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Ibrutinib
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Venetoclax
It looks very likely I will switch from taking
Ibrutinib
to taking Venetoclax. While Venetoclax is a tablet, if I start it, apparently each week for the first 5 weeks, I will need to spend 48 hours in the hospital. This is to allow the medical staff to monitor my reaction to the Venetoclax.
It looks very likely I will switch from taking
Ibrutinib
to taking Venetoclax. While Venetoclax is a tablet, if I start it, apparently each week for the first 5 weeks, I will need to spend 48 hours in the hospital. This is to allow the medical staff to monitor my reaction to the Venetoclax.
Dym230109
in
CLL Support
4 years ago
A071402 Phase 3 clinical trial - Obinituzumab+Ibrutinib+Venetoclax
Last week since my liver markers were still OK, I was upped to 280mg of
Ibrutinib
daily. Tomorrow I am to go and have one more blood test. If the liver is still OK my
Ibrutinib
will be increased to 420mg of
Ibrutinib
daily, which is the amount prescribed in the trial.
Last week since my liver markers were still OK, I was upped to 280mg of
Ibrutinib
daily. Tomorrow I am to go and have one more blood test. If the liver is still OK my
Ibrutinib
will be increased to 420mg of
Ibrutinib
daily, which is the amount prescribed in the trial.
Iupiter
in
CLL Support
4 years ago
Cll improvement on Ibrutinib
I started
Ibrutinib
on Tuesday last week. I was curious how quickly to expect improvement. I can see that my spleen and 2 lumps are already smaller. And nausea building up. Any thoughts about it? Regards. Ta
I started
Ibrutinib
on Tuesday last week. I was curious how quickly to expect improvement. I can see that my spleen and 2 lumps are already smaller. And nausea building up. Any thoughts about it? Regards. Ta
Temida
in
CLL Support
4 years ago
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Painful lumps under the skin - Ibrutinib treatment
I just seen my haematologist and appears that the painful lumps that appeared 4 days after start of
Ibrutinib
were heamatomas. My numbers didn’t change to much but WCC DOUBLED from 100 to 200 000 after one week of treatment.
I just seen my haematologist and appears that the painful lumps that appeared 4 days after start of
Ibrutinib
were heamatomas. My numbers didn’t change to much but WCC DOUBLED from 100 to 200 000 after one week of treatment.
Temida
in
CLL Support
4 years ago
My 3 to 4 weeks on Ibrutinib
Hi all hope to find you well, now it seams that my side effects are very easy manageable, since last post i got tested for covid19 that came negative and I will be tested again on next Thursday because Monday and Tuesday I will get the fist doses of Retuximab I'm looking good like when I was 20 years
Hi all hope to find you well, now it seams that my side effects are very easy manageable, since last post i got tested for covid19 that came negative and I will be tested again on next Thursday because Monday and Tuesday I will get the fist doses of Retuximab I'm looking good like when I was 20 years
2017cll
in
CLL Support
4 years ago
Ibrutinb
Is all hair lost on
ibrutinib
Is all hair lost on
ibrutinib
Happydazs
in
CLL Support
4 years ago
A update with some concerns
Hi and thanks, now after 7 days I got another visit to the doctor and after I complain about some lumps that came after 6 days on
Ibrutinib
we send me to test again this time for LNH aggressive, I know this lumps are not related with CLL because they appear after most my lymph nodes got away and that
Hi and thanks, now after 7 days I got another visit to the doctor and after I complain about some lumps that came after 6 days on
Ibrutinib
we send me to test again this time for LNH aggressive, I know this lumps are not related with CLL because they appear after most my lymph nodes got away and that
2017cll
in
CLL Support
4 years ago
Prophylaxis While on Ibrutinib
Just one more question: Wondering if anyone is on any antiviral, antibacterial, or antifungal medication, while taking
ibrutinib
.
Just one more question: Wondering if anyone is on any antiviral, antibacterial, or antifungal medication, while taking
ibrutinib
.
Davidcara
in
CLL Support
4 years ago
Flair trial end after 6 years.
My husband has been on the Flair trial taking
Ibrutinib
after an initial round of Rituximab. His part in the trial has now finished after 6years. He has tolerated the
Ibrutinib
very well with very few problems. Bloods all good and MRD very low.
My husband has been on the Flair trial taking
Ibrutinib
after an initial round of Rituximab. His part in the trial has now finished after 6years. He has tolerated the
Ibrutinib
very well with very few problems. Bloods all good and MRD very low.
annsathome
in
CLL Support
4 years ago
Common flu
Can I take cold and flu tablets whilst taking
ibrutinib
?
Can I take cold and flu tablets whilst taking
ibrutinib
?
ANA4
in
CLL Support
4 years ago
Common cold
Can I take cold and flu tablets whilst taking
ibrutinib
?
