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nhs complaint
My husband was diagnosed with T3 N3 M1b/c left lung adenocarcinoma in October 2 1 . He had chemo and immunotherapy as well as radiotherapy. In January 2 2 he started getting pain in his neck which he reported to the oncology team at the hospital and it was added to the ct scan in May 2 2. He was told
My husband was diagnosed with T3 N3 M1b/c left lung adenocarcinoma in October 2 1 . He had chemo and immunotherapy as well as radiotherapy. In January 2 2 he started getting pain in his neck which he reported to the oncology team at the hospital and it was added to the ct scan in May 2 2. He was told
Sharkypuss
in
The Roy Castle Lung Cancer Foundation
6 months ago
Rectal prolapse - Constipation. Laxido
Hello. I have a rectal prolapse - like a tomato which comes outside my body. I get constipated and been given laxido. It was working well, but I am now getting liquid which bypasses my prolapse. I took the last one six days ago. I have soft motions and now this liquid. I also have a leaking bladder so
Hello. I have a rectal prolapse - like a tomato which comes outside my body. I get constipated and been given laxido. It was working well, but I am now getting liquid which bypasses my prolapse. I took the last one six days ago. I have soft motions and now this liquid. I also have a leaking bladder so
briarhillcat
in
IBS Network
3 months ago
Active B12 levels
I read that : The normal range for active vitamin B12 (holoTC) is around 20 – 134 pmol/L (picomoles per My recent blood test states my active B12 level is 83.2pmol/L but states this is optimal. (medichecks) Do I need to supplement this?
I read that : The normal range for active vitamin B12 (holoTC) is around 20 – 134 pmol/L (picomoles per My recent blood test states my active B12 level is 83.2pmol/L but states this is optimal. (medichecks) Do I need to supplement this?
Fortie
in
Thyroid UK
3 months ago
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Coroner: Vitamin D packs should outline ‘serious risks’ after overdose death
Sometimes vitamin D dosing seems to be regarded as being of little importance provided we get enough. [u]This article and the report make it very clear that [/u][u]
excess
[/u][u] vitamin D is very much to be avoided.[/u] The company mentioned in the report offers products up to 5000 IU. But I
Sometimes vitamin D dosing seems to be regarded as being of little importance provided we get enough. [u]This article and the report make it very clear that [/u][u]
excess
[/u][u] vitamin D is very much to be avoided.[/u] The company mentioned in the report offers products up to 5000 IU. But I
helvella
Thyroid UK
in
Thyroid UK
3 months ago
Subsequent to previous posts
Went back to GP again today after previous visit about clubbed fingers and breathing trouble. Booked an urgent blood test and need to provide samples then I will get a scan to check for cancer. I don't know how I feel about this tbh, wanted him to tell me it was all in my head and for that to be true
Went back to GP again today after previous visit about clubbed fingers and breathing trouble. Booked an urgent blood test and need to provide samples then I will get a scan to check for cancer. I don't know how I feel about this tbh, wanted him to tell me it was all in my head and for that to be true
JHutton1994
in
Lung Conditions Community Forum
6 months ago
Daridexorant / quvuviq and RLS
Just wondering if anyone else has experience of this sleep aid and RLS? I have bought (not available in my region on NHS yet) a month’s supply of 50mg tablets and ….. I am sleeping normally!!!! It is a new drug to the UK but tried and tested in USA I believe? Apparently minimal side effects. I have
Just wondering if anyone else has experience of this sleep aid and RLS? I have bought (not available in my region on NHS yet) a month’s supply of 50mg tablets and ….. I am sleeping normally!!!! It is a new drug to the UK but tried and tested in USA I believe? Apparently minimal side effects. I have
Lacey_
in
Restless Legs Syndrome
1 month ago
Road blocks
Hi all,I thought I'd update you all. I went into hospital in the 20/02 to have my second last chemo before the BMT. Upon admission, I had a fever. After 4 days of fevers and a rash from head to toe, the doctors elected to postpone the BMT. So now the search is on to find out what drugs didn't agree
Hi all,I thought I'd update you all. I went into hospital in the 20/02 to have my second last chemo before the BMT. Upon admission, I had a fever. After 4 days of fevers and a rash from head to toe, the doctors elected to postpone the BMT. So now the search is on to find out what drugs didn't agree
Sagiegirl
in
MPN Voice
3 months ago
Help I don’t understand
So for the last 4 months I’ve been having pain in my muscles and head as well as tingling and a burning sensation. Also extreme fatigue and a red rash on my cheeks and trouble swallowing.My doctor gave me prednisone to treat because crp and esr were high. She also started me on plaquenil. Now before
So for the last 4 months I’ve been having pain in my muscles and head as well as tingling and a burning sensation. Also extreme fatigue and a red rash on my cheeks and trouble swallowing.My doctor gave me prednisone to treat because crp and esr were high. She also started me on plaquenil. Now before
Jadaboo4
in
LUPUS UK
1 month ago
Thymus Gland Cancer
My son is 29 years old and has been diagnosed with B2 stage4 of this cancer can anyone help as to if chemotherapy will help shrink his tumor so that he can have a resection?
