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Jakafi
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Hasselbalch earlier this year summarizes the differences between interferon, hydroxyurea,
Jakafi
and anagrelide in regard to “impact upon clinical, biochemical, molecular, cytogenetic and bone marrow MPN markers and in regard to discontinuation rates due to toxicity and resistance to therapy: imagizer.imageshack.us
Hasselbalch earlier this year summarizes the differences between interferon, hydroxyurea,
Jakafi
and anagrelide in regard to “impact upon clinical, biochemical, molecular, cytogenetic and bone marrow MPN markers and in regard to discontinuation rates due to toxicity and resistance to therapy: imagizer.imageshack.us
Paul123456
in
MPN Voice
6 years ago
Promising results for MF Trial - Pacritinib
BAT was primarily Ruxo/
Jakafi
. Perhaps the most interesting bit is the number of participants who switched mid trial from BAT to Pacritinib after 24 weeks!
BAT was primarily Ruxo/
Jakafi
. Perhaps the most interesting bit is the number of participants who switched mid trial from BAT to Pacritinib after 24 weeks!
Paul123456
in
MPN Voice
6 years ago
Just stopped fuming!
My normal haematologist was on call this week so a different one was on clinic when I went on Thursday. I said I was concerned about my counts Hgb 9.1, white cells 1.85, platelets 56 and neutrophils 0.5.! He told me he wasn't at all worried about my Hgb until it gets below 9 and that there was nothing
My normal haematologist was on call this week so a different one was on clinic when I went on Thursday. I said I was concerned about my counts Hgb 9.1, white cells 1.85, platelets 56 and neutrophils 0.5.! He told me he wasn't at all worried about my Hgb until it gets below 9 and that there was nothing
beetle
in
MPN Voice
6 years ago
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Fascinating drug comparison table
Hasselbalch earlier this year summarizes the differences between interferon, hydroxyurea,
Jakafi
and anagrelide in regard to “impact upon clinical, biochemical, molecular, cytogenetic and bone marrow MPN markers and in regard to discontinuation rates due to toxicity and resistance to therapy: http://
Hasselbalch earlier this year summarizes the differences between interferon, hydroxyurea,
Jakafi
and anagrelide in regard to “impact upon clinical, biochemical, molecular, cytogenetic and bone marrow MPN markers and in regard to discontinuation rates due to toxicity and resistance to therapy: http://
Paul123456
in
MPN Voice
6 years ago
Jackifi
Has anyone on here taken
Jakafi
and if so what results and side effects have you had?
Has anyone on here taken
Jakafi
and if so what results and side effects have you had?
Murry33
in
MPN Voice
6 years ago
JAK2 questions
Second question is that I assume
Jakafi
would only be used on JAK2 patients? However, if it merely suppresses the JAK2 mutation, what controls the underlying PV/ET? Trying to understand the impact of JAK2 on ET/PV and treatment plans.
Second question is that I assume
Jakafi
would only be used on JAK2 patients? However, if it merely suppresses the JAK2 mutation, what controls the underlying PV/ET? Trying to understand the impact of JAK2 on ET/PV and treatment plans.
Paul123456
in
MPN Voice
7 years ago
Back from my trip to SE Asia (brief update)
Just prior to leaving, I also decided to try to reduce my
Jakafi
b/d dosage from 25mg to 20 mg. Unfortunately, that might have had some impact on my immediate and lingering symptoms & side-effects (?).
Just prior to leaving, I also decided to try to reduce my
Jakafi
b/d dosage from 25mg to 20 mg. Unfortunately, that might have had some impact on my immediate and lingering symptoms & side-effects (?).
socrates_8
in
MPN Voice
7 years ago
Susan 3025
Now he was denied the medication
Jakafi
which he needs after he got Medicare. What does this say about our system? He had excellent insurance when he was working. But since he became ill he cant work and lost his job and insurance. I am ashamed to say I work in the healthcare industry.
Now he was denied the medication
Jakafi
which he needs after he got Medicare. What does this say about our system? He had excellent insurance when he was working. But since he became ill he cant work and lost his job and insurance. I am ashamed to say I work in the healthcare industry.
Susan3925
in
MPN Voice
7 years ago
All about me and my Myelofibrosis
The ONLY drug I take is the
Jakafi
. My platelets are in the normal range, my white cells are three times higher than normal, and the rest of my results look as if they have been written in blood, very little in the way of black type.
The ONLY drug I take is the
Jakafi
. My platelets are in the normal range, my white cells are three times higher than normal, and the rest of my results look as if they have been written in blood, very little in the way of black type.
PeterNB
in
MPN Voice
7 years ago
Scuba & MF while on Jakafi?
