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Experiences with
Haemolytic anaemia
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Acalabrutinib to treat CLL & AIHA
I have been on W&W since 2018 but in this last year have had four admissions to hospital with Auto Immune
Haemolytic
Anaemia
, all admissions required blood transfusions and I felt pretty poorly with breathlessness, fatigue and very low Hb.
I have been on W&W since 2018 but in this last year have had four admissions to hospital with Auto Immune
Haemolytic
Anaemia
, all admissions required blood transfusions and I felt pretty poorly with breathlessness, fatigue and very low Hb.
Wen_dy
in
CLL Support
5 months ago
Buscopan Injection For Colonoscopy
As anyone had a Buscopan injection before a colonoscopy, concerned as have AFib, Hypothyroidism and
Haemolytic
Anaemia
. Is it necessary to have one of these injections?
As anyone had a Buscopan injection before a colonoscopy, concerned as have AFib, Hypothyroidism and
Haemolytic
Anaemia
. Is it necessary to have one of these injections?
thyreoidea
in
Thyroid UK
8 months ago
TSH 50.5
I have congenital
haemolytic
anaemia
( pyruvate kinase deficiency) with associated iron overload. I am 68 years old. Should I be having antibody tests? Which medication shoul I be on? Is there anything I can do to assist myself?
I have congenital
haemolytic
anaemia
( pyruvate kinase deficiency) with associated iron overload. I am 68 years old. Should I be having antibody tests? Which medication shoul I be on? Is there anything I can do to assist myself?
Porcelet
in
Thyroid UK
6 months ago
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Haematologist’s unsupportive B12 response
My own research brings up
haemolytic
anaemia
, another autoimmune disease where the immune system attacks red blood cells. Thank you all in advance 🙏☺️
My own research brings up
haemolytic
anaemia
, another autoimmune disease where the immune system attacks red blood cells. Thank you all in advance 🙏☺️
GoneWithTheWind1972
in
Pernicious Anaemia Society
22 days ago
Does anyone on this forum have Primary Auto Immune Haemolytic Anaemia (AIHA)
Are there any other people on this forum who have Primary Auto Immune
Haemolytic
Anaemia
(AIHA)
Are there any other people on this forum who have Primary Auto Immune
Haemolytic
Anaemia
(AIHA)
thyreoidea
in
Thyroid UK
11 months ago
CoQ10 Supplement
I ask because I have
Haemolytic
Anaemia
where my Mechanical Valves destroy the red blood cells before the end of the natural life cycle, so I dont produce sufficient Haemoglobin, which in turn causes other issues. As I say, not after advice, just curious. Heed
I ask because I have
Haemolytic
Anaemia
where my Mechanical Valves destroy the red blood cells before the end of the natural life cycle, so I dont produce sufficient Haemoglobin, which in turn causes other issues. As I say, not after advice, just curious. Heed
Hidden
in
British Heart Foundation
1 year ago
Should I stop Ferrous Fumarate before Blood Test?
Hi, I was prescribed Ferrous Fumarate after my last bloods showed very low in ferritin levels (I'm Hashi's). I'm due my follow up routine blood test for thyroid levels and ferritin / iron next week. Do I need to stop taking the Ferrous Fumarate ahead of the blood test? Thanks so much
Hi, I was prescribed Ferrous Fumarate after my last bloods showed very low in ferritin levels (I'm Hashi's). I'm due my follow up routine blood test for thyroid levels and ferritin / iron next week. Do I need to stop taking the Ferrous Fumarate ahead of the blood test? Thanks so much
SleepingDisco
in
Thyroid UK
8 hours ago
Macrocytic Anemia?
Hi, I am posting here for my Mom. She had blood work every year with perfect results until last year in September when the Hemoglobin/RBC/Hemocrit started dropping. She never had anemia before. In March of this year MCV and MCH started going up and be higher then normal. I took her to a hematologist
Hi, I am posting here for my Mom. She had blood work every year with perfect results until last year in September when the Hemoglobin/RBC/Hemocrit started dropping. She never had anemia before. In March of this year MCV and MCH started going up and be higher then normal. I took her to a hematologist
Simonapo
in
Pernicious Anaemia Society
10 hours ago
Liver problems. iron saturation
is an iron saturation of 18 % too low ? Worrying again . Says normal on report but I don t think it is .
is an iron saturation of 18 % too low ? Worrying again . Says normal on report but I don t think it is .
Curryblue
in
British Liver Trust
2 days ago
Gastritis
Hi all! Had my endoscopy last Friday.. my follow up (awaiting biopsies) I have mild erosive Gastritis which I understand can prevent B12 from absorbing? My Gastroenterologist says I haven’t got B12 deficiency ( before endoscopy) last test was 6 months ago! 226 ng/l (178ng/L - 2000ng/L (I did quote
Hi all! Had my endoscopy last Friday.. my follow up (awaiting biopsies) I have mild erosive Gastritis which I understand can prevent B12 from absorbing? My Gastroenterologist says I haven’t got B12 deficiency ( before endoscopy) last test was 6 months ago! 226 ng/l (178ng/L - 2000ng/L (I did quote
Doris11
in
Pernicious Anaemia Society
4 days ago
Anemia
I finished V and O early April. I was told my blood results were great and I likely am in remission. I got my bloodwork results today for my appointment with my oncologist this Friday. My RBC, 3.86, hemoglobin 116, hematocrit .339, all low. Looking back over the past year, these results were occasionally
I finished V and O early April. I was told my blood results were great and I likely am in remission. I got my bloodwork results today for my appointment with my oncologist this Friday. My RBC, 3.86, hemoglobin 116, hematocrit .339, all low. Looking back over the past year, these results were occasionally
Cottager1989
in
CLL Support
5 days ago
low b12 - When will this improve?
