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Ibrutinib
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After you stop with ibrutinib - does Sll-CLL come back?
Now they want to give me
ibrutinib
. My question is: hoe long do you take
ibrutinib
? Can you stop with it or does the disease comeback back than very fast? Did anyone of you a kind of alternative treatment like hypothermie or CBD oil or diats?
Now they want to give me
ibrutinib
. My question is: hoe long do you take
ibrutinib
? Can you stop with it or does the disease comeback back than very fast? Did anyone of you a kind of alternative treatment like hypothermie or CBD oil or diats?
Anja-Jantina
in
CLL Support
7 years ago
Ibrutinib
This is my third week on
ibrutinib
, will, at some time my immune system get better? Or is this something I will have to deal with forever. Your comments would be appreciated
This is my third week on
ibrutinib
, will, at some time my immune system get better? Or is this something I will have to deal with forever. Your comments would be appreciated
Broadbent
in
CLL Support
7 years ago
Shingles again?
Was on Rituxan and chlorambucil combination treatment already twice (each treatment with few cycles , treatments 3 years apart) and now was prescribed and started taking
ibrutinib
6 weeks ago. Her immunity is very low.
Was on Rituxan and chlorambucil combination treatment already twice (each treatment with few cycles , treatments 3 years apart) and now was prescribed and started taking
ibrutinib
6 weeks ago. Her immunity is very low.
J-123
in
CLL Support
7 years ago
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AVAILABILITY OF IBRUTINIB TO NHS PATIENTS IN WALES
Hello Friends Does anyone know if
Ibrutinib
has cleared all the administrative hurdles to enable it to be made available to relapsed NHS patients in Wales.
Hello Friends Does anyone know if
Ibrutinib
has cleared all the administrative hurdles to enable it to be made available to relapsed NHS patients in Wales.
DJANGO
in
CLL Support
7 years ago
Busy day -week 8
Will add this to my main
Ibrutinib
/Venetoclax post once I get home. Think I'll have a treat for lunch. best to all, rob
Will add this to my main
Ibrutinib
/Venetoclax post once I get home. Think I'll have a treat for lunch. best to all, rob
Oleboyredw-uk
in
CLL Support
7 years ago
Switching from Ibrutinib to Venetoclax
For those who have made the switch, did you need to take a break from
ibrutinib
before starting the Venetoclax, or did you just make the transition without one? Does it matter if you are switching because of side effects, or because of disease progression? Thanks so much!
For those who have made the switch, did you need to take a break from
ibrutinib
before starting the Venetoclax, or did you just make the transition without one? Does it matter if you are switching because of side effects, or because of disease progression? Thanks so much!
Mcpill
in
CLL Support
7 years ago
Medicines to b avoided with Ibnutrib
Got following feedback on various medicine which shouldn't be taken with Ibnutrib: This website gives various interactions associated with
ibrutinib
. Alcohol avoidance is also recommended. Very importantly, things like Seville orange or grapefruit juice is a no-go.
Got following feedback on various medicine which shouldn't be taken with Ibnutrib: This website gives various interactions associated with
ibrutinib
. Alcohol avoidance is also recommended. Very importantly, things like Seville orange or grapefruit juice is a no-go.
Anilbhard
in
CLL Support
7 years ago
Spots on face
Hi everybody, on second week of
ibrutinib
and getting red spots under the skin on my face. Any remedies out there, or is this to be expected?
Hi everybody, on second week of
ibrutinib
and getting red spots under the skin on my face. Any remedies out there, or is this to be expected?
Broadbent
in
CLL Support
7 years ago
Ibrutinib / Venetoclax
Even though my doctor says my numbers look ok and I don't have any symptoms other than small swollen lymph nodes and occasional night sweats he offered me a trial drug
Ibrutinib
/Venetoclax starting in June.
Even though my doctor says my numbers look ok and I don't have any symptoms other than small swollen lymph nodes and occasional night sweats he offered me a trial drug
Ibrutinib
/Venetoclax starting in June.
BCTexas
in
CLL Support
7 years ago
Slight fever in the evening with Ibrutinib
My father has been on
Ibrutinib
since July last year and has experienced positive improvement in his health with very little side effects.
My father has been on
Ibrutinib
since July last year and has experienced positive improvement in his health with very little side effects.
yccymj
in
CLL Support
7 years ago
New member
Hello, I have been on
Ibrutinib
3 tablets of 180mg every day for 3 years, on a trial ,having previously had 2 infusions of various drugs which didn't work. The treatment seems to work well with few side effects accept the odd joint pain and a lot of itching which no one seems to be able to fix.
Hello, I have been on
Ibrutinib
3 tablets of 180mg every day for 3 years, on a trial ,having previously had 2 infusions of various drugs which didn't work. The treatment seems to work well with few side effects accept the odd joint pain and a lot of itching which no one seems to be able to fix.
