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Experiences with
Ibrutinib
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Treatment
Choi of UCSD recommends I start
Ibrutinib
, Dr. Malek of University of Michigan wants me to consider Chemo with the possibility of a3 to 5 year remission then Inrutinib.
Choi of UCSD recommends I start
Ibrutinib
, Dr. Malek of University of Michigan wants me to consider Chemo with the possibility of a3 to 5 year remission then Inrutinib.
migirlusa
in
CLL Support
6 years ago
Low WBC
Dennis, 71,
Ibrutinib
Dennis, 71,
Ibrutinib
Fant1924
in
CLL Support
6 years ago
I'm tired....
I don't want to stop the
Ibrutinib
as I know it's my best option. But how long before these side effects start to resolve? And realistically, do they? Okay, whinge over - sure I'll feel better in the morning!
I don't want to stop the
Ibrutinib
as I know it's my best option. But how long before these side effects start to resolve? And realistically, do they? Okay, whinge over - sure I'll feel better in the morning!
UKfulloflife
in
CLL Support
6 years ago
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Ibrutinib /Venetoclax Follow up
I started
Ibrutinib
back in October 2017 and started Venetoclax in January 2018. There was a ramp up period on the Venetoclax for 5 weeks. Started at 50mg to 400mg. I did well on the ramp up and overall I have experienced little side effects. Some muscle and joint pain.
I started
Ibrutinib
back in October 2017 and started Venetoclax in January 2018. There was a ramp up period on the Venetoclax for 5 weeks. Started at 50mg to 400mg. I did well on the ramp up and overall I have experienced little side effects. Some muscle and joint pain.
BCTexas
in
CLL Support
6 years ago
Rituximab infusion 1 so far so good
Started
Ibrutinib
the day before. I know I am not out of the wood reaction wise yet but so far so good.🤞for the road ahead. Thank you to everyone on this site who have helped me to get this far. Ann
Started
Ibrutinib
the day before. I know I am not out of the wood reaction wise yet but so far so good.🤞for the road ahead. Thank you to everyone on this site who have helped me to get this far. Ann
annmcgowan
in
CLL Support
6 years ago
Time to share
I start
Ibrutinib
today and hope that I am about to turn a corner and get back to some sort of normality if we can ever have such a thing.
I start
Ibrutinib
today and hope that I am about to turn a corner and get back to some sort of normality if we can ever have such a thing.
Dell49
in
CLL Support
6 years ago
Ibrutinib Withdrawl Symptoms?
His IgM was down to 515 and was put on
Ibrutinib
2 capsules a day for 1 week, the upped to 3, with a final goal of 4 per day. He did ok on 2 pills but 3 pills gave him horrible diarrhea, constipation and agitated his diverticulosis, so the on-call doctor told him to stop taking the drug.
His IgM was down to 515 and was put on
Ibrutinib
2 capsules a day for 1 week, the upped to 3, with a final goal of 4 per day. He did ok on 2 pills but 3 pills gave him horrible diarrhea, constipation and agitated his diverticulosis, so the on-call doctor told him to stop taking the drug.
Hidden
in
CLL Support
6 years ago
Ibrutinib treatment
I was put on
Ibrutinib
lat month. Except for minor rash and some joint pain, I have not had other problemes. My appetite has somewhat improved. My WBC has, however, increased (from 283 to 310) which I understand is typical at the beginning of treatment.
I was put on
Ibrutinib
lat month. Except for minor rash and some joint pain, I have not had other problemes. My appetite has somewhat improved. My WBC has, however, increased (from 283 to 310) which I understand is typical at the beginning of treatment.
Mike-72
in
CLL Support
6 years ago
On Ibrutinib for 1.5 years and doing great!
But by May 2016 my WBC had gone up to 130K.At that time
Ibrutinib
had been approved for second treatment only, the Rituxin having counted as first treatment for me. So in May 2016 I started on
Ibrutinib
. Almost immediately my numbers started coming down - and fast.
But by May 2016 my WBC had gone up to 130K.At that time
Ibrutinib
had been approved for second treatment only, the Rituxin having counted as first treatment for me. So in May 2016 I started on
Ibrutinib
. Almost immediately my numbers started coming down - and fast.
Rmiller32x
in
CLL Support
6 years ago
Day 3 on Ibrutinib
Hi everyone, just an update. Still feeling good. I want to thank everyone for all the support. I pray every night for all of us. We will beat this. Cindi
Hi everyone, just an update. Still feeling good. I want to thank everyone for all the support. I pray every night for all of us. We will beat this. Cindi
Cindi73
in
CLL Support
6 years ago
Don’t stand so close to me!
