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Hypomyelination and congenital cataract
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carbo/gem
I was diagnosed high grade stage 3c peritoneal in Autumn 2021, I have had carbo/taxol/avastin, debulking surgery. Followed by avastin alone which did not work, then carbo/caelyx which worked very well. I have had just over a year on Niraparib but sadly it is no longer working. I am due to start
I was diagnosed high grade stage 3c peritoneal in Autumn 2021, I have had carbo/taxol/avastin, debulking surgery. Followed by avastin alone which did not work, then carbo/caelyx which worked very well. I have had just over a year on Niraparib but sadly it is no longer working. I am due to start
NewtonEmma1900
in
My Ovacome
2 months ago
Thyroid Cancer
I had thyroid cancer so had mine removed. My food only goes down my right side of my pipe and my breathing pipe was damaged as well. I seem to get a lot of chest infections on my left side. I have a horse voice all the time. I have nodules on my lungs. I have other medical issues. I suffer from depression
I had thyroid cancer so had mine removed. My food only goes down my right side of my pipe and my breathing pipe was damaged as well. I seem to get a lot of chest infections on my left side. I have a horse voice all the time. I have nodules on my lungs. I have other medical issues. I suffer from depression
Germany1924
in
Thyroid UK
6 months ago
Has anyone tried pulsed electric magnetic field therapy for PMR relief?
I am having trouble tapering. Can't seem to get much below 15 mg; went down to 10 mg but still having some pain in the mornings. So increased dosage on advice of rheumy. At this rate, I'll be on prednisone for a long, long time. So wondering if anyone has tried alternative treatments to try to get
I am having trouble tapering. Can't seem to get much below 15 mg; went down to 10 mg but still having some pain in the mornings. So increased dosage on advice of rheumy. At this rate, I'll be on prednisone for a long, long time. So wondering if anyone has tried alternative treatments to try to get
lsplumb
in
PMRGCAuk
2 months ago
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virtual appointment
Hi, I’m hoping and would be grateful for any advice from this knowledgeable group.. I’m due to have a virtual 6 monthly review tomorrow following blood tests and US. I have been diagnosed with cryptogenic cirrhosis with no known cause. This was following a fibroscan result of 17kpa. When I had the
Hi, I’m hoping and would be grateful for any advice from this knowledgeable group.. I’m due to have a virtual 6 monthly review tomorrow following blood tests and US. I have been diagnosed with cryptogenic cirrhosis with no known cause. This was following a fibroscan result of 17kpa. When I had the
0range5520
in
British Liver Trust
2 months ago
Fallout from PET/CT Scan
My PET/CT scan on November 1 detected progression of metastatic prostate cancer while on Lupron. This made my cancer castrate resistant and I am on Abiraterone 1000 mg + Prednisone 5 mg. The PET/CT report also stated severe coronary artery calcification. Yesterday I had CT scan of the heart. The report
My PET/CT scan on November 1 detected progression of metastatic prostate cancer while on Lupron. This made my cancer castrate resistant and I am on Abiraterone 1000 mg + Prednisone 5 mg. The PET/CT report also stated severe coronary artery calcification. Yesterday I had CT scan of the heart. The report
dac500
in
Advanced Prostate Cancer
6 months ago
Maintenance Chemo
I was diagnosed with stage 2 endometrioid cancer five years ago. I went through chemo treatments: carboplatin and taxol. I even had IP belly washes of taxol. They are not doing these any longer in the US. Sadly, my cancer reoccurred six months ago. I was cancer free and in remission for five years. The
I was diagnosed with stage 2 endometrioid cancer five years ago. I went through chemo treatments: carboplatin and taxol. I even had IP belly washes of taxol. They are not doing these any longer in the US. Sadly, my cancer reoccurred six months ago. I was cancer free and in remission for five years. The
ARamage
in
My Ovacome
5 months ago
Elevated CA125 from 11 8 months ago to 93.
