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Juvenile idiopathic arthritis
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Rituximab not working at all after 3 months
Hello everyone, I have aggressive rheumatoid arthritis for 10 years. The only treatment that worked well for this was tofacitinib, but unfortunately it caused me massive multiple blood clots in the lungs and had to be stopped. The blood clots have gone away and I was switched to rituximab. I took the
Hello everyone, I have aggressive rheumatoid arthritis for 10 years. The only treatment that worked well for this was tofacitinib, but unfortunately it caused me massive multiple blood clots in the lungs and had to be stopped. The blood clots have gone away and I was switched to rituximab. I took the
ma73jon
in
NRAS
3 years ago
😱Shall I scream or cry I’ll do both
Thankyou for allowing me to join the group I was told over the phone I probably have fibro Roll on September 1st face to face with rheumatoid consultant I have osteoarthritis in most of my joints and fibro symptoms and to make all that worst two teenage kids 😱Love and respect to all xx
Thankyou for allowing me to join the group I was told over the phone I probably have fibro Roll on September 1st face to face with rheumatoid consultant I have osteoarthritis in most of my joints and fibro symptoms and to make all that worst two teenage kids 😱Love and respect to all xx
Debbo89
in
Fibromyalgia Action UK
3 years ago
RA Symptoms?
Hi there I don’t think I’ve posted here before so forgive me if I’ve posted in the wrong place. I have rheumatoid arthritis diagnosed almost 2 years ago but currently unmediated. Is it very common to sometimes just be “unwell “? For the past week I’ve had a constant headache and now swollen glands
Hi there I don’t think I’ve posted here before so forgive me if I’ve posted in the wrong place. I have rheumatoid arthritis diagnosed almost 2 years ago but currently unmediated. Is it very common to sometimes just be “unwell “? For the past week I’ve had a constant headache and now swollen glands
Lola80
in
NRAS
3 years ago
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Thanks, I hate it!
Hi everyone. I'm from the UK and was diagnosed yesterday with inflammatory arthritis in my hands, wrists and elbows. I've had pain, stiffness, swelling, a fever and some serious exhaustion. I've been really lucky and saw a consultant rheumatologist quickly, and I'm 9 days in to a six week course of prednisolone
Hi everyone. I'm from the UK and was diagnosed yesterday with inflammatory arthritis in my hands, wrists and elbows. I've had pain, stiffness, swelling, a fever and some serious exhaustion. I've been really lucky and saw a consultant rheumatologist quickly, and I'm 9 days in to a six week course of prednisolone
snotts
in
NRAS
3 years ago
Oxford vaccine
Has anyone else found that there arthritis has got worse since having the Oxford vaccine
Has anyone else found that there arthritis has got worse since having the Oxford vaccine
LstT61
in
Arthritis Action
3 years ago
Arc Microtherapy Units for pain management
In relation to alternative therapies has anyone tried the 'Arc Microtherapy Unit' and stopped their prescribed medication . One testimony describes a man who has RA in his wrist who uses the device instead of MTX Interesting? I have one of these devices that I am about to start using on my horse
In relation to alternative therapies has anyone tried the 'Arc Microtherapy Unit' and stopped their prescribed medication . One testimony describes a man who has RA in his wrist who uses the device instead of MTX Interesting? I have one of these devices that I am about to start using on my horse
Hidden
in
NRAS
3 years ago
Amazing GP tele call and new diagnosis
Amazing GP tele catch up. GP phoned this am. I have new diagnosis…. Not PMR but Arthritis. All done by phone. One good thing she is chasing the Dexa Scan so I can be put in AA. I have more confidence than that and will wait and see.
Amazing GP tele catch up. GP phoned this am. I have new diagnosis…. Not PMR but Arthritis. All done by phone. One good thing she is chasing the Dexa Scan so I can be put in AA. I have more confidence than that and will wait and see.
Suffererc
in
PMRGCAuk
3 years ago
I do not have RA
I saw a Prof. in Rheumatology yesterday. He looked at the swollen surroundings of my joints, and said that it is not RA, maybe Psoriasis arthritis - going for a Ultrasound to see what is going on. So I will be leaving this group. Thanks and good luck to all :)
I saw a Prof. in Rheumatology yesterday. He looked at the swollen surroundings of my joints, and said that it is not RA, maybe Psoriasis arthritis - going for a Ultrasound to see what is going on. So I will be leaving this group. Thanks and good luck to all :)
krillemy
in
NRAS
3 years ago
Has anyone achieved a reduction in fatigue from PMR through the introduction of tocilizumab (Actemra) into their treatment regimen?
Lately it seems as though my fatigue and depression are getting worse. I've had PMR for about 3 years now and it seems as though I am going downhill in so far as exhaustion is concerned. I almost have no desire, and to some extent, no ability to get anything done. I have read that the IL6 pathway is
Lately it seems as though my fatigue and depression are getting worse. I've had PMR for about 3 years now and it seems as though I am going downhill in so far as exhaustion is concerned. I almost have no desire, and to some extent, no ability to get anything done. I have read that the IL6 pathway is
Ozark
in
PMRGCAuk
3 years ago
Morton’s neuroma
I was just diagnosed with Morton’s neuroma, does anyone have this? The foot doctor says my feet are classic rheumatoid arthritis but my rheumatologist still says no. Tia
I was just diagnosed with Morton’s neuroma, does anyone have this? The foot doctor says my feet are classic rheumatoid arthritis but my rheumatologist still says no. Tia
Hurting2012
in
NRAS
3 years ago
Psoratic arthritis and Lupus Double whammy. Feet/Heel problems
I was recently diagnosed with psoriatic arthritis along with Lupus. Does anyone know if this is what is making my feet look silvery like this? My feet/bottom of heels are very painful!!
