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Yellow patches on eyelids
Hi I developed yellow patches on my eyelids and under my eyes pre-transplant. Read it can be a sign of poor liver function so that makes sense, however it has got slightly worse post transplant. My liver function is excellent and cholesterol is low so I’m not sure what is causing it and my consultant
Hi I developed yellow patches on my eyelids and under my eyes pre-transplant. Read it can be a sign of poor liver function so that makes sense, however it has got slightly worse post transplant. My liver function is excellent and cholesterol is low so I’m not sure what is causing it and my consultant
Bantam2
in
British Liver Trust
1 year ago
Fit test 200. Urgent CT colonoscopy being ordered. Bowel symptoms. Anyone had a ct colonoscopy....I'm scared.
Hi I'm age 47 female went into premature menopause at age 13yrs. Developed erosive lichen planus at age 30 which effects all my mucous membranes, 9 gynaecology operations had including a total hysterectomy & vaginectomy....ibs all my life but over the last 6months had severe bowel symtons.Fit test 200
Hi I'm age 47 female went into premature menopause at age 13yrs. Developed erosive lichen planus at age 30 which effects all my mucous membranes, 9 gynaecology operations had including a total hysterectomy & vaginectomy....ibs all my life but over the last 6months had severe bowel symtons.Fit test 200
Tinytash76
in
Colon Cancer Connected
1 year ago
GFR drop 62 to 57 does that matter?
hi. I'm back with question. Reminder: i had declining GFR to 40s that began to go back up to 60 than 62. Latest it dropped to 57. Not very significant but it is back below 60. Should I be concerned or is it so close to 60 it doesn't matter?? is it likely to continue to drop? Or its wait and see i guess
hi. I'm back with question. Reminder: i had declining GFR to 40s that began to go back up to 60 than 62. Latest it dropped to 57. Not very significant but it is back below 60. Should I be concerned or is it so close to 60 it doesn't matter?? is it likely to continue to drop? Or its wait and see i guess
Cobalt2sister
in
Early CKD Support
1 year ago
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Lupkynis approved in Switzerland to treat adults with lupus nephritis
Approval specifically covers treatment of active class 3, 4, and 5 disease by Marisa Wexler, MS | May 8, 2023 [i]
lupusnewstoday.com/news/lupkynis-approved-switzerland-treat-adults-lupus-nephritis/
[/i] Lupkynis (voclosporin) is now approved in Switzerland to treat adults with active lupus
Approval specifically covers treatment of active class 3, 4, and 5 disease by Marisa Wexler, MS | May 8, 2023 [i]
lupusnewstoday.com/news/lupkynis-approved-switzerland-treat-adults-lupus-nephritis/
[/i] Lupkynis (voclosporin) is now approved in Switzerland to treat adults with active lupus
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
1 year ago
after effects of kidney transplant
Hi There, I am a 62 years old male, with CKD 4 , EGFR as 16 and creatinine 4.07 . I have been listed for Kidney Transplant. I need to talk to people who have already got the transplant done and what kind of experience they have after getting the transplant. Any complications they had, is it better or
Hi There, I am a 62 years old male, with CKD 4 , EGFR as 16 and creatinine 4.07 . I have been listed for Kidney Transplant. I need to talk to people who have already got the transplant done and what kind of experience they have after getting the transplant. Any complications they had, is it better or
asahdev
in
Kidney Transplant
1 year ago
Clonidine for hypertension
Hello, Does anyone have experience with taking clonidine for hypertension? My FWP has been experiencing fluctuating blood pressure (anything from 102/66 or lower to 180/90 or even 200/80 on occasions) and his cardiologist has been adjusting his meds but they don’t seem to be that effective. We
Hello, Does anyone have experience with taking clonidine for hypertension? My FWP has been experiencing fluctuating blood pressure (anything from 102/66 or lower to 180/90 or even 200/80 on occasions) and his cardiologist has been adjusting his meds but they don’t seem to be that effective. We
Peppa_pig
in
Cure Parkinson's
1 year ago
