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Experiences with
Hidradenitis
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You're Going to Love this....
Three months ago, after years of suffering with boils in the most uncomfortable places imaginable, I finally got a diagnosis of
hidradenitis
. It goes without saying that this condition is lifelong, incurable and painful.
Three months ago, after years of suffering with boils in the most uncomfortable places imaginable, I finally got a diagnosis of
hidradenitis
. It goes without saying that this condition is lifelong, incurable and painful.
Janepepper
in
Pain Concern
10 years ago
Need some help.
I was also diagnosed with
Hidradenitis
Supparativa at this time, something i had been suffering with for years.
I was also diagnosed with
Hidradenitis
Supparativa at this time, something i had been suffering with for years.
EmJai
in
Pernicious Anaemia Society
10 years ago
Hi. I have hidradenitis suppurativa. does everyone else get the same antibiotic routine over and over?
Always starts with amoxicillan, then flucloxacillan, coamoxiclav and then oxytetracycline. then back to the beginning. Does anyone know of anything else that might help me?
Always starts with amoxicillan, then flucloxacillan, coamoxiclav and then oxytetracycline. then back to the beginning. Does anyone know of anything else that might help me?
shelleh1979
in
MY SKIN
10 years ago
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Is there a link between lymphoedema and hidradenitis?
At around the same time I first noticed my lymphoedema, I also started suffering with
hidradenitis
. I have read that the cause of this is to do with an inefficient immune system. I wondered if anyone else had similar experiences at all?
At around the same time I first noticed my lymphoedema, I also started suffering with
hidradenitis
. I have read that the cause of this is to do with an inefficient immune system. I wondered if anyone else had similar experiences at all?
millie1
in
LSN
11 years ago
HELP i may need antibiotics
are they safe to take with levothyroxine i have a bad
hidradenitis
flare up under left armpit and the pain is horrendous ive had a dr tell me a few weeks ago i didnt need levothyroxine and to stop taking but after giving my tsh level here and being told my levels were high i continued to take, ive even
are they safe to take with levothyroxine i have a bad
hidradenitis
flare up under left armpit and the pain is horrendous ive had a dr tell me a few weeks ago i didnt need levothyroxine and to stop taking but after giving my tsh level here and being told my levels were high i continued to take, ive even
mandy72
in
Thyroid UK
11 years ago
just wondering if anyone else is suffering hidradenitis?
its one of them autoimmune diseases the docs know nothing about, theres a few people that are a few sufferers on another group im in with various thyroid problems too and was thinking maybe there could be a connection between the two since ive started treatment for hypo ive noticed the flare ups have
its one of them autoimmune diseases the docs know nothing about, theres a few people that are a few sufferers on another group im in with various thyroid problems too and was thinking maybe there could be a connection between the two since ive started treatment for hypo ive noticed the flare ups have
mandy72
in
Thyroid UK
11 years ago
help diagnosed and undiagnosed hypo in less than 10 days
2011 i had a blood test to see what was causing a bad skin breakout of boils (
hidradenitis
) and my thyroid came back high but dr wasnt concerned, asked for another blood test couple of weeks ago due to massive weight gain, tired, irratable, lack of energy ect results came back 10.1 and i needed to see
2011 i had a blood test to see what was causing a bad skin breakout of boils (
hidradenitis
) and my thyroid came back high but dr wasnt concerned, asked for another blood test couple of weeks ago due to massive weight gain, tired, irratable, lack of energy ect results came back 10.1 and i needed to see
mandy72
in
Thyroid UK
11 years ago
Link with HS?
Does anyone know of a study or link with
Hidradenitis
suppurativa as this has been the primary cause of my past skin infections and continuing problems I believe. I still get problems from this but not as bad as previously after treatment with roaccutane some years ago?
Does anyone know of a study or link with
Hidradenitis
suppurativa as this has been the primary cause of my past skin infections and continuing problems I believe. I still get problems from this but not as bad as previously after treatment with roaccutane some years ago?
gavinlwright
in
LSN
11 years ago
Do you suffer from HS (hidradenitis suppurativa) and want to make a difference?
They are currently conducting a multi-country study on
hidradenitis
suppurativa. This study is designed to depict a comprehensive picture of HS from a patient perspective. It offers a unique opportunity for HS sufferers to influence healthcare decisions relevant for this condition.
They are currently conducting a multi-country study on
hidradenitis
suppurativa. This study is designed to depict a comprehensive picture of HS from a patient perspective. It offers a unique opportunity for HS sufferers to influence healthcare decisions relevant for this condition.
BritishSkinFoundationCharity
in
MY SKIN
11 years ago
Conflicting autoimmune diseases
My GP says it is likely to be
hidradenitis
suppurativa, which I have looked up and sadly it does seem to be the same symptoms as I have. Just wondering if anyone else has this as well as RA? The treatment is long term antibiotics which then means I will be unable to take RA meds.
My GP says it is likely to be
hidradenitis
suppurativa, which I have looked up and sadly it does seem to be the same symptoms as I have. Just wondering if anyone else has this as well as RA? The treatment is long term antibiotics which then means I will be unable to take RA meds.
beaches3
in
NRAS
11 years ago
Anyone got hidradenitis suppurativa as well as RA? The treatment is weeks of antibiotics but then I can't have my MTX.
beaches3
in
NRAS
11 years ago
acne, eczema, or, hidradenitis supparativa cosmetics that work gently
WORST red and/ the sores, - magically - a top model has really bad acne - really bad - but the makeup for face, shoulders, cleavage, and or, back, doesn't show a flaw when put on - they also sell a silver-based product cream that keeps down bacteria build-up on the skin naturally for acne/exzema,
hidradenitis
WORST red and/ the sores, - magically - a top model has really bad acne - really bad - but the makeup for face, shoulders, cleavage, and or, back, doesn't show a flaw when put on - they also sell a silver-based product cream that keeps down bacteria build-up on the skin naturally for acne/exzema,
hidradenitis
spot
in
MY SKIN
12 years ago
Does anybody suffer from Hidradenitis Suppurativa on here?
TR7O
in
MY SKIN
12 years ago
DON'T BE EMBARRASSED TO ASK YOUR QUESTION !You might be surprised.
UNTIL TODAY i went to my docters quoting the name
HIDRADENITIS
SUPPURATIVA as thats what most people were told they had then one person quoted a medication CLINDAMYCIN PHOSPHATE LOTION my docter then turned round and said why not it fits. so i came home happy ( lets hope its right.)
UNTIL TODAY i went to my docters quoting the name
HIDRADENITIS
SUPPURATIVA as thats what most people were told they had then one person quoted a medication CLINDAMYCIN PHOSPHATE LOTION my docter then turned round and said why not it fits. so i came home happy ( lets hope its right.)
dobby-the-house-elf
in
Fibromyalgia Action UK
12 years ago
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