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Hello
Hi I'm under going tests for lupus I have symptoms, I'm just looking for more information at the moment
Hi I'm under going tests for lupus I have symptoms, I'm just looking for more information at the moment
Tray68
in
LUPUS UK
4 months ago
switching to a carnivore diet has put my PMR into total remission
I know the subject may be viewed as sensational or just plain wrong, but that is what I have concluded. At the time I was diagnosed with PMR, I already had diagnoses of psoriatic arthritis and fibromyalgia. My PMR started in 2019, about 8 months prior to covid. I was put on prednisone and experienced
I know the subject may be viewed as sensational or just plain wrong, but that is what I have concluded. At the time I was diagnosed with PMR, I already had diagnoses of psoriatic arthritis and fibromyalgia. My PMR started in 2019, about 8 months prior to covid. I was put on prednisone and experienced
benhemp
in
PMRGCAuk
4 months ago
Smoking After Bypass
I was talking with a medical professional recently about smoking as a Type I diabetic who I have encountered twice still continues to smoke despite having had a number of heart attacks and suffering an amputation. We then got onto bypasses as I have had a quadruple heart bypass and had one behind the
I was talking with a medical professional recently about smoking as a Type I diabetic who I have encountered twice still continues to smoke despite having had a number of heart attacks and suffering an amputation. We then got onto bypasses as I have had a quadruple heart bypass and had one behind the
MichaelJH
Heart Star
in
British Heart Foundation
10 months ago
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lupus
hi everyone I’m new on here. Im currently waiting for a lupus diagnosis. I’m due to go in to hospital tomorrow for a skin biopsy on my face. Has any one ever had one ? Also do you think my rash looks like a lupus rash ? Thanks everyone.
hi everyone I’m new on here. Im currently waiting for a lupus diagnosis. I’m due to go in to hospital tomorrow for a skin biopsy on my face. Has any one ever had one ? Also do you think my rash looks like a lupus rash ? Thanks everyone.
Pea_m
in
LUPUS UK
4 months ago
Lupie Diary - International 4+Syamsi Dhuha Foundation
This FREE Application is developed to help people with lupus (and also people with other diseases) to record and monitor her/his medication, treatment received from her/his doctor, or other consultation with medical professionals (such as pharmacist). Personal medical record will help both patient and
This FREE Application is developed to help people with lupus (and also people with other diseases) to record and monitor her/his medication, treatment received from her/his doctor, or other consultation with medical professionals (such as pharmacist). Personal medical record will help both patient and
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
4 months ago
cortisol/underactive thyroid
Out of interest, if your cortisol is high in the morning, would taking your levothyroxine in the morning make you feel even more stressed/twitchy?
Out of interest, if your cortisol is high in the morning, would taking your levothyroxine in the morning make you feel even more stressed/twitchy?
