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Haemolytic anaemia
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Thought about Intrinsic factor
Okay, so I've been thinking a lot about this, but if you no longer have intrinsic factor why would your body continue to make antibodies to intrinsic factor. I'm wondering about this as I keep getting tested by doctors for IF antibodies with no success, but I was told 15+ years ago when I was diagnosed
Okay, so I've been thinking a lot about this, but if you no longer have intrinsic factor why would your body continue to make antibodies to intrinsic factor. I'm wondering about this as I keep getting tested by doctors for IF antibodies with no success, but I was told 15+ years ago when I was diagnosed
PaintLadie
in
Pernicious Anaemia Society
4 months ago
At What Level Is Low B12 Treated?
Hi! I recently had some blood tests and my B12 came back low at 180, normal range 197-771. My folate was 4.7, normal range 3.9-26.8. Full blood count and ferritin fine, I had iron deficiency anaemia and have been successful treated for that and all those levels looking good. My question is, at what
Hi! I recently had some blood tests and my B12 came back low at 180, normal range 197-771. My folate was 4.7, normal range 3.9-26.8. Full blood count and ferritin fine, I had iron deficiency anaemia and have been successful treated for that and all those levels looking good. My question is, at what
Hidden
in
Pernicious Anaemia Society
5 months ago
Low Folate
Hello, I was recently told I have low folic acid. I just wondered if anyone has experienced similar symptoms to mine. I have been given 5mg folate for 4 months and told to take over the counter folic acid forever once the course is completed. The main symptom is palpitations and constantly aware of
Hello, I was recently told I have low folic acid. I just wondered if anyone has experienced similar symptoms to mine. I have been given 5mg folate for 4 months and told to take over the counter folic acid forever once the course is completed. The main symptom is palpitations and constantly aware of
Atheo82
in
Pernicious Anaemia Society
5 months ago
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Thyroid s supplier
forgot to mention in previous note any supplier detail needs to be DM’d!!! After 6 years of myxedema coma I’ve got brain of a muddled toddler. wee bit scary.
forgot to mention in previous note any supplier detail needs to be DM’d!!! After 6 years of myxedema coma I’ve got brain of a muddled toddler. wee bit scary.
joydot
in
Thyroid UK
5 months ago
Akathisia similar to RLS
https://www.ncbi.nlm.nih.gov/books/NBK519543/#:~:text=Akathisia%20may%20appear%20soon%20after,and%20sedatives%20used%20in%20anesthesia. A number of people have posted on the forum recently and the symptoms didn't sound like RLS. Akathisia is VERY similar to RLS and is usually caused by the same medications
https://www.ncbi.nlm.nih.gov/books/NBK519543/#:~:text=Akathisia%20may%20appear%20soon%20after,and%20sedatives%20used%20in%20anesthesia. A number of people have posted on the forum recently and the symptoms didn't sound like RLS. Akathisia is VERY similar to RLS and is usually caused by the same medications
Joolsg
in
Restless Legs Syndrome
5 months ago
The results are in, over to the judges.
I am a 59 year old, 74Kg male, with no other comorbidities except mild lifelong well controlled Asthma. The tests on 10/01/2024 where all taken using the guidance given here, of no levy for 24 hours prior and no food/drink ETC before the test. The previous tests may not have been in full compliance
I am a 59 year old, 74Kg male, with no other comorbidities except mild lifelong well controlled Asthma. The tests on 10/01/2024 where all taken using the guidance given here, of no levy for 24 hours prior and no food/drink ETC before the test. The previous tests may not have been in full compliance
Sat2
in
Thyroid UK
5 months ago
First blood test after starting Peg 17/12/2023
Hi, Blood test from 28/12/2023 Platelets down to 427 (previous 580, 560, 504). Elevated Potassium 5.4 and ALT 96. I guess Peg has elevated ALT?? My next FU is March 14th. I’m really hoping I don’t have to increase Peg which is currently 45 weekly.
Hi, Blood test from 28/12/2023 Platelets down to 427 (previous 580, 560, 504). Elevated Potassium 5.4 and ALT 96. I guess Peg has elevated ALT?? My next FU is March 14th. I’m really hoping I don’t have to increase Peg which is currently 45 weekly.
