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Hand-foot-and-mouth disease
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Do anyone have a movement disorder?
I haven't got lupus but have aps and from what I've been told you can have a movement disorder with lupus. I have involuntary movements from what looks like I'm being electrocuted (like whole body spasms that bring my whole body in) tics, left side facial spasms (also tongue) and hand movements. It's
I haven't got lupus but have aps and from what I've been told you can have a movement disorder with lupus. I have involuntary movements from what looks like I'm being electrocuted (like whole body spasms that bring my whole body in) tics, left side facial spasms (also tongue) and hand movements. It's
Charts
in
LUPUS UK
7 months ago
Cholesterol and Statins
I am looking for some advice around taking a Statin for borderline high Cholesterol. I recently had a blood test for Cholesterol and the headline figures were:- Total Cholesterol 6.6 HDL 1.27 Triglycerides 1.86 LDL 4.5 10 year Cardiovascular risk score 14.6% I started taking a Statin as advised
I am looking for some advice around taking a Statin for borderline high Cholesterol. I recently had a blood test for Cholesterol and the headline figures were:- Total Cholesterol 6.6 HDL 1.27 Triglycerides 1.86 LDL 4.5 10 year Cardiovascular risk score 14.6% I started taking a Statin as advised
Hightower62
in
NRAS
6 months ago
Echcardio report finally.....after 3 months wait!
Hi all. Some of my AF friends on here may recall I had an echocardiogram way back on 14th August, as i was getting a bit SOB on stairs and slopes. I finally got the report on this Friday, 24th NOVEMBER....I almost can't believe I have had to wait THAT long. Anyway there has indeed been a change
Hi all. Some of my AF friends on here may recall I had an echocardiogram way back on 14th August, as i was getting a bit SOB on stairs and slopes. I finally got the report on this Friday, 24th NOVEMBER....I almost can't believe I have had to wait THAT long. Anyway there has indeed been a change
Wightbaby
in
AF Association
6 months ago
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Advice please 😌
Hi everybody, It’s nice to meet you all! So I’m sure you have loads of people posting on here about their frustrations with the NHS/GPs etc. therefore I won’t bore you with all of the details. My journey began in Dec 22 with what I thought was a bout of viral infection-induced joint pain in my hands
Hi everybody, It’s nice to meet you all! So I’m sure you have loads of people posting on here about their frustrations with the NHS/GPs etc. therefore I won’t bore you with all of the details. My journey began in Dec 22 with what I thought was a bout of viral infection-induced joint pain in my hands
Rocinante_89
in
LUPUS UK
7 months ago
updated Sjögren’s leaflet
https://sjogrensresearch-ireland.eu/wp-content/uploads/2022/09/Sjogrens-information-leaflet_2023-1.pdf Might be of interest!
https://sjogrensresearch-ireland.eu/wp-content/uploads/2022/09/Sjogrens-information-leaflet_2023-1.pdf Might be of interest!
weathervane
in
LUPUS UK
7 months ago
Husband with Cirrhosis
Hi all. I’m new to this group and after some help. My husband is in alcoholic recently diagnosed with Cirrhosis after an internal bleed, bruising, fatigue and spider veins on his upper body. He’s an alcoholic. He’s in total denial about it all and is still drinking every day (about 2 cans of Stella)
Hi all. I’m new to this group and after some help. My husband is in alcoholic recently diagnosed with Cirrhosis after an internal bleed, bruising, fatigue and spider veins on his upper body. He’s an alcoholic. He’s in total denial about it all and is still drinking every day (about 2 cans of Stella)
Hol1Day01
in
British Liver Trust
9 months ago
Mr Geoff Lloyd
Diagnosed in 2010 with advanced PC. Prostatectomy in 2011 followed by the "all clear". PSA refused to disappear and so RT followed. PSA still present and PC nodules found in my lung in 2021. I then had a 6 session course of chemotherapy and have been on Abiaterone and Demoxosone drugs ever since.Nodules
Diagnosed in 2010 with advanced PC. Prostatectomy in 2011 followed by the "all clear". PSA refused to disappear and so RT followed. PSA still present and PC nodules found in my lung in 2021. I then had a 6 session course of chemotherapy and have been on Abiaterone and Demoxosone drugs ever since.Nodules
Churchman123
in
Advanced Prostate Cancer
5 months ago
when to test child for CD?
