Search
Search
About
Log in
Join
Experiences with
Hydroxycarbamide
Posts
Communities
1,134 public posts
Filter results
Hydroxycarbamide
Hello I’m taking
Hydroxycarbamide
500mg daily for the last 3 years for ET jak2 positive. Yesterday 4 of my fingernails came away from the skin bed…… so sore and painful. I have asked Doc Google who says this can be caused by long term chemotherapy medication.
Hello I’m taking
Hydroxycarbamide
500mg daily for the last 3 years for ET jak2 positive. Yesterday 4 of my fingernails came away from the skin bed…… so sore and painful. I have asked Doc Google who says this can be caused by long term chemotherapy medication.
YBSx
in
MPN Voice
12 days ago
Hydroxycarbamide
Has anyone experienced similar feeling and could the
Hydroxycarbamide
be a possible cause after 6 years? Kind regards
Has anyone experienced similar feeling and could the
Hydroxycarbamide
be a possible cause after 6 years? Kind regards
Edinburgh1953
in
MPN Voice
22 days ago
medication choices
After complaining about feeling constant headaches, fatigue and generally feeling very unwell, my
hydroxycarbamide
was reduced to one every other day The day after not taking
hydroxycarbamide
my symptoms reduce a little bit, but then the day after taking
hydroxycarbamide
my symptoms come back with
After complaining about feeling constant headaches, fatigue and generally feeling very unwell, my
hydroxycarbamide
was reduced to one every other day The day after not taking
hydroxycarbamide
my symptoms reduce a little bit, but then the day after taking
hydroxycarbamide
my symptoms come back with
Greengolfer
in
MPN Voice
2 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Treatment Change, question
I'm in the process in changing my medication from
hydroxycarbamide
to Pegasys. I'm currently on both whilst still taking the
hydroxycarbamide
I am introducing the interferon at 45mg every 2 weeks, for 8 weeks, I'm into my 7th week, so far so good.
I'm in the process in changing my medication from
hydroxycarbamide
to Pegasys. I'm currently on both whilst still taking the
hydroxycarbamide
I am introducing the interferon at 45mg every 2 weeks, for 8 weeks, I'm into my 7th week, so far so good.
Swim360
in
MPN Voice
30 days ago
Hydroxycarbamide Dose
Thank you to every one that replied with help and advice regarding my question about the dose increase , it’s always so very helpful to ask questions on here and get the answers from you all with your own experiences. I am very grateful and it’s much appreciated . I wish you all the very best on your
Thank you to every one that replied with help and advice regarding my question about the dose increase , it’s always so very helpful to ask questions on here and get the answers from you all with your own experiences. I am very grateful and it’s much appreciated . I wish you all the very best on your
Yoganana1
in
MPN Voice
20 days ago
Hydroxycarbamide Dose
I am just wondering if anyone else has experienced Hydroxy not working as well after a time? I have been only taking it for 2 years now and all seems to have been going well until a couple of months ago when my platelets started to rise again. I have had another visit to consultant today and they are
I am just wondering if anyone else has experienced Hydroxy not working as well after a time? I have been only taking it for 2 years now and all seems to have been going well until a couple of months ago when my platelets started to rise again. I have had another visit to consultant today and they are
Yoganana1
in
MPN Voice
1 month ago
Hydroxycarbamide
hello everyone I have ET JAK2 positive and take
Hydroxycarbamide
. I take this in the evening. My haematologist nurse has informed me this should be taken in the morning. What time of day do you take your. I understood that the evening is better so any affects are while you sleep.
hello everyone I have ET JAK2 positive and take
Hydroxycarbamide
. I take this in the evening. My haematologist nurse has informed me this should be taken in the morning. What time of day do you take your. I understood that the evening is better so any affects are while you sleep.
YBSx
in
MPN Voice
4 months ago
malaria
Unfortunately I cannot help although I have taken anti malaria pills in the past it was before I was on
hydroxycarbamide
Unfortunately I cannot help although I have taken anti malaria pills in the past it was before I was on
hydroxycarbamide
grandpa101
in
MPN Voice
26 days ago
Sore mouth
I am currently on 1000 mg of
hydroxycarbamide
daily. I have been experiencing a very sore mouth and tongue which is making eating and drinking uncomfortable.
I am currently on 1000 mg of
hydroxycarbamide
daily. I have been experiencing a very sore mouth and tongue which is making eating and drinking uncomfortable.
Lilbert
in
MPN Voice
3 months ago
Malaria tablets
Am on
hydroxycarbamide
and daily aspirin with a diagnosis of ET. Has anyone taken malaria tablets with such a condition? TIA.
Am on
hydroxycarbamide
and daily aspirin with a diagnosis of ET. Has anyone taken malaria tablets with such a condition? TIA.
