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RGA 314 gene therapy
my doctor asked me to participate in phase 3 RGA 314 gene therapy for macular degeneration. I received the reading material to decide if I want to enter the clinical trials. When I read the possible ricks of the procedure, this statement worried me “once RGA 314 is given to you, there may not be a way
my doctor asked me to participate in phase 3 RGA 314 gene therapy for macular degeneration. I received the reading material to decide if I want to enter the clinical trials. When I read the possible ricks of the procedure, this statement worried me “once RGA 314 is given to you, there may not be a way
Slattery
in
Macular Society
1 year ago
Storm in a teacup.
On Tuesday I had overnight chest pain - hx of unstable angina which cardiologist thinks may be small vessel angina, but has not investigated yet. It all started after AVR went wrong 4 years ago, I suffered circulatory collapse post surgery and needed an emergency triple by pass. I ended up with
On Tuesday I had overnight chest pain - hx of unstable angina which cardiologist thinks may be small vessel angina, but has not investigated yet. It all started after AVR went wrong 4 years ago, I suffered circulatory collapse post surgery and needed an emergency triple by pass. I ended up with
francesw47
in
British Heart Foundation
11 months ago
Hi Yet Another Update
Good morning, yes another update quick recap, awaiting blood and X-ray results before staring MTX. Yesterday the rheumy’s secretary emailed me as follows. Bloods ok. X-rays ok to start MTX chest X-ray clear showed no lesions. WHAT I didn’t have a chest X-ray I even asked the radiologist a chest X-ray
Good morning, yes another update quick recap, awaiting blood and X-ray results before staring MTX. Yesterday the rheumy’s secretary emailed me as follows. Bloods ok. X-rays ok to start MTX chest X-ray clear showed no lesions. WHAT I didn’t have a chest X-ray I even asked the radiologist a chest X-ray
Wonderfullifeandmore
in
PMRGCAuk
11 months ago
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EYE DROPS RECALLED
HI All, just thought it was a good idea to post after I read this worrying article on contaminated eye drops, the particular brands are in the US, as a user of preservative free eye drops everyday for my dry eyes, it was a good reminder to ensure I keep them clinically clean and use them only for short
HI All, just thought it was a good idea to post after I read this worrying article on contaminated eye drops, the particular brands are in the US, as a user of preservative free eye drops everyday for my dry eyes, it was a good reminder to ensure I keep them clinically clean and use them only for short
Annsandra13
in
Macular Society
1 year ago
Will my squint affect the outcome of the DVLA field test?
I recently advised the DVLA that I had Glaucoma and I have now received the "standard letter" from the DVLA telling me to book an appointment with Specsavers for my eyesight to be tested. I have my appointment on 27 March 2023 at 10.00am at the Totnes Branch of Specsavers. When I have had a field test
I recently advised the DVLA that I had Glaucoma and I have now received the "standard letter" from the DVLA telling me to book an appointment with Specsavers for my eyesight to be tested. I have my appointment on 27 March 2023 at 10.00am at the Totnes Branch of Specsavers. When I have had a field test
Rescobie
in
Glaucoma UK
1 year ago
Uveitis treatment opinion please
I have been an intermediate uveitis patient ( vasculitis of the eye) for about 18 months now. Have had several steroid implants in the eye and has been on methotexrate injections for 6 months now. But the oedema due to vasculitis is coming back repeatedly. So seems like I have 2 options now in terms
I have been an intermediate uveitis patient ( vasculitis of the eye) for about 18 months now. Have had several steroid implants in the eye and has been on methotexrate injections for 6 months now. But the oedema due to vasculitis is coming back repeatedly. So seems like I have 2 options now in terms
Udupik
in
Vasculitis UK
1 year ago
Glaucoma patient
I have started using Collide silver to alleviate irritation I suffer using Glaucoma meds. I also use Optaze heat mask and wipes. I was using Hylo drops but get more relief using Collide silver. Any opinions?
