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Xtandi worked great
After radiation to prostate bed and to one pelvic metastasis, I was on xtandi and Lupton for three years and now have been on "vacation " for a year with PSA of 0.02 and testosterone at 4. No meds at all for last11 months!Had a heart attack in May '23 (which I attribute to covid shots) , doctors told
After radiation to prostate bed and to one pelvic metastasis, I was on xtandi and Lupton for three years and now have been on "vacation " for a year with PSA of 0.02 and testosterone at 4. No meds at all for last11 months!Had a heart attack in May '23 (which I attribute to covid shots) , doctors told
JAK2243
in
Advanced Prostate Cancer
2 months ago
PSA Bounce After Radiation Therapy
I am trying to understand PSA bounce or change in PSA levels after RT and have found two studies useful. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7465291/ https://www.nature.com/articles/s41391-021-00387-4 Some analysts distinguish between PSA bounce and biological recurrence, and see a possibility
I am trying to understand PSA bounce or change in PSA levels after RT and have found two studies useful. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7465291/ https://www.nature.com/articles/s41391-021-00387-4 Some analysts distinguish between PSA bounce and biological recurrence, and see a possibility
kainasar
in
Advanced Prostate Cancer
2 months ago
Ascites
Hi in June 2019 whilst on holiday in Italy my tummy swelled up a n d I felt unwell on return to England was taken to hospital when my tummy was drained and I was diagnosed with liver cirrhosisI have never been a big drinker so was very shocked since then I don't have a drink and very careful with salt
Hi in June 2019 whilst on holiday in Italy my tummy swelled up a n d I felt unwell on return to England was taken to hospital when my tummy was drained and I was diagnosed with liver cirrhosisI have never been a big drinker so was very shocked since then I don't have a drink and very careful with salt
Rookery31
in
British Liver Trust
2 months ago
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The best advice I can or may ever give to anyone who has Parkinson's especially the newly diagnosed .
The Davis Phinney Foundation for Parkinson's in partnership with Parkinson's Canada has published the Canadian edition of the book "Every Victory Counts". It is my understanding that they have published this book in associations with several national Parkinson's groups and are making it available
The Davis Phinney Foundation for Parkinson's in partnership with Parkinson's Canada has published the Canadian edition of the book "Every Victory Counts". It is my understanding that they have published this book in associations with several national Parkinson's groups and are making it available
Gymsack
in
Cure Parkinson's
2 months ago
Prescription drug induced Fibrosis
Hi. Wondering if anyone on here has had the above diagnosis. The drug involved was Nitrofuratan. The Consultant has told me the scarring will not heal.
Hi. Wondering if anyone on here has had the above diagnosis. The drug involved was Nitrofuratan. The Consultant has told me the scarring will not heal.
Suekee2
in
British Liver Trust
2 months ago
Hello everyone, breif update
I moved again and hopefully this will be the last time. So, I have had to put together a new Medical team and meet my new MO this Tuesday. My bio is pretty up to date. I'm stage 4 and have some lymph node mets and some bone mets. It's been over a year since my last scan which showed improvement from
I moved again and hopefully this will be the last time. So, I have had to put together a new Medical team and meet my new MO this Tuesday. My bio is pretty up to date. I'm stage 4 and have some lymph node mets and some bone mets. It's been over a year since my last scan which showed improvement from
Startech
in
Advanced Prostate Cancer
3 months ago
Cold water!
I went swimming for the first time yesterday since my diagnosis of PAF 18 months ago. I'm on holiday in France at the moment. It was an outdoor pool and it's hot here so the water felt really cold. I went in waist deep and then ducked under. I swam for a few metres then realised I was in AF. I guess
I went swimming for the first time yesterday since my diagnosis of PAF 18 months ago. I'm on holiday in France at the moment. It was an outdoor pool and it's hot here so the water felt really cold. I went in waist deep and then ducked under. I swam for a few metres then realised I was in AF. I guess
Sandych55
in
Atrial Fibrillation Support
10 months ago
Has anyone tried Piracetam for Parkinson's disease.
