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Ibrutinib
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Prolonged medication holiday
Was on
ibrutinib
followed by zanubrutinib continuously for 24 months. Muted, 13q, my oncologist took me off of zanubrutinib when I tested positive for covid on July 21, 2022. Have been off ever since, with normal labs and feeling okay.
Was on
ibrutinib
followed by zanubrutinib continuously for 24 months. Muted, 13q, my oncologist took me off of zanubrutinib when I tested positive for covid on July 21, 2022. Have been off ever since, with normal labs and feeling okay.
Davidcara
in
CLL Support
1 year ago
Latest Fish test results??
Is this normal to have after 2 treatments, FCR and
Ibrutinib
. I am being referred for a clinical trial. Thanks, Jack
Is this normal to have after 2 treatments, FCR and
Ibrutinib
. I am being referred for a clinical trial. Thanks, Jack
rcusher
in
CLL Support
2 years ago
Ibrutinib
After 3 years of using 3
ibrutinib
420mg capsules per day, practically no side effects. They lowered my dose to 2 capsules of
ibrutinib
280mg and it works well in my blood tests. but I have the adverse effects that I did not have with the 3 capsules. cramps in the fingers. cough.
After 3 years of using 3
ibrutinib
420mg capsules per day, practically no side effects. They lowered my dose to 2 capsules of
ibrutinib
280mg and it works well in my blood tests. but I have the adverse effects that I did not have with the 3 capsules. cramps in the fingers. cough.
Bixilon
in
CLL Support
2 years ago
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Itchy scalp and dry cracking finger nails
I have been on
ibrutinib
for about 8 months . has anyone had these problems ? any solutions? Thank you .
I have been on
ibrutinib
for about 8 months . has anyone had these problems ? any solutions? Thank you .
Dyba
in
CLL Support
2 years ago
Omega 3
My husband has CLL and has been taking
Ibrutinib
for 3-years. I just wondered if Omega 3 is something you can take with CLL or should it be avoided? I have read a lot about it’s benefits, but not sure if it’s suitable for people with CLL. Many thanks
My husband has CLL and has been taking
Ibrutinib
for 3-years. I just wondered if Omega 3 is something you can take with CLL or should it be avoided? I have read a lot about it’s benefits, but not sure if it’s suitable for people with CLL. Many thanks
shellsb
in
CLL Support
2 years ago
FLAIR trial. What comes next?
If you were on
ibrutinib
successfully were you able to continue taking it? Starting to feel a little anxious about this so any input will be most appreciated. Thank you.
If you were on
ibrutinib
successfully were you able to continue taking it? Starting to feel a little anxious about this so any input will be most appreciated. Thank you.
Flabal
in
CLL Support
2 years ago
Weight Loss with VenClexta
I have been on 140mg of
Ibrutinib
daily for the last 8 years. 8 months ago my Dr. added VenClexta to my regimen at 400mg daily. I initially had a hard time with nausea and vomiting daily. I now have that mostly under control with a rare episode of vomitting.
I have been on 140mg of
Ibrutinib
daily for the last 8 years. 8 months ago my Dr. added VenClexta to my regimen at 400mg daily. I initially had a hard time with nausea and vomiting daily. I now have that mostly under control with a rare episode of vomitting.
999990Bruno
in
CLL Support
2 years ago
Calquence + chest pain
I’ve already tried
Ibrutinib
, so hoping this drug works for some time without compromising my health!
I’ve already tried
Ibrutinib
, so hoping this drug works for some time without compromising my health!
maresba14
in
CLL Support
1 year ago
AFib Concerns
Been on
Ibrutinib
for 4 years and now diagnosed with Afib Anyone else have this happen. I’m quite concerned
Been on
Ibrutinib
for 4 years and now diagnosed with Afib Anyone else have this happen. I’m quite concerned
P444ete
in
CLL Support
2 years ago
On Treatment but Still in Pain
I was on
ibrutinib
for 1 year before discontinuing due to cardiac issues. I switched to acalabrutinib and have been on that for 9 months now.
I was on
ibrutinib
for 1 year before discontinuing due to cardiac issues. I switched to acalabrutinib and have been on that for 9 months now.
Amberesque
in
CLL Support
2 years ago
All good things must come to an end
I have been on
Ibrutinib
for almost 5 years now with great results. I have Trisomy 12 and I am 76 years old. Any thoughts. Jack
I have been on
Ibrutinib
for almost 5 years now with great results. I have Trisomy 12 and I am 76 years old. Any thoughts. Jack
rcusher
in
CLL Support
2 years ago
Cardiotoxicity in patients treated with acalabrutinib
[i]"In conclusion, [/i][u][i]it is vital that patients and caregivers be aware of the severe cardiotoxicity associated with
ibrutinib
and also with the second-generation BTKi acalabrutinib.
