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Immunoglobulin M test
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iNR
Hi! I first wanted to thank everyone on this forum, for educating me on APS. I had two positive blood tests - B2Gp1 IgM - seven years ago and I was not medicated. My other APS antibodies were WNL. This June - I had an unexpected stroke - which is odd at age 51 with no heart issues. I was given an APS
Hi! I first wanted to thank everyone on this forum, for educating me on APS. I had two positive blood tests - B2Gp1 IgM - seven years ago and I was not medicated. My other APS antibodies were WNL. This June - I had an unexpected stroke - which is odd at age 51 with no heart issues. I was given an APS
Uzoigwe
in
Hughes Syndrome APS Forum
4 years ago
Tiny flame of hope
Hello, it’s me again. I wanted to share something somewhat encouraging even though it doesn’t count. There was one test that my Rheumatologist didn’t post and I asked for it even though I was expecting to see a negative and it was the cardiolipin antibodies. My only positive result was an IGM of 13.
Hello, it’s me again. I wanted to share something somewhat encouraging even though it doesn’t count. There was one test that my Rheumatologist didn’t post and I asked for it even though I was expecting to see a negative and it was the cardiolipin antibodies. My only positive result was an IGM of 13.
JennaShi
in
LUPUS UK
4 years ago
IVIG CURE?
HI EVERYONE!!! I know this is a difficult time for folks and I pray for my CLL friends, I wanted you to know. My question after a brief explanation. My user name is Kimsome. I was diagnosed with lymphoma SLL/CLL in 2010 when I was 45 year old female. I had aggressive chemo with a mix of Fludara, Cytoxin
HI EVERYONE!!! I know this is a difficult time for folks and I pray for my CLL friends, I wanted you to know. My question after a brief explanation. My user name is Kimsome. I was diagnosed with lymphoma SLL/CLL in 2010 when I was 45 year old female. I had aggressive chemo with a mix of Fludara, Cytoxin
Kimsome
in
CLL Support
4 years ago
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Bloods and medication ordered by Oral Medicine Consultant ...refused by GP.
Has anyone experienced this at all? Refusal to prescribe and do bloods? I have been waiting to see an oral medicine consultant since January. Obviously, due to the dreaded, it was, like many appointments, cancelled and put on hold. Thankfully, I have not had to wait too long since easing of lockdown
Has anyone experienced this at all? Refusal to prescribe and do bloods? I have been waiting to see an oral medicine consultant since January. Obviously, due to the dreaded, it was, like many appointments, cancelled and put on hold. Thankfully, I have not had to wait too long since easing of lockdown
Minnskimoo
in
LUPUS UK
4 years ago
IVIg Infusion feedback
Hi everyone, I am thinking this is probably going to seem like a mild problem, and I tend to be very overly anxious about anything new, but my Immuneglobulin g is down to 245. I have had no infections, been on Imbruveca for 2.5 years and my numbers are all really very good and I feel great. My Oncologist
Hi everyone, I am thinking this is probably going to seem like a mild problem, and I tend to be very overly anxious about anything new, but my Immuneglobulin g is down to 245. I have had no infections, been on Imbruveca for 2.5 years and my numbers are all really very good and I feel great. My Oncologist
Cgolen99
in
CLL Support
4 years ago
I've taken the in-house antibody test
Even after 6 years of GCA and daily pred and monthly blood tests. I still find it difficult to have blood take from me. That's what the antibody test required and it took a week for me to summon up the courage for the tiny finger prick. After the traumatic experience I had to take a photo of the blood
Even after 6 years of GCA and daily pred and monthly blood tests. I still find it difficult to have blood take from me. That's what the antibody test required and it took a week for me to summon up the courage for the tiny finger prick. After the traumatic experience I had to take a photo of the blood
Roy46
in
PMRGCAuk
4 years ago
IVIG Infusion - Patients with no masks
I attended the chemo ward today for my IVIG infusion, the first in 5 months. I suspended this 5 months ago in line with the CLLForum's Recommendations of reducing the risk of CLL patients contracting COVID. Because it had been 5 months since my last infusion, I had to go through the ramp up procedure
I attended the chemo ward today for my IVIG infusion, the first in 5 months. I suspended this 5 months ago in line with the CLLForum's Recommendations of reducing the risk of CLL patients contracting COVID. Because it had been 5 months since my last infusion, I had to go through the ramp up procedure
RobertCLL
in
CLL Support
4 years ago
CLL for 6 years, 80 years old!
