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Intravenous chemotherapy
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Immune issues with donor eggs
Hi there,I'm just wondering if any of you have been successful with using donor eggs if you have an auto immune issue or have elevated NK cells and/or cytokines. I'm worried that we will go down the donor route and then fail anyway because of my immune issues despite any embryos being good quality.
Hi there,I'm just wondering if any of you have been successful with using donor eggs if you have an auto immune issue or have elevated NK cells and/or cytokines. I'm worried that we will go down the donor route and then fail anyway because of my immune issues despite any embryos being good quality.
Anisha29
in
Fertility Network UK
2 days ago
IvIg Infusions
Finished my IvIg infusions this week. After my two infusions (been doing this for almost 3 years) I’m getting more and more fatigued as time goes by. It takes me up to 3-5 days to get over. It has done a wonderful job at keeping me well. I certainly don’t want to come across as ungrateful. Any pointers
Finished my IvIg infusions this week. After my two infusions (been doing this for almost 3 years) I’m getting more and more fatigued as time goes by. It takes me up to 3-5 days to get over. It has done a wonderful job at keeping me well. I certainly don’t want to come across as ungrateful. Any pointers
robster1
in
My MSAA Community
3 days ago
Recurrent implantation failure - please give me hope
Hello my lovely support team. I'll try and keep this rotten history of mine very very brief.......43 years old, all embryos created between 40-42. Trying since I was 36. Just one natural chemical at 41yo. So far, 5 failed transfers of 6 good-decent embryos. All bfn, no chemicals or anything else. 4 collections
Hello my lovely support team. I'll try and keep this rotten history of mine very very brief.......43 years old, all embryos created between 40-42. Trying since I was 36. Just one natural chemical at 41yo. So far, 5 failed transfers of 6 good-decent embryos. All bfn, no chemicals or anything else. 4 collections
Joeysjourney
in
Fertility Network UK
9 days ago
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Early results of the Pirtobrutinib, Obinituzumab, Venetoclax trial I'm on have just been published
Dr. Jain of M.D. Anderson has published an oral abstract in advance of the European Hematological Association Congress June 13-16, 2024: https://library.ehaweb.org/eha/2024/eha2024-congress/422268/nitin.jain.combined.pirtobrutinib.venetoclax.and.obinutuzumab.in.first-line.html [i]
Abstract: S164
Dr. Jain of M.D. Anderson has published an oral abstract in advance of the European Hematological Association Congress June 13-16, 2024: https://library.ehaweb.org/eha/2024/eha2024-congress/422268/nitin.jain.combined.pirtobrutinib.venetoclax.and.obinutuzumab.in.first-line.html [i]
Abstract: S164
SeymourB
in
CLL Support
10 days ago
Action too late
I very well can understand your Frustration. My IVIG introduction was very late, not considering my close to 0 Immunity. The result was as well Double Pneumonia, unbelievable hurting caught for 6 month, which produced a Hernia. After being on a Roller-Coaster I have moe or less settled and try the
I very well can understand your Frustration. My IVIG introduction was very late, not considering my close to 0 Immunity. The result was as well Double Pneumonia, unbelievable hurting caught for 6 month, which produced a Hernia. After being on a Roller-Coaster I have moe or less settled and try the
Traudel
in
CLL Support
13 days ago
Kesimpta and IVIG?
I have had many infections over the last 4 months. I have been on Kesimpta for 2years. Anyone else have that problem? Any luck with immuno therapy? Thank you!