Those of you with CD diagnosed in adulthood but with children - is there any evidence to suggest it’s beneficial to limit gluten in the diet? A fellow coeliac recently told me age 4 is when to get tested but he couldn’t recall where he got that info from. My daughter has no obvious signs and we haven
Those of you with CD diagnosed in adulthood but with children - is there any evidence to suggest it’s beneficial to limit gluten in the diet? A fellow coeliac recently told me age 4 is when to get tested but he couldn’t recall where he got that info from. My daughter has no obvious signs and we haven
Anj1a
in
Gluten Free Guerrillas
7 months ago
Pursuing Smaller, Faster Clinical Trials For Progressive Neurological Disorders
It’s easy to be pessimistic when it comes to investigating Parkinson’s disease. The condition, which causes progressive damage to brain cells over many years, has no therapy to halt its progression, with current treatments focusing only on symptom management. The challenges in Parkinson’s drug development
It’s easy to be pessimistic when it comes to investigating Parkinson’s disease. The condition, which causes progressive damage to brain cells over many years, has no therapy to halt its progression, with current treatments focusing only on symptom management. The challenges in Parkinson’s drug development
Farooqji
in
Cure Parkinson's
9 months ago
Kidney Stones
I’m 19 months into ADT (Lupron) following open RP and 38 rounds of radiation last summer. All treatments or for Gleason 9 (5/4) PC that had spread outside the prostate. A few weeks ago I started getting loose bowels, incontinence and blood in my urine. My urologist thought I had radiation cause cancer
I’m 19 months into ADT (Lupron) following open RP and 38 rounds of radiation last summer. All treatments or for Gleason 9 (5/4) PC that had spread outside the prostate. A few weeks ago I started getting loose bowels, incontinence and blood in my urine. My urologist thought I had radiation cause cancer
Parlorman
in
Advanced Prostate Cancer
9 months ago
Promising treatments in the 2023 Parkinson's clinical trials pipeline
https://www.parkinson.ca/promising-treatments-in-the-2023-parkinsons-clinical-trials/ "Phase 3 DMT trials completing in 2023: Memantine : Alzheimer's drug that aims to reduce cognitive impairment in Parkinson's. Ganoderma/Lingzh : Mushrooms from traditional Chinese medicine are being studied
https://www.parkinson.ca/promising-treatments-in-the-2023-parkinsons-clinical-trials/ "Phase 3 DMT trials completing in 2023: Memantine : Alzheimer's drug that aims to reduce cognitive impairment in Parkinson's. Ganoderma/Lingzh : Mushrooms from traditional Chinese medicine are being studied
nednedned
in
Cure Parkinson's
9 months ago
PSA Risen in Last 6 months
Have been on here a week ago, explaining that my husband (who was diagnosed 10years ago) has now been diagnosed with Gastroporesis, so not eating much due to constant nausea and vomiting. We are due to see his Urologist in 2 weeks time, so had the dreaded PSA blood test. It had been almost undetectable
Have been on here a week ago, explaining that my husband (who was diagnosed 10years ago) has now been diagnosed with Gastroporesis, so not eating much due to constant nausea and vomiting. We are due to see his Urologist in 2 weeks time, so had the dreaded PSA blood test. It had been almost undetectable
Hidden
in
Advanced Prostate Cancer
5 months ago
delayed reconstruction
I had a subdural haemorrhage in may 2023 removing most of the right side of my scull even encroached my forehead that’s some 10 months ago now. I was supposed to receive reconstructive surgery and have titanium implant to protect the sensitive area where my skin is my only protection to my brain. That
I had a subdural haemorrhage in may 2023 removing most of the right side of my scull even encroached my forehead that’s some 10 months ago now. I was supposed to receive reconstructive surgery and have titanium implant to protect the sensitive area where my skin is my only protection to my brain. That
Jodieb73
in
Headway
5 months ago
Psalm 119:143
As a believer that Jesus Christ is God and I have found him as my Lord & Saviour. The Bible has become a living book to me. its my comfort, my guide and my medicine, for sleep, peace of mind etc!! Thats why i write under the title Psalm 119:143! Trouble and Calamity have found me in the form of Parkinsons