I have started using Collide silver to alleviate irritation I suffer using Glaucoma meds. I also use Optaze heat mask and wipes. I was using Hylo drops but get more relief using Collide silver. Any opinions?
Stringwells
in
Glaucoma UK
1 year ago
Questions on PMR & GCA
The visit to my new Rheumatologist was unusual, she looked at me and just said, you don't have PMR or GCA within 5 minutes of consultation. No poking or touching. I presume because she had no results to go with we wait for tests to come back. So as to my previous post on the tests that I have just had
The visit to my new Rheumatologist was unusual, she looked at me and just said, you don't have PMR or GCA within 5 minutes of consultation. No poking or touching. I presume because she had no results to go with we wait for tests to come back. So as to my previous post on the tests that I have just had
Triumph650
in
PMRGCAuk
1 year ago
One week on
hi everybody, tomorrow it is a week since I saw my new Rheumy who diagnosed Inflammatory arthritis gave me a methylprednisolone injection and ordered lots of X rays and blood tests which I haven’t had results back from as yet. He never ordered a chest X-ray but as I had one 3 weeks ago which showed
hi everybody, tomorrow it is a week since I saw my new Rheumy who diagnosed Inflammatory arthritis gave me a methylprednisolone injection and ordered lots of X rays and blood tests which I haven’t had results back from as yet. He never ordered a chest X-ray but as I had one 3 weeks ago which showed
Wonderfullifeandmore
in
PMRGCAuk
11 months ago
Ectopic beats and sinus tachycardia
Hi all! I wondered if anyone has ever experienced what I have, for years I have had ectopic beats with no other symptoms. 6 weeks ago I went to bed with ectopics, didn’t take much notice as it happens most days, suddenly I woke in the middle of the night feeling out of breathe and very weak a feeling
Hi all! I wondered if anyone has ever experienced what I have, for years I have had ectopic beats with no other symptoms. 6 weeks ago I went to bed with ectopics, didn’t take much notice as it happens most days, suddenly I woke in the middle of the night feeling out of breathe and very weak a feeling
Klllls
in
British Heart Foundation
11 months ago
Vision Issues
I'm a GCA patient since AUG 2022, having started with 60 MG PRED and decreased slowly to 20 MG PRED at this time. Ever since starting the PRED, I have noticed that my vision is fuzzy, blurry, etc. I thought it was a side effect of the PRED. But after slowly decreasing PRED for 7 months, my vision
I'm a GCA patient since AUG 2022, having started with 60 MG PRED and decreased slowly to 20 MG PRED at this time. Ever since starting the PRED, I have noticed that my vision is fuzzy, blurry, etc. I thought it was a side effect of the PRED. But after slowly decreasing PRED for 7 months, my vision
montebello
in
PMRGCAuk
1 year ago
Glaucoma, sight loss, and dyslexia
Hi, I would appreciate it if anyone has come across information or support about having the above issues. 😊
Hi, I would appreciate it if anyone has come across information or support about having the above issues. 😊
Maltakitty
in
Glaucoma UK
1 year ago
Hello from Manchester
Just to say hello - I have had a recent diagnosis of SLE - Lupus and grateful to have discovered Lupus UK - having spent too much time doom=scrolling and reading about Selena Gomez and kidney transplants. Wishing everyone a good day and positive mental health in our personal battles.
