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Ibrutinib
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participate in online study cll Aus
Hi everyone, I'm in Sydney, Australia and recently completed an anonymous phone survey regarding listing of
Ibrutinib
on PBS. The survey was asking about cll patients' overall experience of the disease, diagnosis and thoughts on treatment options.
Hi everyone, I'm in Sydney, Australia and recently completed an anonymous phone survey regarding listing of
Ibrutinib
on PBS. The survey was asking about cll patients' overall experience of the disease, diagnosis and thoughts on treatment options.
Chrisfer
in
CLL Support
9 years ago
Ibrutinib
I also feel nauseous from time to time .Does any one know if you can take anti sickness tablets whilst taking
ibrutinib
?
I also feel nauseous from time to time .Does any one know if you can take anti sickness tablets whilst taking
ibrutinib
?
PE1234
in
CLL Support
9 years ago
Ibrutinib - 8 months on
Dr Schuh once said that she thought
Ibrutinib
could help to reduce my effusions. Let's hope this continues. I have no doubts that
Ibrutinib
is a "wonder drug" and I know how lucky I am to be given it. Onwards and upwards. David - Hereford - age 76
Dr Schuh once said that she thought
Ibrutinib
could help to reduce my effusions. Let's hope this continues. I have no doubts that
Ibrutinib
is a "wonder drug" and I know how lucky I am to be given it. Onwards and upwards. David - Hereford - age 76
Haileybury
in
CLL Support
9 years ago
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Cardiac side effects from drugs: Predictable?
Rituxan &
Ibrutinib
, have been associated with cardiac side effects for some patients. It would be interesting to know how sensitive this simulated heart model would be in testing CLL drugs.
Rituxan &
Ibrutinib
, have been associated with cardiac side effects for some patients. It would be interesting to know how sensitive this simulated heart model would be in testing CLL drugs.
ThreeWs
in
CLL Support
9 years ago
Hello
The first four days of starting the
Ibrutinib
I felt really poorly ,but the last few days I have begun to feel like my old self again .i have recommended the site to a lady whom I was in hospital with who is having a tough time .I do hope she joins as I feel it would really help her .
The first four days of starting the
Ibrutinib
I felt really poorly ,but the last few days I have begun to feel like my old self again .i have recommended the site to a lady whom I was in hospital with who is having a tough time .I do hope she joins as I feel it would really help her .
PE1234
in
CLL Support
9 years ago
Three Year Anniversary on Ibrutinib for my CLL
Friends, Three years ago today I started on
ibrutinib
as part of a trial out of OSU, and life just continues to just get better and better.
Friends, Three years ago today I started on
ibrutinib
as part of a trial out of OSU, and life just continues to just get better and better.
bkoffman
CLL CURE Hero
in
CLL Support
9 years ago
Reducing Ibrutinib even further!!!!!!!
Meanwhile, he is a very weary, sad man ...... maybe
Ibrutinib
simply isn't for him, who knows??
Meanwhile, he is a very weary, sad man ...... maybe
Ibrutinib
simply isn't for him, who knows??
lartington
in
CLL Support
9 years ago
experience CLL Ibrutinib Colitis
June 2014 started
ibrutinib
, 3 tablets per day. I experienced some diarrhoea throughout the use of
ibrutinib
, and definitely arthralgia. I managed the bowels with imodium and buscopan and the arthalgia with ibuprofen. In January 2015 I struggled to walk and was severely neutropenic.
June 2014 started
ibrutinib
, 3 tablets per day. I experienced some diarrhoea throughout the use of
ibrutinib
, and definitely arthralgia. I managed the bowels with imodium and buscopan and the arthalgia with ibuprofen. In January 2015 I struggled to walk and was severely neutropenic.
Corin850
in
CLL Support
9 years ago
FLAIR Trial - ErnieUK More Dehydration Round 5 FCR
The digestive system troubles do keep making me think of
Ibrutinib
, that I might be on one day, so I’d be interested if Psyllium would be any good to go with that, also if you would have to take them pre-emptively.
The digestive system troubles do keep making me think of
Ibrutinib
, that I might be on one day, so I’d be interested if Psyllium would be any good to go with that, also if you would have to take them pre-emptively.
Ernest2
in
CLL Support
9 years ago
The future for CLL?
There has even been talk that we may have achieved the breakthrough that Imatinib (perhaps better know as Gleevec) was for a sister leukaemia to CLL - CML or Chronic Myelogenous Leukaemia, with some of the new maintenance drugs such as
Ibrutinib
(Imbruvica).
There has even been talk that we may have achieved the breakthrough that Imatinib (perhaps better know as Gleevec) was for a sister leukaemia to CLL - CML or Chronic Myelogenous Leukaemia, with some of the new maintenance drugs such as
Ibrutinib
(Imbruvica).