Carol0925
in
MPN Voice
5 months ago
What the heck, Thyroid!?
Well, I found myself in this forum by following bread crumbs left by FancyPants54 Thankfully she's a bit messy with her snacks 😊 I've been on Pernicious anemia forum for the past few years dealing with my PA/AMAG. I think I may have been selected by whomever makes such selections to have the benefit
Well, I found myself in this forum by following bread crumbs left by FancyPants54 Thankfully she's a bit messy with her snacks 😊 I've been on Pernicious anemia forum for the past few years dealing with my PA/AMAG. I think I may have been selected by whomever makes such selections to have the benefit
Rexz
in
Thyroid UK
5 months ago
Folic Acid Deficiency
Hello all, I have always suffered with anxiety and heart palpitations. Recently, they became worse and I went to the GP who sent me for a blood test. The blood test showed that I have folic acid deficiency(<2.0). I've been taking 5mg folic acid for two months (I have two months left to go) and my
Hello all, I have always suffered with anxiety and heart palpitations. Recently, they became worse and I went to the GP who sent me for a blood test. The blood test showed that I have folic acid deficiency(<2.0). I've been taking 5mg folic acid for two months (I have two months left to go) and my
Atheo82
in
MPN Voice
5 months ago
Newly diagnosed with low VitB12
Went to the GP a few months back with menopause symptoms. Mainly sleep issues, anxiety, brain fog and fatigue. The doc ordered a full fasting blood count which come back with me having low vitamin B12 (175), low vitamin D. (live in Scotland so most people are) and folic acid levels on the low side although
Went to the GP a few months back with menopause symptoms. Mainly sleep issues, anxiety, brain fog and fatigue. The doc ordered a full fasting blood count which come back with me having low vitamin B12 (175), low vitamin D. (live in Scotland so most people are) and folic acid levels on the low side although
BigH70
in
Pernicious Anaemia Society
5 months ago
Jak 2 exon 12
My rbc and hemoglobin and iron are all high but my mcv hct mch mchc are all. Within range. I tested negative for jak 2 test last year 2022. But because my rbc and hemoglobin are still up my haematology has done a jak 2 exon 12 because they can't under why my bloods are still up. Any information is much
My rbc and hemoglobin and iron are all high but my mcv hct mch mchc are all. Within range. I tested negative for jak 2 test last year 2022. But because my rbc and hemoglobin are still up my haematology has done a jak 2 exon 12 because they can't under why my bloods are still up. Any information is much
Hidden
in
MPN Voice
5 months ago
Weaning down off Pregabalin
A medication error occurred when I went to collect my prescription for Pregabelin, and I am not sure that best way to proceed. For the previous three weeks my GP had me on 25mg daily – the low dose is because she said I am very sensitive to medication. As the 25 mg was not controlling my RLS symptoms
A medication error occurred when I went to collect my prescription for Pregabelin, and I am not sure that best way to proceed. For the previous three weeks my GP had me on 25mg daily – the low dose is because she said I am very sensitive to medication. As the 25 mg was not controlling my RLS symptoms
restlegs1
in
Restless Legs Syndrome
5 months ago
can you tell me what the best brand to take for low folate
I had full thyroid check with medicheck just over a year ago. the result for my vitamins were Folate. 2.38ugl ( 3.89 - 19.45) Vitamin b12 69.5 pmol/L ( 37.5 - 150) Vitamin D 67 ( 50-200) I did get my folate check with my doctors, after I told them of my private blood test but they
I had full thyroid check with medicheck just over a year ago. the result for my vitamins were Folate. 2.38ugl ( 3.89 - 19.45) Vitamin b12 69.5 pmol/L ( 37.5 - 150) Vitamin D 67 ( 50-200) I did get my folate check with my doctors, after I told them of my private blood test but they
Bookworm90
in
Thyroid UK
5 months ago
What should my optimal vitamin levels be please?
Hi there, I’m trying to get vitamin levels up to hopefully help with poor conversion. Iron was low and I’ve recently retested for that after supplementing for about 3 months. Ferritin is now at 65 ug/L Folate has dropped from >45 a year ago to 8.5ug/L My question is what should they ideally be?
