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Tibilone experiences
Hi. I have very severe endometriosis and adenomyosis and am awaiting surgery which will likely involve having a stoma. I’ve previously had left ovary removed and both tubes and I’ve recently been told my right ovary is failing. Unfortunately there was been little improvement to my Endometriosis even
Hi. I have very severe endometriosis and adenomyosis and am awaiting surgery which will likely involve having a stoma. I’ve previously had left ovary removed and both tubes and I’ve recently been told my right ovary is failing. Unfortunately there was been little improvement to my Endometriosis even
Lily1986
in
Endometriosis UK
19 days ago
Thyroid or menopause - which to sort first?
I've just checked the app, and the last of my blood tests are back. I definitely have started perimenopause and as per my last post I have high TPOab, high TSH (7.5 with high ref being 4.26), and lowish T4 (14.2 of a 12—22 range). I have symptoms that overlap the two conditions, but also symptoms that
I've just checked the app, and the last of my blood tests are back. I definitely have started perimenopause and as per my last post I have high TPOab, high TSH (7.5 with high ref being 4.26), and lowish T4 (14.2 of a 12—22 range). I have symptoms that overlap the two conditions, but also symptoms that
Heappestre
in
Thyroid UK
20 days ago
Prostap
Hi, I've had one prostap injection. Things were going great, I thought they might be the best thing ever.However my anxiety has crept in. My second injection was due today but I cancelled it. I've had one heavy bleed last week. I didn't have hrt with it, it was there waiting for me if I needed it.
Hi, I've had one prostap injection. Things were going great, I thought they might be the best thing ever.However my anxiety has crept in. My second injection was due today but I cancelled it. I've had one heavy bleed last week. I didn't have hrt with it, it was there waiting for me if I needed it.
Charl-
in
Endometriosis UK
21 days ago
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anyone else struggling with high levels on medication?
just wondering if anyone else struggling with high levels on medication? been going on for years- since diagnosed in 2019. Takes forever to get back to relative normality each time. On carbimaxole and propanolol was 10mg BD but increased to 20mg as despite taking medication , t4 now 68.9, t3 25.4.
just wondering if anyone else struggling with high levels on medication? been going on for years- since diagnosed in 2019. Takes forever to get back to relative normality each time. On carbimaxole and propanolol was 10mg BD but increased to 20mg as despite taking medication , t4 now 68.9, t3 25.4.
Carinagravesdisease
in
Thyroid UK
21 days ago
Should go into the OMAHA2a ODM-208 (MK-5684-004): phase 3 trial?
I had my 3 monthly OC visit last week. Blood test is showing 0.3 up from 0.15 six weeks ago. MO is suggesting that I should go into the ODM-208 (MK-5684): phase 3 trial if PSA rises above 1.0. PSA of 1.0 or above is a entry requirement for the trial, presumable to be sure that my current treatment
I had my 3 monthly OC visit last week. Blood test is showing 0.3 up from 0.15 six weeks ago. MO is suggesting that I should go into the ODM-208 (MK-5684): phase 3 trial if PSA rises above 1.0. PSA of 1.0 or above is a entry requirement for the trial, presumable to be sure that my current treatment
LakeT
in
Advanced Prostate Cancer
22 days ago
Should I increase T4 or T3?