Has anyone experience their CA, 125 elevated to 93? I was diagnosed five years ago and was in remission until two years ago. It came back a swollen lymph node above my diaphragm. Now I’m very concerned since the last couple of months my count has gone up significantly. My oncologist has done, pets,
Has anyone experience their CA, 125 elevated to 93? I was diagnosed five years ago and was in remission until two years ago. It came back a swollen lymph node above my diaphragm. Now I’m very concerned since the last couple of months my count has gone up significantly. My oncologist has done, pets,
marmay88o
in
My Ovacome
6 months ago
Lap V Lap Hysterectomy
At the risk of summoning a barrage of 'hysterectomies are evil' replies, I wondered if anyone can help me as I am totally lost for what to do next. I am 41 and I have deep-infiltrating Endo, as many of you do I'm sure. Today I went to see an Endo specialist after an 18 month wait as he is supposed
At the risk of summoning a barrage of 'hysterectomies are evil' replies, I wondered if anyone can help me as I am totally lost for what to do next. I am 41 and I have deep-infiltrating Endo, as many of you do I'm sure. Today I went to see an Endo specialist after an 18 month wait as he is supposed
Guineafowlrach
in
Endometriosis UK
6 months ago
Iron and ferritin advice requested
I have recently had a full set of iron and ferritin blood tests completed and would like some advice on the numbers, please (prior to these tests, only my ferritin levels have been tested). They result from early morning fasting with no iron supplements for one week. My serum ferritin was 160 µg/L.
I have recently had a full set of iron and ferritin blood tests completed and would like some advice on the numbers, please (prior to these tests, only my ferritin levels have been tested). They result from early morning fasting with no iron supplements for one week. My serum ferritin was 160 µg/L.
MrVimes
in
Restless Legs Syndrome
3 months ago
Another question: did anyone have all their joints crunching, clicking, and sore when their b12 dropped into deficiency range?
Another question: did anyone have all their joints crunching, clicking, and sore when their b12 dropped into deficiency range? My joints in my spine, and hips, shoulder, especially. They click and crunch since I dipped into serious neuro symptoms when b12 likely tanked last September. I also had genitourinary
Another question: did anyone have all their joints crunching, clicking, and sore when their b12 dropped into deficiency range? My joints in my spine, and hips, shoulder, especially. They click and crunch since I dipped into serious neuro symptoms when b12 likely tanked last September. I also had genitourinary
Suffering_sunny
in
Pernicious Anaemia Society
3 months ago
portal vein pressure test
Hi everyone. I havent posted for a few weeks . my partner Nick has now had all his tests, scans and a biopsy on his hhc tumor to confirm that it is actually HCC. He has been told that he cannot have ablation, which is what he wanted to have, because of the position of the tumor. He may possibly be
Hi everyone. I havent posted for a few weeks . my partner Nick has now had all his tests, scans and a biopsy on his hhc tumor to confirm that it is actually HCC. He has been told that he cannot have ablation, which is what he wanted to have, because of the position of the tumor. He may possibly be
pussycat66
in
British Liver Trust
6 months ago
Bladder Cancer Another Update.
