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Haemolytic anaemia
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Trials and Tribulations.
I did a trial of 1.5 mg methylcobalamin 4 times a day and that was positive. I then increased physical activity and had 3 days of a downturn and recovered. I then reduced to .75 mg with no decline. I increased physical activity for three days and had a downturn. I then added .06 mg of methylcobalamin
I did a trial of 1.5 mg methylcobalamin 4 times a day and that was positive. I then increased physical activity and had 3 days of a downturn and recovered. I then reduced to .75 mg with no decline. I increased physical activity for three days and had a downturn. I then added .06 mg of methylcobalamin
WIZARD6787
in
Pernicious Anaemia Society
9 months ago
why s mch rising now asI am SI daily??
just another quick question! I'm on SI b12 daily and just received my blood test results back Can anyone explain why my MCH is rising? I know this is an indicator of low b12 but it was getting lower and is now rising even though I am on daily b12 It isn't a huge difference but I am interested in why
just another quick question! I'm on SI b12 daily and just received my blood test results back Can anyone explain why my MCH is rising? I know this is an indicator of low b12 but it was getting lower and is now rising even though I am on daily b12 It isn't a huge difference but I am interested in why
brenanddave
in
Pernicious Anaemia Society
9 months ago
Vitamin D and Iron
Hi I posted yesterday about my private thyroid results and got some really great advice. Further to that, I was wondering if anyone could help me with iron and vitamin levels. On the Thriva test, it said: Vit D: 68.4 nmol/L (range 50 - 250) Ferritin: 69.1 ug/L (range 30-150) B12: 54.8 pmol/L (range
Hi I posted yesterday about my private thyroid results and got some really great advice. Further to that, I was wondering if anyone could help me with iron and vitamin levels. On the Thriva test, it said: Vit D: 68.4 nmol/L (range 50 - 250) Ferritin: 69.1 ug/L (range 30-150) B12: 54.8 pmol/L (range
Llobs
in
Thyroid UK
9 months ago
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B12 deficiency and b12 deficiency anemia
So we went to GP this evening, the antibody tests are back as negative. The GP was sat there with my complaint letter in front of her and was abit funny with us to be honest. I quoted the NICE guidelines and asked why my partner was not being treated for neurological symtoms. She informed me these are
So we went to GP this evening, the antibody tests are back as negative. The GP was sat there with my complaint letter in front of her and was abit funny with us to be honest. I quoted the NICE guidelines and asked why my partner was not being treated for neurological symtoms. She informed me these are
Nic878
in
Pernicious Anaemia Society
9 months ago
Long time no see, a brief update from me and a daughter with a diagnosis…
Hello all! I don’t know if anyone will remember me as it’s been a few years since I last posted. I’ll try to keep my update brief (and positive) as it’s not regarding myself that I’m drawn back to this forum, although I may well start posting more about myself once I’m back into the swing of it! I expect
Hello all! I don’t know if anyone will remember me as it’s been a few years since I last posted. I’ll try to keep my update brief (and positive) as it’s not regarding myself that I’m drawn back to this forum, although I may well start posting more about myself once I’m back into the swing of it! I expect
Ms_J
in
Pernicious Anaemia Society
9 months ago
Further info on blood panel
Hello! I posted a couple of weeks back with some questions about low B12 investigations and was about to have a very full and detailed blood panel. I've got some further info from my blood tests. I don't have a copy yet, they're on the way, so I'll have to be vague about actual numbers for some of them
Hello! I posted a couple of weeks back with some questions about low B12 investigations and was about to have a very full and detailed blood panel. I've got some further info from my blood tests. I don't have a copy yet, they're on the way, so I'll have to be vague about actual numbers for some of them
Onefish
in
Pernicious Anaemia Society
9 months ago
Please could I have some advice about “normal” vitamin levels?