Hi, was diagnosed with Parkinson's August 2023. Taking one Levocarb CR 200/50 MG for tremor. Also using Coronet 4 light helmet therapy twice daily and symbyx 904 PD care laser on gut alternate days ,along with vibratory gloves alternate days with great results. Heard that Piracetam might help,wondering
Hi, was diagnosed with Parkinson's August 2023. Taking one Levocarb CR 200/50 MG for tremor. Also using Coronet 4 light helmet therapy twice daily and symbyx 904 PD care laser on gut alternate days ,along with vibratory gloves alternate days with great results. Heard that Piracetam might help,wondering
Logon206500
in
Cure Parkinson's
3 months ago
UPDATE
UPDATE Hi folks, I havnt been very active recently - mostly because things were going slowly, but well with my PCA. Ive just had my latest bloodwork which confirms a PCA increase with a doubling time of about 6 months. This is all very standard and to be expected - I am 4.3 years out from PSA of 1000
UPDATE Hi folks, I havnt been very active recently - mostly because things were going slowly, but well with my PCA. Ive just had my latest bloodwork which confirms a PCA increase with a doubling time of about 6 months. This is all very standard and to be expected - I am 4.3 years out from PSA of 1000
Stoneartist
in
Advanced Prostate Cancer
3 months ago
Ablation next Wednesday
Hi, Apologies, I’m dreadful at remembering terminology .. I’ve had racing and irregular heart beat intermittently for a decade of more. I have a resting heart rate of 50 and low blood pressure. My afib tends to be aggressive and I usually end up in hospital. ( rate of 240 not unusual) Last time had
Hi, Apologies, I’m dreadful at remembering terminology .. I’ve had racing and irregular heart beat intermittently for a decade of more. I have a resting heart rate of 50 and low blood pressure. My afib tends to be aggressive and I usually end up in hospital. ( rate of 240 not unusual) Last time had
Christmaspie
in
AF Association
10 months ago
NUV-1511 drug-drug conjugate (DDC) to enter the clinical stage: phase 1
"Dosing the first patient with NUV-1511 marks a significant milestone for our proprietary DDC platform, from which we are developing potent oncology-focused chimeric small molecules designed to selectively deliver anti-cancer therapeutics to cancer cells, while mitigating effects on healthy non-target
"Dosing the first patient with NUV-1511 marks a significant milestone for our proprietary DDC platform, from which we are developing potent oncology-focused chimeric small molecules designed to selectively deliver anti-cancer therapeutics to cancer cells, while mitigating effects on healthy non-target
Maxone73
in
Advanced Prostate Cancer
3 months ago
Coarsened Hepatic Echotexture
This finding is from the newest elastography. I thought I was doing everything right. KPA in 2022 was 10.5 F2-F.3, now it's 5.5 F0-F0-F1. I quit drinking alcohol in 2020, went on Mediterranean diet, and walk 1-3 miles per day. The only vice I have is baked goods, cookies, cake, and candy. 2022
This finding is from the newest elastography. I thought I was doing everything right. KPA in 2022 was 10.5 F2-F.3, now it's 5.5 F0-F0-F1. I quit drinking alcohol in 2020, went on Mediterranean diet, and walk 1-3 miles per day. The only vice I have is baked goods, cookies, cake, and candy. 2022
Evelyn22
in
British Liver Trust
3 months ago
AS the Journey continues
Well, the Board did complete its investigation. Five doctors were reprimanded. The resident on duty the night of the loss is no longer allowed to practice. The ICU doctor is no longer an ICU doctor but is still practicing—three more doctors whose disciplinary hearing was held behind closed doors three
Well, the Board did complete its investigation. Five doctors were reprimanded. The resident on duty the night of the loss is no longer allowed to practice. The ICU doctor is no longer an ICU doctor but is still practicing—three more doctors whose disciplinary hearing was held behind closed doors three
ceward204
in
British Liver Trust
3 months ago
Does anyone have IBS and Rheumatoid arthritis
Bit of a struggle dealing with both and Gerd