Puddingym
in
Thyroid UK
2 months ago
Dysautonomia in Sjögren's - Genital Sore/dry symptoms
Because of the shame or embarrassment sometimes involved in talking about vulvar or vaginal symptoms, I have not really gone into depth with my Rheumatologist. I am just wondering whether anyone has any tips of how to soothe:- Burning of the vagina or vulvaI Itchy vulva or vagina I am also going through
Because of the shame or embarrassment sometimes involved in talking about vulvar or vaginal symptoms, I have not really gone into depth with my Rheumatologist. I am just wondering whether anyone has any tips of how to soothe:- Burning of the vagina or vulvaI Itchy vulva or vagina I am also going through
Energy14
in
LUPUS UK
8 months ago
The Shelagh Cheesman Lupus Information Day - 16th March
The Cambridgeshire Lupus Group will be hosting an Information Day on Saturday 16th March, in memory of Shelagh Cheesman, who died as a result of cancer in March 2018. To register for your free ticket, please visit - https://lupusuk.org.uk/shelagh-cheesman-lupus-day/ If you have any questions, please
The Cambridgeshire Lupus Group will be hosting an Information Day on Saturday 16th March, in memory of Shelagh Cheesman, who died as a result of cancer in March 2018. To register for your free ticket, please visit - https://lupusuk.org.uk/shelagh-cheesman-lupus-day/ If you have any questions, please
michaellasmith
Administrator
in
LUPUS UK
4 months ago
lupus and surgery
hi my name is Diana I have lupus and I am looking to do a hip dip and bum filler. I and on medication my lupus is topical it only affects my skin making it really dry and also my scalp really dry. I am on medication once a day It only affects my skins in the sun here in the uk but not when I’m home
hi my name is Diana I have lupus and I am looking to do a hip dip and bum filler. I and on medication my lupus is topical it only affects my skin making it really dry and also my scalp really dry. I am on medication once a day It only affects my skins in the sun here in the uk but not when I’m home
Shawna3g
in
LUPUS UK
4 months ago
Thyroid scan
Clinical Indication: croaky voice, underactive thyroid Findings: Patient highlights known Hashimoto's. The thyroid is atrophic and hypoechoic in keeping with end stage diffuse thyroid disease. It has an overall volume of 2.1 cc; the right lobe has a volume of 1.3 cc, while the left a volume of
Clinical Indication: croaky voice, underactive thyroid Findings: Patient highlights known Hashimoto's. The thyroid is atrophic and hypoechoic in keeping with end stage diffuse thyroid disease. It has an overall volume of 2.1 cc; the right lobe has a volume of 1.3 cc, while the left a volume of
Flick9
in
Thyroid UK
4 months ago
levothyroxine induced lupus erythematosus?
Hiya, I am fairly new to all this, I have been on Levothryroxine for Hypothyroid (Hashimoto’s disease.) since June. My initial symptoms started after my first covid infection. All was going well until November time when I started to develop a Malar rash in the classic butterfly shape on my face. I don
Hiya, I am fairly new to all this, I have been on Levothryroxine for Hypothyroid (Hashimoto’s disease.) since June. My initial symptoms started after my first covid infection. All was going well until November time when I started to develop a Malar rash in the classic butterfly shape on my face. I don
Baker16
in
Thyroid UK
4 months ago
Liver disease, mast cells and antihistamine
I’ve just seen a post on X about mast cells and Covid-19 which mentioned a link with autoimmune diseases of the gut and the use of antihistamines as a treatment.. I wondered if anything was known about autoimmune liver diseases, mast cells and antihistamines. I found this 2017 research paper https://
I’ve just seen a post on X about mast cells and Covid-19 which mentioned a link with autoimmune diseases of the gut and the use of antihistamines as a treatment.. I wondered if anything was known about autoimmune liver diseases, mast cells and antihistamines. I found this 2017 research paper https://
Readlots
in
PBC Foundation
2 months ago
Horac
In reply to Amanda with a father who refused a triple heart bypass and has type 2 diabetes. I had a triple heart bypass in 2017 3 months after my wife died.. I do wonder if my wife dying of a brain tumour brought it on. It was not good as 12 months later I had sternal dehiscence and a epigastric hernia
In reply to Amanda with a father who refused a triple heart bypass and has type 2 diabetes. I had a triple heart bypass in 2017 3 months after my wife died.. I do wonder if my wife dying of a brain tumour brought it on. It was not good as 12 months later I had sternal dehiscence and a epigastric hernia
horac
in
British Heart Foundation
10 months ago
feeling a bit overwhelmed and lost