As a believer that Jesus Christ is God and I have found him as my Lord & Saviour. The Bible has become a living book to me. its my comfort, my guide and my medicine, for sleep, peace of mind etc!! Thats why i write under the title Psalm 119:143! Trouble and Calamity have found me in the form of Parkinsons
Psalm119143
in
Cure Parkinson's
9 months ago
Looking for my Miracle
I've had persistent AFib for decades. Cardiologist and EP suggested ablation, watchman, every pill and treatment out there but I never felt they were the right thing to do, other than taking many meds, Altace, Toprol XL, Amiodarone, etc. Most recently I had to go onto Xarelto, 'tho I resisted it for
I've had persistent AFib for decades. Cardiologist and EP suggested ablation, watchman, every pill and treatment out there but I never felt they were the right thing to do, other than taking many meds, Altace, Toprol XL, Amiodarone, etc. Most recently I had to go onto Xarelto, 'tho I resisted it for
TheJazzSinger132
in
AF Association
6 months ago
After BCR and PSA Return: An Update on My Treatment Path
Hi Everyone, I realize it's been quite a while since I last shared an update on my journey. I thought it was high time to share how things have been going for me, especially considering the somewhat controversial path I decided to take in early 2022 following Biochemical Recurrence (BCR) and the early
Hi Everyone, I realize it's been quite a while since I last shared an update on my journey. I thought it was high time to share how things have been going for me, especially considering the somewhat controversial path I decided to take in early 2022 following Biochemical Recurrence (BCR) and the early
PGDuan
in
Advanced Prostate Cancer
9 months ago
Finally some progress
Those who followed our Journey, know this is such a painful process of grief. Two weeks ago, the hospital wrote it would not change the factual information in my wife's chart. In her chart it had been written she had Biopys proven Nash Cirrhosis, which led doctors looking at ultrasounds that said
Those who followed our Journey, know this is such a painful process of grief. Two weeks ago, the hospital wrote it would not change the factual information in my wife's chart. In her chart it had been written she had Biopys proven Nash Cirrhosis, which led doctors looking at ultrasounds that said
Wolivere
in
British Liver Trust
9 months ago
Ongoing BCR case. Advices are appreciated.
RP 09/17/2015 GS 7(4+3), PNI,SVI, ECE, positive margins (35% right half, 15% left half (PT3b N0M0)) 11/12/2015 PSA 0.06 first postop 01/13/2016 finished adjuvant RT 6600 cGy/33x to prostate bed 02/22/2016 PSA 0.03 first post RT 05/13/2019 PSA 0.11 DETECTABLE 01/29/2020
RP 09/17/2015 GS 7(4+3), PNI,SVI, ECE, positive margins (35% right half, 15% left half (PT3b N0M0)) 11/12/2015 PSA 0.06 first postop 01/13/2016 finished adjuvant RT 6600 cGy/33x to prostate bed 02/22/2016 PSA 0.03 first post RT 05/13/2019 PSA 0.11 DETECTABLE 01/29/2020
MSTI
in
Advanced Prostate Cancer
9 months ago
Hello - I'm a new member
Hello, I've just joined today and wanted to say hello. I was diagnosed with Rheumatoid Arthritis around 26 years ago, and it's been quite a journey. I've been on numerous treatments over the years, and had several surgeries. Fortunately, I've managed to keep working - although it's becoming more
Hello, I've just joined today and wanted to say hello. I was diagnosed with Rheumatoid Arthritis around 26 years ago, and it's been quite a journey. I've been on numerous treatments over the years, and had several surgeries. Fortunately, I've managed to keep working - although it's becoming more
WendyB123
in
NRAS
7 months ago
Just joined
Hi everyone, just want to say hello and am pleased that I am now part of this online community. I've had Rheumatoid Arthritis for over 30 years now and it's good to be able to hear from others in the same situation .
Hi everyone, just want to say hello and am pleased that I am now part of this online community. I've had Rheumatoid Arthritis for over 30 years now and it's good to be able to hear from others in the same situation .
AcerGirl
in
NRAS
7 months ago
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