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Experiences with
Interferon
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Interferon impact on fertility
Does
interferon
have any side effects for those individuals trying to conceive? 2. If I came off it does that also have an impact on fertility?
Does
interferon
have any side effects for those individuals trying to conceive? 2. If I came off it does that also have an impact on fertility?
Biscuitlove
in
MPN Voice
1 month ago
Keeping Pegasys injections cool and monitoring temp
Hi, I have recently been diagnosed with Erdheim-Chester Disease after being treated for many years for an MPN, (ET) I have started on Pegasys
Interferon
and will be travelling by plane soon (yay) and am looking for advice to keep the injections cool.
Hi, I have recently been diagnosed with Erdheim-Chester Disease after being treated for many years for an MPN, (ET) I have started on Pegasys
Interferon
and will be travelling by plane soon (yay) and am looking for advice to keep the injections cool.
LeoTravels
in
MPN Voice
9 days ago
Travelling with interferon/pegasys
Hi , I have just recently started on the pegasys weekly injections . I am travelling to Greece and wonder if anyone can recomend the best way to keep the medication at the correct temperature whilst flying and travelling. Is there a chargeable medication box which I could charge using a battery pack
Hi , I have just recently started on the pegasys weekly injections . I am travelling to Greece and wonder if anyone can recomend the best way to keep the medication at the correct temperature whilst flying and travelling. Is there a chargeable medication box which I could charge using a battery pack
Sunnyhunny
in
MPN Voice
2 months ago
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Interferon and the liver
question to all my MPN people on here who are taking pegasys or besremi, how do you manage elevated liver enzymes? Do they cycle up and down? Is there anything we can do to bring them down? What is acceptable to y’all? My hematologist says not to worry until they hit 2-300.. My blood numbers actually
question to all my MPN people on here who are taking pegasys or besremi, how do you manage elevated liver enzymes? Do they cycle up and down? Is there anything we can do to bring them down? What is acceptable to y’all? My hematologist says not to worry until they hit 2-300.. My blood numbers actually
dbus1417
in
MPN Voice
2 months ago
PV fatigue
I have just started Pegasys
interferon
after failed treatments of phlebotomies and Hydroxyurea. My fatigue since diagnosis and treatments starting 2021 is all consuming. I don’t know how to deal or cope with the tiredness, lack of energy, and overall feeling unwell.
I have just started Pegasys
interferon
after failed treatments of phlebotomies and Hydroxyurea. My fatigue since diagnosis and treatments starting 2021 is all consuming. I don’t know how to deal or cope with the tiredness, lack of energy, and overall feeling unwell.
CherokeeBlue
in
MPN Voice
2 months ago
changed from hydroxyurea to anargalide
Interferon
is not available in my country (Malaysia) so I do have only two options. Any insight on ur experience with anargalide?. Thanks
Interferon
is not available in my country (Malaysia) so I do have only two options. Any insight on ur experience with anargalide?. Thanks
mustabshra
in
MPN Voice
4 months ago
Allele Burden JAK 2
I am now on 135mg
interferon
every 10 days. Yipeeeeeeeee Oh yes the symptoms are still there...
I am now on 135mg
interferon
every 10 days. Yipeeeeeeeee Oh yes the symptoms are still there...
shiftzz
in
MPN Voice
24 days ago
Treatment Change, question
I'm currently on both whilst still taking the hydroxycarbamide I am introducing the
interferon
at 45mg every 2 weeks, for 8 weeks, I'm into my 7th week, so far so good. My Consultant wants me then to go onto 90mg weekly injections, is this the norm? Best wishes, Brian
I'm currently on both whilst still taking the hydroxycarbamide I am introducing the
interferon
at 45mg every 2 weeks, for 8 weeks, I'm into my 7th week, so far so good. My Consultant wants me then to go onto 90mg weekly injections, is this the norm? Best wishes, Brian
Swim360
in
MPN Voice
2 months ago
Cataract surgery?
Is there a problem with eye surgery while taking
Interferon
? I'm about to be changed over to Pegasys from Hydrea, and also about to have cataract surgery. Some of the things I've read seem to indicate that may be a problem.
Is there a problem with eye surgery while taking
Interferon
? I'm about to be changed over to Pegasys from Hydrea, and also about to have cataract surgery. Some of the things I've read seem to indicate that may be a problem.
dogsandhorses
in
MPN Voice
4 months ago
Still undecided about Inteferon
Also the fact that I already have a thyroid issue is putting me off
interferon
which I’m told can affect the thyroid . I just don’t know what I’m going to do .
Also the fact that I already have a thyroid issue is putting me off
interferon
which I’m told can affect the thyroid . I just don’t know what I’m going to do .
jodary
in
MPN Voice
2 months ago
ET, platelets and stroke risk
I was diagnosed with ET three months ago and as I am high-risk (over 60, JAK-2 positive, another mutation and a couple of TIA episodes) I have been prescribed daily aspirin and weekly Peg-
interferon
.