Mike1724
in
CLL Support
7 years ago
Side effects. Itchy skin
I have been on
Ibrutinib
for 3 years and most of that time my skin has been unbareably itchy . I was on two previous infusion trials which didn't work but this one is good with Lymphosites down to 9 from hundreds. I have occasional join pains mainly shoulders but they only last for 2 or3 days.
I have been on
Ibrutinib
for 3 years and most of that time my skin has been unbareably itchy . I was on two previous infusion trials which didn't work but this one is good with Lymphosites down to 9 from hundreds. I have occasional join pains mainly shoulders but they only last for 2 or3 days.
Mike1724
in
CLL Support
7 years ago
Chemotherapy vs Ibrutinib for CLL Frontline Treatment - Dr Susan O'Brien. 12 to 24% of FCR patients effectively cured 6 years after FCR
In order to provide personalized therapy for patients, certain factors may determine whether chemotherapy or
ibrutinib
would be the more appropriate option. Dr.
In order to provide personalized therapy for patients, certain factors may determine whether chemotherapy or
ibrutinib
would be the more appropriate option. Dr.
AussieNeil
Administrator
in
CLL Support
7 years ago
1st week on venetoclax - WOW, not what we expected...
My husband just stared venetoclax 20mg we are on day 6 after failing on
Ibrutinib
after 18months and he is 17p, 52 years old - diagnosed at 45 It has been a hell of a week with threats of TML - he had to be admitted to hospital and was released on Friday - he can't seem to function.
My husband just stared venetoclax 20mg we are on day 6 after failing on
Ibrutinib
after 18months and he is 17p, 52 years old - diagnosed at 45 It has been a hell of a week with threats of TML - he had to be admitted to hospital and was released on Friday - he can't seem to function.
NMMP
in
CLL Support
7 years ago
Ibrutinib and weight gain?
So I've been on
ibrutinib
for about 16 months and doing very well. However, I've gained 7 pounds! Trying to figure out how much of this is due to the drug itself, and how much is due to the fact that I just feel so much better that my appetite is up? Or can it be both?
So I've been on
ibrutinib
for about 16 months and doing very well. However, I've gained 7 pounds! Trying to figure out how much of this is due to the drug itself, and how much is due to the fact that I just feel so much better that my appetite is up? Or can it be both?
cook4650
in
CLL Support
7 years ago
Ibrutinib resistance mutations often arise early, suggesting potential as a cue for alternative therapy
[i]Mutations in two genes often occurred months before relapse of chronic lymphocytic leukemia (CLL) treated with
ibrutinib
(Imbruvica), suggesting potential as a cue for alternative therapy, according to a retrospective review of four clinical trials.
[i]Mutations in two genes often occurred months before relapse of chronic lymphocytic leukemia (CLL) treated with
ibrutinib
(Imbruvica), suggesting potential as a cue for alternative therapy, according to a retrospective review of four clinical trials.
AussieNeil
Administrator
in
CLL Support
7 years ago
CLL Treatment - Give your body a rest?
There is an informal paper from ASH 2015, where the question was asked “What happens when CLL Patients stop taking
Ibrutinib
or Idelalisib.”
There is an informal paper from ASH 2015, where the question was asked “What happens when CLL Patients stop taking
Ibrutinib
or Idelalisib.”
MartyR
in
CLL Support
7 years ago
How Ibrutinib works over time
Wiestner and his team not only did some of the earliest clinical research on
ibrutinib
, but also has been doing the bench science on exactly how it works and its impact changes over time. Please enjoy the interview here: http://cllsociety.org/2017/02/ash-2016-wiestner-
ibrutinib
-cll/ Stay strong.
Wiestner and his team not only did some of the earliest clinical research on
ibrutinib
, but also has been doing the bench science on exactly how it works and its impact changes over time. Please enjoy the interview here: http://cllsociety.org/2017/02/ash-2016-wiestner-
ibrutinib
-cll/ Stay strong.
bkoffman
CLL CURE Hero
in
CLL Support
7 years ago
BTK C481S-Mediated Resistance to Ibrutinib in Chronic Lymphocytic Leukemia
Prognosis for RT remains poor, but for CLL progression after
ibrutinib
it is getting better. Stay strong. We are all in this together. Brian http://cllsociety.org http://bkoffman.blogspot.com
Prognosis for RT remains poor, but for CLL progression after
ibrutinib
it is getting better. Stay strong. We are all in this together. Brian http://cllsociety.org http://bkoffman.blogspot.com
bkoffman
CLL CURE Hero
in
CLL Support
7 years ago
Celebrating a special 3 year anniversary
I realized this week that Feb. 12 was the 3rd anniversary of the approval of
ibrutinib
in the USA that changed the whole treatment landscape in CLL, so I thought I would reflect on all the progress that has taken place in the treatment of our disease during this time frame and all the issues that still
I realized this week that Feb. 12 was the 3rd anniversary of the approval of
ibrutinib
in the USA that changed the whole treatment landscape in CLL, so I thought I would reflect on all the progress that has taken place in the treatment of our disease during this time frame and all the issues that still
bkoffman
CLL CURE Hero
in
CLL Support
7 years ago
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