I’m a year plus on
Ibrutinib
. They loaded me up with a third round of antibiotics and an IVIG infusion. So hoping I can finally recover and get back to normal. I think bowing at a safe distance is a much better idea than hand shaking - no? https://media.giphy.com/media/hWjyKDWBopz9K/giphy.gif
I’m a year plus on
Ibrutinib
. They loaded me up with a third round of antibiotics and an IVIG infusion. So hoping I can finally recover and get back to normal. I think bowing at a safe distance is a much better idea than hand shaking - no? https://media.giphy.com/media/hWjyKDWBopz9K/giphy.gif
SunnyCA
in
CLL Support
6 years ago
Reducing Ibrutinib tablets
Hello, Has anybody ever had their tablets of
ibrutinib
reduced over time? How many do you normally take a day?
Hello, Has anybody ever had their tablets of
ibrutinib
reduced over time? How many do you normally take a day?
pollyg2016
in
Non Hodgkin's Lymphoma Friends
6 years ago
Dr. Logan on ibrutinib and Venclexta (venetoclax) combo 'need to wait a year or two...'
https://youtu.be/I-B8iEiuu7Q
https://youtu.be/I-B8iEiuu7Q
Cllcanada
Top Poster CURE Hero
in
CLL Support
6 years ago
ZAP-70 information
Hi All, I am posting from the Cafe Kerouac In Columbus OH awaiting another 12 week monitoring session for my extended Clinical Trial using PCI-32765 (
Ibrutinib
). It has been 6 years and 9 months since I started therapy.
Hi All, I am posting from the Cafe Kerouac In Columbus OH awaiting another 12 week monitoring session for my extended Clinical Trial using PCI-32765 (
Ibrutinib
). It has been 6 years and 9 months since I started therapy.
ThreeWs
in
CLL Support
6 years ago
Best day time for Ibrutinib
Hi all, Next week I will receive the prescription for
Ibrutinib
and I'm interested in knowing when is better moment to take it. Thanking for all your comments, Best regres, Lilica
Hi all, Next week I will receive the prescription for
Ibrutinib
and I'm interested in knowing when is better moment to take it. Thanking for all your comments, Best regres, Lilica
lilica955
in
CLL Support
6 years ago
Blood thinners
Can you still take
ibrutinib
with warfarin if you have your inr checked frequently and maybe lower your warfarin dose? Thanks Barbara from Massachusetts
Can you still take
ibrutinib
with warfarin if you have your inr checked frequently and maybe lower your warfarin dose? Thanks Barbara from Massachusetts
BarbaraA2
in
CLL Support
6 years ago
FLAIR Trial allocated Ibrutinib and Rituximab any advice?
Hi just heard I have been allocated the
Ibrutinib
and Rituximab arm on the FLAIR trial today. I will be starting very soon. Anyone out there been on this arm of the trial or are currently on it? I would welcome any advice from anyone. Ann
Hi just heard I have been allocated the
Ibrutinib
and Rituximab arm on the FLAIR trial today. I will be starting very soon. Anyone out there been on this arm of the trial or are currently on it? I would welcome any advice from anyone. Ann
annmcgowan
in
CLL Support
6 years ago
Informations help
Hi all,
Ibrutinib
and osteoporosis drugs .Could be an interaction between these drugs? Thanks for your comments! Lilica
Hi all,
Ibrutinib
and osteoporosis drugs .Could be an interaction between these drugs? Thanks for your comments! Lilica
lilica955
in
CLL Support
6 years ago
Hoped It Would Never Come ~ Starting Treatment
O'Brien on March 12 and she will give me the script for
Ibrutinib
. I'm a little emotional right now as I had hoped to put it off as long as possible. My numbers as of yesterday, after only 30 days since last blood draw; off the chart.
O'Brien on March 12 and she will give me the script for
Ibrutinib
. I'm a little emotional right now as I had hoped to put it off as long as possible. My numbers as of yesterday, after only 30 days since last blood draw; off the chart.
ladyprescott
in
CLL Support
6 years ago
Remission with Ibrutinib and Venetoclax
This week marks the sixth period of 28 days with
Ibrutinib
and 4th period combination with Venetoclax of my trial (Vision trial, Netherlands).I officially reached a remission already. Very good results on blood work, almost all normal. I had a succesful coloscopy to exclude any gut nastyness.
This week marks the sixth period of 28 days with
Ibrutinib
and 4th period combination with Venetoclax of my trial (Vision trial, Netherlands).I officially reached a remission already. Very good results on blood work, almost all normal. I had a succesful coloscopy to exclude any gut nastyness.
Yvbb
in
CLL Support
6 years ago
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