I have just had some bloods done by my GP, all of which are in the normal range. Some are low in range and I would be grateful for any recommendations, especially from SlowDragon Thanks. Serum ferritin level 131 ug/L [30.0 - 250.0 Serum vitamin B12 level 267 ng/L [200.0 - 900.0 Serum folate level
I have just had some bloods done by my GP, all of which are in the normal range. Some are low in range and I would be grateful for any recommendations, especially from SlowDragon Thanks. Serum ferritin level 131 ug/L [30.0 - 250.0 Serum vitamin B12 level 267 ng/L [200.0 - 900.0 Serum folate level
Mollyfan
in
Thyroid UK
9 months ago
Another! GP appt. Tips for making the best of it please?
I posted on Monday about my experience of not having my low but still apparently "normal" vit B12 etc levels not taken seriously and ignoring the fact I have a lot of symptoms of pernicious anemia (I've also posted on the PAS forum, but there are far fewer people on there). https://healthunlocked.com
I posted on Monday about my experience of not having my low but still apparently "normal" vit B12 etc levels not taken seriously and ignoring the fact I have a lot of symptoms of pernicious anemia (I've also posted on the PAS forum, but there are far fewer people on there). https://healthunlocked.com
TheSnufkin
in
Thyroid UK
9 months ago
Ferrous sulphate
Can anyone help please with the best time of day to take these tablets? Or any experience with having taken them? It's all well and good to say take on an empty stomach, but they seem to cause reflux and when one is already taking PPI 's for acid reflux this is no easy task. Also advised by GP
Can anyone help please with the best time of day to take these tablets? Or any experience with having taken them? It's all well and good to say take on an empty stomach, but they seem to cause reflux and when one is already taking PPI 's for acid reflux this is no easy task. Also advised by GP
gillsky8
in
PMRGCAuk
9 months ago
stomach acid
happy new year everyone I was diagnosed with PA approx 9yrs ago with some atrophic gastritis and metaplasia (I think) I also have arthritis in my knees/hips I SI every 7 to 10 days Im 56 and I’m fairly fit and active so I know I’m lucky compared to some what I’m confused about is stomach acid.
happy new year everyone I was diagnosed with PA approx 9yrs ago with some atrophic gastritis and metaplasia (I think) I also have arthritis in my knees/hips I SI every 7 to 10 days Im 56 and I’m fairly fit and active so I know I’m lucky compared to some what I’m confused about is stomach acid.
lifegems
in
Pernicious Anaemia Society
5 months ago
flow cytometry is showing about 74% CLL involvement.
Is it likely that treatment might be needed in the near future? Husband is trisomy 12, TP53 negative. Mutated. He has splenomegaly, and enlarged nodes. Fish is in process. INTERPRETATION A phenotypically abnormal population with forward and right-angle scatter features of small lymphocytes constitutes
Is it likely that treatment might be needed in the near future? Husband is trisomy 12, TP53 negative. Mutated. He has splenomegaly, and enlarged nodes. Fish is in process. INTERPRETATION A phenotypically abnormal population with forward and right-angle scatter features of small lymphocytes constitutes
juniper1975
in
CLL Support
9 months ago
Help with supplements please
On the advice of greygoose who has said that my B12 is dangerously low despite being in the "normal" range, I'm posting to ask how I should be supplementing and what brands of supplements people recommend. This is on the basis that whilst my energy levels are slightly improved on the levo, my neurological
On the advice of greygoose who has said that my B12 is dangerously low despite being in the "normal" range, I'm posting to ask how I should be supplementing and what brands of supplements people recommend. This is on the basis that whilst my energy levels are slightly improved on the levo, my neurological
TheSnufkin
in
Thyroid UK
9 months ago
GP thinks my memory and concentration issues are fibromyalgia or CFS not thyroid
Hi all I posted a few weeks ago about my first GP's reluctance to prescribe thyroid medication https://healthunlocked.com/thyroiduk/posts/149794194/gp-wont-diagnose-despite-abnormal-test-results-what-should-i-do-next and then how I was prescribed a very low dose of levo (25mg) by a second GP https:
Hi all I posted a few weeks ago about my first GP's reluctance to prescribe thyroid medication https://healthunlocked.com/thyroiduk/posts/149794194/gp-wont-diagnose-despite-abnormal-test-results-what-should-i-do-next and then how I was prescribed a very low dose of levo (25mg) by a second GP https:
TheSnufkin
in
Thyroid UK
9 months ago
Diagnosed 2015 complete CBC has changed
last phlebotomy was in June of 2023, since then my HCT is stuck @ 39, HGB is now @ 11.9, MCV,MCH,MCH are dropping each month, RBC is stable @ 5. My ferritin is now 7 with iron @ 21 and % sat @. 5. TIBC AND UIBC are elevated. Fecal test normal no blood. I am exhausted no energy sleeping way too
last phlebotomy was in June of 2023, since then my HCT is stuck @ 39, HGB is now @ 11.9, MCV,MCH,MCH are dropping each month, RBC is stable @ 5. My ferritin is now 7 with iron @ 21 and % sat @. 5. TIBC AND UIBC are elevated. Fecal test normal no blood. I am exhausted no energy sleeping way too
Pickleball11
in
MPN Voice
9 months ago
Do I need to up my Iron supplement?
