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Shingles Vaccine
I am going for a shingles vaccination on 29th June. I know there has been information about it on here before but I can't find it. I know I need the Shingrix vaccine and believe that you need a 2nd one 2 months later. I would like to hear about your experiences of Shingrix. . Of course, I have googled
I am going for a shingles vaccination on 29th June. I know there has been information about it on here before but I can't find it. I know I need the Shingrix vaccine and believe that you need a 2nd one 2 months later. I would like to hear about your experiences of Shingrix. . Of course, I have googled
Sheila_G
in
NRAS
11 months ago
Rheumatology appointments - where have you gone?!
Has anyone had trouble seeing their Rheumatologist since the first Lockdown? I see a Rheumatologist at Addenbrookes and have done for 7 years. After developing new symptoms I was placed under the care of the Lupus nurse and had 2 telephone consults in late 2020 and early 2021. I also had a telephone
Has anyone had trouble seeing their Rheumatologist since the first Lockdown? I see a Rheumatologist at Addenbrookes and have done for 7 years. After developing new symptoms I was placed under the care of the Lupus nurse and had 2 telephone consults in late 2020 and early 2021. I also had a telephone
Ali_B
in
LUPUS UK
1 year ago
suffering with on going flu
hi , everyone happy new year to you all , just like to ask some advice really, I’ve been suffering with flu since Boxing Day ( had the flu jab too) I’ve felt truly rotten so decided not to take my methotrexate (15mg) on Friday , I was just wondering if I still feel this Ill by the next dose should I
hi , everyone happy new year to you all , just like to ask some advice really, I’ve been suffering with flu since Boxing Day ( had the flu jab too) I’ve felt truly rotten so decided not to take my methotrexate (15mg) on Friday , I was just wondering if I still feel this Ill by the next dose should I
Skyler66
in
NRAS
1 year ago
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BC Update with GP.
First I rang Macmillan and they thought it very odd my cancer had gone from high to low. So rang my consultants secretary and she was not there, the people in charge said they were not qualified to help. I saw my GP today and like myself had a letter with no details at the top, this matters because
First I rang Macmillan and they thought it very odd my cancer had gone from high to low. So rang my consultants secretary and she was not there, the people in charge said they were not qualified to help. I saw my GP today and like myself had a letter with no details at the top, this matters because
Ern007
in
Lung Conditions Community Forum
5 months ago
Bladder Cancer Another Update.
I went for my 11th BCG treatment at hospital this afternoon, am feeling tired and fed up, Eye injection Monday - Today 11am ECG . 2PM this afternoon I went for BCG Treatment number 12 of 15. So got to hospital South end, nowhere to park, went to main North end - A queue for no parking space - 10
I went for my 11th BCG treatment at hospital this afternoon, am feeling tired and fed up, Eye injection Monday - Today 11am ECG . 2PM this afternoon I went for BCG Treatment number 12 of 15. So got to hospital South end, nowhere to park, went to main North end - A queue for no parking space - 10
Ern007
in
Lung Conditions Community Forum
5 months ago
My Cancer and other health issues update.
After months of pretty bad news over my bladder cancer which is high grade and had spread to the inner linings of my bladder. I was told I could not have BCG anymore and that was gloomy news. I have an appointment tomorrow for a new three bladder cancer BCG Treatment. I was surprised I was having
After months of pretty bad news over my bladder cancer which is high grade and had spread to the inner linings of my bladder. I was told I could not have BCG anymore and that was gloomy news. I have an appointment tomorrow for a new three bladder cancer BCG Treatment. I was surprised I was having
Ern007
in
Lung Conditions Community Forum
5 months ago
Measles resurgence: Is it a cause for concern?
