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Experiences with
Ibrutinib
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COVID antibodys
There were 2 people on the site where I did not get there names,but after 2 vaccinations they still had no antibodies.They both said on there 3rd booster jab that they did have antibodies.Could they please say is both were on W W or were they on treatment.I thought that treatment ie
ibrutinib
destroyed
There were 2 people on the site where I did not get there names,but after 2 vaccinations they still had no antibodies.They both said on there 3rd booster jab that they did have antibodies.Could they please say is both were on W W or were they on treatment.I thought that treatment ie
ibrutinib
destroyed
studi
in
CLL Support
3 years ago
Rib Pain associated with CLL or Ibrutinib therapy?
I am experiencing pain in my rib cage which has persisted for about 3 weeks. It was localized at first but seems more diffuse now. I am 88 years of age and been treated with Imbruvica 140mg/day for 3 years with good blood results. Anemia gone, white count improving and platelets improving but low.
I am experiencing pain in my rib cage which has persisted for about 3 weeks. It was localized at first but seems more diffuse now. I am 88 years of age and been treated with Imbruvica 140mg/day for 3 years with good blood results. Anemia gone, white count improving and platelets improving but low.
desti
in
CLL Support
3 years ago
Withdrawl symptoms
What experiences do you have with different drugs I know
Ibrutinib
can cause this once you are off the drug. Would like some Feedback
What experiences do you have with different drugs I know
Ibrutinib
can cause this once you are off the drug. Would like some Feedback
mickimauser11
in
CLL Support
3 years ago
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Can Ibrutinib be Paused 1 Year for pregnancy ?
is it possible to Pause
Ibrutinib
for a year to try getting pregnant or not? Did it Happen before for someone my age?
is it possible to Pause
Ibrutinib
for a year to try getting pregnant or not? Did it Happen before for someone my age?
Sally_LuLi
in
CLL Support
3 years ago
Booster vaccine
Is there any protocol to be taken when getting the booster vaccine eg. discontinuing
Ibrutinib
prior to getting the booster and waiting a few days after before starting Meds again?
Is there any protocol to be taken when getting the booster vaccine eg. discontinuing
Ibrutinib
prior to getting the booster and waiting a few days after before starting Meds again?
desti
in
CLL Support
3 years ago
Stop Ibrutinib prior to Covid booster?
Anyone have guidance regarding temporary cessation of
Ibrutinib
prior to getting a Covid booster?
Anyone have guidance regarding temporary cessation of
Ibrutinib
prior to getting a Covid booster?
Ngtinfu
in
CLL Support
3 years ago
Ibrutinib and the third Phizer shot?
Asking: is the CLL research suggesting that
Ibrutinib
should be stopped for a bit, before and after the Covid Vaccine ? Wondering? Thank you :)
Asking: is the CLL research suggesting that
Ibrutinib
should be stopped for a bit, before and after the Covid Vaccine ? Wondering? Thank you :)
Tapps
in
CLL Support
3 years ago
Ibrutinib
Hello I was diagnosed in 2016 and was ww until 2019 when I had chemo until now My oncologist wants me to start
ibrutinib
now as my general condition has deteriorated I’m 76 and my numbers are moving into not so good What I read online about this drug is all over the map It’s either wonderful or
Hello I was diagnosed in 2016 and was ww until 2019 when I had chemo until now My oncologist wants me to start
ibrutinib
now as my general condition has deteriorated I’m 76 and my numbers are moving into not so good What I read online about this drug is all over the map It’s either wonderful or
pughn
in
CLL Support
3 years ago
Richter’s Transformation - updated
When treated with treatments like
Ibrutinib
or Venetoclax that act so fast, the CLL goes away and that's when the RT comes out aggressively.
When treated with treatments like
Ibrutinib
or Venetoclax that act so fast, the CLL goes away and that's when the RT comes out aggressively.
Priss69
in
CLL Support
3 years ago
Does COVID vaccine work for those taking Ibrutinib
Has anybody else discovered this and is there a solution for us on
Ibrutinib
. Richard
Has anybody else discovered this and is there a solution for us on
Ibrutinib
. Richard
Chamberlayne
in
CLL Support
3 years ago
Skin barnacles ??
CLL and Bladder cancer , past used
Ibrutinib
, Acalabrutinib and Gyzava … all worked in controlling CLL … BCG infusions for Bladder cancer working , I think…. I have developed what Dermatologist calls .. skin barnacles … she says it from past sun exposure… Anyone have this problem ??