I have had many infections over the last 4 months. I have been on Kesimpta for 2years. Anyone else have that problem? Any luck with immuno therapy? Thank you!
pihokken
in
My MSAA Community
27 days ago
Success stories/advice after multiple miscarriages
Hi, I’ve had it confirmed today that I’m having a missed miscarriage. Should have been 7+5 weeks but the gestational sac was empty (I’ve had multiple scans over the past 12 days so it’s definitely over). This is now my third miscarriage so I can add the 1% recurrent miscarriage statistic to all these
Hi, I’ve had it confirmed today that I’m having a missed miscarriage. Should have been 7+5 weeks but the gestational sac was empty (I’ve had multiple scans over the past 12 days so it’s definitely over). This is now my third miscarriage so I can add the 1% recurrent miscarriage statistic to all these
Ctk123
in
Fertility Network UK
27 days ago
Follow up T3 question
Okay, so, it has only recently reached my consciousness that the fact that my thyroid "died" (I got a goiter and my TSH was only barely above "normal" so at first they didn't want to treat me even though I gained 30lbs in a month and lost all my body hair and on and on) at the exact same moment (literally
Okay, so, it has only recently reached my consciousness that the fact that my thyroid "died" (I got a goiter and my TSH was only barely above "normal" so at first they didn't want to treat me even though I gained 30lbs in a month and lost all my body hair and on and on) at the exact same moment (literally
BlueGreenWordyDoc
in
Thyroid UK
1 month ago
Raised TNF alpha? Any advice
hi all Is this raised tnf my clinic haven't said it is they said I need ivig for my pgs embryo transfer. Looking at my results above are my TNF not elevated? If so what treatment or tests did you have to help you get your bfp? Thanks
hi all Is this raised tnf my clinic haven't said it is they said I need ivig for my pgs embryo transfer. Looking at my results above are my TNF not elevated? If so what treatment or tests did you have to help you get your bfp? Thanks
Poop84
in
Fertility Network UK
2 months ago
CLL + Bladder cancer + prostate cancer
I've been diagnosed with Cll since 2016 and been on Acalabrutinib for 2 years which is working really well along with monthly plasma ivig infusions. I'm 63 and male and fit and active. I just got diagnosed with Bladder cancer with a medium grade carcinoma. My uroligist has burnt the 2 spots she found
I've been diagnosed with Cll since 2016 and been on Acalabrutinib for 2 years which is working really well along with monthly plasma ivig infusions. I'm 63 and male and fit and active. I just got diagnosed with Bladder cancer with a medium grade carcinoma. My uroligist has burnt the 2 spots she found
Brucex100
in
CLL Support
2 months ago
Intralipids, IVIG experience?
Hi, is there any of you who suffered from a number of implantation failures and finally achieved successful pregnancy by using intralipids / IVIG? Any good (or bad) experiences of using them?
Hi, is there any of you who suffered from a number of implantation failures and finally achieved successful pregnancy by using intralipids / IVIG? Any good (or bad) experiences of using them?
WaitingforGabriel
in
Fertility Network UK
2 months ago
IVIg infusion clinic help
hello, I have been advised to do both intralipid and Ivig infusion for my next FET with immunotherapy. Our doctor is ok for us to do IVIG elsewhere to save money. I’m based in London and prices for IVIg are scary. I’ve read of people who travelled to do it abroad: where did you go? What countries/
hello, I have been advised to do both intralipid and Ivig infusion for my next FET with immunotherapy. Our doctor is ok for us to do IVIG elsewhere to save money. I’m based in London and prices for IVIg are scary. I’ve read of people who travelled to do it abroad: where did you go? What countries/
Oumil
in
Fertility Network UK
2 months ago
Help with rehab at home after acute phase of autoimmune encephalitis for my 16 year old
I am mum to a 16 year old daughter who has recently been diagnosed with autoimmune encephalitis. After several weeks in and out of A&E and several other departments, where they thought it was psychological, we were referred to the neurologists by the psychiatrist who after several tests diagnosed AE
I am mum to a 16 year old daughter who has recently been diagnosed with autoimmune encephalitis. After several weeks in and out of A&E and several other departments, where they thought it was psychological, we were referred to the neurologists by the psychiatrist who after several tests diagnosed AE