Diagnosed with paroxysmal AFib in 2021 (in A&E), was on 75mcg Levo and 10mcg Liothyronine (not converting well from T4 to T3) Was doing ok with ranges of FT4 around 15 -17(12-22), FT3 around 5.2 -5.9 (3.1-6.8) and a suppressed TSH of around 0.1 – 0.005 (0.27-4.2). Was advised to drop T3 to 5mcg after
Diagnosed with paroxysmal AFib in 2021 (in A&E), was on 75mcg Levo and 10mcg Liothyronine (not converting well from T4 to T3) Was doing ok with ranges of FT4 around 15 -17(12-22), FT3 around 5.2 -5.9 (3.1-6.8) and a suppressed TSH of around 0.1 – 0.005 (0.27-4.2). Was advised to drop T3 to 5mcg after
elkewilliams
in
Thyroid UK
22 days ago
AF and knee arthritis
Hi all,I was diagnosed with AF last April '22, taken of meds for knee Arthritis and prescribed Bisoprolol and Apixaban. My life has gone downhill ever since! Basically I've eventully had to stop working as a nurse as I couldn't cope with the demand of the 12 hour shifts on my feet and the stress of
Hi all,I was diagnosed with AF last April '22, taken of meds for knee Arthritis and prescribed Bisoprolol and Apixaban. My life has gone downhill ever since! Basically I've eventully had to stop working as a nurse as I couldn't cope with the demand of the 12 hour shifts on my feet and the stress of
Notsurewhattoexpect
in
British Heart Foundation
6 months ago
Stopping Zoladex & HRT
I just wondered if anyone has had any negative experiences when stopping zoladex injections and HRT? I've been on zoladex for around 8 months now but my moods have become so extreme on them and I've still been bleeding severe on them I've decided to stop to see how I get on. I had my last injection
I just wondered if anyone has had any negative experiences when stopping zoladex injections and HRT? I've been on zoladex for around 8 months now but my moods have become so extreme on them and I've still been bleeding severe on them I've decided to stop to see how I get on. I had my last injection
x_b_x
in
Endometriosis UK
24 days ago
PGAD relief tips
Hi all, I am reaching out to see amy tips you may have for relief? Currently lasts 24 hours a day, worst is at night but never goes away. Its very distressing and I cried again today as am just so exhausted. Have seen a urogynacologist and am now trialling HRT patches (hysterectomy in 2018) plus estrogen
Hi all, I am reaching out to see amy tips you may have for relief? Currently lasts 24 hours a day, worst is at night but never goes away. Its very distressing and I cried again today as am just so exhausted. Have seen a urogynacologist and am now trialling HRT patches (hysterectomy in 2018) plus estrogen
Lolliesandcakes
in
Pelvic Pain Support Network
24 days ago
Bloating - Zoladex/Tibolone
Hi I have been on Zoladex injections for a year now and have had add back HRT (tibolone) for about 6 weeks.The add back HRT has really helped the hot flushes & muscle pain but over the past 2 weeks I have been suffering with awful bloating which increases when I eat or drink anything. Has anybody else
Hi I have been on Zoladex injections for a year now and have had add back HRT (tibolone) for about 6 weeks.The add back HRT has really helped the hot flushes & muscle pain but over the past 2 weeks I have been suffering with awful bloating which increases when I eat or drink anything. Has anybody else
Bookish_Girl
in
Endometriosis UK
25 days ago
Latest thyroid test results
Hi everyone, After being underdosed on 25mcg of Levothyroxine for almost a decade, my new GP increased my dose to 50mcg around 6 months ago. The increase was done slowly over 6 weeks, as advised by people in this group. I had some blood tests done two days ago and today I got a message from the GP saying
Hi everyone, After being underdosed on 25mcg of Levothyroxine for almost a decade, my new GP increased my dose to 50mcg around 6 months ago. The increase was done slowly over 6 weeks, as advised by people in this group. I had some blood tests done two days ago and today I got a message from the GP saying
Gecko22
in
Thyroid UK
26 days ago
Hormone Replacement
Anyone in there 70's using HRT for osteoporosis? I have been reading a lot of information concerning this.
Anyone in there 70's using HRT for osteoporosis? I have been reading a lot of information concerning this.
