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Experiences with
Immunosuppressants
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Immunosuppressed and chicken pox??
Hi, Maddie (4yrs) has had chicken pox before when she was 2. She has been on maintenance pred dose for 2 yrs now and is immunosuppressed. She has Adrenal insufficiency too.. We are travelling to see my family on fri. However my nephew has now got chicken pox. I know maddie shouldn't be able to catch
Hi, Maddie (4yrs) has had chicken pox before when she was 2. She has been on maintenance pred dose for 2 yrs now and is immunosuppressed. She has Adrenal insufficiency too.. We are travelling to see my family on fri. However my nephew has now got chicken pox. I know maddie shouldn't be able to catch
yaf_user681_15459
in
Asthma Community Forum
11 years ago
Immunosuppressant question
Just trying to get an idea what may be next for me. I have sort of AIH/PBC overlap, well autoimmune cholangiopathy to be precise, diagnosed a while ago, now found to have progressed to fibrosis. Began on steroids earlier this year, now down to 15mgs Pred daily, and LFTs are better though still slightly
Just trying to get an idea what may be next for me. I have sort of AIH/PBC overlap, well autoimmune cholangiopathy to be precise, diagnosed a while ago, now found to have progressed to fibrosis. Began on steroids earlier this year, now down to 15mgs Pred daily, and LFTs are better though still slightly
witchiegirl
in
British Liver Trust
11 years ago
ESR levels and infections
I thought people might be interested to hear about the impact of having a rather longstanding cold on my ESR levels. They have been around 30 for the last six months. I didnt have a cold or flu all the way through the winter, but since the beginning of June I've had a persistent cold which is on the
I thought people might be interested to hear about the impact of having a rather longstanding cold on my ESR levels. They have been around 30 for the last six months. I didnt have a cold or flu all the way through the winter, but since the beginning of June I've had a persistent cold which is on the
cathie
in
NRAS
11 years ago
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Hair Loss
I have been off
immunosuppressants
(although I take low dose Pred) for about 16 weeks now, due to intolerance and my hair started to fall out almost immediately I stopped the
immunosuppressants
. Is there a connection?
I have been off
immunosuppressants
(although I take low dose Pred) for about 16 weeks now, due to intolerance and my hair started to fall out almost immediately I stopped the
immunosuppressants
. Is there a connection?
HiveMind
in
Vasculitis UK
11 years ago
Complications After Kidney Transplant
After kidney transplant, the patient is very prone to infection. Three contributive factors are as following. First, the major surgery on blood vessel and urinary system temporarily decrease patient immune ability. Secondly, for kidney failure patients, their absolute immunity is low then normal person
After kidney transplant, the patient is very prone to infection. Three contributive factors are as following. First, the major surgery on blood vessel and urinary system temporarily decrease patient immune ability. Secondly, for kidney failure patients, their absolute immunity is low then normal person
Hidden
in
Early CKD Support
11 years ago
DILEMMA
I have a very dear friend who is very poorly in hospital with necrossa pancreaitis. I am a WG patient in remission, on 10mg prednisolone and azathioprine, so immunosuppressed. My dilemma is do I go to hsp to visit my very close friend (she isn't alone, she has family ) and therefore put myself at risk
I have a very dear friend who is very poorly in hospital with necrossa pancreaitis. I am a WG patient in remission, on 10mg prednisolone and azathioprine, so immunosuppressed. My dilemma is do I go to hsp to visit my very close friend (she isn't alone, she has family ) and therefore put myself at risk
fillyhome
in
Vasculitis UK
11 years ago
Increase in immunosuppressants having some good results.
4-5 weeks ago my rheumy upped the azathioprine to the highest dose I've been on (200mg per day) , slowly but surely I'm able to do more than I have done for around 9 months. Small steps but able to walk a bit further, spend time with friends and family without arriving home exhausted and spending days
4-5 weeks ago my rheumy upped the azathioprine to the highest dose I've been on (200mg per day) , slowly but surely I'm able to do more than I have done for around 9 months. Small steps but able to walk a bit further, spend time with friends and family without arriving home exhausted and spending days
Slowmo
in
LUPUS UK
11 years ago
FEDUP.COM
Afternoon All Well after having the run around from the medical profession I have finally come to the end of my tether and told my GP yesterday and then fired off a scud missile of an email to my useless gastroenterologist today!! He actually replied within 20 mintues of me sending email.....
Afternoon All Well after having the run around from the medical profession I have finally come to the end of my tether and told my GP yesterday and then fired off a scud missile of an email to my useless gastroenterologist today!! He actually replied within 20 mintues of me sending email.....
Silvers
in
PBC Foundation
11 years ago
..on a Happier Note...
Despite my kind of terrible afternoon at my Remicade infusion, I did get to finally see my rheumatologist after waiting over four months to get an appt. with him. Luckily his clinic is in the same building as the Remicade clinic, so I got to hobble over with my i.v. pole to see him. I finally can feel
Despite my kind of terrible afternoon at my Remicade infusion, I did get to finally see my rheumatologist after waiting over four months to get an appt. with him. Luckily his clinic is in the same building as the Remicade clinic, so I got to hobble over with my i.v. pole to see him. I finally can feel
behcetshurtsbeyondwords
in
Behçet's UK
11 years ago
AN UPDATE FROM HERE InSpain...
