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Bolt's Failed Pickle Experiment (Lectins) :(
First off, for those who don't know me, I have NOT been diagnosed with PD
. I was diagnosed with REM Sleep Behavior Disorder back in April 21, which the experts say will lead to PD or something worse. When I was diagnosed I did have some other odd symptoms. Mild balance issues, Seborrheic dermatitis
First off, for those who don't know me, I have NOT been diagnosed with PD
. I was diagnosed with REM Sleep Behavior Disorder back in April 21, which the experts say will lead to PD or something worse. When I was diagnosed I did have some other odd symptoms. Mild balance issues, Seborrheic dermatitis
Bolt_Upright
in
Cure Parkinson's
7 months ago
Rheumy visit recently, going forward…..
had my 2-3 monthly Rheumy visit last week. I’m currently on 6.5mg….looking to taper down to 6 soon (delayed as I had a cold recently.) Touch wood, all generally going along ok……she seems confident in my slow tapering method and seems happy to let me continue at my own pace 👏🏻. She said that we’ll
had my 2-3 monthly Rheumy visit last week. I’m currently on 6.5mg….looking to taper down to 6 soon (delayed as I had a cold recently.) Touch wood, all generally going along ok……she seems confident in my slow tapering method and seems happy to let me continue at my own pace 👏🏻. She said that we’ll
Cfmad298601
in
PMRGCAuk
8 months ago
red light therapy
I have been using red light therapy for a few years now but not sure if it works in slowing parkinsonsIt May we’ll be but I would like to ask Mr Markman about his trials. Are they double blind with placebo? What are the results? Thanks CG
I have been using red light therapy for a few years now but not sure if it works in slowing parkinsonsIt May we’ll be but I would like to ask Mr Markman about his trials. Are they double blind with placebo? What are the results? Thanks CG
Coling
in
Cure Parkinson's
8 months ago
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Methotrexate and hair thinning
Hi everyone. I’ve been on methotrexate for almost exactly 2 years and I can’t work out if my hair is currently thinning, it was fine before but these past few weeks it seems like more is coming out when I brush it. I don’t know if I’m imagining it or if it’s just going through it’s normal resting phase
Hi everyone. I’ve been on methotrexate for almost exactly 2 years and I can’t work out if my hair is currently thinning, it was fine before but these past few weeks it seems like more is coming out when I brush it. I don’t know if I’m imagining it or if it’s just going through it’s normal resting phase
Central_Perk
in
NRAS
8 months ago
RED LIGHT THERAPY also known as Photobiomodulation (PBM), Phototherapy, show of hands please
Could we get some idea of how many people are using Red Light Therapy for Parkinson's or other ailments . What are you treating What benefits you have received Any negative aspects How long you have been using it What type of devise , hat, belt, stand up or wall mount panel How powerful device
Could we get some idea of how many people are using Red Light Therapy for Parkinson's or other ailments . What are you treating What benefits you have received Any negative aspects How long you have been using it What type of devise , hat, belt, stand up or wall mount panel How powerful device
Gymsack
in
Cure Parkinson's
8 months ago
Test results help
In UK my TSH is 0.21 m/U/L. Doc says it's fine but I'm not sleeping & have excess hair loss again. I've seen optimal range for healthy adults at 0.5-1.0 but that in uIU/mL so I'm confused. Is my TSH reading then showing too low or high & do I need to lower my levo meds and or up them? Sorry my memory
In UK my TSH is 0.21 m/U/L. Doc says it's fine but I'm not sleeping & have excess hair loss again. I've seen optimal range for healthy adults at 0.5-1.0 but that in uIU/mL so I'm confused. Is my TSH reading then showing too low or high & do I need to lower my levo meds and or up them? Sorry my memory
endofdays
in
Thyroid UK
8 months ago
Lichenoid Dermatitis