Hi All I posted these results the other day; SlowDragon kindly offered information and resources. However, I am uncertain whether I need to up my iron supplement. Can anyone help please? I did look on the site that SlowDragon gave but still unsure? Also, since posting last time, I have now added
Hi All I posted these results the other day; SlowDragon kindly offered information and resources. However, I am uncertain whether I need to up my iron supplement. Can anyone help please? I did look on the site that SlowDragon gave but still unsure? Also, since posting last time, I have now added
Lavender-Blue
in
Thyroid UK
9 months ago
Update.
I have received a letter from my haematologist. It states that I have mild anemia which I knew it also says that there is significant Haemolysis and increase in reticulocyte count up to 293.2. Bilirubin raised at 30. Inflammatory markers near normal with a crp of5.7. All very confusing, having trouble
I have received a letter from my haematologist. It states that I have mild anemia which I knew it also says that there is significant Haemolysis and increase in reticulocyte count up to 293.2. Bilirubin raised at 30. Inflammatory markers near normal with a crp of5.7. All very confusing, having trouble
Jacksc06
in
CLL Support
9 months ago
borderline haemoglobin
my recent blood test show that my haemoglobin A12 level is borderline .Does this indicate that I should increase my SI of B12?Have been feeling more exhausted of late.
my recent blood test show that my haemoglobin A12 level is borderline .Does this indicate that I should increase my SI of B12?Have been feeling more exhausted of late.
Mrsannabbott
in
Pernicious Anaemia Society
9 months ago
Results from Medichecks/ Supplement Advice
https://healthunlocked.com/thyroiduk/posts/149843665/thyroid-and-hrt Following everyones helpful advice to my previous post, I've got results from Medichecks advising that I have insufficient levels of Vit D (48.3 in range of 50 - 250). Does anyone have any recommendations for which supplements to
https://healthunlocked.com/thyroiduk/posts/149843665/thyroid-and-hrt Following everyones helpful advice to my previous post, I've got results from Medichecks advising that I have insufficient levels of Vit D (48.3 in range of 50 - 250). Does anyone have any recommendations for which supplements to
Apollo1
in
Thyroid UK
9 months ago
A helpful video for me.
https://www.youtube.com/watch?v=q5cyMLt6N7Q This was posted by someone else on this site 6+- months ago and resonated with me. I do not know who the creator is or their credentials. I am more than fine that it is not blessed/authenticated and find it valuable. It differentiates between Intrinsic
https://www.youtube.com/watch?v=q5cyMLt6N7Q This was posted by someone else on this site 6+- months ago and resonated with me. I do not know who the creator is or their credentials. I am more than fine that it is not blessed/authenticated and find it valuable. It differentiates between Intrinsic
WIZARD6787
in
Pernicious Anaemia Society
9 months ago
Neurological Signals
Now that I self treat in a way that I no longer experience symptoms associated with B12 deficiency and the resulting known damage I am finding it helpful to think in terms of neurological signals. Temperature regulation becomes I now get signals that I am cold or hot and do not expose my body to situations
Now that I self treat in a way that I no longer experience symptoms associated with B12 deficiency and the resulting known damage I am finding it helpful to think in terms of neurological signals. Temperature regulation becomes I now get signals that I am cold or hot and do not expose my body to situations
WIZARD6787
in
Pernicious Anaemia Society
6 months ago
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