Hi Everybody Firstly, I must apologise for not writing for such a long time. I am very seriously ill at the moment. Secondly, sorry folks this is a very long blog! After 6 years of living in Spain and continually being told that there is no such thing as APS, that I was a hypochondriac, being sent
Hi Everybody Firstly, I must apologise for not writing for such a long time. I am very seriously ill at the moment. Secondly, sorry folks this is a very long blog! After 6 years of living in Spain and continually being told that there is no such thing as APS, that I was a hypochondriac, being sent
InSpain
in
Hughes Syndrome APS Forum
11 years ago
Does immune suppression make you more likely to have a more severe reaction to a bee sting?
suffolkgirl
in
Vasculitis UK
11 years ago
Thyroid cancer
Hi all this is my 1st ever blog. I've been in remission for 5yrs after total thyroidectomy and removal of 52 lymph nodes due to papillary cancer that had spread. I also have Crohn's disease and ankylosing spondilytis it's thought an immunosuppressant caused the cancer. After radioactive iodine treatment
Hi all this is my 1st ever blog. I've been in remission for 5yrs after total thyroidectomy and removal of 52 lymph nodes due to papillary cancer that had spread. I also have Crohn's disease and ankylosing spondilytis it's thought an immunosuppressant caused the cancer. After radioactive iodine treatment
charlie35
in
Thyroid UK
11 years ago
Consequences of stopping the immunosuppressants?
When I was suffering from a bad dose of campylobacter enteritis recently, my consultant advised me to stop taking mycophenolate mofetil. He did say to re start once I thought the infection had gone, which is now. However, I feel well and am wondering if I should just start taking them again or wait
When I was suffering from a bad dose of campylobacter enteritis recently, my consultant advised me to stop taking mycophenolate mofetil. He did say to re start once I thought the infection had gone, which is now. However, I feel well and am wondering if I should just start taking them again or wait
Ayla
Volunteer
in
Vasculitis UK
11 years ago
I.V. steroid injections? Anyone?
I couldn't tolerate any of the
immunosuppressants
I was on because they just made me more sick and miserable.
I couldn't tolerate any of the
immunosuppressants
I was on because they just made me more sick and miserable.
behcetshurtsbeyondwords
in
Behçet's UK
11 years ago
High LDH and Behcet's?
I had this scare already last summer when my LDH had doubled within two weeks, so there was fear about Lyphoma because of the
immunosuppressants
and Remicade treatments I am on.
I had this scare already last summer when my LDH had doubled within two weeks, so there was fear about Lyphoma because of the
immunosuppressants
and Remicade treatments I am on.
behcetshurtsbeyondwords
in
Behçet's UK
11 years ago
Autoimmune cholangiopathy
I'm being treated with
immunosuppressants
- at present prednisolone, and to begin on azathioprine in a few weeks too. So my question for you all is this: Is it similar to 'AMA negative PBC'? Or is it another condition? Has anyone else got it?
I'm being treated with
immunosuppressants
- at present prednisolone, and to begin on azathioprine in a few weeks too. So my question for you all is this: Is it similar to 'AMA negative PBC'? Or is it another condition? Has anyone else got it?
witchiegirl
in
PBC Foundation
11 years ago
Fluid retention and immunosuppressant drugs
There have been several past postings relating to ascites and oedema flowing from liver disease and particularly cirrhosis but I am inquiring to ascertain whether anyone knows if immunosuppressant drugs could also be another one of the causes for one or both of these conditions or for symptoms that mimic
There have been several past postings relating to ascites and oedema flowing from liver disease and particularly cirrhosis but I am inquiring to ascertain whether anyone knows if immunosuppressant drugs could also be another one of the causes for one or both of these conditions or for symptoms that mimic
findasolution
in
British Liver Trust
11 years ago
To Introduce Myself and Ask A Question :)
(i.e. with symptoms controlled by
immunosuppressants
)... I have a full time job - an area manager for a parcel company which is pretty fast paced, hectic, pressured - and obviously having had this flare up I have been off work - 2 months so far.
(i.e. with symptoms controlled by
immunosuppressants
)... I have a full time job - an area manager for a parcel company which is pretty fast paced, hectic, pressured - and obviously having had this flare up I have been off work - 2 months so far.
lovenothate
in
Behçet's UK
11 years ago
Bowel transplants, bike rides and biopsies
I am reliably informed that the reason for the heightened risk of it returning is due to being a transplant patient and being on
immunosuppressants
. The end result is that I will now have 3 monthly checks for life. Yet again I am incredibly privileged to receive amazing care at Oxford.
I am reliably informed that the reason for the heightened risk of it returning is due to being a transplant patient and being on
immunosuppressants
. The end result is that I will now have 3 monthly checks for life. Yet again I am incredibly privileged to receive amazing care at Oxford.
michaelseres
in
IBS Network
11 years ago
Response to Sue about severe headaches
More aggressive treatments would include
immunosuppressants
and chemo drugs. You can do some online searches for Behcet's headaches and discuss these options with a physician who believes you and is willing to help. I really hope you find something that gives you relief.
More aggressive treatments would include
immunosuppressants
and chemo drugs. You can do some online searches for Behcet's headaches and discuss these options with a physician who believes you and is willing to help. I really hope you find something that gives you relief.
amietamant
in
Behçet's UK
11 years ago
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