I took a statin drug in January 2023 & by end of Feb 2023 I had skin ddiscolorations. In Mar I went to a dermatologist who started treating me with steroids & by May I had a biopsy, it was Lichenoid Dermatitis. It's left ugly, dark splotches on mmeals over with peeling skin. I'm using Dupixent every
I took a statin drug in January 2023 & by end of Feb 2023 I had skin ddiscolorations. In Mar I went to a dermatologist who started treating me with steroids & by May I had a biopsy, it was Lichenoid Dermatitis. It's left ugly, dark splotches on mmeals over with peeling skin. I'm using Dupixent every
Skywriter0
in
MY SKIN
8 months ago
low T4 and T3 normal TSH
I posted earlier in the year about my daughter diagnosed with post partum thyroiditis , no treatment at the time but endocrinologist said he’d keep an eye on her! Her most recent results seem odd to me in that both T4 and T3 are very low but her TSH is also low - her case has been closed and results
I posted earlier in the year about my daughter diagnosed with post partum thyroiditis , no treatment at the time but endocrinologist said he’d keep an eye on her! Her most recent results seem odd to me in that both T4 and T3 are very low but her TSH is also low - her case has been closed and results
Sususulio
in
Thyroid UK
9 months ago
BUPROPION
I received an email from Goodrx saying that Bupropion caused hair loss. I am loosing hair quite frequently and was wondering if anybody is having the same results. Also, if this is the cause of my hair loss, what other antidepressants will not aggravate my RLS. They are asleep right now because of
I received an email from Goodrx saying that Bupropion caused hair loss. I am loosing hair quite frequently and was wondering if anybody is having the same results. Also, if this is the cause of my hair loss, what other antidepressants will not aggravate my RLS. They are asleep right now because of
Josana13
in
Restless Legs Syndrome
9 months ago
Buspirone
Hi,I've been taking Buspirone for a while for anxiety witch is causing unbearable Tinnitus, has anyone else suffered this and would there be another anxiety pill that does not cause this.ta.
Hi,I've been taking Buspirone for a while for anxiety witch is causing unbearable Tinnitus, has anyone else suffered this and would there be another anxiety pill that does not cause this.ta.
Whymelord
in
Restless Legs Syndrome
9 months ago
BUPRENORPHINE
This is my story: I am 74 and have had RLS since I had a Cervical Fusion in 1984. I took different medications until I went into augmentation from pramipexole 3 years ago. Then all hell broke loose. For the past two years I would walk all night because I could not sit. I used my stationary bike
This is my story: I am 74 and have had RLS since I had a Cervical Fusion in 1984. I took different medications until I went into augmentation from pramipexole 3 years ago. Then all hell broke loose. For the past two years I would walk all night because I could not sit. I used my stationary bike
Josana13
in
Restless Legs Syndrome
9 months ago
QOL: summer cruise on the coast of Maine
I left on my summer cruise July 6 and continued thru August28. My old friend Kevin and I sailed for a week or so on his boat, fallowed by another old friend and his son on my boat for a week.Then my daughter and I went off for 4 days, to finish up the summer, my son and I spent two weeks on the coast
I left on my summer cruise July 6 and continued thru August28. My old friend Kevin and I sailed for a week or so on his boat, fallowed by another old friend and his son on my boat for a week.Then my daughter and I went off for 4 days, to finish up the summer, my son and I spent two weeks on the coast
yardsailor
in
Advanced Prostate Cancer
9 months ago
Inositol and selenium
Hi Guys came across this regarding Inositol and selenium my understanding of is that it helps with the iodination process of the thyroid . Please can I have your thought on this .
The Role of Inositol in Thyroid Physiology and in Subclinical Hypothyroidism Management
https://www.frontiersin.org
Hi Guys came across this regarding Inositol and selenium my understanding of is that it helps with the iodination process of the thyroid . Please can I have your thought on this .