I have low B12 - 188 Iron Serum- 11 ( just under normal) Folate is 3.6 Iron serum 110 Vitamin D - 65 Went to doctor due to pins and needles in feet and hands and some fatigue, some headaches and waves of sadness . Suspected it was low Vitamin d or b12 as I had low b12 back in 2021 ( 101)
I have low B12 - 188 Iron Serum- 11 ( just under normal) Folate is 3.6 Iron serum 110 Vitamin D - 65 Went to doctor due to pins and needles in feet and hands and some fatigue, some headaches and waves of sadness . Suspected it was low Vitamin d or b12 as I had low b12 back in 2021 ( 101)
Damacian
in
Pernicious Anaemia Society
5 days ago
Son tested positive for gastric parietal cell antibodies
My son has history with h pylori, which he was treated for, but the symptoms haven't gone away completely. Last week I was talking about my own b12 deficiency and he informed me he has the same symptoms. I know he has been more tried than normal, but I put it due to the h pylori, after effects. As that
My son has history with h pylori, which he was treated for, but the symptoms haven't gone away completely. Last week I was talking about my own b12 deficiency and he informed me he has the same symptoms. I know he has been more tried than normal, but I put it due to the h pylori, after effects. As that
fatfatfat
in
Pernicious Anaemia Society
7 days ago
Fatigue, anemia, blood test results
Would anyone give their interpretation of the following blood test results (ref.range in the brackets and those out of the ranges in bold letters)? ALAT 19 (<34) ASAT 22 (15-35) GGT 9 (9-36)
FERRITIN 4,2 (10-204)
B12 340 (138-652) HEMOGRAM: Hb 132 (121-150) Hct 42,5% (37-45%) WBC
Would anyone give their interpretation of the following blood test results (ref.range in the brackets and those out of the ranges in bold letters)? ALAT 19 (<34) ASAT 22 (15-35) GGT 9 (9-36)
FERRITIN 4,2 (10-204)
B12 340 (138-652) HEMOGRAM: Hb 132 (121-150) Hct 42,5% (37-45%) WBC
Nipitiri
in
Thyroid UK
7 days ago
High stomach pH
I have just done a second gut microbiome test. The first one I did in August last year showed I had a score of 7.2, which indicated I have little stomach acid. The one I have just done has come back higher at 8.1 (ideal range should be 5.8 - 6.5). Does anyone else have this? Is is a good indication
I have just done a second gut microbiome test. The first one I did in August last year showed I had a score of 7.2, which indicated I have little stomach acid. The one I have just done has come back higher at 8.1 (ideal range should be 5.8 - 6.5). Does anyone else have this? Is is a good indication
Chickens44
in
Pernicious Anaemia Society
8 days ago
Active B12 gone down
Hello, I have been on loading doses (initially from my GP and now SI) for 7 weeks and am slowly improving. My initial active B12 was 48.1 ng/L, serum 162. I was on daily oral B12 supplements at the time so my results were skewed. I know that blood tests after injections are considered pointless but
Hello, I have been on loading doses (initially from my GP and now SI) for 7 weeks and am slowly improving. My initial active B12 was 48.1 ng/L, serum 162. I was on daily oral B12 supplements at the time so my results were skewed. I know that blood tests after injections are considered pointless but
Maldeerum
in
Pernicious Anaemia Society
9 days ago
blue lips side effect olaparib
I’ve just started olaparib maintenance therapy following debunking and chemo that finished in January. I have started to get blue lips. My only other side effects are joint pain (helped by onega 3 and exercise) and mild nausea. Has anyone else had blue lips? Is it serious?
I’ve just started olaparib maintenance therapy following debunking and chemo that finished in January. I have started to get blue lips. My only other side effects are joint pain (helped by onega 3 and exercise) and mild nausea. Has anyone else had blue lips? Is it serious?
Beatbigc
in
My Ovacome
10 days ago
Interesting update for those in the UK whose GP practice has Buprenorphine red listed
Finally, after months of hitting my head against a brick wall with my GP practice, where Buprenorphine is firmly red-listed (and the partners flatly refuse to change their stance, even after being presented with all the research we know about on this site), I have been able to obtain an NHS prescription
Finally, after months of hitting my head against a brick wall with my GP practice, where Buprenorphine is firmly red-listed (and the partners flatly refuse to change their stance, even after being presented with all the research we know about on this site), I have been able to obtain an NHS prescription
Claire_lc
in
Restless Legs Syndrome
10 days ago
Private GP visit
I saw I private GP today as I felt with more time to go through my symptoms and tests I might get somewhere. But she is of the opinion that my B12, ferritin and folate levels were all fine and nothing to worry about. They are within range. I asked about my symptoms, but she didn’t feel they warranted
I saw I private GP today as I felt with more time to go through my symptoms and tests I might get somewhere. But she is of the opinion that my B12, ferritin and folate levels were all fine and nothing to worry about. They are within range. I asked about my symptoms, but she didn’t feel they warranted
Chickens44
in
Pernicious Anaemia Society
11 days ago
Reaction to Denosumab injection
I had my first 6 monthly injection a couple of weeks ago. 2 nights later I was up every half hour to pee and/or poo all night! Since then I've had a lot of grumbly tummy and also pain - shoulders, neck, arms - a bit like PMR but not quite. Upping the pred didn't seem to make much difference. Could these
I had my first 6 monthly injection a couple of weeks ago. 2 nights later I was up every half hour to pee and/or poo all night! Since then I've had a lot of grumbly tummy and also pain - shoulders, neck, arms - a bit like PMR but not quite. Upping the pred didn't seem to make much difference. Could these
Japsquar
in
PMRGCAuk
12 days ago
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