I was diagnosed with ET three months ago and as I am high-risk (over 60, JAK-2 positive, another mutation and a couple of TIA episodes) I have been prescribed daily aspirin and weekly Peg-
interferon
.
Ginevra
in
MPN Voice
4 months ago
Best treatment for Post PV/MF ?
Ruxolitinib or
interferon
? I was diagnosed with pv in 2017. 2 years of hydroxy, then ruxolitinib at 20mg a day. A bmb in december showed progression to mf. Grade 2 fibrosis. The rux has recently been increased to 30mg a day along with 1 iron tablet on alternate days.
Ruxolitinib or
interferon
? I was diagnosed with pv in 2017. 2 years of hydroxy, then ruxolitinib at 20mg a day. A bmb in december showed progression to mf. Grade 2 fibrosis. The rux has recently been increased to 30mg a day along with 1 iron tablet on alternate days.
MCW22
in
MPN Voice
3 months ago
Pegasus - how long to work
For those taking it, I just wondered what your experience was when first taking Pegasus
Interferon
. I've had 15 doses of 90mg each week and my platelets are still high (last blood test as high as before I started
interferon
injections). Red and white also elevated. White only just though.
For those taking it, I just wondered what your experience was when first taking Pegasus
Interferon
. I've had 15 doses of 90mg each week and my platelets are still high (last blood test as high as before I started
interferon
injections). Red and white also elevated. White only just though.
Fivecatsandcounting
in
MPN Voice
5 months ago
supplements with essential thrombocyethemia
Hi I am back in hydroxi after suspected added issues to thyroid being on pegulated
interferon
for a number of years.
Hi I am back in hydroxi after suspected added issues to thyroid being on pegulated
interferon
for a number of years.
BeckyDing
in
MPN Voice
23 days ago
Mithridate trial
I started peg
interferon
in feb 2023 and I have been on 135mg every week for about 4 months now . My recent Jak 2 allele burden blood test shown an increase from 20.83 % at diagnosis to 35.09% my bloods especially the HC is high and I keep needing venesection every 6 weeks .
I started peg
interferon
in feb 2023 and I have been on 135mg every week for about 4 months now . My recent Jak 2 allele burden blood test shown an increase from 20.83 % at diagnosis to 35.09% my bloods especially the HC is high and I keep needing venesection every 6 weeks .
Blonde25
in
MPN Voice
1 month ago
Beta-2 microglobulin
Hi,Has anyone experienced an increase in Beta-2 microglobulin value during the treatment with
interferon
? If yes, has been confirmed by MD that it is caused by
interferon
? Thank you in advance for your answers.
Hi,Has anyone experienced an increase in Beta-2 microglobulin value during the treatment with
interferon
? If yes, has been confirmed by MD that it is caused by
interferon
? Thank you in advance for your answers.
Dane12
in
MPN Voice
7 months ago
Probiotics.
Can anyone tell me if I can take probiotics with
interferon
. Hydroxy as left me with a gut problem, cannot make any sense of what I am reading on the internet. Lynn
Can anyone tell me if I can take probiotics with
interferon
. Hydroxy as left me with a gut problem, cannot make any sense of what I am reading on the internet. Lynn
lindyloulou
in
MPN Voice
5 months ago
Starting dose for pegasys?
My illness is showing symptoms of masked PV and we are now starting pegasys
interferon
, as i have had severe depression all my life and still as moderate im worried about the possibility of some risks in mental and other issues.
My illness is showing symptoms of masked PV and we are now starting pegasys
interferon
, as i have had severe depression all my life and still as moderate im worried about the possibility of some risks in mental and other issues.
Ninete
in
MPN Voice
1 month ago
ET + Anagrelide
I have ET+CALR, became resistant to Hydrea and couldn't tolerate the side effects of
Interferon
. Now that I'm on Anagrelide (0.5mg twice a day) my platelets are in the 600,000's and I seem to tolerate it ok. However I deal with rapid heartbeats, headaches, fatigue, mood swings and dizziness.
I have ET+CALR, became resistant to Hydrea and couldn't tolerate the side effects of
Interferon
. Now that I'm on Anagrelide (0.5mg twice a day) my platelets are in the 600,000's and I seem to tolerate it ok. However I deal with rapid heartbeats, headaches, fatigue, mood swings and dizziness.
Zeppelin11
in
MPN Voice
1 month ago
Approved or Trials of RBC lowering drugs?
I have been losing the battle using
interferon
. I'm currently taking about 145mcg's of Pegasys and my neutrophils just dipped to .87 while my HCT is still in excess of 45. I've been at this dose for several months.
I have been losing the battle using
interferon
. I'm currently taking about 145mcg's of Pegasys and my neutrophils just dipped to .87 while my HCT is still in excess of 45. I've been at this dose for several months.
jon1972
in
MPN Voice
3 months ago
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