[i]"In conclusion, [/i][u][i]it is vital that patients and caregivers be aware of the severe cardiotoxicity associated with
ibrutinib
and also with the second-generation BTKi acalabrutinib.
CLLerinOz
Administrator
in
CLL Support
2 years ago
starting Ibrutinib today
I'm about to start
Ibrutinib
today (3 tablets x 140mg) I'm hoping my haematologist will reduce that after a while? I've read through the pamphlets etc but thought I would ask this lovely community what to expect and any tips with food, drink, exercise I (see weight gain is pretty common).
I'm about to start
Ibrutinib
today (3 tablets x 140mg) I'm hoping my haematologist will reduce that after a while? I've read through the pamphlets etc but thought I would ask this lovely community what to expect and any tips with food, drink, exercise I (see weight gain is pretty common).
fugazi
in
CLL Support
2 years ago
Itchy skin on Ibrutinib
Has anyone had good luck with terrible itchy skin outbreak: Does triamcinolone acetonide help?
Has anyone had good luck with terrible itchy skin outbreak: Does triamcinolone acetonide help?
Tapps
in
CLL Support
2 years ago
CLL Society interview - Dr. Shahzad Mustafa on What it Means to be Immunocompromised for Patients with CLL/SLL January 13, 2023
Some treatments, such as
ibrutinib
, can raise T cell numbers. - Are all patients with CLL/SLL immune deficient? Yes, even patients who have just been diagnosed and never received treatment have some degree of immune dysfunction.
Some treatments, such as
ibrutinib
, can raise T cell numbers. - Are all patients with CLL/SLL immune deficient? Yes, even patients who have just been diagnosed and never received treatment have some degree of immune dysfunction.
lankisterguy
Volunteer
in
CLL Support
1 year ago
Skin Bruising: Itching
Doctor said
Ibrutinib
was causing the bruising. This is the same Doctor that wouldn’t OK the six month shots of Evusheld? Wondering about him? Any suggestions on the itching? Thanks
Doctor said
Ibrutinib
was causing the bruising. This is the same Doctor that wouldn’t OK the six month shots of Evusheld? Wondering about him? Any suggestions on the itching? Thanks
Tapps
in
CLL Support
2 years ago
NUREX - 2127 ONE YEAR ANNIVERSARY STARTING CYCLE 14
Ibrutinib
3 years developed C-481 resistance 3. Venetoclax 18 months never really worked for me, didn't like hospital ramp-up 4. Loxo-305 20 months CR then I developed a mutation that worked it's way around the drug. My favorite treatment. 5. NX-2127 12 months and counting.
Ibrutinib
3 years developed C-481 resistance 3. Venetoclax 18 months never really worked for me, didn't like hospital ramp-up 4. Loxo-305 20 months CR then I developed a mutation that worked it's way around the drug. My favorite treatment. 5. NX-2127 12 months and counting.
steve5441
in
CLL Support
2 years ago
Immuncompromised after Fixed Duration Therapy?
I am currently four years into
Ibrutinib
with successful results and only a few nagging side effects.
I am currently four years into
Ibrutinib
with successful results and only a few nagging side effects.
hhk50
in
CLL Support
2 years ago
Interaction of ibrutinib with pantoprazole…. ????
Hi,, I have been taking
ibrutinib
for about 40 days, I have had stomach reflux and indigestion for about a week. The next visit with my oncologist hematologist is in two weeks.. Can I take pentoprazole and it does not interfere with
ibrutinib
?
Hi,, I have been taking
ibrutinib
for about 40 days, I have had stomach reflux and indigestion for about a week. The next visit with my oncologist hematologist is in two weeks.. Can I take pentoprazole and it does not interfere with
ibrutinib
?
ava1967ir
in
CLL Support
2 years ago
What is next if Acalabrutinib AFIB wont stop?
My heart wasn't in the best of shape (2 valves replaced) to start with when I started on
Ibrutinib
.
Ibrutinib
really exacerbated my AFIB, but after a year of Ibruitinb, I was off all medication for almost 3 years......until the CLL started to get more aggressive.
My heart wasn't in the best of shape (2 valves replaced) to start with when I started on
Ibrutinib
.
Ibrutinib
really exacerbated my AFIB, but after a year of Ibruitinb, I was off all medication for almost 3 years......until the CLL started to get more aggressive.
barger1951
in
CLL Support
2 years ago
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