Cat29red
in
Encephalitis Society
2 months ago
Advice needed
Hi everyone - after a bit of advice from the collective brain :) We are incredibly lucky enough to have a little boy from our 6th transfer in 2021, and had 5 frozen embryos at the clinic should we decide to try for a sibling. We've now done 2 FETs with exactly the same protocol (steroids / intralipids
Hi everyone - after a bit of advice from the collective brain :) We are incredibly lucky enough to have a little boy from our 6th transfer in 2021, and had 5 frozen embryos at the clinic should we decide to try for a sibling. We've now done 2 FETs with exactly the same protocol (steroids / intralipids
Millbanks
in
Fertility Network UK
2 months ago
IVIG with CALR ET
Has anyone with ET/MPN ever received IVIG? I have ET and my platelets are in the mid to high 500k range on 1000mg HU daily. IVIG has a risk for blood clots but it appears to be one of the few things that might help with a severe neuropathy I’ve developed. My docs think I will be ok but I am quite nervous
Has anyone with ET/MPN ever received IVIG? I have ET and my platelets are in the mid to high 500k range on 1000mg HU daily. IVIG has a risk for blood clots but it appears to be one of the few things that might help with a severe neuropathy I’ve developed. My docs think I will be ok but I am quite nervous
George1976
in
MPN Voice
2 months ago
return of immune system
I achieved remission in May 2022 after a year of O & V. My immune system has still not returned and I’ve thankfully been given IVIG infusions to help me out. I was told my immune system would return one year after the completion of Obinutuzumab infusions and those ended in September of 2021. Has anyone
I achieved remission in May 2022 after a year of O & V. My immune system has still not returned and I’ve thankfully been given IVIG infusions to help me out. I was told my immune system would return one year after the completion of Obinutuzumab infusions and those ended in September of 2021. Has anyone
Cllinmaryland
in
CLL Support
3 months ago
arrhythmia and the flu and Covid vaccine
Hi all! I had a physical on Wednesday and since I hadn’t received my flu and Covid vaccine yet this year went ahead and got them. I came home and did a workout and felt fine until evening when fever and chills hit along with some mild sporadic heart arrhythmia. I took it easy the next couple days and
Hi all! I had a physical on Wednesday and since I hadn’t received my flu and Covid vaccine yet this year went ahead and got them. I came home and did a workout and felt fine until evening when fever and chills hit along with some mild sporadic heart arrhythmia. I took it easy the next couple days and
CoCoLuna11
in
CLL Support
4 months ago
Advice for managing adenomyosis
Hello fellow IVF warriors 💗 I wondered if anyone can give me some advice on how to manage adenomyosis whilst going through IVF? A bit of background on me: I started the IVF process in May 2022 after a year and half of trying naturally for our second child, who would be a sibling to our baby
Hello fellow IVF warriors 💗 I wondered if anyone can give me some advice on how to manage adenomyosis whilst going through IVF? A bit of background on me: I started the IVF process in May 2022 after a year and half of trying naturally for our second child, who would be a sibling to our baby
Sophia_Mama
in
Fertility Network UK
4 months ago
Anyone have withdrawal symptoms when dropping a treatment?
ER/PR positive HER2- Diagnosed 2019 primary breast cancer. IIIB chemo/infection/mastectomy radiation. 2021 - MBC bone Ibrance /Faslodex 2023- primary Lung Cancer/RT upper lobectomy March 2024-progression Orserdu. May 2024- major POD bones & liver May 2024- to begin Tredolvy.
ER/PR positive HER2- Diagnosed 2019 primary breast cancer. IIIB chemo/infection/mastectomy radiation. 2021 - MBC bone Ibrance /Faslodex 2023- primary Lung Cancer/RT upper lobectomy March 2024-progression Orserdu. May 2024- major POD bones & liver May 2024- to begin Tredolvy.
Elle713
in
SHARE Metastatic Breast Cancer
11 hours ago
cyclophosphomide
Has any one taken Cyclophosphomide when all chemo options have been exhausted. Did you have many side effects ? Any information greatly appreciated .
Has any one taken Cyclophosphomide when all chemo options have been exhausted. Did you have many side effects ? Any information greatly appreciated .
Veria
in
My Ovacome
17 hours ago
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