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Experiences with
Giant axonal neuropathy
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Anyone had Open Reduction Internal Fixation, foot surgery
I had ORIF, see above surgery in 2021. I had plates,screws pins.I have had physio exercise, rehab swimming but my foot is sore. I am hoping for some relief.
I had ORIF, see above surgery in 2021. I had plates,screws pins.I have had physio exercise, rehab swimming but my foot is sore. I am hoping for some relief.
operalover12
in
Pain Concern
9 months ago
Restless legs
Morning hun. Iv had it for around 20 years iv always managed okBut Last Tuesday it started really bad and its day and night. Drs have given me some tablets for Parkinson they ste Not working. I'm just in the lounge walking all night 1-3 ,hour sleep a night Went to hospital Saturday they done bloods
Morning hun. Iv had it for around 20 years iv always managed okBut Last Tuesday it started really bad and its day and night. Drs have given me some tablets for Parkinson they ste Not working. I'm just in the lounge walking all night 1-3 ,hour sleep a night Went to hospital Saturday they done bloods
Frenhies
in
Restless Legs Syndrome
9 months ago
Pins and needle
I have had pins and needles in my feet for the past 2 years I saw a neurologist and there is no damage to the nerves I have injections every 3,months. What is causing this? Any treatment ideas.
I have had pins and needles in my feet for the past 2 years I saw a neurologist and there is no damage to the nerves I have injections every 3,months. What is causing this? Any treatment ideas.
Arranger
in
Pernicious Anaemia Society
9 months ago
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Bleeding after Gonal-F
I have started with Gonal-F three days ago. My period was already finished, but today I started bleeding. I don't understand why. Did anyone experienced something similar?
I have started with Gonal-F three days ago. My period was already finished, but today I started bleeding. I don't understand why. Did anyone experienced something similar?
WaitingforGabriel
in
Fertility Network UK
3 months ago
prudendal neuralgia
hi all!!! I hope this post finds you all well!! I have not posted in some time. I have been receiving bi-weekly B12 injections for 3 years. I have made a great deal of improvement and I am able to live my life with little disruption. I have a question though, does anyone have experience with prudendal
hi all!!! I hope this post finds you all well!! I have not posted in some time. I have been receiving bi-weekly B12 injections for 3 years. I have made a great deal of improvement and I am able to live my life with little disruption. I have a question though, does anyone have experience with prudendal
Ctadds1
in
Pernicious Anaemia Society
9 months ago
Success with clonidine as a supplementary medication
Sharing some recent success. I have taken pregabalin 300mg for a number of years but have also supplemented it with a very small dose of clonazepam (between 0.125 and 0.5m) I started weaning off clonazepam approx 3 months ago because it's not desirable to take benzodiazepines long term (i'm weaning
Sharing some recent success. I have taken pregabalin 300mg for a number of years but have also supplemented it with a very small dose of clonazepam (between 0.125 and 0.5m) I started weaning off clonazepam approx 3 months ago because it's not desirable to take benzodiazepines long term (i'm weaning
Hidden
in
Restless Legs Syndrome
9 months ago
QOL: summer cruise on the coast of Maine
I left on my summer cruise July 6 and continued thru August28. My old friend Kevin and I sailed for a week or so on his boat, fallowed by another old friend and his son on my boat for a week.Then my daughter and I went off for 4 days, to finish up the summer, my son and I spent two weeks on the coast
I left on my summer cruise July 6 and continued thru August28. My old friend Kevin and I sailed for a week or so on his boat, fallowed by another old friend and his son on my boat for a week.Then my daughter and I went off for 4 days, to finish up the summer, my son and I spent two weeks on the coast
yardsailor
in
Advanced Prostate Cancer
9 months ago
Where to buy supplies
I've had lots of helpful links to information etc in another post. But I'm still none the wiser on what and where to buy to self-inject. I have my first ever B12 jab booked for Monday afternoon at a beauty clinic but then I will want to continue myself. I already self-manage hypothyroidism (for which
I've had lots of helpful links to information etc in another post. But I'm still none the wiser on what and where to buy to self-inject. I have my first ever B12 jab booked for Monday afternoon at a beauty clinic but then I will want to continue myself. I already self-manage hypothyroidism (for which
FancyPants54
in
Pernicious Anaemia Society
9 months ago
Gabapentin
have been on Gabapentin on and off for approximately 6 months, I’ve tried to keep the dose as low as possible. I started on 100 mg before I went to bed this seemed to work with me only waking up once. It then got worse and I now suffer with pain across my shoulders at night aswell as in my legs, I upped
have been on Gabapentin on and off for approximately 6 months, I’ve tried to keep the dose as low as possible. I started on 100 mg before I went to bed this seemed to work with me only waking up once. It then got worse and I now suffer with pain across my shoulders at night aswell as in my legs, I upped
Catbennie
in
Restless Legs Syndrome
9 months ago
Weak legs along with neuropathy!
Hi, I have Pernicious Anaemia, and SACD a lot of neuropathy in mostly in my feet and legs I am noticing that my legs have been more and more weakening and stiffening Is this normal for neuropathy and will it get better? also am chronically exhausted! I am SI daily B12 and taking 5mg of folic acid,
Hi, I have Pernicious Anaemia, and SACD a lot of neuropathy in mostly in my feet and legs I am noticing that my legs have been more and more weakening and stiffening Is this normal for neuropathy and will it get better? also am chronically exhausted! I am SI daily B12 and taking 5mg of folic acid,
brenanddave
in
Neuropathy Support
9 months ago
Gonal-F and fyremadel experiences??