Hi there, I’m trying to get vitamin levels up to hopefully help with poor conversion. Iron was low and I’ve recently retested for that after supplementing for about 3 months. Ferritin is now at 65 ug/L Folate has dropped from >45 a year ago to 8.5ug/L My question is what should they ideally be?
Thywotsit
in
Thyroid UK
5 months ago
elevated MCHC GP unconcerned
I’m sure she’s right but I was told via text with no opportunity to reply or discuss so wondering if anyone here can shed any extra light. I’m 8 months postpartum and still breastfeeding. I have a long term b12 issue for which I have injections every 8 weeks. Periodically my folate gets low, as it
I’m sure she’s right but I was told via text with no opportunity to reply or discuss so wondering if anyone here can shed any extra light. I’m 8 months postpartum and still breastfeeding. I have a long term b12 issue for which I have injections every 8 weeks. Periodically my folate gets low, as it
Roo32
in
Pernicious Anaemia Society
5 months ago
Daughters repeat bloods , off to Rapid Access this afternoon.
Previous post https://healthunlocked.com/pasoc/posts/150279394/the-saga-continues-daughters-bloods so at surgery this am, 5th jab, asked for latest bloods print out , told but it hasn't been reported on so can't, said look need it for appointment this afternoon at Alder Hey. Went in to get her jab
Previous post https://healthunlocked.com/pasoc/posts/150279394/the-saga-continues-daughters-bloods so at surgery this am, 5th jab, asked for latest bloods print out , told but it hasn't been reported on so can't, said look need it for appointment this afternoon at Alder Hey. Went in to get her jab
Polo22
in
Pernicious Anaemia Society
5 months ago
Iron supplement recommendations please
Can anyone recommend an iron supplement that won't cause constipation? My iron is low so GP prescribed me 200mg Ferrus Sulphate. I'm supposed to be taking 3 a day but I can barely manage 1, my bowels do not agree at all! 🙈 I was looking at Floradix liquid iron however it contains b vitamins which I'm
Can anyone recommend an iron supplement that won't cause constipation? My iron is low so GP prescribed me 200mg Ferrus Sulphate. I'm supposed to be taking 3 a day but I can barely manage 1, my bowels do not agree at all! 🙈 I was looking at Floradix liquid iron however it contains b vitamins which I'm
Mummybear0213
in
Thyroid UK
5 months ago
iron overload
An early happy new year to all. Just curious if anyone has iron overload from blood transfusions and if they have started any therapy for this. My husband has high risk MF and has been dependent on monthly blood transfusions since his hemoglobin and hematocrit levels have been low 25 for hematocrit
An early happy new year to all. Just curious if anyone has iron overload from blood transfusions and if they have started any therapy for this. My husband has high risk MF and has been dependent on monthly blood transfusions since his hemoglobin and hematocrit levels have been low 25 for hematocrit
Bainbridge
in
MPN Voice
5 months ago
Borderline B12 Deficiency
Hi, I have been diagnosed with Borderline Vit B12 Deficiency and am wondering if long term Pred could have caused itHad PMR from 2014 for six years, it is back again and have been on Pred since August 2023 I would value your opinions. Thank you Jenny
Hi, I have been diagnosed with Borderline Vit B12 Deficiency and am wondering if long term Pred could have caused itHad PMR from 2014 for six years, it is back again and have been on Pred since August 2023 I would value your opinions. Thank you Jenny
Attic
in
PMRGCAuk
5 months ago
1 more question?! Maybe more!
You will all be getting fed up with me ! Today I started the 10 mcg Buprenorphine patch...changed from 12 mcg Fentanyl patch which didn't do much for pain and definitely nothing for the rls ! How long, approximately, does it take for Buprenorphine to kick in and start to help....hopefully? I wasn't
You will all be getting fed up with me ! Today I started the 10 mcg Buprenorphine patch...changed from 12 mcg Fentanyl patch which didn't do much for pain and definitely nothing for the rls ! How long, approximately, does it take for Buprenorphine to kick in and start to help....hopefully? I wasn't
Danni54
in
Restless Legs Syndrome
5 months ago
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