In September 2023 I found out by chance that I had apparently been diagnosed with lupus 15-20 years ago. I haven’t been told at any point in this time by a doctor - I found out almost by accident from my GP physio. Since then my current GP has been initially verbally supportive although said they knew
In September 2023 I found out by chance that I had apparently been diagnosed with lupus 15-20 years ago. I haven’t been told at any point in this time by a doctor - I found out almost by accident from my GP physio. Since then my current GP has been initially verbally supportive although said they knew
opalescenthope
in
LUPUS UK
4 months ago
a newby to Lupus
Hello folks, I was only diagnosed with lupus a few days ago, after six months of being told I have stage4 CKD, currently at 21% .Eight years ago I was diagnosed with severe anaemia by my GP, which with retrospect I think was a symptom of Lupus and the cause wasn’t looked into. I don’t have the energy
Hello folks, I was only diagnosed with lupus a few days ago, after six months of being told I have stage4 CKD, currently at 21% .Eight years ago I was diagnosed with severe anaemia by my GP, which with retrospect I think was a symptom of Lupus and the cause wasn’t looked into. I don’t have the energy
C0rnflakes
in
LUPUS UK
4 months ago
Fibro medication and alcahol
Diagnosed a few years ago but decided not to take medication. The only meds I take are for my underactive Thyroid,i also have Ostioarthritis and Scoliosis but finding my pain is gradually feeling worse. What medication would you recommend? I am sociable and enjoy a sociable beer so is there anything
Diagnosed a few years ago but decided not to take medication. The only meds I take are for my underactive Thyroid,i also have Ostioarthritis and Scoliosis but finding my pain is gradually feeling worse. What medication would you recommend? I am sociable and enjoy a sociable beer so is there anything
henrythewasp
in
Fibromyalgia Action UK
4 months ago
Autoimmune Diseases
Saw this news article today and found it interesting. https://www.ctvnews.ca/health/lupus-and-other-autoimmune-diseases-strike-far-more-women-than-men-now-there-s-a-clue-why-1.6751469 Really found this part interesting. “Scientists have long thought it takes a combination of genetic susceptibility
Saw this news article today and found it interesting. https://www.ctvnews.ca/health/lupus-and-other-autoimmune-diseases-strike-far-more-women-than-men-now-there-s-a-clue-why-1.6751469 Really found this part interesting. “Scientists have long thought it takes a combination of genetic susceptibility
Swift20
in
Pernicious Anaemia Society
4 months ago
Article: Why autoimmune disease is more common in women
I thought people might be interested in this article from Nature about why autoimmune diseases are more common in women: https://www.nature.com/articles/d41586-024-00267-6 "A new explanation for the discrepancy has emerged: a molecular coating typically found on half of a woman’s X chromosomes — but
I thought people might be interested in this article from Nature about why autoimmune diseases are more common in women: https://www.nature.com/articles/d41586-024-00267-6 "A new explanation for the discrepancy has emerged: a molecular coating typically found on half of a woman’s X chromosomes — but
cyberbarn
in
NRAS
4 months ago
Some new science on why women are more prone to autoimmune disease
This is an interesting read that suggests the preponderance of systemic autoimmune conditions in women is linked to incomplete X chromosome inactivation. Sadly, it doesnt have any immediate practical implications for us lot, but may be a pointer for the future. https://www.nature.com/articles/d41586
This is an interesting read that suggests the preponderance of systemic autoimmune conditions in women is linked to incomplete X chromosome inactivation. Sadly, it doesnt have any immediate practical implications for us lot, but may be a pointer for the future. https://www.nature.com/articles/d41586
whisperit
in
LUPUS UK
4 months ago
Jean Jackson
I have had bronchiectasis from 3 years old due to whooping cough. I am now 74. I have also had Rheumatoid Arthritis for 14 years. Rheumatoid Arthritis is getting worse ( 2 emergency hospital admissions in the last 6 months) Consultant advises changing to biological medication but it is dependant on
I have had bronchiectasis from 3 years old due to whooping cough. I am now 74. I have also had Rheumatoid Arthritis for 14 years. Rheumatoid Arthritis is getting worse ( 2 emergency hospital admissions in the last 6 months) Consultant advises changing to biological medication but it is dependant on
jeanjack
in
Lung Conditions Community Forum
4 months ago
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