Lipstickandcrayons
Hello my name is lipsticandcrayons I am a previous kidney transplant Paitient. It lasted me a whole 7 years and trust me when I say I protect this kidney with my life because it came from my beautiful mother. My mother was getting tested she had done the round and I got a call to come in , I was so
Hello my name is lipsticandcrayons I am a previous kidney transplant Paitient. It lasted me a whole 7 years and trust me when I say I protect this kidney with my life because it came from my beautiful mother. My mother was getting tested she had done the round and I got a call to come in , I was so
Lipstickncrayons
in
Kidney Transplant
1 year ago
abdominal ultrasound scan results received
hi everyone, I understand this post is outside of all thing colon and bowel related. However, I’ve been asked to let proole know about my results. Plus, there doesn’t seem to be a hub for abdominal, renal and other related issues. I finally had my scan on 27th April. The results haven’t appeared on
hi everyone, I understand this post is outside of all thing colon and bowel related. However, I’ve been asked to let proole know about my results. Plus, there doesn’t seem to be a hub for abdominal, renal and other related issues. I finally had my scan on 27th April. The results haven’t appeared on
Schnoodle2017
in
Colon Cancer Connected
1 year ago
9 weeks post op, still pain on one side, dark shade around kidney? Also new endometrioma found 😔
So at 6 weeks I posted about pain to one side, I was finally send to SAU yesterday for bloods and an ultrasound, my back is so tender to touch and they have found a dark spot in my kidney area? They don't know what it is but sent me home with a lot of pain killers and the promise of a CT scan to take
So at 6 weeks I posted about pain to one side, I was finally send to SAU yesterday for bloods and an ultrasound, my back is so tender to touch and they have found a dark spot in my kidney area? They don't know what it is but sent me home with a lot of pain killers and the promise of a CT scan to take
Pinkybow
in
Endometriosis UK
1 year ago
Intrinsic factor antibody result
Hi all, I've only just seen the result of an Intrinsic Factor Antibody test that was done in December before I started SI which I don't know how to interpret. I got a result of 2 u/ml (reference range is 0-24 u/ml). Is that a positive or a negative result? Does that confirm PA or not? Can someone explain
Hi all, I've only just seen the result of an Intrinsic Factor Antibody test that was done in December before I started SI which I don't know how to interpret. I got a result of 2 u/ml (reference range is 0-24 u/ml). Is that a positive or a negative result? Does that confirm PA or not? Can someone explain
Gecko22
in
Pernicious Anaemia Society
1 year ago
kidney transplant recipient.
hello everyone with a kidney transplant, congratulations to all. I received my new kidney about a year and a half ago. I still have pain at the site of the surgery. I drive for living what advice you guys can render?
hello everyone with a kidney transplant, congratulations to all. I received my new kidney about a year and a half ago. I still have pain at the site of the surgery. I drive for living what advice you guys can render?
ru7318
in
Kidney Transplant
1 year ago
Transplant and BKV Realities
I received my kidney transplant 8 1/2 months ago. The surgery went so well and the transplant has been a new lease on life in so many ways. As I have posted here, I have dealt with a near-constant onslaught of infections (C-dif x2, UTI, Sepsis, BKV, CMV), the most recent resulting in 2 weeks spent in
I received my kidney transplant 8 1/2 months ago. The surgery went so well and the transplant has been a new lease on life in so many ways. As I have posted here, I have dealt with a near-constant onslaught of infections (C-dif x2, UTI, Sepsis, BKV, CMV), the most recent resulting in 2 weeks spent in
Hidden
in
Kidney Transplant
1 year ago
Anyone Diagnosed With Lynch Syndrome?
Hello. Anyone in this forum under 50 and diagnosed with hereditary colorectal/bowel cancer due to Lynch Syndrome? I would love to chat. Thanks.
Hello. Anyone in this forum under 50 and diagnosed with hereditary colorectal/bowel cancer due to Lynch Syndrome? I would love to chat. Thanks.