AussieNeil
Partner
in
CLL Support
9 years ago
Novel Biologic Agents for Non-HL and CLL — Part 2: Adoptive Cellular Immunotherapy, Small-Molecule Inhibitors, and Immunomodulation
"[/i] * Chimeric antigen receptor (CAR) T cells * Bruton tyrosine kinase (BTK) inhibitors (
Ibrutinib
) * PI3K delta inhibitors (Idelalisib, Duvelisib (IPI-145), TGR-1202, ) * BCL-2 family inhibitors (Navitoclax (ABT-263), ABT-199 * Immunomodulation (Lenalidomide) * Other Novel Therapies
Small Molecules
"[/i] * Chimeric antigen receptor (CAR) T cells * Bruton tyrosine kinase (BTK) inhibitors (
Ibrutinib
) * PI3K delta inhibitors (Idelalisib, Duvelisib (IPI-145), TGR-1202, ) * BCL-2 family inhibitors (Navitoclax (ABT-263), ABT-199 * Immunomodulation (Lenalidomide) * Other Novel Therapies
Small Molecules
AussieNeil
Partner
in
CLL Support
9 years ago
Ibrutinib and bruising
I have been on
Ibrutinib
for 6 months with no other major issues. Any others on this board experience this, and what if any techniques helped you minimize the occurrence.
I have been on
Ibrutinib
for 6 months with no other major issues. Any others on this board experience this, and what if any techniques helped you minimize the occurrence.
astefanovich
in
CLL Support
9 years ago
Do FCR trials ever end early when the results are very favorable?
Anyway, after 5.5 years and watching the count rise to 208k this past January, swollen lymph nodes in neck, armpit, and groin and slightly enlarged spleen I was encouraged to go on a US NCI clinical trial of FCR vs
Ibrutinib
/Rituxan trial. 2/3 get the
Ibrutinib
/R and the other 3rd get FCR.
Anyway, after 5.5 years and watching the count rise to 208k this past January, swollen lymph nodes in neck, armpit, and groin and slightly enlarged spleen I was encouraged to go on a US NCI clinical trial of FCR vs
Ibrutinib
/Rituxan trial. 2/3 get the
Ibrutinib
/R and the other 3rd get FCR.
CClaver27
in
CLL Support
9 years ago
Ibrutinib and Atrial Fibrillation
I have been receiving
Ibrutinib
for 5 months but have just been diagnosed with Atrial Fibrillation.
I have been receiving
Ibrutinib
for 5 months but have just been diagnosed with Atrial Fibrillation.
horsehay
in
CLL Support
9 years ago
Ibrutinib - has anyone else's improvement stalled?
Has anyone else on
Ibrutinib
experienced a temporary or more permanent stalling of this nature?
Has anyone else on
Ibrutinib
experienced a temporary or more permanent stalling of this nature?
Graham2222
in
CLL Support
9 years ago
Assessing Response With Novel Agents in CLL - OncLive Peer Exchange
Kipps, MD, UCSD; Shuo Ma, MD, PhD, Northwestern http://www.onclive.com/peer-exchange/non-hodgkins-lymphoma/Assessing-the-Utility-of-MRD-Measures-Versus-CT-Scans The discussion covers: - Inhibition of Rituximab by
Ibrutinib
- ABT-199 (Venetoclax) - ABT-199's remarkable ability to get complete remission
Kipps, MD, UCSD; Shuo Ma, MD, PhD, Northwestern http://www.onclive.com/peer-exchange/non-hodgkins-lymphoma/Assessing-the-Utility-of-MRD-Measures-Versus-CT-Scans The discussion covers: - Inhibition of Rituximab by
Ibrutinib
- ABT-199 (Venetoclax) - ABT-199's remarkable ability to get complete remission
AussieNeil
Partner
in
CLL Support
9 years ago
CT scan 2015 info update #1
The need to have imaging, from a research perspective, is greater with the newer KIs (Kinase Inhibitors) such as
Ibrutinib
, ACP-196, Idelalisib etc. but the risk probability of SPM from frequent CT scanning is also increasing with KI (kinase Inhibitor) use as people who would otherwise have died, are
The need to have imaging, from a research perspective, is greater with the newer KIs (Kinase Inhibitors) such as
Ibrutinib
, ACP-196, Idelalisib etc. but the risk probability of SPM from frequent CT scanning is also increasing with KI (kinase Inhibitor) use as people who would otherwise have died, are
ThreeWs
in
CLL Support
9 years ago
CLL and Granuloma Annulare
My WBC is rapidly going up, my nodes are enlarged and my MD is considering starting
Ibrutinib
in the near future. Does anyone have any information about this?
My WBC is rapidly going up, my nodes are enlarged and my MD is considering starting
Ibrutinib
in the near future. Does anyone have any information about this?
Catskillady
in
CLL Support
9 years ago
The flip side of Ibrutinib; the roller coaster continues (atrial fibrillation / flutter)
Where am I now, and has this any relevance for others of you on
ibrutinib
?
Where am I now, and has this any relevance for others of you on
ibrutinib
?
charliegirl
in
CLL Support
9 years ago
CLL and curly hair
I have been on Imbruvica(
Ibrutinib
) since 6/14. Labs have normalized dramatically in eight-nine months.
I have been on Imbruvica(
Ibrutinib
) since 6/14. Labs have normalized dramatically in eight-nine months.
Villager
in
CLL Support
9 years ago
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