CLL and Bladder cancer , past used
Ibrutinib
, Acalabrutinib and Gyzava … all worked in controlling CLL … BCG infusions for Bladder cancer working , I think…. I have developed what Dermatologist calls .. skin barnacles … she says it from past sun exposure… Anyone have this problem ??
fish61
in
CLL Support
3 years ago
Ibrutinib and hypoglycemia
has anyone on
Ibrutinib
experienced hypoglycemia as a side effect? In case I need to go off
Ibrutinib
, what is now the equivalent drug, with equally low side effects, etc.? I'm not up on what's new.
has anyone on
Ibrutinib
experienced hypoglycemia as a side effect? In case I need to go off
Ibrutinib
, what is now the equivalent drug, with equally low side effects, etc.? I'm not up on what's new.
ElMaga
in
CLL Support
3 years ago
chronic sinus
cll for 5 yrs now been on
ibrutinib
for 3 years . for the past 12 months have had very thick dark snot that got so bad had to have a sinus operation, which has helpt with my breathing, but have post nasal drip all the time, and is thick yellow has anyone else had this problem
cll for 5 yrs now been on
ibrutinib
for 3 years . for the past 12 months have had very thick dark snot that got so bad had to have a sinus operation, which has helpt with my breathing, but have post nasal drip all the time, and is thick yellow has anyone else had this problem
bali103
in
CLL Support
3 years ago
Suspending Ibrutinib
I am in the UK and Ipresently take
Ibrutinib
and Venetoclax as treatment for CLL however I have received a call from my hematologist saying that because I am on medication for blood pressure I should cease taking the
Ibrutinib
and wait for further updates. Has anyone else received a call?
I am in the UK and Ipresently take
Ibrutinib
and Venetoclax as treatment for CLL however I have received a call from my hematologist saying that because I am on medication for blood pressure I should cease taking the
Ibrutinib
and wait for further updates. Has anyone else received a call?
GreyB
in
CLL Support
3 years ago
BUPA's get-out clause for cancer
Bupa sees
Ibrutinib
as a one-off yearly treatment, rather than a single claim that simple is ongoing. So my future with Bupa is to simply be priced out of treatment. So much for Bupa's cancer promise!
Bupa sees
Ibrutinib
as a one-off yearly treatment, rather than a single claim that simple is ongoing. So my future with Bupa is to simply be priced out of treatment. So much for Bupa's cancer promise!
MovingForward4423
in
CLL Support
3 years ago
Do We Stay On Ibrutinib Forever?
From reading this other new post today, it seems every person replying mentions having been on
Ibrutinib
between three and five years currently. Some of those mentioned reaching MRD a year or so ago.
From reading this other new post today, it seems every person replying mentions having been on
Ibrutinib
between three and five years currently. Some of those mentioned reaching MRD a year or so ago.
wizzard166
in
CLL Support
3 years ago
Frontline treatment of Chronic Lymphocytic Leukemia (CLL/SLL) in 2021
Given high response rates with
ibrutinib
, acalabrutinib, and venetoclax, there is no one clearly superior strategy or one-size-fits-all approach.
Given high response rates with
ibrutinib
, acalabrutinib, and venetoclax, there is no one clearly superior strategy or one-size-fits-all approach.
CLLerinOz
Volunteer
in
CLL Support
3 years ago
How long can you take Ibrutinib for?
Hi all, I have just started treatment of
Ibrutinib
(4 months) and wondering generally how long people are on this for? I know this is a ‘how long is a piece of string’ kinda question, but stupidly went onto internet and it said median length of time was about 4 years!
Hi all, I have just started treatment of
Ibrutinib
(4 months) and wondering generally how long people are on this for? I know this is a ‘how long is a piece of string’ kinda question, but stupidly went onto internet and it said median length of time was about 4 years!
Suzanne1970
in
CLL Support
3 years ago
Imbruvica ibrutinib & ACE inhibitors
I have just been told to stop my ramipril due to an interaction with
ibrutinib
having the risk of sudden cardiac death! I have been taking
ibrutinib
daily for 3/4 years with ramipril most of the time and obviously have not had this reaction so it may be very rare or not apply in my case.
I have just been told to stop my ramipril due to an interaction with
ibrutinib
having the risk of sudden cardiac death! I have been taking
ibrutinib
daily for 3/4 years with ramipril most of the time and obviously have not had this reaction so it may be very rare or not apply in my case.
sphexx
in
CLL Support
3 years ago
Treatment and ocular lymphocytic leukemia
I didnt know then that there is ocular CLL and that it was also treated with
Ibrutinib
. No cancercells were detected and I went Off drugs. My Eyes are back to normal. Sources sciencedirect.com Dr.
I didnt know then that there is ocular CLL and that it was also treated with
Ibrutinib
. No cancercells were detected and I went Off drugs. My Eyes are back to normal. Sources sciencedirect.com Dr.
mickimauser11
in
CLL Support
3 years ago
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