I was recently diagnosed with psoriatic arthritis along with Lupus. Does anyone know if this is what is making my feet look silvery like this? My feet/bottom of heels are very painful!!
Christiejojo
in
LUPUS UK
3 years ago
Strange feeling under the skin
Hi, I'm new here, I have 4 different types of arthritis, I noticed that most of you talk about the feeling of pins and needles, I think that's maybe what I'm experiencing, feels like bee's under my skin, I'm on biologic injections,
Hi, I'm new here, I have 4 different types of arthritis, I noticed that most of you talk about the feeling of pins and needles, I think that's maybe what I'm experiencing, feels like bee's under my skin, I'm on biologic injections,
LstT61
in
Arthritis Action
3 years ago
How do I get my Dr. to take my request, for further testing, seriously? What have you done to get complete testing?
Hi! I'm new to this site and hope someone can help me with this. I'm 51, and 'think' I have Psoriatic Arthritis. My symptoms mimic those I've been able to find, but I would like a definitive answer. My Dr's, those I've discussed this with, simply say; "Well of course you have arthritis, you're over
Hi! I'm new to this site and hope someone can help me with this. I'm 51, and 'think' I have Psoriatic Arthritis. My symptoms mimic those I've been able to find, but I would like a definitive answer. My Dr's, those I've discussed this with, simply say; "Well of course you have arthritis, you're over
Nuerotyka69
in
NRAS
3 years ago
Sulfasalazine for osteoarthritis
Hi recently diagnosed with osteoarthritis I have ulcerated colitis aswell rheumatology wants to start me on Sulfasalazine next week any advice on This meds would be great x
Hi recently diagnosed with osteoarthritis I have ulcerated colitis aswell rheumatology wants to start me on Sulfasalazine next week any advice on This meds would be great x
Weebell
in
NRAS
3 years ago
Mtx - does it even work?
I see a LOT of awful side effects - like nausea. It seems to take 3 months to work, but with a fulckationg disease that mut be difficult to evaluate... UPdate: Thank you all - I fell reassured now and much more positive. I actually now hope to be diagnosed with RA so that I can start medication. Appointment
I see a LOT of awful side effects - like nausea. It seems to take 3 months to work, but with a fulckationg disease that mut be difficult to evaluate... UPdate: Thank you all - I fell reassured now and much more positive. I actually now hope to be diagnosed with RA so that I can start medication. Appointment
krillemy
in
NRAS
3 years ago
Do Corticosteroids Make You Immunosuppressed ?
I thought this article was very interesting and might help some on the forum. https://creakyjoints.org/living-with-arthritis/coronavirus/treatments/prednisone-steroids-immunosuppressing-coronavirus/
I thought this article was very interesting and might help some on the forum. https://creakyjoints.org/living-with-arthritis/coronavirus/treatments/prednisone-steroids-immunosuppressing-coronavirus/
kulina
in
PMRGCAuk
3 years ago
Good news
Our youngest granddaughter, who has JIA (
Juvenile
Idiopathic
Arthritis
), Uveitus (Uveitus is the eyes) has been taken off Humira as she's doing so well, no more fortnightly injections. At present she's in remission. We are over the moon.
Our youngest granddaughter, who has JIA (
Juvenile
Idiopathic
Arthritis
), Uveitus (Uveitus is the eyes) has been taken off Humira as she's doing so well, no more fortnightly injections. At present she's in remission. We are over the moon.
Hidden
in
Positive Wellbeing During Self-Isolation
3 years ago
Update
Hello All It has been some time since I posted but just felt like giving an update. My last posts were about suffering from TMJ. I do believe after six months it has got somewhat better. I have arthritis in my jaw and also had a wisdom tooth taken out. Yesterday I went to see a new Rhemy to get some
Hello All It has been some time since I posted but just felt like giving an update. My last posts were about suffering from TMJ. I do believe after six months it has got somewhat better. I have arthritis in my jaw and also had a wisdom tooth taken out. Yesterday I went to see a new Rhemy to get some
Robinsnest72
in
PMRGCAuk
3 years ago
Tocilizumab
I am seeing a new rheumatologist following an urgent referral from the hospital tomorrow, Thursday 16th, afternoon. It has been suggested by the hospital registrar, he rang before 9.00am on Monday to see how I was after my emergency visit last Thursday and increased to 60mgs from 5mgs dose of pred.,
I am seeing a new rheumatologist following an urgent referral from the hospital tomorrow, Thursday 16th, afternoon. It has been suggested by the hospital registrar, he rang before 9.00am on Monday to see how I was after my emergency visit last Thursday and increased to 60mgs from 5mgs dose of pred.,
MavisEllen
in
PMRGCAuk
3 years ago
Does having a blood RA of 24 mean I have rheumatoid arthritis?
I’m 40 years old with an under active thyroid on tirosint. Recently diagnosed with osteoporosis of the lumber spine and no one can figure out why. Possibly due to steroid for a back injury. I’ve been having all kinds of physical problems, rashes, joint pain, fatigue and worst of all breathing issues
I’m 40 years old with an under active thyroid on tirosint. Recently diagnosed with osteoporosis of the lumber spine and no one can figure out why. Possibly due to steroid for a back injury. I’ve been having all kinds of physical problems, rashes, joint pain, fatigue and worst of all breathing issues
Bobbobby
in
NRAS
3 years ago
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