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Experiences with
Ibrutinib
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Can I be cured of CLL?
I've been on 420mg of
Ibrutinib
(Imbruvica) for five years. My now 6 month oncologists visits show my WBC's in the normal range and most likely in remission.
I've been on 420mg of
Ibrutinib
(Imbruvica) for five years. My now 6 month oncologists visits show my WBC's in the normal range and most likely in remission.
halldp
in
CLL Support
4 years ago
Sores in throat with Ibrutinib
I have been on
Ibrutinib
since July 2019, no treatment of any kind before then.
I have been on
Ibrutinib
since July 2019, no treatment of any kind before then.
Charredswiss
in
CLL Support
4 years ago
Ibrutinib covid immune system
The actual question is it better to stop
ibrutinib
with flu/covid symptoms and if body may develop antibodies if you under
ibrutinib
and have covid.
The actual question is it better to stop
ibrutinib
with flu/covid symptoms and if body may develop antibodies if you under
ibrutinib
and have covid.
Mik_
in
CLL Support
4 years ago
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CLL & the Corona virus
I have been on the FLAIR drug trials for five years, taking
Ibrutinib
, plus Co-Trimoxazole and Aciclovir. My blood cancer has gone into remission, but there are still enough bad cells for me to continue on the drugs. Recently I developed a dry cough and inflamed vocal cords.
I have been on the FLAIR drug trials for five years, taking
Ibrutinib
, plus Co-Trimoxazole and Aciclovir. My blood cancer has gone into remission, but there are still enough bad cells for me to continue on the drugs. Recently I developed a dry cough and inflamed vocal cords.
hazelmark
in
CLL Support
4 years ago
Beatsons apt tomorrow and scared
I am in treatment and have to go to my appointment tomorrow for my refill of
Ibrutinib
. Do not want to go. Terrified. Any one else in the same position as me? What can I do? **UPDATE** Have phoned the hospital. My nurse has no idea of what’s going on.
I am in treatment and have to go to my appointment tomorrow for my refill of
Ibrutinib
. Do not want to go. Terrified. Any one else in the same position as me? What can I do? **UPDATE** Have phoned the hospital. My nurse has no idea of what’s going on.
Flabal
in
CLL Support
4 years ago
Zreducingibrutinib ..
My oncologist has today reduced my
ibrutinib
to 2 capsules per day because of the girls problems. Any discussions from anyone else lowering their meds?
My oncologist has today reduced my
ibrutinib
to 2 capsules per day because of the girls problems. Any discussions from anyone else lowering their meds?
Imbub
in
CLL Support
4 years ago
Hand therapy that works!
Just wanted to share this success story with other
Ibrutinib
users out there. Best thing is the stuff is inexpensive.
Just wanted to share this success story with other
Ibrutinib
users out there. Best thing is the stuff is inexpensive.
Mprm
in
CLL Support
4 years ago
CLL/SLL and Ibrutinib
I finally started on
Ibrutinib
last Friday. The doctor settled on
Ibrutinib
because it has good penetration to the spinal fluid and a spinal tap had shown cancer cells in the spinal fluid. So far the side effects on
Ibrutinib
have been very mild. I’ve felt sick, but not terribly.
I finally started on
Ibrutinib
last Friday. The doctor settled on
Ibrutinib
because it has good penetration to the spinal fluid and a spinal tap had shown cancer cells in the spinal fluid. So far the side effects on
Ibrutinib
have been very mild. I’ve felt sick, but not terribly.
DylanPxxx
in
CLL Support
4 years ago
Shaking From Imbruvica/Ibrutinib
Hi I started Imbruvica/
Ibrutinib
April 13, 2020. Had chills and fever after 2 days and then no fever since then but very weak and get dizzy at times and fainted twice. I wonder why my body feels like a pounding sensation. It. not coming from my heart.
Hi I started Imbruvica/
Ibrutinib
April 13, 2020. Had chills and fever after 2 days and then no fever since then but very weak and get dizzy at times and fainted twice. I wonder why my body feels like a pounding sensation. It. not coming from my heart.
Kmegood
in
Leukaemia CARE
4 years ago
implantes dentales en CLL
implantes dentales en CLL con tratamiento de
ibrutinib
implantes dentales en CLL con tratamiento de
ibrutinib
JJSI
in
CLL Support
4 years ago
Ibrutinib dosages
My oncologist has said he is reluctant to give more chemo and has recommended
Ibrutinib
which has recently been launched in South Africa. It is hugely expensive and my Medical Aid has declined to support this payment.
My oncologist has said he is reluctant to give more chemo and has recommended
Ibrutinib
which has recently been launched in South Africa. It is hugely expensive and my Medical Aid has declined to support this payment.
plett1234
in
CLL Support
4 years ago
Stopping ibrutinib and imaging in CLL
Hi, I stopped
ibrutinib
after almost 8 years. I discuss my thoughts and emotions around saying goodbye to my friend who saved my life: https://cllsociety.org/2020/03/stopping-
ibrutinib
-saying-goodbye-to-my-friend-for-last-7-plus-years/.