Recent headlines have highlighted concerns of a resurgence in measles cases across the UK and especially in London. We asked our paediatric medical advisor, Dr Gavin Cleary, Consultant Rheumatologist at Alder Hey Children’s Hospital, whether parents/carers of a child with JIA should be concerned or taking
Recent headlines have highlighted concerns of a resurgence in measles cases across the UK and especially in London. We asked our paediatric medical advisor, Dr Gavin Cleary, Consultant Rheumatologist at Alder Hey Children’s Hospital, whether parents/carers of a child with JIA should be concerned or taking
Maddy-NRAS
in
JIA-at-NRAS
5 months ago
BCG - intravesical immunotherapy - Update.
Got a letter this morning giving me dates for this treatment. 7th December - 14th December and 21st December. While I am pleased to finally have got my dates, I remain uneasy as normally the outcome of biopsies are in the letter. For the first time since my diagnosis, i do not know the findings of
Got a letter this morning giving me dates for this treatment. 7th December - 14th December and 21st December. While I am pleased to finally have got my dates, I remain uneasy as normally the outcome of biopsies are in the letter. For the first time since my diagnosis, i do not know the findings of
Ern007
in
Lung Conditions Community Forum
5 months ago
Flu jab spacing
Should those of us classified as extremely vulnerable have second flu jabs three months after the first?
Should those of us classified as extremely vulnerable have second flu jabs three months after the first?
Paul123456
in
MPN Voice
1 year ago
Live shingles vaccine or not?
I would appreciate your guidance on the importance of which kind of shingles vaccine to have, i.e. live or not? I am on medication for GCA, 5.5mg Prednisolone, plus Levothyroxine, Bisoprolol, Amlodipine, Rosuvastatin, Ursodeoxycholic Acid, Famotidine, Losartan. With many thanks.
I would appreciate your guidance on the importance of which kind of shingles vaccine to have, i.e. live or not? I am on medication for GCA, 5.5mg Prednisolone, plus Levothyroxine, Bisoprolol, Amlodipine, Rosuvastatin, Ursodeoxycholic Acid, Famotidine, Losartan. With many thanks.
Katiecatweazel
in
PMRGCAuk
11 months ago
Celebrating the run
No runs for 12 days, to think that on that last one the NRC app gave me a badge for running 6 weeks in a row... I had good reasons not to run, a painful arm after my flu jab, a wisdom tooth out and of course, all that ice and snow. Husband has been having aches and pains so there's been no peer pressure
No runs for 12 days, to think that on that last one the NRC app gave me a badge for running 6 weeks in a row... I had good reasons not to run, a painful arm after my flu jab, a wisdom tooth out and of course, all that ice and snow. Husband has been having aches and pains so there's been no peer pressure
Yesletsgo
Graduate10
in
Bridge to 10K
1 year ago
Bladder Cancer Update,
A most will know. Besides my COPD and heart problems I have Bladder Cancer which is Hight Grade, Six weeks ago I had a Rigid cystoscopy to see how my last ditch treatment on BCG would go and told, would be the last time I could have that. I had heard nothing and was 6 weeks ago Sunday. I phoned
A most will know. Besides my COPD and heart problems I have Bladder Cancer which is Hight Grade, Six weeks ago I had a Rigid cystoscopy to see how my last ditch treatment on BCG would go and told, would be the last time I could have that. I had heard nothing and was 6 weeks ago Sunday. I phoned
Ern007
in
Lung Conditions Community Forum
6 months ago
FCR-6plus years in remission - am I cured.