My son is 29 years old and has been diagnosed with B2 stage4 of this cancer can anyone help as to if chemotherapy will help shrink his tumor so that he can have a resection?
enymeny
in
PMRGCAuk
6 months ago
Indigestion Medications
Hi All Can anyone recommend an effective indigestion tablet/liquid that is gluten free. I tried gaviscon advance recently which worked so well but then I reacted as if I’d eaten gluten, it is listed as gluten free so must have been another ingredient that I’m sensitive to, but don’t want to try it
Hi All Can anyone recommend an effective indigestion tablet/liquid that is gluten free. I tried gaviscon advance recently which worked so well but then I reacted as if I’d eaten gluten, it is listed as gluten free so must have been another ingredient that I’m sensitive to, but don’t want to try it
Galaxy2
in
Gluten Free Guerrillas
3 months ago
Happy Gobble Day
Hello, Hello, been visiting for 7 months first post…I’m a foreigner in Japan with prostate cancer … quite a journey … not that great at Japanese … which makes everything a bit more difficult .. on top of that I broke my finger 4 weeks ago so a bit difficult to type so I’ll keep this short.. appreciate
Hello, Hello, been visiting for 7 months first post…I’m a foreigner in Japan with prostate cancer … quite a journey … not that great at Japanese … which makes everything a bit more difficult .. on top of that I broke my finger 4 weeks ago so a bit difficult to type so I’ll keep this short.. appreciate
Yokohama2023
in
Advanced Prostate Cancer
6 months ago
COLONOSCOPY AND GASTROSCOPY TOMORROW
Hi everyone, having my first colonoscopy and gastroscopy tomorrow, to say I am stressed is an understatement, keep imagining all sorts of things, any advice on how to handle the anxiety would be greatly appreciated.
Hi everyone, having my first colonoscopy and gastroscopy tomorrow, to say I am stressed is an understatement, keep imagining all sorts of things, any advice on how to handle the anxiety would be greatly appreciated.
dojoman59
in
IBS Network
3 months ago
low lobulated lesion of rectum
found large low lesion of rectum after sigmoidoscopy discharged me back to gp So much pain lost weight can’t eat pain all time feels like sitting on golf ball this happened after hospital did manual evacuation after had new hip last Oct Feel so unwell all the time
found large low lesion of rectum after sigmoidoscopy discharged me back to gp So much pain lost weight can’t eat pain all time feels like sitting on golf ball this happened after hospital did manual evacuation after had new hip last Oct Feel so unwell all the time
Perrie46
in
Bowel Disease Support
3 months ago
stool withholding - dulcosoft liquid an option?