Hi, I stopped
ibrutinib
after almost 8 years. I discuss my thoughts and emotions around saying goodbye to my friend who saved my life: https://cllsociety.org/2020/03/stopping-
ibrutinib
-saying-goodbye-to-my-friend-for-last-7-plus-years/.
bkoffman
CLL CURE Hero
in
CLL Support
4 years ago
Ibrutinib-one year update.
Hi all, just thought I'd check in with an update as I am just over a year on
Ibrutinib
, my previous introductory post is here; https://healthunlocked.com/cllsupport/posts/private/140279688/new-member As I state, I am just over a year on
Ibrutinib
and so far so good.
Hi all, just thought I'd check in with an update as I am just over a year on
Ibrutinib
, my previous introductory post is here; https://healthunlocked.com/cllsupport/posts/private/140279688/new-member As I state, I am just over a year on
Ibrutinib
and so far so good.
Cilldaingin
in
CLL Support
4 years ago
CCL n ibrutinib side effects
My dad was detected with CLL in December 2019..2 chemos of Rituximab and endoxon .He was doing well..bt he was put in
ibrutinib
which is working wonders bringing wbc from 500000 to 150000.But had to stop the medicine after 8 days dur to side effects ..capillary burst and internal bleeding in the legs.Initial
My dad was detected with CLL in December 2019..2 chemos of Rituximab and endoxon .He was doing well..bt he was put in
ibrutinib
which is working wonders bringing wbc from 500000 to 150000.But had to stop the medicine after 8 days dur to side effects ..capillary burst and internal bleeding in the legs.Initial
sweetromeet
in
CLL Support
4 years ago
CLL and Ibrutinib
My treatment is
Ibrutinib
—420mg a day (forever). What side effects should I expect? Also, is it better to take the
Ibrutinib
first thing in the morning or last thing at night? Advice appreciated
My treatment is
Ibrutinib
—420mg a day (forever). What side effects should I expect? Also, is it better to take the
Ibrutinib
first thing in the morning or last thing at night? Advice appreciated
DylanPxxx
in
Non Hodgkin's Lymphoma Friends
4 years ago
WALDENSTORM'S IBRUTINIB AND FATIGUE
Now am on
Ibrutinib
and I am feeling much better. Been taking for 4 months. Had bad headaches heartburn and nausea. Pretty normal chemo side effects. Lately have been feeling very tired. Wondering if others have the same issues?
Now am on
Ibrutinib
and I am feeling much better. Been taking for 4 months. Had bad headaches heartburn and nausea. Pretty normal chemo side effects. Lately have been feeling very tired. Wondering if others have the same issues?
qgar
in
CLL Support
4 years ago
Off ibrutinib x 2 weeks, a novel ultra low dose triple therapy for CLL and Richter's and CLL Society recognized for its reliable robust info
How about no COVID-19 news in a post: I updated my blog with good news at https://cllsociety.org/…/march-9-2020-more-good-news-2-wee…/ about my latest lab results 2 weeks after stopping
ibrutinib
. • Novel Triple Therapy Combination ( https://cllsociety.org/…/ash-2019-dr-mato-discusses-a-nove…/) shows
How about no COVID-19 news in a post: I updated my blog with good news at https://cllsociety.org/…/march-9-2020-more-good-news-2-wee…/ about my latest lab results 2 weeks after stopping
ibrutinib
. • Novel Triple Therapy Combination ( https://cllsociety.org/…/ash-2019-dr-mato-discusses-a-nove…/) shows
bkoffman
CLL CURE Hero
in
CLL Support
4 years ago
Well what next
Anyway, she explained that his WBC went to 300,000 blimey (2 months
ibrutinib
) then went down to 100,000. Does this resonate with anyone?
Anyway, she explained that his WBC went to 300,000 blimey (2 months
ibrutinib
) then went down to 100,000. Does this resonate with anyone?
popys
in
CLL Support
4 years ago
Good day all,
We chose
Ibrutinib
. Within 15 days my glands went to normal and I was feeling great, tiredness and night sweats were completely gone. I thought it was miraculous. However at the end of December I started to develop Tachycardia and then Arrhythmia, something I had never experienced before.
We chose
Ibrutinib
. Within 15 days my glands went to normal and I was feeling great, tiredness and night sweats were completely gone. I thought it was miraculous. However at the end of December I started to develop Tachycardia and then Arrhythmia, something I had never experienced before.
Hidden
in
CLL Support
4 years ago
Dr Anthony Mato’s office # NY or NJ
My CLL is at a tipping point & when at Penn-Dr Mato first prescribed my
Ibrutinib
. It was a sad day when we lost him back to NY and much better Chinese food. Appreciate any help - direct office # for either MSKCC or NJ. Thank you. ~ db
My CLL is at a tipping point & when at Penn-Dr Mato first prescribed my
Ibrutinib
. It was a sad day when we lost him back to NY and much better Chinese food. Appreciate any help - direct office # for either MSKCC or NJ. Thank you. ~ db
db601
in
CLL Support
4 years ago
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