney transplant. i am from Gujarat India .MBA+engineer
pateldev
in
Kidney Transplant
4 years ago
Coronavirus & kidney transplant
My husband is 3 months post kidney transplant (donated by his sister) and on immune suppressants now for life. Anyone have insight into how coronavirus might affect him if he was to get it? Anyone have any advice?
My husband is 3 months post kidney transplant (donated by his sister) and on immune suppressants now for life. Anyone have insight into how coronavirus might affect him if he was to get it? Anyone have any advice?
Pem_0904
in
Kidney Disease
4 years ago
A new paper strongly linking chronic kidney disease and lowered creatine disposal rate with hypothyroidism & TPOAb
This paper just out in Thyroid shows a strong link between chronic kidney disease and hypothyroidism and TPOAb, leading to a poorer action of disposal of creatine by lowered excretion.
ThyroidVol. 30, No. 3
Hypothyroidism and Kidney Function: A Mendelian Randomization Study
Christina
This paper just out in Thyroid shows a strong link between chronic kidney disease and hypothyroidism and TPOAb, leading to a poorer action of disposal of creatine by lowered excretion.
ThyroidVol. 30, No. 3
Hypothyroidism and Kidney Function: A Mendelian Randomization Study
Christina
diogenes
in
Thyroid UK
4 years ago
Just now learning my GFR's were low for 5 years.
With the world under a medical crisis, I don't know if I should wait. My GFR has been from 55-64 for the past 5 years but nobody alerted me. My doc recently had a nurse call and tell me about it and ordered repeat blood tests. Twice. It's now 64. I'm Freaked. My beloved sister had 3 kidney transplants
With the world under a medical crisis, I don't know if I should wait. My GFR has been from 55-64 for the past 5 years but nobody alerted me. My doc recently had a nurse call and tell me about it and ordered repeat blood tests. Twice. It's now 64. I'm Freaked. My beloved sister had 3 kidney transplants
Hidden
in
Kidney Disease
4 years ago
Other NKF Communities
Do you know about our other communities? Check them out! Kidney Dialysis: https://healthunlocked.com/nkf-dial... Kidney Disease: https://healthunlocked.com/nkf-ckd Kidney Transplant: https://healthunlocked.com/nkf-kidn... Parents of Children with Kidney Disease: https://healthunlocked.com/nkf-parents
Do you know about our other communities? Check them out! Kidney Dialysis: https://healthunlocked.com/nkf-dial... Kidney Disease: https://healthunlocked.com/nkf-ckd Kidney Transplant: https://healthunlocked.com/nkf-kidn... Parents of Children with Kidney Disease: https://healthunlocked.com/nkf-parents
KristiS_NKF
Administrator
in
Kidney Donation
4 years ago
Medication Query
Hi Can anyone on here tell me if they've been diagnosed with Arterial Scelrosis or Calcinem Toxicity Inhibitor due to taking prograf long term for a kidney transplant? Thanks in advance...
Hi Can anyone on here tell me if they've been diagnosed with Arterial Scelrosis or Calcinem Toxicity Inhibitor due to taking prograf long term for a kidney transplant? Thanks in advance...
Santaponsa1
in
Kidney Transplant Patient Support
4 years ago
Insurance cover for Belatacept anti rejection infusion therapy. How do I get insurance for this drug therapy? My Medicare ends in 3 months?
Has anyone else had experience in getting Belatacept covered (or not covered) under their ACA insurance provider or other insurance provider? If so, how did you go about it? What was the process? How easy was it to get them to decide to cover it or not? I am going on three years after a successful kidney
Has anyone else had experience in getting Belatacept covered (or not covered) under their ACA insurance provider or other insurance provider? If so, how did you go about it? What was the process? How easy was it to get them to decide to cover it or not? I am going on three years after a successful kidney
Kidneygirl
in
Kidney Transplant
4 years ago
kidney issues with Levo
Hi Just had a call from GP as I had a 'bad' kidney blood result ( this was taken due to a pain in the side and not related to Hypothyroidism) …. The nurse then asked me to come in for my annual check for Thyroid - including more bloods for kidney and an essential blood pressure review apparently ! Here's
Hi Just had a call from GP as I had a 'bad' kidney blood result ( this was taken due to a pain in the side and not related to Hypothyroidism) …. The nurse then asked me to come in for my annual check for Thyroid - including more bloods for kidney and an essential blood pressure review apparently ! Here's
cazza1001
in
Thyroid UK
4 years ago
Anyone know about CIPD
Change of diagnosis. I was diagnosed with mononeuritis multiplex, secondary to vasculitis in 2015. I was on long term steroids followed by two years on mmf. With some symptoms still remaining I have been referred to another hospital where they are discussing whether I have CIPD, but am a bit of an enigma
Change of diagnosis. I was diagnosed with mononeuritis multiplex, secondary to vasculitis in 2015. I was on long term steroids followed by two years on mmf. With some symptoms still remaining I have been referred to another hospital where they are discussing whether I have CIPD, but am a bit of an enigma
linjoyfrench
in
Vasculitis UK
4 years ago
Week 1, Run 2, Attempt 2.