SazzaC
in
MPN Voice
27 days ago
Dizziness Nausea
Have PV and been on
Hydroxycarbamide
since 2021 and tolerated well. Last few month have dizziness and Nausea on and off and not good. prescribed Domperidone. Consultant says nothing to do with
Hydroxycarbamide
and see GP. GP says all OK. Please any advice
Have PV and been on
Hydroxycarbamide
since 2021 and tolerated well. Last few month have dizziness and Nausea on and off and not good. prescribed Domperidone. Consultant says nothing to do with
Hydroxycarbamide
and see GP. GP says all OK. Please any advice
Paraic2021
in
MPN Voice
5 months ago
gastroscopy
Im anxious to know uf any member of the forum has had a Gastroscopy while taking
Hydroxycarbamide
and Xralto ( blood thinner) . Thank you
Im anxious to know uf any member of the forum has had a Gastroscopy while taking
Hydroxycarbamide
and Xralto ( blood thinner) . Thank you
Kilmichael
in
MPN Voice
4 months ago
Improvement
I immediately had my
Hydroxycarbamide
increased and my aspirin changed to Clopidogrel and now 4 weeks later my platelet count is 406. What happens now. Do I just continue taking the
Hydroxycarbamide
for the rest of my Life?
I immediately had my
Hydroxycarbamide
increased and my aspirin changed to Clopidogrel and now 4 weeks later my platelet count is 406. What happens now. Do I just continue taking the
Hydroxycarbamide
for the rest of my Life?
ArchieCatPurr
in
MPN Voice
4 months ago
I need advice about taking Hydroxycarbamide
I’m worried about starting my new meds and wondered how anyone taking
Hydroxycarbamide
has managed with side effects.
I’m worried about starting my new meds and wondered how anyone taking
Hydroxycarbamide
has managed with side effects.
Zoebowie
in
MPN Voice
3 months ago
Frequent styes
Could this be a side effect of ET or
Hydroxycarbamide
?
Could this be a side effect of ET or
Hydroxycarbamide
?
Pippapot
in
MPN Voice
18 days ago
Post ET MF - Advice Please
He then started taking
Hydroxycarbamide
, but he didn't tolerate it well so was switched to Anegrelide, which suited him well for many years. However, several years ago we were told his condition had progressed to MF, and his consultant put him back on
Hydroxycarbamide
.
He then started taking
Hydroxycarbamide
, but he didn't tolerate it well so was switched to Anegrelide, which suited him well for many years. However, several years ago we were told his condition had progressed to MF, and his consultant put him back on
Hydroxycarbamide
.
moongazer100
in
MPN Voice
2 months ago
Medical exemption certificate
I receive my
hydroxycarbamide
free from the hospital pharmacy , but have to pay for a prescription for my blood pressure tablets and asthma inhalers prescribed by my GP. I know certain medical conditions qualify you for all free prescriptions. What are other folks experiences in this area ?
I receive my
hydroxycarbamide
free from the hospital pharmacy , but have to pay for a prescription for my blood pressure tablets and asthma inhalers prescribed by my GP. I know certain medical conditions qualify you for all free prescriptions. What are other folks experiences in this area ?
Catbells66
in
MPN Voice
1 month ago
hydroxycarbamide and hair dye
Hi, I’ve been taking 500mg daily for 1 month now. I’m wondering if it’s ok to use any hair dye without proxide or is pure organic best?
Hi, I’ve been taking 500mg daily for 1 month now. I’m wondering if it’s ok to use any hair dye without proxide or is pure organic best?
ordinarypeople2
in
MPN Voice
3 months ago
Travelling
I have Essential Thrombocythemia and I'm taking
hydroxycarbamide
as well as other meds. Do I need a letter from my consultant or any proof to say why I'm taking
hydroxycarbamide
Thank you Linda
I have Essential Thrombocythemia and I'm taking
hydroxycarbamide
as well as other meds. Do I need a letter from my consultant or any proof to say why I'm taking
hydroxycarbamide
Thank you Linda
linphy
in
MPN Voice
6 months ago
Hydroxycarbamide and lungs
I have been on
hydroxycarbamide
for nearly 9 years with no serious problems, but now I am getting slight breathlessness. I was surprised to read that this medicine can cause interstitial lung disease such as pulmonary fibrosis. I don’t remember it being mentioned on the forum.
I have been on
hydroxycarbamide
for nearly 9 years with no serious problems, but now I am getting slight breathlessness. I was surprised to read that this medicine can cause interstitial lung disease such as pulmonary fibrosis. I don’t remember it being mentioned on the forum.
Zeigler
in
MPN Voice
4 months ago
1
2
...
57
Next page
10
20
30
40
50
Filter results
Clear filters
Posted in
All communities
MPN Voice
1081 results
Leukaemia CARE
11 results
Sickle Cell Society
10 results
View top 10 communities
Sort by
Most Relevant
Newest