My husband has CLL, AND HAS HAD THREE issues with fluid in his lungs, and the last one was very serious , with infection! So they stopped Imbruvica, and have him once a month doing infusions of IVIG. VERY EXPENSIVE, even with insurance , monthly it is 549 per month. We can’t afford this indefinitely!
My husband has CLL, AND HAS HAD THREE issues with fluid in his lungs, and the last one was very serious , with infection! So they stopped Imbruvica, and have him once a month doing infusions of IVIG. VERY EXPENSIVE, even with insurance , monthly it is 549 per month. We can’t afford this indefinitely!
Dummer70
in
CLL Support
4 years ago
lymph nodes and ear ache
Hello everyone. I haven't posted in a while But I need the wisdom of your experience. Here's my question: have you had ear aches caused by swollen lymph nodes without having an infection? Here's my story: I'm still in a clinical trial and pretty closely monitored. My immunoglobulins are low and falling
Hello everyone. I haven't posted in a while But I need the wisdom of your experience. Here's my question: have you had ear aches caused by swollen lymph nodes without having an infection? Here's my story: I'm still in a clinical trial and pretty closely monitored. My immunoglobulins are low and falling
DMary
in
CLL Support
4 years ago
Children: unusual symptoms? Is it possible PA?
Good evening. I wonder if i could get some guidance from this community. My 12 year old son has been struggling for years with his stomach nausea and low appetite. He also experience night terrors and episodes what he describes as “glitches” when he experience people’s voices racing and a loud bang to
Good evening. I wonder if i could get some guidance from this community. My 12 year old son has been struggling for years with his stomach nausea and low appetite. He also experience night terrors and episodes what he describes as “glitches” when he experience people’s voices racing and a loud bang to
jimckeown
in
Pernicious Anaemia Society
4 years ago
The good and the not so....
Just checking in to give my friends an update. I had results come back from my flow cytometry yesterday. Happy to say I am MRD negative and no cll cells detected. My Igg numbers dropped from 900 somethjng to 565. My IgM is 14 and IgA is 17. Not what I was hoping to see but super happy about my cll
Just checking in to give my friends an update. I had results come back from my flow cytometry yesterday. Happy to say I am MRD negative and no cll cells detected. My Igg numbers dropped from 900 somethjng to 565. My IgM is 14 and IgA is 17. Not what I was hoping to see but super happy about my cll
Downriver555
in
CLL Support
4 years ago
The FIRST Immunoglobulin A vasculitis (Henoch Schonlein Purpura) Online Patient Information Video is now available online.
The first IgA Vasculitis ( HSP ) online patient event happened just over a week ago. It was well attended by over 30 patients. The video is now available online... it is interesting, informative and also entertaining. https://www.vasculitis.org.uk/news/hsp-information-video
The first IgA Vasculitis ( HSP ) online patient event happened just over a week ago. It was well attended by over 30 patients. The video is now available online... it is interesting, informative and also entertaining. https://www.vasculitis.org.uk/news/hsp-information-video
Suzym2u
Vasculitis UK
in
Vasculitis UK
4 years ago
Thrombocytopenia
Has anybody had (itp) Thrombocytopenia? I was admitted to hospital as my blood platelets were severely low and finding bruising all over my body.Ive had x2 treatments of immunoglobulin transfusions and x2 bags of platelets also on a heavy prescription of 60mg per day of predisolone hopefully seeing
Has anybody had (itp) Thrombocytopenia? I was admitted to hospital as my blood platelets were severely low and finding bruising all over my body.Ive had x2 treatments of immunoglobulin transfusions and x2 bags of platelets also on a heavy prescription of 60mg per day of predisolone hopefully seeing
ButterflyAsh
in
LUPUS UK
4 years ago
Gazyva and Low Platelet Count?