Gorsundar
in
Colon Cancer Connected
1 year ago
Queenersize
So I'm trying to find ways to get motivated to exercise. I want to lose weight in preparation for a transplant. I have no donor yet, but I was told I would gain weight from steroids taken after your transplant. Can anyone give more insight on that? I at least want to try. I'm on my second week of clean
So I'm trying to find ways to get motivated to exercise. I want to lose weight in preparation for a transplant. I have no donor yet, but I was told I would gain weight from steroids taken after your transplant. Can anyone give more insight on that? I at least want to try. I'm on my second week of clean
HipHopQueen
in
Kidney Dialysis
1 year ago
Blood pressure treatment - Irbesartan
Hi all, Its me again with yet another problem. I have Jak 2 positive ET controlled on hydroxycarbamide, aspirin and rivaroxaban. I went to GP to-day to get sun spots on my face treated with liquid nitrogen and whilst there he discussed with me my borderline/raised blood pressure. He decided to start
Hi all, Its me again with yet another problem. I have Jak 2 positive ET controlled on hydroxycarbamide, aspirin and rivaroxaban. I went to GP to-day to get sun spots on my face treated with liquid nitrogen and whilst there he discussed with me my borderline/raised blood pressure. He decided to start
Jelbea
in
MPN Voice
1 year ago
85 year old female with constant uti and pain
I have a constant uti and I am up on the loo every hour day and night had 3 lots of antibiotics which relieved it for a couple of days then it comes back I also get the pelvic pain badly and now I am swollen down below I am awaiting a urologist appointment but anything that can help me in the meantime
I have a constant uti and I am up on the loo every hour day and night had 3 lots of antibiotics which relieved it for a couple of days then it comes back I also get the pelvic pain badly and now I am swollen down below I am awaiting a urologist appointment but anything that can help me in the meantime
Dippydolly
in
Pelvic Pain Support Network
1 year ago
Thoughts please?Im confused
I have had scarred kidneys since I was in my teens. I’m now 59 years old. Had a blood test to check my kidney function and my egfr is 51. I’m not diabetic , I have normal blood pressure and no other health issues. My GP has said my bloods are ok , no issues with potassium etc. I asked her if I should
I have had scarred kidneys since I was in my teens. I’m now 59 years old. Had a blood test to check my kidney function and my egfr is 51. I’m not diabetic , I have normal blood pressure and no other health issues. My GP has said my bloods are ok , no issues with potassium etc. I asked her if I should
Sno125patrol
in
Early CKD Support
1 year ago
PIP system is a complete joke
Hi Gang. I'm here to have the moaniest of moans. I'm 30 years old, I have Fibro, IBS-M and a shiny new heart condition that is yet to be granted a name. I applied for PIP in February, I was unbelievably awarded 0 points, I angrily applied for Mandatory Reconsideration ( I can't remember if that is
Hi Gang. I'm here to have the moaniest of moans. I'm 30 years old, I have Fibro, IBS-M and a shiny new heart condition that is yet to be granted a name. I applied for PIP in February, I was unbelievably awarded 0 points, I angrily applied for Mandatory Reconsideration ( I can't remember if that is
gemimafibro
in
Fibromyalgia Action UK
1 year ago
Is Ozempic safe for CKD
I have just been diagnosed with type 2 diabetes. also have stage 3 kidney disease. Will this help or hurt. I have read some say it helps. Your thoughts and has anyone tried this having kidney disease.
I have just been diagnosed with type 2 diabetes. also have stage 3 kidney disease. Will this help or hurt. I have read some say it helps. Your thoughts and has anyone tried this having kidney disease.
Butchga62
in
Early CKD Support
1 year ago
Normal test results after CKD diagnosis
Well, after having another blood test ( number 3) to check liver function and also a urine test been told over the phone results are normal no action. Not sure what this means so going to ring to try to speak to doc next week. Not sure how you can go from a you have CKD diagnosis to normal 3 weeks later
Well, after having another blood test ( number 3) to check liver function and also a urine test been told over the phone results are normal no action. Not sure what this means so going to ring to try to speak to doc next week. Not sure how you can go from a you have CKD diagnosis to normal 3 weeks later
Sunnysideup12
in
Early CKD Support
1 year ago
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