Nailed it this morning! Though not without my usual comedy of errors ;) Woke early, as per my new regime, and peered out of the window to check on the weather... windy and rainy. Now, I'm not worried about a bit of bad weather, in fact I was quite looking forward to it, however, kit wise I wasn't sure
Nailed it this morning! Though not without my usual comedy of errors ;) Woke early, as per my new regime, and peered out of the window to check on the weather... windy and rainy. Now, I'm not worried about a bit of bad weather, in fact I was quite looking forward to it, however, kit wise I wasn't sure
Simon_RM
in
Couch to 5K
4 years ago
Potassium results
I get my blood tested every 3 weeks by my oncologist before treatment. (had kidney cancer which was removed, including kidney, but it came back in my pelvis). Thankfully everything remains constant. The Creatinine has remained at 1.6 (not bad for one kidney) for months. Sometimes an odd drop to 1.5
I get my blood tested every 3 weeks by my oncologist before treatment. (had kidney cancer which was removed, including kidney, but it came back in my pelvis). Thankfully everything remains constant. The Creatinine has remained at 1.6 (not bad for one kidney) for months. Sometimes an odd drop to 1.5
RickHow
in
Early CKD Support
4 years ago
Itching
I am 79 years had a kidney transplant 18 years ago and now on Hemo dialysis. My problem is instense itchying every day. What can I do about it. I can’t take Benadryl. It’s driving me crazy.
I am 79 years had a kidney transplant 18 years ago and now on Hemo dialysis. My problem is instense itchying every day. What can I do about it. I can’t take Benadryl. It’s driving me crazy.
rosepd
in
Kidney Disease
4 years ago
Mental health issues
Well it’s almost 2 years ago since my transplant. With everything that went wrong afterwards I am really struggling to cope or feel blessed with this amazing gift I was given. I saw a psychologist that works with Renal patients and I got as far as being diagnosed with PTSD and depression and then her
Well it’s almost 2 years ago since my transplant. With everything that went wrong afterwards I am really struggling to cope or feel blessed with this amazing gift I was given. I saw a psychologist that works with Renal patients and I got as far as being diagnosed with PTSD and depression and then her
Cazzy41
in
Kidney Transplant Patient Support
4 years ago
Mass hysteria, the lack of available face masks, and a great solution!
Rats! I tried to post a video and it wouldn’t work. If you would like a really good laugh then google Union Jack thong face mask you tube. Features a chap in a hat. Enjoy!
Rats! I tried to post a video and it wouldn’t work. If you would like a really good laugh then google Union Jack thong face mask you tube. Features a chap in a hat. Enjoy!
Loubprv
Volunteer
in
MPN Voice
4 years ago
My Life With.. Fibrillary/Immunotactoid Glomerulonephritis Support Group
We have set up a support network for patients that are diagnosed with the rare kidney diseases, Fibrillary and Immunotactoid Glomerulonephritis. These conditions are very rare. Present in less than 1% of all kidney biopsies performed. We have a support page set up on Facebook, Instagram and Twitter
We have set up a support network for patients that are diagnosed with the rare kidney diseases, Fibrillary and Immunotactoid Glomerulonephritis. These conditions are very rare. Present in less than 1% of all kidney biopsies performed. We have a support page set up on Facebook, Instagram and Twitter
LifewithFGN
in
Early CKD Support
4 years ago
Elocon 0.1%
Just been prescribed Elocon for my skin as biopsy came back positive for Lupus Profundus. Has anyone had any good results on this cream ??
Just been prescribed Elocon for my skin as biopsy came back positive for Lupus Profundus. Has anyone had any good results on this cream ??
Montysmum1
in
LUPUS UK
4 years ago
Bactrim
I'ts been 2 years since my kidney transplant and along with my anti rejection meds I have been taking bactrim for the last 2 years and i have had no infections yet my doctor has not advised me to stop taking this med and i have heard that taking it unnecessarily long term can actually cause problems.
I'ts been 2 years since my kidney transplant and along with my anti rejection meds I have been taking bactrim for the last 2 years and i have had no infections yet my doctor has not advised me to stop taking this med and i have heard that taking it unnecessarily long term can actually cause problems.
Hidden
in
Kidney Transplant
4 years ago
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