Had my 6 monthly telephone consultation yesterday. Still in remission with wbc at 5.7 and all in normal range. Super. So, I get round to the question “I know there is no cure as such but am I heading that way?” Answer; the nature of CLL means I could stay in remission for years or next time be heading
Had my 6 monthly telephone consultation yesterday. Still in remission with wbc at 5.7 and all in normal range. Super. So, I get round to the question “I know there is no cure as such but am I heading that way?” Answer; the nature of CLL means I could stay in remission for years or next time be heading
devonrr
in
CLL Support
1 year ago
Flu jab
Hi lupies I had the flu jab in October and ever since i've had a streaming cold and now a chest infection.The cold goes for a couple of days and then comes back with a vengeance. Has anyone had a reaction to the flu jab? Thanks and wishing everyone a very Happy Christmas x
Hi lupies I had the flu jab in October and ever since i've had a streaming cold and now a chest infection.The cold goes for a couple of days and then comes back with a vengeance. Has anyone had a reaction to the flu jab? Thanks and wishing everyone a very Happy Christmas x
kt11
in
LUPUS UK
1 year ago
Ultrasound for possible temporal arteritis
Well after being on prednisone since Oct, , 2016 , diagnosed origninally by GP, put on 40 mgs, and after over 6 years of treatment, slowly getting down to 4 mgs for last 3 mos, I now am having symptons appearing to be GCA related. I was on 5 mgs for probably almost 2 years, with not a lot of serious
Well after being on prednisone since Oct, , 2016 , diagnosed origninally by GP, put on 40 mgs, and after over 6 years of treatment, slowly getting down to 4 mgs for last 3 mos, I now am having symptons appearing to be GCA related. I was on 5 mgs for probably almost 2 years, with not a lot of serious
arvine
in
PMRGCAuk
1 year ago
Flu Vaccine Study - call for participants
People living with conditions linked to chronic liver disease have higher rates of serious illness from flu. However, this group also tends to have lower rates of flu vaccine uptake. Researchers from the London School of Hygiene and Tropical Medicine are looking for people to take part into a study
People living with conditions linked to chronic liver disease have higher rates of serious illness from flu. However, this group also tends to have lower rates of flu vaccine uptake. Researchers from the London School of Hygiene and Tropical Medicine are looking for people to take part into a study
BritishLiverTrust10
British Liver Trust
in
British Liver Trust
1 year ago
almost 200 days post SCT update
Spurred on by Jennie’s update earlier, I thought it was high time that I wrote an update on my progress. I’m almost at 200 days post transplant. I’ve hardly had any issues so far other than my Hb count has sat quite stubbornly at or around 80 for the past couple of months. This has resulted in a good
Spurred on by Jennie’s update earlier, I thought it was high time that I wrote an update on my progress. I’m almost at 200 days post transplant. I’ve hardly had any issues so far other than my Hb count has sat quite stubbornly at or around 80 for the past couple of months. This has resulted in a good
ConniesDad
in
MPN Voice
1 year ago
B12 self injection
So we ordered some panpharma b12 injections which arrived yesterday. My partner has a b12 level of 123 with neurological symtoms and gp refuses to treat. I just got my results from my b12 test result last week a level of 202 which gp said was normal. Maybe this was abit stupid but as I have symptoms
So we ordered some panpharma b12 injections which arrived yesterday. My partner has a b12 level of 123 with neurological symtoms and gp refuses to treat. I just got my results from my b12 test result last week a level of 202 which gp said was normal. Maybe this was abit stupid but as I have symptoms
Nic878
in
Pernicious Anaemia Society
7 months ago
No sweat!
I haven't been out since Sunday as my flu jab left me with a very painful arm, but hey ho, better than getting ill. I decided it was my body telling me to let the vaccine do its job. Today was a beautiful sunny morning for a run and the pain has more or less gone so no excuses, up and out. Looking
I haven't been out since Sunday as my flu jab left me with a very painful arm, but hey ho, better than getting ill. I decided it was my body telling me to let the vaccine do its job. Today was a beautiful sunny morning for a run and the pain has more or less gone so no excuses, up and out. Looking
Yesletsgo
Graduate10
in
Bridge to 10K
1 year ago
Shingles vaccine
My wife was refused the shingles vaccine by her GP as she wasn't old enough (not over 70) we asked for it a year after she had shingles which she really suffered from and still has a bit of discomfort from. Has any MPN patients been refused because of their age?
My wife was refused the shingles vaccine by her GP as she wasn't old enough (not over 70) we asked for it a year after she had shingles which she really suffered from and still has a bit of discomfort from. Has any MPN patients been refused because of their age?
jointpain
in
MPN Voice
1 year ago
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