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InPractice CLL reference update - Idelalisib+Ofatumumab for relapsed/refractory patients. (Another CLL reference worth bookmarking)
The comprehensive InPractice reference for diagnosing, monitoring and treating CLL is regularly updated, with the latest update incorporating the addition of ofatumumab to idelalisib in patients with relapsed/refractory CLL plus the initial results from HELIOS trial of
ibrutinib
added to BR.
The comprehensive InPractice reference for diagnosing, monitoring and treating CLL is regularly updated, with the latest update incorporating the addition of ofatumumab to idelalisib in patients with relapsed/refractory CLL plus the initial results from HELIOS trial of
ibrutinib
added to BR.
AussieNeil
Administrator
in
CLL Support
9 years ago
Bad knees, Baker's Cysts, and Good Times with CLL plus our newsletter, LRF Meeting in Brooklyn and Patient meeting in Seattle
Please take a look at my blog http://bkoffman.blogspot.com to understand my thoughts and research about my present misery and a possible bilateral knee replacement when you have CLL and are on
ibrutinib
.
Please take a look at my blog http://bkoffman.blogspot.com to understand my thoughts and research about my present misery and a possible bilateral knee replacement when you have CLL and are on
ibrutinib
.
bkoffman
CLL CURE Hero
in
CLL Support
9 years ago
Ibrutinib denied to new patients
All down to
Ibrutinib
. I am working in a demanding job working 10.5 hour shifts as a nurse. Where might I be if I had been denied Ibrutnib, I dread to think.
All down to
Ibrutinib
. I am working in a demanding job working 10.5 hour shifts as a nurse. Where might I be if I had been denied Ibrutnib, I dread to think.
Pennycam
in
CLL Support
9 years ago
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Ibrutinib usage
When I last saw my haematologist he spoke of a treatment of ongoing
Ibrutinib
, until such time as its efficacy diminished. I have looked on the www and found nothing on this usage of
Ibrutinib
. Is there anyone out there on such a course?
When I last saw my haematologist he spoke of a treatment of ongoing
Ibrutinib
, until such time as its efficacy diminished. I have looked on the www and found nothing on this usage of
Ibrutinib
. Is there anyone out there on such a course?
Grembold
in
CLL Support
9 years ago
My Take on 3 Interesting Papers on CLL from ASCO 2015
The three presentations are on a new prognostic scale, on a new non-chemo triplet therapy and finally on Bendamustine with and without
ibrutinib
. In the accompanying text, I go into more detail, and of course provide a link to the source material itself so we can all form our own opinions.
The three presentations are on a new prognostic scale, on a new non-chemo triplet therapy and finally on Bendamustine with and without
ibrutinib
. In the accompanying text, I go into more detail, and of course provide a link to the source material itself so we can all form our own opinions.
bkoffman
CLL CURE Hero
in
CLL Support
9 years ago
Itchiness on knees arms and back.
I am in remission fromCLL for about 6 months now and I am still in a clinical trial therefore iI take 420 mg of
Ibrutinib
daily . Recently I have noticed that I itch all over, most of the time....has anyone had that experience?? fish 61
I am in remission fromCLL for about 6 months now and I am still in a clinical trial therefore iI take 420 mg of
Ibrutinib
daily . Recently I have noticed that I itch all over, most of the time....has anyone had that experience?? fish 61
fish61
in
CLL Support
9 years ago
Explainer: what are biologics and biosimilars?
explainer-what-are-biologics-and-biosimilars-45308 Thomas Morrow, MD and Linda Hull Felcone explain how biologics differ from chemically derived drugs in ways that affect their cost, production, administration and clinical efficacy here: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3564302/
Obinutuzumab, Ofatumumab,
explainer-what-are-biologics-and-biosimilars-45308 Thomas Morrow, MD and Linda Hull Felcone explain how biologics differ from chemically derived drugs in ways that affect their cost, production, administration and clinical efficacy here: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3564302/
Obinutuzumab, Ofatumumab,
AussieNeil
Administrator
in
CLL Support
9 years ago
A CLL conundrum
I recently had to stop my
Ibrutinib
for three weeks while I was in hospital having surgery in the form of a total hip operation.
I recently had to stop my
Ibrutinib
for three weeks while I was in hospital having surgery in the form of a total hip operation.
Berrytog
in
CLL Support
9 years ago
Today, I joined CLLSA
I was in a 'wait and watch' situation until May 2015, when I became part of a Randomized Phase III Study of Bendamustine plus Rituximab versus
Ibrutinib
plus Rituximab versus
Ibrutinib
alone in untreated older patients [I will be 69 in mid-August] with CLL. I am on the
Ibrutinib
only arm.
I was in a 'wait and watch' situation until May 2015, when I became part of a Randomized Phase III Study of Bendamustine plus Rituximab versus
Ibrutinib
plus Rituximab versus
Ibrutinib
alone in untreated older patients [I will be 69 in mid-August] with CLL. I am on the
Ibrutinib
only arm.
lumdor
in
CLL Support
9 years ago
Ibrutinib forever??
Mikey 47 stopped taking
Ibrutinib
after going into remission.. I have been on
Ibrutinib
for 3 years, am in full remission and I am told to stay on it forever. Anyone have thoughts on this??