The Role of Inositol in Thyroid Physiology and in Subclinical Hypothyroidism Management
https://www.frontiersin.org
moljanie
in
Thyroid UK
9 months ago
adalimumab side effects
Have been on adalimumab 2 weekly injections for nearly 3 months. Have noticed that I am losing an excessive amount of hair each time that I comb my hair. Also, I have been suffering from swollen legs /ankles over the past month without doing very much at all. Have previously needed to stop methotrexate
Have been on adalimumab 2 weekly injections for nearly 3 months. Have noticed that I am losing an excessive amount of hair each time that I comb my hair. Also, I have been suffering from swollen legs /ankles over the past month without doing very much at all. Have previously needed to stop methotrexate
Nannalyn
in
NRAS
3 days ago
Update on Dipyridamole
Talked to my Doctor and he felt that taking Dipyridamole as needed was OK. In two months I have had three bad nights. To me a bad night is going to bed and getting back up in 10 minutes, when ya know ya know. So that is the good news. I am also going for a blood test next week, that should be
Talked to my Doctor and he felt that taking Dipyridamole as needed was OK. In two months I have had three bad nights. To me a bad night is going to bed and getting back up in 10 minutes, when ya know ya know. So that is the good news. I am also going for a blood test next week, that should be
WideBody
in
Restless Legs Syndrome
9 months ago
Humorous
So I woke up last night and had burning and itching on my lower legs which I have experienced intermittently since I was 9 years old. It was more constant once I started injecting. It has gone away and has not been an issue for over a year. It felt a bit different than before and I went with put some
So I woke up last night and had burning and itching on my lower legs which I have experienced intermittently since I was 9 years old. It was more constant once I started injecting. It has gone away and has not been an issue for over a year. It felt a bit different than before and I went with put some
WIZARD6787
in
Pernicious Anaemia Society
10 months ago
#1 Symptom Reducer
I am a PwP and 56 years old. I'm a bit overwhelmed with all of the information, sometimes conflicting, out there regarding treatments and supplements. I am trying to determine what to try first. I am a predominantly tremor parkie. I exercise regularly & eat well. I take levadopa 25/100 4x a day.
I am a PwP and 56 years old. I'm a bit overwhelmed with all of the information, sometimes conflicting, out there regarding treatments and supplements. I am trying to determine what to try first. I am a predominantly tremor parkie. I exercise regularly & eat well. I take levadopa 25/100 4x a day.
staceysack
in
Cure Parkinson's
4 months ago
My glove upgrade lost its buzz..
Hi, My PD/Tass glove prototype seems to have lost its “buzz” when my partner swapped the old/vinyl look (on the right in the picture) with the clean new look (on the left in the picture). Using the SAME power/arduino etc. it seemed that it should work great until I put them on my hands and realized
Hi, My PD/Tass glove prototype seems to have lost its “buzz” when my partner swapped the old/vinyl look (on the right in the picture) with the clean new look (on the left in the picture). Using the SAME power/arduino etc. it seemed that it should work great until I put them on my hands and realized
Tryguy
in
Cure Parkinson's
5 months ago
itchy 🤯
Hi everybody. I have an itchy scalp that is driving me mad. My skin itches too and I’m 100% certain it’s a side effect of the Rucaparib I am taking. Can anyone recommend a shampoo that will ease this ? I also suspect my hair is thinning so I don’t want to exacerbate that. I’m also worried about using
Hi everybody. I have an itchy scalp that is driving me mad. My skin itches too and I’m 100% certain it’s a side effect of the Rucaparib I am taking. Can anyone recommend a shampoo that will ease this ? I also suspect my hair is thinning so I don’t want to exacerbate that. I’m also worried about using
JustKBO
in
My Ovacome
10 months ago
More Folic Acid Safe?
Hello, im trying to get my head hair and other body hair to grow again. As a female that's important to me. My d3, even supplemented, was normal but only 50 so I've doubled intake. The folic acis is 400 mcg and I take two of these daily too. Now I've recently seen a video on Tracey Witty site
Hello, im trying to get my head hair and other body hair to grow again. As a female that's important to me. My d3, even supplemented, was normal but only 50 so I've doubled intake. The folic acis is 400 mcg and I take two of these daily too. Now I've recently seen a video on Tracey Witty site
Wheat
in
Pernicious Anaemia Society
11 months ago
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