Hi all. I completed the first 1000mg of Gazyva last week and am scheduled for round two in a couple days. I don’t have the actual numbers, but white blood cell, red blood dell and lymphocyte counts are all “looking good”. My oncologist said the drop in platelet count was unexpected. He immediately
Hi all. I completed the first 1000mg of Gazyva last week and am scheduled for round two in a couple days. I don’t have the actual numbers, but white blood cell, red blood dell and lymphocyte counts are all “looking good”. My oncologist said the drop in platelet count was unexpected. He immediately
msccsm11
in
CLL Support
4 years ago
Beta2Glycoprotein1 IgM positive for APS - anyone the same?
Hi ! I was recently diagnosed with APS after having a stroke. I tested positive only for Beta2 Glycoprotein1 Ig M. I tested positive for this 7 years ago, so it’s defiantly positive. Does Anyone tested positive for this one marker, and if so how are you treating it - what anti coagulant? Now I am on
Hi ! I was recently diagnosed with APS after having a stroke. I tested positive only for Beta2 Glycoprotein1 Ig M. I tested positive for this 7 years ago, so it’s defiantly positive. Does Anyone tested positive for this one marker, and if so how are you treating it - what anti coagulant? Now I am on
Uzoigwe
in
Hughes Syndrome APS Forum
4 years ago
T3 alone for 3 weeks
I have been on thyroid meds for 30 years and I am presently supplementing as many vitamin-filled foods and T-3 alone as I can & have been for the past 11 days straight. The reasoning behind my strategy is that T4 gives me the worst headaches I’ve ever experienced & also lasts longer than “normal” headaches
I have been on thyroid meds for 30 years and I am presently supplementing as many vitamin-filled foods and T-3 alone as I can & have been for the past 11 days straight. The reasoning behind my strategy is that T4 gives me the worst headaches I’ve ever experienced & also lasts longer than “normal” headaches
GKeith
in
Positive Wellbeing During Self-Isolation
4 years ago
Test results
Hi there... I have not seen the neuro yet, but do have all my results in. My blood work was ok except for the Immunoglobulin A and Ferritin were both high. So on my brain MRI, it looks like it is ok with a notation that I have “rare scattered punctate subcortical T2W hypertensities of the frontal lobes
Hi there... I have not seen the neuro yet, but do have all my results in. My blood work was ok except for the Immunoglobulin A and Ferritin were both high. So on my brain MRI, it looks like it is ok with a notation that I have “rare scattered punctate subcortical T2W hypertensities of the frontal lobes
Tulip77
in
My MSAA Community
4 years ago
Persistence Paid Off
Hello fellow loopies. Got my first dose of IVIG for cranial and autonomic neuropathy over the last 2 days. No side effects so far. Not even a headache... I’ll keep my fingers crossed and stay hydrated. Wondering if anyone has had IVIG for NPSLE? I know some people get it for PID but at a lower dose
Hello fellow loopies. Got my first dose of IVIG for cranial and autonomic neuropathy over the last 2 days. No side effects so far. Not even a headache... I’ll keep my fingers crossed and stay hydrated. Wondering if anyone has had IVIG for NPSLE? I know some people get it for PID but at a lower dose
Jmiller623
in
LUPUS UK
4 years ago
IVIG Infusions Suspended - Covid
My IVIG Infusions were suspended as a result of COVID and the risk of attending hospital at the hight of the pandemic. I have just received my latest blood report to find that my IgG is at 2.3, well below the minimum of 5. So will be asking for my monthly infusions to be reinstated. Anyone in the
My IVIG Infusions were suspended as a result of COVID and the risk of attending hospital at the hight of the pandemic. I have just received my latest blood report to find that my IgG is at 2.3, well below the minimum of 5. So will be asking for my monthly infusions to be reinstated. Anyone in the
RobertCLL
in
CLL Support
4 years ago
Help! - 12 year old RF + IgG 92.9 IgM 20 IgA 24.8 - but CCP test negative - symptoms of RA in Spine - but doctor thinks we are crazy!
So its been almost a year trying to figure out what has been wrong with my daughter - it started out last July (2019) with symptoms of dizziness, slight back pain, and numbness and tingling - we have now progressed to severe back pain (like she can't take it anymore) with more dizziness and now legs
So its been almost a year trying to figure out what has been wrong with my daughter - it started out last July (2019) with symptoms of dizziness, slight back pain, and numbness and tingling - we have now progressed to severe back pain (like she can't take it anymore) with more dizziness and now legs
lisamichel
in
JIA-at-NRAS
4 years ago
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