KincaidPete
in
Osteoporosis Support
28 days ago
Some advice please
Hi, I'm in surgical menopause and have not felt 'well' for a number of years now. I won't bore you with the backstory of my trials and tribulations with HRT, all in the pursuit of feeling well enough to fully function. I've questioned Thyroid for some time, I had tests last September and posted them
Hi, I'm in surgical menopause and have not felt 'well' for a number of years now. I won't bore you with the backstory of my trials and tribulations with HRT, all in the pursuit of feeling well enough to fully function. I've questioned Thyroid for some time, I had tests last September and posted them
Sunnyyellowlady
in
Thyroid UK
28 days ago
magnesium supplements
Hi all It’s been a while since I posted on here. But I have a question regarding sleep. I have ET, Jak2, had it 7 years, and at the moment take aspirin and hydroxy. Had my telephone consultation yesterday and was pleased to hear my platelets are the lowest they’ve ever been at 355. Even though I
Hi all It’s been a while since I posted on here. But I have a question regarding sleep. I have ET, Jak2, had it 7 years, and at the moment take aspirin and hydroxy. Had my telephone consultation yesterday and was pleased to hear my platelets are the lowest they’ve ever been at 355. Even though I
Grumpyfairy
in
MPN Voice
28 days ago
HRT question
Hello, I've been on oestrogen and progesterone HRT since last summer and it's making me feel a great deal better generally. But I've found that during the two weeks of the cycle where I'm not on the progesterone, I get very anxious. Is there any way of taking the progesterone all month? I'm on two progesterone
Hello, I've been on oestrogen and progesterone HRT since last summer and it's making me feel a great deal better generally. But I've found that during the two weeks of the cycle where I'm not on the progesterone, I get very anxious. Is there any way of taking the progesterone all month? I'm on two progesterone
Amikatari
in
Menopause and Perimenopause Support
1 month ago
Zoladex - pre-fibroid removal
I've got a fibroid removal date through for just over 4 weeks' time. It'll be under GA (last local procedure wasn't so effective, not all fibroid was removed, and it's since continued to grow). I'm on 2 x daily mini-pill, but have had almost daily bleeding since last September. Periods of very heavy
I've got a fibroid removal date through for just over 4 weeks' time. It'll be under GA (last local procedure wasn't so effective, not all fibroid was removed, and it's since continued to grow). I'm on 2 x daily mini-pill, but have had almost daily bleeding since last September. Periods of very heavy
Fueofvodn
in
Women's Health
1 month ago
length of zoladex and tobelone- side effects felt?
I have been having zoladex injections since November once a month. They advised HRT in Jan due to me experiencing headaches/hot flushes and brain fog (which at the time was the worst) . Since then the mood changes have been a lot to deal with feeling unhappy and down. My sleep pattern is interrupted
I have been having zoladex injections since November once a month. They advised HRT in Jan due to me experiencing headaches/hot flushes and brain fog (which at the time was the worst) . Since then the mood changes have been a lot to deal with feeling unhappy and down. My sleep pattern is interrupted
Homelove
in
Endometriosis UK
1 month ago
A cause for concern or?
For the past couple of months i started getting notifications via my Samsung 6 watch that my HR was anything from 44 to 52,for more than 10 minutes, numerous times a day or night . I am taking various medications, Bu trans patch, HRT co-codamol 30/500 Pregabalin tramadol & citalopram 40mg. They are
For the past couple of months i started getting notifications via my Samsung 6 watch that my HR was anything from 44 to 52,for more than 10 minutes, numerous times a day or night . I am taking various medications, Bu trans patch, HRT co-codamol 30/500 Pregabalin tramadol & citalopram 40mg. They are
caz1967
in
British Heart Foundation
1 month ago
Stopping meds before operation. 😏
Hi Peeps, I hope this UK sunshine has reached you over the last few days and that you are as well as you can be today. I have been told to stop my meds because I have to have a lumpectomy on 8th May 🙄 I had to stop my Tocilizumab and Sulfasalazine 4 weeks before and my Metoject 2 weeks before. I also
Hi Peeps, I hope this UK sunshine has reached you over the last few days and that you are as well as you can be today. I have been told to stop my meds because I have to have a lumpectomy on 8th May 🙄 I had to stop my Tocilizumab and Sulfasalazine 4 weeks before and my Metoject 2 weeks before. I also
Moomin8
in
NRAS
1 month ago
Timing and reasons for Thyroid blood tests
Recommended by numerous research papers that thyroid testing should be in the morning and [u]before[/u] taking daily levothyroxine TSH has a circadian rhythm and is highest in early morning and lowest in afternoon Links to a few research papers and articles https://www.ncbi.nlm.nih.gov/pmc
Recommended by numerous research papers that thyroid testing should be in the morning and [u]before[/u] taking daily levothyroxine TSH has a circadian rhythm and is highest in early morning and lowest in afternoon Links to a few research papers and articles https://www.ncbi.nlm.nih.gov/pmc
SlowDragon
Administrator
in
Thyroid UK
1 month ago
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