Can I take cold and flu tablets whilst taking
ibrutinib
?
ANA4
in
CLL America Support
4 years ago
Skin Cancer and Surgery
Question: Why must I be off of
Ibrutinib
three days before, and three days after, surgery for skin cancer. Basal Cell on my nose ? Mohs Surgery
Question: Why must I be off of
Ibrutinib
three days before, and three days after, surgery for skin cancer. Basal Cell on my nose ? Mohs Surgery
Tapps
in
CLL Support
4 years ago
Do you stop Ibrutinib while treated for an infection ?
If you are currently on
Ibrutinib
, do you stop taking it while you are taking an antibiotic to fight an infection ? I am asking because
Ibrutinib
has a tendency to reduce the neutrophile count which, in turn, reduces patient's ability to fight infection.
If you are currently on
Ibrutinib
, do you stop taking it while you are taking an antibiotic to fight an infection ? I am asking because
Ibrutinib
has a tendency to reduce the neutrophile count which, in turn, reduces patient's ability to fight infection.
MikeOr
in
CLL Support
4 years ago
Richter Transformation - Update
I was taking
ibrutinib
when I was diagnosed with Ricther. I also want to tell you that within Richter's Transformation group on Facebook, there are many of us and there are currently several people in complete remission and no one has died yet. That means the new treatments work.
I was taking
ibrutinib
when I was diagnosed with Ricther. I also want to tell you that within Richter's Transformation group on Facebook, there are many of us and there are currently several people in complete remission and no one has died yet. That means the new treatments work.
Priss69
in
CLL Support
4 years ago
I'm new here. Anyone experiencing blood glucose elevated on low dose (70mg/daily) ibrutinib?
Diagnosed 4-2013 with CLL (trisomy 12). Started first line treatment on 420mg doses/day in 12-16 (white blood cells at 460,000) until extreme drug toxicity in 02-18. Hospitalized with pneumonia and survived. Off drug for two months, then titration dosages from 280, then 140 and finally 70mg / day. Blood
Diagnosed 4-2013 with CLL (trisomy 12). Started first line treatment on 420mg doses/day in 12-16 (white blood cells at 460,000) until extreme drug toxicity in 02-18. Hospitalized with pneumonia and survived. Off drug for two months, then titration dosages from 280, then 140 and finally 70mg / day. Blood
Buck1000
in
CLL Support
4 years ago
Non stop sneezing
After 8 months on /
Ibrutinib
I suddenly started sneezing up to 10 times at least on and off . I thaught maybe my cpap machine causing that or just a sinus issue happening . I havnt had sinus problems for 2 years and rarely have colds even though I’m supposed to be immune compromised.
After 8 months on /
Ibrutinib
I suddenly started sneezing up to 10 times at least on and off . I thaught maybe my cpap machine causing that or just a sinus issue happening . I havnt had sinus problems for 2 years and rarely have colds even though I’m supposed to be immune compromised.
Kmegood
in
CLL Support
3 years ago
Imbruvica, Ibrutinib in China
I can not find any information about
Ibrutinib
in China.
I can not find any information about
Ibrutinib
in China.
Green202
in
CLL Support
4 years ago
Adding Venetoclax to Ibrutinib
Any thoughts about adding Venetoclax to
ibrutinib
. Been on
ibrutinib
since May 2020, with a beautiful response. Thinking about my future and if it would be beneficial to discuss adding Venetoclax with my MD. I sense he would say not at this time, since I have done so well in the
ibrutinib
.
Any thoughts about adding Venetoclax to
ibrutinib
. Been on
ibrutinib
since May 2020, with a beautiful response. Thinking about my future and if it would be beneficial to discuss adding Venetoclax with my MD. I sense he would say not at this time, since I have done so well in the
ibrutinib
.
Davidcara
in
CLL Support
4 years ago
Vaccines
Would appreciate thoughts: On
ibrutinib
, thinking about asking MD for Shingrix vaccination. I see second Shingrix vaccine should be given 2 to 6 months after 1st vaccine. Wondering if it is advantageous to take 2nd dose closer to 2 months or 6 months after 1st vaccine.
Would appreciate thoughts: On
ibrutinib
, thinking about asking MD for Shingrix vaccination. I see second Shingrix vaccine should be given 2 to 6 months after 1st vaccine. Wondering if it is advantageous to take 2nd dose closer to 2 months or 6 months after 1st vaccine.
Davidcara
in
CLL Support
4 years ago
Panniculitis on Ibrutinib
Has anyone developed Panniculitis while on
Ibrutinib
? Red hard and painful bumps under the skin?
Has anyone developed Panniculitis while on
Ibrutinib
? Red hard and painful bumps under the skin?
harley2018
in
CLL Support
4 years ago
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