Hi everyone! We have our treatment plan and it’s proposed that I take gonal-f and fyremadel - Does anyone have experience of these, how did you manage, was there side effects, did it impact your mood?? I’m wondering if some time off work would be beneficial. Thank you in advance ☺️
Hi everyone! We have our treatment plan and it’s proposed that I take gonal-f and fyremadel - Does anyone have experience of these, how did you manage, was there side effects, did it impact your mood?? I’m wondering if some time off work would be beneficial. Thank you in advance ☺️
Pinklily2
in
Fertility Network UK
4 months ago
Chronic exhaustion
Hi, I have a question! I have had chronic exhaustion for about a year now It felt better when I started b12 in back in May, The problem is that once my neuropathy flared up from treating it with the b12 , the exhaustion came back I had COVID 6 weeks ago for the first time and was pretty sick It was
Hi, I have a question! I have had chronic exhaustion for about a year now It felt better when I started b12 in back in May, The problem is that once my neuropathy flared up from treating it with the b12 , the exhaustion came back I had COVID 6 weeks ago for the first time and was pretty sick It was
brenanddave
in
Pernicious Anaemia Society
9 months ago
Eustachian tube dysfunction is it possible this is connected to b12 deficiency?
My partner has has b12 deficiency symptoms for years, only recently diagnosed. He gets a fullness in his ears, he cant pop them even with all methods ENT teach you. I was just wondering if anyone else had had these problems. Initially we thought his off balance feeling when walking was caused by this
My partner has has b12 deficiency symptoms for years, only recently diagnosed. He gets a fullness in his ears, he cant pop them even with all methods ENT teach you. I was just wondering if anyone else had had these problems. Initially we thought his off balance feeling when walking was caused by this
Nic878
in
Pernicious Anaemia Society
9 months ago
Too much Gonal F
Hi everyone I was due to take 375ml of Gonal F. I had 75ml left in one epipen so took this and then stupidly set the second pen to 375ml, not realising until too late. I’m due for another scan tomorrow to see whether I’m ready for my trigger shot and am terrified I have messed this up. Has anyone
Hi everyone I was due to take 375ml of Gonal F. I had 75ml left in one epipen so took this and then stupidly set the second pen to 375ml, not realising until too late. I’m due for another scan tomorrow to see whether I’m ready for my trigger shot and am terrified I have messed this up. Has anyone
Blush06
in
Fertility Network UK
4 months ago
pain in knee
pain in knee and body the answer is green lipped mussel extract works for me better than new knee helps fm pain to
pain in knee and body the answer is green lipped mussel extract works for me better than new knee helps fm pain to
Eastwood1
in
Pain Concern
9 months ago
pain in knee
on class a for 15 years for fm how heed hew knee but I have found something for pain that is cheap and works in four days l have gone from stand still to getting movement back and so has wife that heeds hew Khee to you do hot have to go under the knife
on class a for 15 years for fm how heed hew knee but I have found something for pain that is cheap and works in four days l have gone from stand still to getting movement back and so has wife that heeds hew Khee to you do hot have to go under the knife
Eastwood1
in
Pain Concern
9 months ago
The Role of Neurotropic B Vitamins in Nerve Regeneration
Interesting paper. Highlights B1, B6 and B12. Summary and Conclusion: [i]"All of the three highlighted B vitamins may create the necessary environmental conditions for successful nerve regeneration, each of which via individual modes of action (concluded in Figure 1). Vitamin B1 essentially facilitates
Interesting paper. Highlights B1, B6 and B12. Summary and Conclusion: [i]"All of the three highlighted B vitamins may create the necessary environmental conditions for successful nerve regeneration, each of which via individual modes of action (concluded in Figure 1). Vitamin B1 essentially facilitates
Technoid
in
Pernicious Anaemia Society
9 months ago
Could this be the start of neuropathy?
I had my first Docetaxel infusion 6 days ago. Due to the Dexamethasone before and the Prednisone since, I have been really well. In the gym most days, and eating really well. I have had no side effects - until today. It's a minor thing, but both thumbs are a little sore. It's not a tingling sensation
I had my first Docetaxel infusion 6 days ago. Due to the Dexamethasone before and the Prednisone since, I have been really well. In the gym most days, and eating really well. I have had no side effects - until today. It's a minor thing, but both thumbs are a little sore. It's not a tingling sensation
CrocodileShoes
in
Advanced Prostate Cancer
9 months ago
Round 2 is over, looking for hope
Hi all, I have DOR as well as dealing with a male factor. I’m 31 and just come off my second round failing feeling so heartbroken. The first round we managed to retrieve 4 eggs and got to two embryos although they were low grade and neither stuck. This time round, drugs were changed and instead of just
Hi all, I have DOR as well as dealing with a male factor. I’m 31 and just come off my second round failing feeling so heartbroken. The first round we managed to retrieve 4 eggs and got to two embryos although they were low grade and neither stuck. This time round, drugs were changed and instead of just
cp92
in
Fertility Network UK
4 months ago
How much folic acid while on ED injections?
I inject b12 daily or at least every other day for over two years now. I'm lots better by now but have still slight polyneuropathy left. During this time I've experimented with different dosages of folic acid (as well as with methyl folate and folinic acid) but I'm still not sure what works best for
I inject b12 daily or at least every other day for over two years now. I'm lots better by now but have still slight polyneuropathy left. During this time I've experimented with different dosages of folic acid (as well as with methyl folate and folinic acid) but I'm still not sure what works best for
Asselchen
in
Pernicious Anaemia Society
9 months ago
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