Hey guys... :) Here's an interesting question for some of you to ponder... I have decided that life might be even shorter than I had originally perceived , due to my MF diagnosis of course. Since having commenced my new fitness regime, my endurance levels have become somewhat better, however, in all
Hey guys... :) Here's an interesting question for some of you to ponder... I have decided that life might be even shorter than I had originally perceived , due to my MF diagnosis of course. Since having commenced my new fitness regime, my endurance levels have become somewhat better, however, in all
socrates_8
in
MPN Voice
7 years ago
A bit gloomy
I saw my haematologist today and as my counts have been low for a bit now and I'm getting more symptoms (post ET/MF) he wants to do the dreaded bone marrow biopsy. I asked for sedation but apparently they can't do that any more but can do a general anaesthetic. That will do me! The low counts could
I saw my haematologist today and as my counts have been low for a bit now and I'm getting more symptoms (post ET/MF) he wants to do the dreaded bone marrow biopsy. I asked for sedation but apparently they can't do that any more but can do a general anaesthetic. That will do me! The low counts could
beetle
in
MPN Voice
7 years ago
Minimal Residual Disease or Cure in MPNs? Rationales and perspectives on Combo Therapy with Interferon-alpha2 and Ruxolitinib
Cutting edge therapy for PV - MF patients who do not respond to
Jakafi
or Pegasys alone - http://bit.ly/2tBjHVs
Cutting edge therapy for PV - MF patients who do not respond to
Jakafi
or Pegasys alone - http://bit.ly/2tBjHVs
PVReporter
in
MPN Voice
7 years ago
Jakavi and Valaciclovir
A couple of months ago my Jakavi treatment was reduced down to 5mg bid and the consultant stopped my Valaciclovir anti-viral treatment. This week my consultant contacted me back to instruct me to start up the Valaciclovir again - the reason given is that Jakavi increases the risk of VZV (chickenpox/shingles
A couple of months ago my Jakavi treatment was reduced down to 5mg bid and the consultant stopped my Valaciclovir anti-viral treatment. This week my consultant contacted me back to instruct me to start up the Valaciclovir again - the reason given is that Jakavi increases the risk of VZV (chickenpox/shingles
crapaud
in
MPN Voice
7 years ago
Hi Chris
Haven't seen much posting from you of late so hope things are progressing in the right direction. On a personal side my Jakavi was reduced but that resulted in skin issues so it's been increased again. Take care buddy. Gary
Haven't seen much posting from you of late so hope things are progressing in the right direction. On a personal side my Jakavi was reduced but that resulted in skin issues so it's been increased again. Take care buddy. Gary
crapaud
in
MPN Voice
7 years ago
Lowering of Jakavi dosage and eczema
My Jakavi was reduced from 10mg bid to 5mg bid 3 weeks ago. For the last 10 days my arms and legs have been covered with itchy red dry skin, my SCT doctor thinks it may be a form of eczema brought on by the reduction in Jakavi dosage. Anyone else experience this sort of thing? ps I have been prescribed
My Jakavi was reduced from 10mg bid to 5mg bid 3 weeks ago. For the last 10 days my arms and legs have been covered with itchy red dry skin, my SCT doctor thinks it may be a form of eczema brought on by the reduction in Jakavi dosage. Anyone else experience this sort of thing? ps I have been prescribed
crapaud
in
MPN Voice
7 years ago
Blood platelets still too high...?
:) Prior to commencing the
Jakafi
(Ruxolitinib) in December 2016, I was on Interferon (3M) every two (2) days, and my platelets had come right down to 537, before swapping over my med's.
:) Prior to commencing the
Jakafi
(Ruxolitinib) in December 2016, I was on Interferon (3M) every two (2) days, and my platelets had come right down to 537, before swapping over my med's.
socrates_8
in
MPN Voice
7 years ago
Initial weight gains & Higher platelet counts on Jakafi???
It is only my third week (on
Jakafi
), and perhaps I am expecting too much too soon...
It is only my third week (on
Jakafi
), and perhaps I am expecting too much too soon...
socrates_8
in
MPN Voice
7 years ago
ASH 2016 Dr Rampal shares MPN updates on Clinical Research with PV Reporter
Ruxolitinib (
Jakafi
) plus PIM and CDK4/6 Inhibitors First in ASH 2016 Series - http://www.pvreporter.com/ash-2016-dr-rampal-shares-mpn-updates-clinical-research-pv-reporter/
Ruxolitinib (
Jakafi
) plus PIM and CDK4/6 Inhibitors First in ASH 2016 Series - http://www.pvreporter.com/ash-2016-dr-rampal-shares-mpn-updates-clinical-research-pv-reporter/
PVReporter
in
MPN Voice
7 years ago
How to get Jakafi paid for when insurance denies it.
Does anyone every get denied
Jakafi
from their insurance company and eventually get it approved? Does anyone not ever get it approved? We have been denied twice but our dr office says everyone ends up getting it. I am so afraid my husband won't be able to get the
jakafi
and he is so sick.
Does anyone every get denied
Jakafi
from their insurance company and eventually get it approved? Does anyone not ever get it approved? We have been denied twice but our dr office says everyone ends up getting it. I am so afraid my husband won't be able to get the
jakafi
and he is so sick.
2hankers2
in
MPN Voice
8 years ago
ASAP/ALAP counts - what constitutes numbers to be worried about ?
14 months after my SCT I am going through a period of chronic GvHD in my liver. After 2 months of corticoids I have been switched to Jakavi - progressively increased from 2x5mg to 2x15mg per day. The Doctor has explained to me they are following my ASAT and ALAT counts to monitor progress; these counts
14 months after my SCT I am going through a period of chronic GvHD in my liver. After 2 months of corticoids I have been switched to Jakavi - progressively increased from 2x5mg to 2x15mg per day. The Doctor has explained to me they are following my ASAT and ALAT counts to monitor progress; these counts
crapaud
in
MPN Voice
8 years ago
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