Just to say hello - I have had a recent diagnosis of SLE - Lupus and grateful to have discovered Lupus UK - having spent too much time doom=scrolling and reading about Selena Gomez and kidney transplants. Wishing everyone a good day and positive mental health in our personal battles.
ancoats23
in
LUPUS UK
1 year ago
Short course of Prednisone
I have developed some ringing in my ears and exploring all kinds of reasons for why. Had an episode of Nystagmus (dizziness) in Feb but it went away. Also seeing an eye doc to make sure eyes not related to ear ringing. Still on W&W 2.5 years. WBC is at 20. Primary care doc wants me to take a 6 day
I have developed some ringing in my ears and exploring all kinds of reasons for why. Had an episode of Nystagmus (dizziness) in Feb but it went away. Also seeing an eye doc to make sure eyes not related to ear ringing. Still on W&W 2.5 years. WBC is at 20. Primary care doc wants me to take a 6 day
CBME
in
CLL Support
1 year ago
SLT for Glaucoma
I had SLT a few years ago as my pressures were in the high 20's . An easy process done in a few minutes. My pressures dropped within days and settled at around 12/14 ever since. I later had Cataracts removed which had the additional benefit of maintaining low pressures. Ganfort drops had worked
I had SLT a few years ago as my pressures were in the high 20's . An easy process done in a few minutes. My pressures dropped within days and settled at around 12/14 ever since. I later had Cataracts removed which had the additional benefit of maintaining low pressures. Ganfort drops had worked
Safehaven23
in
Glaucoma UK
1 year ago
Breathlessness
hi everyone, I wonder if I could have some advice! I’m having what I assume is a lupus flare (although my pain isn’t as bad as it sometimes gets), my main issue is over the last week I’ve become increasingly breathless. My blood pressure, pulse rate and blood oxygen is all normal. I have no temperature
hi everyone, I wonder if I could have some advice! I’m having what I assume is a lupus flare (although my pain isn’t as bad as it sometimes gets), my main issue is over the last week I’ve become increasingly breathless. My blood pressure, pulse rate and blood oxygen is all normal. I have no temperature
Alexia01
in
LUPUS UK
11 months ago
Gel nails & UV lamps
Hope this post finds you well 🙏🏽 My younger sister has recently been diagnosed with SLE and retinal vasculitis. As it’s very new to her, we are trying to adhere to any do’s and don’ts for her condition. She recently had gel nails done, forgetting about the need to not be exposed to UV rays, and is
Hope this post finds you well 🙏🏽 My younger sister has recently been diagnosed with SLE and retinal vasculitis. As it’s very new to her, we are trying to adhere to any do’s and don’ts for her condition. She recently had gel nails done, forgetting about the need to not be exposed to UV rays, and is
Gooner786
in
LUPUS UK
1 year ago
Lupus Eyes
Its been sometime since I have contacted Health unlocked about My BP/Asthma and also about my wife having Lupus. Can anyone please tell me about the medication causing red eyes and little hard bits around the eye lids. Thankyou in advance
Its been sometime since I have contacted Health unlocked about My BP/Asthma and also about my wife having Lupus. Can anyone please tell me about the medication causing red eyes and little hard bits around the eye lids. Thankyou in advance
just-typing
in
LUPUS UK
1 year ago
Epsom Salt and essential oils foot soak query
just a quick enquiry. I bought these lovely Epsom salts to give myself a relaxing foot soak but then read the list of essential oils and thought they might not be so good after all. 🤦♀️ I take flecainide, bisoprolol, warfarin and levothyroxine. Do foot soaks mean you absorb a lot of the essential
just a quick enquiry. I bought these lovely Epsom salts to give myself a relaxing foot soak but then read the list of essential oils and thought they might not be so good after all. 🤦♀️ I take flecainide, bisoprolol, warfarin and levothyroxine. Do foot soaks mean you absorb a lot of the essential
Gilli54
in
AF Association
1 year ago
Hello 👋
Hi, we are all happy to have you in the group and share your insight. There is a very strong genetic component to this. My mom, brother and I all have anxiety and depression. I have been diagnosed with bipolar 2. I've tried ketamine tablets and found it effective but had to stop because it's costly.
Hi, we are all happy to have you in the group and share your insight. There is a very strong genetic component to this. My mom, brother and I all have anxiety and depression. I have been diagnosed with bipolar 2. I've tried ketamine tablets and found it effective but had to stop because it's costly.
Fallin77
in
Anxiety Support
10 months ago
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