I went for my 11th BCG treatment at hospital this afternoon, am feeling tired and fed up, Eye injection Monday - Today 11am ECG . 2PM this afternoon I went for BCG Treatment number 12 of 15. So got to hospital South end, nowhere to park, went to main North end - A queue for no parking space - 10
I went for my 11th BCG treatment at hospital this afternoon, am feeling tired and fed up, Eye injection Monday - Today 11am ECG . 2PM this afternoon I went for BCG Treatment number 12 of 15. So got to hospital South end, nowhere to park, went to main North end - A queue for no parking space - 10
Ern007
in
Lung Conditions Community Forum
6 months ago
thanks
thanks for all your replies. so much more than i’ve been dreading and thinking. doc and dentist got me worried sending me for the biopsy sans i saw the word cancer on the sheet too. i sat there in shock. but all your problems sound so similar to each other
thanks for all your replies. so much more than i’ve been dreading and thinking. doc and dentist got me worried sending me for the biopsy sans i saw the word cancer on the sheet too. i sat there in shock. but all your problems sound so similar to each other
Junny123
in
Pain Concern
6 months ago
IBS. Possible internal bowel prolapse,inturrssusception or bowel / bladder intracele
hi, I’m new here and this is my first post( spend a lot of time on fibro & auto immune site!) I’m having an awful time of it bowel wise atm… and for som 24 months or more but so much so that I’ve actually paid and seen a private colorectal surgeon( female) I have this weird awful sensation of constantly
hi, I’m new here and this is my first post( spend a lot of time on fibro & auto immune site!) I’m having an awful time of it bowel wise atm… and for som 24 months or more but so much so that I’ve actually paid and seen a private colorectal surgeon( female) I have this weird awful sensation of constantly
Beakybird58
in
IBS Network
3 months ago
4 years down the road
It is now 4yrs since by MRI, I was diagnosed with HCC and Prostate Cancer (unrelated)Since that time the prostate cancer has been Controlled by Zolodex hormone suppressant. In February 2020 a large tumour was removed from my liver by open resection. Later in the year it returned and was treated by ablation
It is now 4yrs since by MRI, I was diagnosed with HCC and Prostate Cancer (unrelated)Since that time the prostate cancer has been Controlled by Zolodex hormone suppressant. In February 2020 a large tumour was removed from my liver by open resection. Later in the year it returned and was treated by ablation
Churchill2020
in
Blue Faery Liver Cancer
6 months ago
Strange sensation
Hi guys.I've been having some constipation and gas issues. I read massaging the abdomen can be helpful, so I did. When I got around the hip area I felt sharp pains , very uncomfortable , on both sides. It could possibly be gas ? Just thought I'd ask if anyone has felt this type of pain. The massage
Hi guys.I've been having some constipation and gas issues. I read massaging the abdomen can be helpful, so I did. When I got around the hip area I felt sharp pains , very uncomfortable , on both sides. It could possibly be gas ? Just thought I'd ask if anyone has felt this type of pain. The massage
Gizmo6
in
IBS Network
3 months ago
Ferritin
I know that Ferritin is stored iron but I’m a bit confused about how Ferritin and iron correlate. Is it possible to have Ferritin in range but low iron - and what would be considered optimal Ferritin? My level has just been tested and has gone down from a stable 88 to 34 I’m sorry to be so dumb
I know that Ferritin is stored iron but I’m a bit confused about how Ferritin and iron correlate. Is it possible to have Ferritin in range but low iron - and what would be considered optimal Ferritin? My level has just been tested and has gone down from a stable 88 to 34 I’m sorry to be so dumb
Hidden
in
Thyroid UK
3 months ago
Neurofibroma
Not thyroid related, but has anyone experienced under skin neurofibroma? Trying to figure out whether to have it removed or not. No pain, but wondering if it shall get bigger in size.
Not thyroid related, but has anyone experienced under skin neurofibroma? Trying to figure out whether to have it removed or not. No pain, but wondering if it shall get bigger in size.
Huskyy
in
Thyroid UK
3 months ago
Feeling like Chemo is too Hard
Hi. I was diagnosed 3B HG in August 2018, had surgery, frontline, first recurrence ( carbo and caelyx/doxil), 3 years of Olaparib, one year on nothing and now am having carboplatin alone for second recurrence. My oncologist said this would be relatively easy. Also I haven’t had some of the worst complications
Hi. I was diagnosed 3B HG in August 2018, had surgery, frontline, first recurrence ( carbo and caelyx/doxil), 3 years of Olaparib, one year on nothing and now am having carboplatin alone for second recurrence. My oncologist said this would be relatively easy. Also I haven’t had some of the worst complications
delia2
in
My Ovacome
3 months ago
HT weight gain
My husband will be starting hormone therapy <HT> prior to radiation treatment <RT>.The weight gain associated with HT is a concern. Any suggestions? Any medication available to assist with weight loss during HT? Inquisitive One
My husband will be starting hormone therapy <HT> prior to radiation treatment <RT>.The weight gain associated with HT is a concern. Any suggestions? Any medication available to assist with weight loss during HT? Inquisitive One
Inquisitive_one
in
Advanced Prostate Cancer
6 months ago
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