Bit of a struggle dealing with both and Gerd
welsh12
in
IBS Network
6 months ago
Synacthen Test
Hi, I received a letter from my Rheumatologist saying that my cortisol levels are normal following the Synacthen test 2 weeks ago. It says it is now safe to stop taking steroids. My question is, as i have been on steroids for over 5 years should i just stop or continue reducing. I am now taking 2.5mg
Hi, I received a letter from my Rheumatologist saying that my cortisol levels are normal following the Synacthen test 2 weeks ago. It says it is now safe to stop taking steroids. My question is, as i have been on steroids for over 5 years should i just stop or continue reducing. I am now taking 2.5mg
studiomaster
in
PMRGCAuk
3 months ago
Fiancé is in desperate need of a kidney
hi, My fiancé was born with a hereditary kidney disease. He’s been on dialysis for 3 years and is in dire need of a kidney. He’s been so positive and happy during this time , he even started a business this year all while being on dialysis. It’s been very inspiring to watch! I want to spread the
hi, My fiancé was born with a hereditary kidney disease. He’s been on dialysis for 3 years and is in dire need of a kidney. He’s been so positive and happy during this time , he even started a business this year all while being on dialysis. It’s been very inspiring to watch! I want to spread the
Nickywesley
in
Kidney Dialysis
3 months ago
Radiation after Docetaxel
My dad finished chemo Docetaxel in November 2023. In December his PSA was .61. In February it jumped to 2.3. He went for a PET scan. He went back to the doctor today his PSA jumped to 6. The scan showed that many of the metastasis in his bones shrunk are almost gone. There is one spot in his back that
My dad finished chemo Docetaxel in November 2023. In December his PSA was .61. In February it jumped to 2.3. He went for a PET scan. He went back to the doctor today his PSA jumped to 6. The scan showed that many of the metastasis in his bones shrunk are almost gone. There is one spot in his back that
Jshaw916
in
Advanced Prostate Cancer
3 months ago
We understand....
In my initial bio, I related to you that I had PBC for some 20 years before receiving a life saving liver transplant almost 19 years ago. In about 25% of those with liver transplants the PBC returns. We have to remember that our body still has the tendency to 'attack' it's own bile ducts and bile duct
In my initial bio, I related to you that I had PBC for some 20 years before receiving a life saving liver transplant almost 19 years ago. In about 25% of those with liver transplants the PBC returns. We have to remember that our body still has the tendency to 'attack' it's own bile ducts and bile duct
DonnaBoll
Administrator
in
PBC Foundation
3 months ago
Lp(a) results are in ….
I’ve recently had bloods taken to test for FH and Lp(a) levels. I had a heart attack in 2022 at aged 51 and was started on a whole ton of medications afterwards including Atorvastatin 80mg and then a bit later adding in 10mg Ezetimibe. My LDL cholesterol has not been able to reach the target of 1.4
I’ve recently had bloods taken to test for FH and Lp(a) levels. I had a heart attack in 2022 at aged 51 and was started on a whole ton of medications afterwards including Atorvastatin 80mg and then a bit later adding in 10mg Ezetimibe. My LDL cholesterol has not been able to reach the target of 1.4
EU95PTM
in
Cholesterol Support
7 months ago
Stressing
I've been a bit quiet for a while but that doesn't mean to say I've stopped running. I've been ringing the changes with my runs and really enjoying them. Our park run was cancelled last week as part of the course was flooded but I got on the treadmill instead. I've also been going to my alternative
I've been a bit quiet for a while but that doesn't mean to say I've stopped running. I've been ringing the changes with my runs and really enjoying them. Our park run was cancelled last week as part of the course was flooded but I got on the treadmill instead. I've also been going to my alternative
Bruch1
Graduate
in
Couch to 5K
7 months ago
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