Mikey 47 stopped taking
Ibrutinib
after going into remission.. I have been on
Ibrutinib
for 3 years, am in full remission and I am told to stay on it forever. Anyone have thoughts on this??
fish61
in
CLL Support
9 years ago
Professor Hallek on what Trial Design might give us Limited Duration Low Toxicity Therapies that offer Long term Disease Control
He has realistic concerns about prospect of lifelong therapies and points out some of the unpleasant truths about the limitations of treatments with signal blockers such as
ibrutinib
or idelalisib.
He has realistic concerns about prospect of lifelong therapies and points out some of the unpleasant truths about the limitations of treatments with signal blockers such as
ibrutinib
or idelalisib.
bkoffman
CLL CURE Hero
in
CLL Support
9 years ago
ibrutinib or wait?
I have finished 5 cycles of F/R.This is my second time around with same treatment,The first time having had 5 cycles in 2009 ,one year after diagnosis.My hem/onc dr.has just told me I may be elegible for ibrutinab,but offer from drug company ends end of June.My Dr. doesn.'t know when it will be cost
I have finished 5 cycles of F/R.This is my second time around with same treatment,The first time having had 5 cycles in 2009 ,one year after diagnosis.My hem/onc dr.has just told me I may be elegible for ibrutinab,but offer from drug company ends end of June.My Dr. doesn.'t know when it will be cost
lalykins
in
CLL Support
9 years ago
How Long To Wait For Trials and Treatments ?
The way I look at it with my prognostics, is that I’m going to need something like
Ibrutinib
or its successors in very approximately 5 or so years’ time, so thank you all for helping try out and understand these new therapies.
The way I look at it with my prognostics, is that I’m going to need something like
Ibrutinib
or its successors in very approximately 5 or so years’ time, so thank you all for helping try out and understand these new therapies.
Ernest2
in
CLL Support
9 years ago
Going off Ibrutinib: should we be worried?
This means my husband will now be off
Ibrutinib
for 18 days. Am very worried about this. He is in remission but I wonder what effect 18 days without
Ibrutinib
is going to have. The glands under his arms have already come up.
This means my husband will now be off
Ibrutinib
for 18 days. Am very worried about this. He is in remission but I wonder what effect 18 days without
Ibrutinib
is going to have. The glands under his arms have already come up.
MJN44
in
CLL Support
9 years ago
Here's your opportunity to support the listing of Ibrutinib (Imbruvica) on the Australian PBS - Deadline is next Wed 10th June!
[u]Given there are very few Australians with experience of
Ibrutinib
, if you'd like to help your falling behind the times Aussies with CLL, please go ahead and say your piece!
[u]Given there are very few Australians with experience of
Ibrutinib
, if you'd like to help your falling behind the times Aussies with CLL, please go ahead and say your piece!
AussieNeil
Administrator
in
CLL Support
9 years ago
HOLY WHITE COUNT!!
Not noticing and side effects of the
ibrutinib
. FCR starts tuesday so we will see the shit hit the fan then :) He is the crazy part for all of you concerned about how high your white count is....at last check i was at 780k...YES 780k!! Im going for the world record wish me luck.
Not noticing and side effects of the
ibrutinib
. FCR starts tuesday so we will see the shit hit the fan then :) He is the crazy part for all of you concerned about how high your white count is....at last check i was at 780k...YES 780k!! Im going for the world record wish me luck.
enelson3
in
CLL Support
9 years ago
participate in online study cll Aus
Hi everyone, I'm in Sydney, Australia and recently completed an anonymous phone survey regarding listing of
Ibrutinib
on PBS. The survey was asking about cll patients' overall experience of the disease, diagnosis and thoughts on treatment options.
Hi everyone, I'm in Sydney, Australia and recently completed an anonymous phone survey regarding listing of
Ibrutinib
on PBS. The survey was asking about cll patients' overall experience of the disease, diagnosis and thoughts on treatment options.
Chrisfer
in
CLL Support
9 years ago
Ibrutinib
I also feel nauseous from time to time .Does any one know if you can take anti sickness tablets whilst taking
ibrutinib
?
I also feel nauseous from time to time .Does any one know if you can take anti sickness tablets whilst taking
ibrutinib
?
PE1234
in
CLL Support
9 years ago
Ibrutinib - 8 months on
Dr Schuh once said that she thought
Ibrutinib
could help to reduce my effusions. Let's hope this continues. I have no doubts that
Ibrutinib
is a "wonder drug" and I know how lucky I am to be given it. Onwards and upwards. David - Hereford - age 76
Dr Schuh once said that she thought
Ibrutinib
could help to reduce my effusions. Let's hope this continues. I have no doubts that
Ibrutinib
is a "wonder drug" and I know how lucky I am to be given it. Onwards and upwards. David - Hereford - age 76
Haileybury
in
CLL Support
9 years ago
Cardiac side effects from drugs: Predictable?
Rituxan &
Ibrutinib
, have been associated with cardiac side effects for some patients. It would be interesting to know how sensitive this simulated heart model would be in testing CLL drugs.
Rituxan &
Ibrutinib
, have been associated with cardiac side effects for some patients. It would be interesting to know how sensitive this simulated heart model would be in testing CLL drugs.
ThreeWs
in
CLL Support
9 years ago
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