Hi We have a nearly 4 y/o daughter who started withholding about 4 months ago. She point blank refused any mivicol or cosmocol, not even the flavoured ones so we were told to try lactulose. But even then we can only get about 15ml in her a day because she likes water. someone recommended Dulcosoft
Hi We have a nearly 4 y/o daughter who started withholding about 4 months ago. She point blank refused any mivicol or cosmocol, not even the flavoured ones so we were told to try lactulose. But even then we can only get about 15ml in her a day because she likes water. someone recommended Dulcosoft
Sugarrush575
in
ERIC
3 months ago
Xeloda after IV Chemo
Just wondering about Oral Xeloda after 6 rounds of IV Chemo didnt have the exact desired results we wanted. Wondering if there are times Xeloda achieved clear Margins on Liver Mets when IV Chemo didnt after 6rounds. Thanks for any input.
Just wondering about Oral Xeloda after 6 rounds of IV Chemo didnt have the exact desired results we wanted. Wondering if there are times Xeloda achieved clear Margins on Liver Mets when IV Chemo didnt after 6rounds. Thanks for any input.
AutumnLove
in
SHARE Metastatic Breast Cancer
6 months ago
Great appointment and Happy American Thanksgiving from Canada!
My Mom had her monthly lab work with Faslodex injection today. Her labs are excellent and the liver met is stable. She’s in Saint John New Brunswick and I’m here visiting. My Mom’s also on a trial. Sending positivity and joy to all!!
My Mom had her monthly lab work with Faslodex injection today. Her labs are excellent and the liver met is stable. She’s in Saint John New Brunswick and I’m here visiting. My Mom’s also on a trial. Sending positivity and joy to all!!
Pups2Cute
in
SHARE Metastatic Breast Cancer
6 months ago
Prednisalone
I have wrote recently about hydroxychloroquine upsetting my stomach I have tried them three times, each time I have been taken steriods also ,after stopping g hydroxychloroquine agian about a week ago ,I find mystomach still in a mess ,now I'm beginning to wonder if it the steriods that are giving me
I have wrote recently about hydroxychloroquine upsetting my stomach I have tried them three times, each time I have been taken steriods also ,after stopping g hydroxychloroquine agian about a week ago ,I find mystomach still in a mess ,now I'm beginning to wonder if it the steriods that are giving me
Alice70
in
NRAS
3 months ago
Can't increase my iron levels
Hi all, I posted in February 2023 my low iron results and started taking 200 Ferrous Sulphate daily then. My iron results after 3 months were Ferritin 39 (20-204) Serum iron 18.6 (4.4-27.9) Feb 23 was: serum iron 11, ferritin was 29. So not a huge improvement. But now, a year on, even worse! Despite
Hi all, I posted in February 2023 my low iron results and started taking 200 Ferrous Sulphate daily then. My iron results after 3 months were Ferritin 39 (20-204) Serum iron 18.6 (4.4-27.9) Feb 23 was: serum iron 11, ferritin was 29. So not a huge improvement. But now, a year on, even worse! Despite
Suzanneharb
in
Thyroid UK
3 months ago
B12 Deficiency
Firstly I have it myself and due well on regular injections, however it is very poorly diagnosed and managed in this country, patients popped onto pills when they should be having jabs. 1. https://pernicious-anaemia-society.org/articles/nice-cks-b12-deficiency/#:~:text=Initially%20administer%20hydroxocobalamin
Firstly I have it myself and due well on regular injections, however it is very poorly diagnosed and managed in this country, patients popped onto pills when they should be having jabs. 1. https://pernicious-anaemia-society.org/articles/nice-cks-b12-deficiency/#:~:text=Initially%20administer%20hydroxocobalamin
MaryF
Administrator
in
Hughes Syndrome APS Forum
3 months ago
folate and b12
hi all, after having bloods done im yet again low on folate. Folate: 2.2ug/l (2.7-34 normal range) B12: 310ng/l (180-914 normal range) My assumption is my gp will put me back on supplements for folate my question being do i need to take b12 also? And as folate and b12 are related could this
hi all, after having bloods done im yet again low on folate. Folate: 2.2ug/l (2.7-34 normal range) B12: 310ng/l (180-914 normal range) My assumption is my gp will put me back on supplements for folate my question being do i need to take b12 also? And as folate and b12 are related could this
Confused1806
in
Pernicious Anaemia Society
3 months ago
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